New here and new T sufferer. Mine started about a month back related to an abscessed right rear molar. Unfortunately my dentist wasn't around and the guy I saw proscribed me ibuprofen 600mg for the pain - should have just pulled the damn tooth without the freezing - even though I told him I had high BP and it was on record in the office. So I did that an amoxicillin for a week - I've done plenty of penicillin in the past with zero problems - but I didn't know ibuprofen spikes BP. Well mine shot up running 160-190 and spiking over 200 at points. I thought it was from the pain and inflammation of the tooth. Anyway, the T started for about 2 days, disappeared for 2 then reappeared and has been here since.
And of course the timing couldn't have been worse as my doctor was moving and on vacation so trying to get help has been like pulling hens teeth but it's coming together at least. Saw the cardiologist last week - with all the tests coming up next week - and seeing a neurologist on Friday - my doctor says she's really good and has a sterling reputation, so fingers crossed. He also gave me a new course of antibiotics - doxycyline hyclate 100mg - because he thinks my T might be being cause by a sphenoid sinus infection. And needle in a haystack - not trying to get my hopes up - I came across a post on CNN from a couple of years back about T and a guy had real similar circumstances to mine and after a week on the hyclate his T stopped. It's probably too much to hope but fingers crossed. I had botched sinus surgery back in Feb and a lot of problems since then so that's the one reason my doc thinks it may be related. I was supposed to see an ENT specialist in Nov. for this issue anyway, but depending on what the neurologist says my doc will do his best to get it bumped up or get me into see someone else faster. Also going to see an oral surgeon - seeing as this started in the jaw - next week and an audiologist - just to cover all the bases.
The early consensus seems to be that this is stress related, but who knows. I've been doing a ton of research and after a while it gets to be more confusing than clarifying. Most of the time it's pulsatile in nature, but it's mostly bilateral, but there are somatic components to it as well. If I overturn my head hard to the left of right the noise gets much louder, same yawning, but not just moving my jaw around, only really engaging the muscles. Same with BP, anything that elevates my BP definitely makes it louder and calmer really quiets it. A few times I've woken up with it just barely there and only when I get going does it start. And it seems like a lot of other people it seems to go up and down in volume as well, though fortunately it seems to be on the lower side most of the time. So somatic, pulsatile, somatosensory? Who knows. But hopefully I'll find out ASAP and then be able to start dealing with it better. Other thing is I find I'm super tense in my spine - upper and lower - and the other soma cues make me wonder if this is a tension things. Enh, guess we'll see.
Meantime, I keep researching, changing diet for the better, trying to exercise and keep the stress down. The hardest part is sleeping, getting to sleep actually. I'm using sounds and melatonin - switching off to magnesium tonight actually - and I find when I actually get down I'm good for 4-6 hours then if I wake up I can generally drift off again for another hour or two as the T is usually quite low. The upside is I've lose 10 pounds in the last month - 40 more to go to reach BMI! - and my doctor's never been happier with my blood results and I even stopped taking fibrates. It's amazing how a good diet and some exercises actually work isn't it?
Still, that stress of the evening after 8pm trying to unwind with the T going on is hard as you all know.
Sorry for the long post. Thanks for all being here. Thanks to all the mods and managers here for providing this space. I find it mind boggling that so many people all over the world suffer from this and it doesn't receive massive attention not to mention funding. You can bet if someone like Bill Gates got T there'd be a whole lot more advances by now, heh. Well you know where to donate your fortune if you ever win the Powerball. Looking forward to getting to know you and trying to help out and get some help in turn. It's nice meeting you and best of luck to all of us. Thanks again.
Sean
And of course the timing couldn't have been worse as my doctor was moving and on vacation so trying to get help has been like pulling hens teeth but it's coming together at least. Saw the cardiologist last week - with all the tests coming up next week - and seeing a neurologist on Friday - my doctor says she's really good and has a sterling reputation, so fingers crossed. He also gave me a new course of antibiotics - doxycyline hyclate 100mg - because he thinks my T might be being cause by a sphenoid sinus infection. And needle in a haystack - not trying to get my hopes up - I came across a post on CNN from a couple of years back about T and a guy had real similar circumstances to mine and after a week on the hyclate his T stopped. It's probably too much to hope but fingers crossed. I had botched sinus surgery back in Feb and a lot of problems since then so that's the one reason my doc thinks it may be related. I was supposed to see an ENT specialist in Nov. for this issue anyway, but depending on what the neurologist says my doc will do his best to get it bumped up or get me into see someone else faster. Also going to see an oral surgeon - seeing as this started in the jaw - next week and an audiologist - just to cover all the bases.
The early consensus seems to be that this is stress related, but who knows. I've been doing a ton of research and after a while it gets to be more confusing than clarifying. Most of the time it's pulsatile in nature, but it's mostly bilateral, but there are somatic components to it as well. If I overturn my head hard to the left of right the noise gets much louder, same yawning, but not just moving my jaw around, only really engaging the muscles. Same with BP, anything that elevates my BP definitely makes it louder and calmer really quiets it. A few times I've woken up with it just barely there and only when I get going does it start. And it seems like a lot of other people it seems to go up and down in volume as well, though fortunately it seems to be on the lower side most of the time. So somatic, pulsatile, somatosensory? Who knows. But hopefully I'll find out ASAP and then be able to start dealing with it better. Other thing is I find I'm super tense in my spine - upper and lower - and the other soma cues make me wonder if this is a tension things. Enh, guess we'll see.
Meantime, I keep researching, changing diet for the better, trying to exercise and keep the stress down. The hardest part is sleeping, getting to sleep actually. I'm using sounds and melatonin - switching off to magnesium tonight actually - and I find when I actually get down I'm good for 4-6 hours then if I wake up I can generally drift off again for another hour or two as the T is usually quite low. The upside is I've lose 10 pounds in the last month - 40 more to go to reach BMI! - and my doctor's never been happier with my blood results and I even stopped taking fibrates. It's amazing how a good diet and some exercises actually work isn't it?
Still, that stress of the evening after 8pm trying to unwind with the T going on is hard as you all know.Sorry for the long post. Thanks for all being here. Thanks to all the mods and managers here for providing this space. I find it mind boggling that so many people all over the world suffer from this and it doesn't receive massive attention not to mention funding. You can bet if someone like Bill Gates got T there'd be a whole lot more advances by now, heh. Well you know where to donate your fortune if you ever win the Powerball. Looking forward to getting to know you and trying to help out and get some help in turn. It's nice meeting you and best of luck to all of us. Thanks again.
Sean
Member
