Guys, Any Words on Encouragement?

[Bam]

Yes, credit to him. But he also logged on here again yesterday so he's obviously hit a rough patch. We need to support him

There's no way not to struggle with this if it's severe and you're not made of emotional granite. And actors/writers tend to be emotionally sensitive which is a good trait for the job, but the absolute worst trait for a tinnitus sufferer.

From what @dfl has posted about how his came on following stress and the nature of it- electrical storm- it sounds like a similar beast to mine which again came rolling in from nowhere. I would be making assumptions saying we have similar temperaments but it's likely as we have a fair bit in common.

 

[TuxedoCat]

I had a great life, very blessed in many ways, and this shit came from nowhere. I just miss everything that was my normal and has been lost in this chaos of noise.

Well, you took the words right out of my mouth, except I would say I had a perfect life.

 

[Bam]

Well, you took the words right out of my mouth, except I would say I had a perfect life.

God. No wonder we snap at each other all the time. Please bear in mind that I post a lot of this shit when I'm half cut. My life was far from perfect but I was always content when it was just me and my dog in nature. And I was successful enough to basically chill with him and do as I pleased. Now that's all gone to shit. Luckily he's getting on a bit so if nobody finds a cure I can just bow out with him when he's had enough. I have no love to give anyone else in this state. No kids.

 

[Bill Bauer]

Well, you took the words right out of my mouth, except I would say I had a perfect life.

I was about to have the most incredible year of my life, when T hit... I guess it was not to be.

 

[TuxedoCat]

And I was successful enough to basically chill with him and do as I pleased. Now that's all gone to shit.

We almost always had pets- First an orange tabby cat, then a pure white cat, at which point I met my husband who had a golden retriever. For awhile we tried having both of them together but it always degenerated into the dog chasing the cat around the house, except for a very brief period when the 10 pound cat would hiss at the 95 pound dog who would cower in fright. That was a sight! Well the dog won out and the cat went to live with a friend. The dog, my husband and I hiked all around the state of New Jersey. We each had a son from a previous marriage so sometimes one or the other would be with us.

We're empty nesters now, both left our corporate jobs and became grandparents this year. Hence, the perfect life- minimal responsibilities, except for taking care of my parents, kids off the payroll, both of us doing volunteer work and teaching. Some travel in between. And then, rock my world. I took it hard, very hard.

 

[Bam]

I took it hard, very hard.

I don't care what anyone says. Look what Dfl posted about having cancer and this being 'other level stuff'.....he's right. I dealt with some heavy shit in my life, but this, this is from someplace else.....Someplace not right. This loud relentless tinnitus burrows down in to you mentally like nothing else.

 

[TuxedoCat]

I don't care what anyone says. Look what Dfl posted about having cancer and this being 'other level stuff'.....he's right. I dealt with some heavy shit in my life, but this, this is from someplace else.....Someplace not right. This loud relentless tinnitus burrows down in to you mentally like nothing else.

What I don't understand is why any sensate healthcare professional would say that tinnitus is benign. My brain is making noise and you're telling me it's no big deal?!

That's where my anger, frustration, bitterness etc. is directed- at the medical profession and medical research. And I'm disappointed in the ATA and BTA for not having held them accountable.

 

[Bam]

What I don't understand is why any sensate healthcare professional would say that tinnitus is benign. My brain is making noise and you're telling me it's no big deal?!

That's where my anger, frustration, bitterness etc. is directed- at the medical profession and medical research. And I'm disappointed in the ATA and BTA for not holding them accountable.

The tinnitus community as a whole makes it easy for them. That was my coping police point. There is a hardcore of chest beaters, who for the most part have very mild T, telling the world its no big deal. They feed the ATA/BTA/medical profession coping dogma and severe sufferers are then easily written of as non 'habituators' who only have themselves and their negative/mentally ill mindsets to blame.

 

[TuxedoCat]

There is a hardcore of chest beaters, who for the most part have very mild T, telling the world its no big deal. They feed the ATA/BTA/medical profession coping dogma

So, question- are we sure its because they have mild tinnitus OR have the medical profession created this hardcore of chest beaters with CBT and the like and ATA and BTA have perpetuated it? Take a look at this post on BTA's Facebook page and how they term it "some wise words." There were 189 Likes on this, 25 comments and 46 shares. Anyway, its an honest question. I've only had tinnitus for a year and a half and have only been on TT for 9 months. Please do not go and post to this.

British Tinnitus Association
December 16 at 1:30 PM ·
Day 3 of #12DaysOfChristmas and we have some wise words. We hope they help. #Tinnitus #BTA

 

[Starthrower]

I had a great life, very blessed in many ways, and this shit came from nowhere. I just miss everything that was my normal and has been lost in this chaos of noise.

@Bam this happened to me also in one single day back in 2002. In a single day life as I knew it was ruined.

There really is not anything I can write to you because I hated everything and everyone who belittled my suffering back then. There was absolutely no understanding from the people in my world. I ended up being involved with others in the same situation as myself with tinnitus.

It is now 2018 and my life is different but I am still here with a greater understanding that I would never had known existed.

Life can go on for us.

 

[Bam]

So, question- are we sure its because they have mild tinnitus OR have the medical profession created this hardcore of chest beaters with CBT and the like and ATA and BTA have perpetuated it? Take a look at this post on BTA's Facebook page and how they term it "some wise words." There were 189 Likes on this, 25 comments and 46 shares. Anyway, its an honest question. I've only had tinnitus for a year and a half and have only been on TT for 9 months. Please do not go and post to this.

British Tinnitus Association
December 16 at 1:30 PM ·
Day 3 of #12DaysOfChristmas and we have some wise words. We hope they help. #Tinnitus #BTA

View attachment 25078

The BTA have no money and nobody really gives a shit about our suffering or curing us.....I wonder why.

 

[Agrajag364]

@Bam this happened to me also in one single day back in 2002. In a single day life as I knew it was ruined.

There really is not anything I can write to you because I hated everything and everyone who belittled my suffering back then. There was absolutely no understanding from the people in my world. I ended up being involved with others in the same situation as myself with tinnitus.

It is now 2018 and my life is different but I am still here with a greater understanding that I would never had known existed.

Life can go on for us.

I already had a bad quality of life due to many health problems when I got tinnitus despite being relatively young. When I got the tinnitus and lost treasured silence on top of that I was like are you FECKING kidding me, what is this, trolling? For months. But that's life! I appreciate those who had a great quality of life before this might be even more pissed off.

 

[Margaret21]

thank you all so much- I did a video for Dr. Josef Rauschecker (who did an amazing Ted Talk on Tinnitus) to help raise funds for his research- he really understands this malady- BUT you are all so right- there is pressure put on people in my line of work never to show you have an ailment of any kind because while outwardly people are understanding and supportive, there is always the problem you may be seen as "damaged goods." I have been through a lot (as I'm sure most of us here have) I was run by a car and spent eight months with no movement, had cancer, etc- but tinnitus is some next level stuff- my goal is to learn how to make the devil's hiss sound like an angel's whisper.

Very true. This condition has been life changing and the hardest thing is that no one I know has any clue of the suffering. Surrounded by people yet I have never felt so alone since this appeared out of the blue. I share your goal and I will keep the hope and faith that you, me and everyone here will get there. Hugs.