Erika, the first time I visited there in September 2019, I noticed my tinnitus dropped significantly around Wednesday the second week of laser treatments. The FCR may have played a role in that as well. I did a total of 15 laser sessions, and FCR once in each nostril the very first day there.
Hey @scotty03874, thanks for sharing! I did 4 laser treatments total at 50% power (two per day for two days) and I feel like that is what made my tinnitus spike some and my reactive sensitivity increase. I didn't do any yesterday and we leave on Monday. I wish my ears could handle the laser and allow me to do more and experience what you did with it, but I'm afraid it's too much on the nerves right now. I just hope the spike and sensitivity calm down. I also know the shots to the ears can make things sensitive as well. Especially doing the shots 3 days apart!
Did you think the injections hurt? Mine weren't too bad. I'm guessing Dr. John is getting good at it, as he's probably done 50+ people now since I introduced him to Dr. Shim.
The injections themselves did not hurt and felt exactly like the steroid injections I got at ENT. I had some odd pains after the first ones but that was because of sinus/ear pressure from flights day before. That aftermath pain wasn't with second shots. I don't love how he has you lay down rather than recline at an angle. I felt it was much harder to not swallow laying completely flat as opposed to reclining at an angle like I did in ENT office. Dr. John also puts 2ml into the ears which I feel is a little more volume than the steroid amount. It felt very full! From what I understand, they have had a lot of people come in for SunaVae. I even glanced at the schedule sheet, there was at least one person every other day if not every day getting a shot.
Yes, my tinnitus ramped up a lot. But I also had lots of anxiety. I have had constant anxiety since my hearing problems.
I remember my tinnitus ramping up a lot for like a week or so after my 2nd steroid shot in my right ear before calming down, and that was just one ear so I'm hoping this calms down in the coming week or two! My high-pitched electric reactive hiss sends my anxiety and depression so bad.
I would think if Dr. John did 20-30 SunaVae injections, there would be more testimonials, good or bad.
Do you think you have had long term improvement with the LumoMed laser treatment? Maybe it's hard to tell if you have had an ear surgery?
I tried calling the Shea Clinic in Nashville, TN regarding ear injections. The nurse was supposed to call me back, but she didn't so far.
You can pick if you want the laser treatments. But he encourages it. My ear surgery was the worst mistake of my life, it failed and I lost a lot more hearing.
Well, like Scotty said, keep us updated! I was thinking of doing this treatment for pain hyperacusis but have been putting it off because I'm not sure if it would even help me or not. I don't live too far from Dr. John, but $20k and the severe pain I will endure to get there is keeping me from trying. Let us know if you experience any improvement at all.
Will do, @Brian Newman. You absolutely deserve some relief! I know they have patients who have loudness hyperacusis, I did not think to ask about pain hyperacusis, but when they reach out to me to check in, I can definitely ask.
If there is one thing I have learned since getting tinnitus, it is that we definitely can't predict the future.
I'm glad to contribute anything I can and have done to better my tinnitus and hearing issues.
@Ryan Scott, I only know as much as I have learned through some research. Many could poo poo on this and that is fine, we are all entitled to our opinions, but if there was one major disappointing, but unfortunately not surprising, aspect I learned very quickly in this community, as we all have, is that traditional medicine is not making the moves it should to help treat this condition. What's US Military number 1 disability? Tinnitus. How does that alone not put it at the top of research/funding lists? But again, I have my own thoughts on what really goes on behind the scenes with traditional medicine, and I'll just leave it at that.
Yes, Dr. John had my head at that angle as well. The only difference was I was laying down with head angle for this treatment, and for steroids I was reclined with the head angle. I just liked reclined better.
You would think Dr. John would have a medical recliner so you would have a choice. My ENT used a medical recliner for the injections.
Keep us posted with your progress please.I am back home after being in Florida for a week. My ears have gone through A LOT in the past 7 days. Not just the treatment, but flights to and from Florida, a different sleeping environment with unfamiliar sounds, going to a couple restaurants, a pool, and a lot of driving around to get to places.
My tinnitus is sensitive and "on edge" as my reactivity has been tested and pushed the furthest it's been through all of this. I'm just happy to be back home and in my quiet environment.
Praying very hard for improvements in the weeks/months ahead and hoping the required traveling/means of transportation/lodging/etc. doesn't hinder any healing!
Thank you for those in this thread for the kind words, encouragement, and well wishes.
I will! Thank you, Scott, for all your feedback and sharing experiences with the clinic and treatments. I told them I heard about them through you and they remembered you well!
Good.
Good to know because if I go back, they're going to discount me a lot. Can you believe when I went to Dr. John with Dr. Shim, I brought up that this will likely significantly increase his practice and he told me "I'm probably losing tons of money because of all the appointments I had to cancel today due to Dr. Shim training me" lol. Now you see his schedule with multiple SunaVae people on the weekly schedule at probably $14,000 a whack. He probably does a dozen at least every month all because of me. I found his comment about him losing money that day when I introduced him to Dr. Shim a little shrewd. Funny how that works...
Using Calm Magnesium powder from Amazon helps me a lot. But it gives you diarrhea
Oh I would definitely think you have much room to get a discount. And yeah, his comments in certain situations can come off arrogant or shrewd as you said. He was good with me during the treatments, but you can tell he gets pissy and just the way he says things to staff. The man doesn't eat any sugar and is so skinny so I think he just needs like a cookie and a beer! Lol.
I can't agree more with you and he does kinda talk oddly to his staff members. Good thing you have a husband that loves you and was willing to agree with you on rolling the dice on $21k. Keep us posted on your improvements...Oh I would definitely think you have much room to get a discount. And yeah, his comments in certain situations can come off arrogant or shrewd as you said. He was good with me during the treatments, but you can tell he gets pissy and just the way he says things to staff. The man doesn't eat any sugar and is so skinny so I think he just needs like a cookie and a beer! Lol.
We put around $21k on the CareCredit. In addition to SunaVae and 4 laser treatments, I did brain protocol with the VSEL stem cell IV, LumoBlue IV twice, Ozone IV once, and 2 FCRs.
My husband, God love him, REALLLLLY hopes this brings me substantial relief.
This is so sad! $21k on a credit card for treatments that have no evidence base or robust anecdotal base either. This money only enriches the pockets of this Dr. John charlatan.
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