Is There Any Real Hope?

IvanRus

Member
Author
Jul 2, 2017
493
Tinnitus Since
04/2017
Cause of Tinnitus
ototoxicity
Do you believe that you will hear the silence in this life? That you as before, can enjoy silence. Do you think there are prerequisites for this, is science ready to make discoveries in the direction of tinnitus and sensorineural hearing loss at least in the next 7-10 years? What could it be? Stem cells, gene therapy? Is there any real hope?
 
Do you believe that you will hear the silence in this life? That you as before, can enjoy silence. Do you think there are prerequisites for this, is science ready to make discoveries in the direction of tinnitus and sensorineural hearing loss at least in the next 7-10 years? What could it be? Stem cells, gene therapy? Is there any real hope?

When you habituate to tinnitus silence will not seem so important to you as it does now. Other things will take precedence in your life and the tinnitus will take a back seat. You are still new to this condition and it does take time to adjust. Try and see a Hearing Therapist or Audiologist who's trained in the treatment and management of tinnitus and also talk with your GP about how you feel.

All the best
Michael
 
I feel like help in the form of technological advances rather than medical advances is more likely. I am unsure what form that will take, but I think the potential is there.

When I first lost my hearing, my grandmother told me how much hearing aids had improved over the years. Her optimism surprised me, she very much felt that I would see a cure for hearing loss and tinnitus in my lifetime.
 
When you habituate to tinnitus silence will not seem so important to you as it does now. Other things will take precedence in your life and the tinnitus will take a back seat. You are still new to this condition and it does take time to adjust. Try and see a Hearing Therapist or Audiologist who's trained in the treatment and management of tinnitus and also talk with your GP about how you feel.

All the best
Michael
What is tinnitus-silence? Is this possible? I'm not really a beginner. How long have you had tinnitus? Are you a little used to it? Do you apply any sedatives? Do you have a decrease in hearing? And yet, for some real regenerative technology, you do not expect in the next 7-10 years? Thank you.
 
I feel like help in the form of technological advances rather than medical advances is more likely. I am unsure what form that will take, but I think the potential is there.

When I first lost my hearing, my grandmother told me how much hearing aids had improved over the years. Her optimism surprised me, she very much felt that I would see a cure for hearing loss and tinnitus in my lifetime.
That is, in your opinion, it is the technology of hearing aids, or implants? Yet this is not quite a rational way.
 
What is tinnitus-silence? Is this possible? I'm not really a beginner. How long have you had tinnitus? Are you a little used to it? Do you apply any sedatives? Do you have a decrease in hearing? And yet, for some real regenerative technology, you do not expect in the next 7-10 years? Thank you.


HI @IvanRus

I have had tinnitus for 21 years. It has been very severe at times and have written about it, please read my post: https://www.tinnitustalk.com/threads/my-experience-with-tinnitus.12076/

When you habituate to silence will not seem so important as your brain will dismiss the tinnitus as unimportant. Please read my post: https://www.tinnitustalk.com/threads/the-habituation-process.20767/

I do not have any decrease in hearing. My tinnitus ranges from: silent, mild, moderate, severe. It no longer reaches extreme severe levels that would last for days.

Michael
 
Don't rely to much in doctors or science, they are people just like us, they go to work at 9 and get home at 5.

There is no magic cure for something as complex as tinnitus.
 
That is, in your opinion, it is the technology of hearing aids, or implants? Yet this is not quite a rational way.
I think hearing aids will continue to advance, but I think even technological improvements that can help with diagnosis - like better ear imaging - will make a difference.
 
Don't rely to much in doctors or science, they are people just like us, they go to work at 9 and get home at 5.

There is no magic cure for something as complex as tinnitus.

These are poor sweeping statements...

I am a clinician and work 8am - 8pm most days. I'd give my right arm to work 9 - 5

There may be no "magic cure" but there are lots of treatments out there
 
Don't rely to much in doctors or science, they are people just like us, they go to work at 9 and get home at 5.

There is no magic cure for something as complex as tinnitus.
Do you think? It's strange to me that there is still not even a single theory of tinnitus. What a complex system of inner ear. There are 2 basic theories - Peripheral theory of tinnitus and Central theory of tinnitus. Have you adapted? Do you have hearing loss?
 
These are poor sweeping statements...

I am a clinician and work 8am - 8pm most days. I'd give my right arm to work 9 - 5

There may be no "magic cure" but there are lots of treatments out there
Hello, what do you mean by "magic treatment" - stem cells, gene therapy? Standard methods of treatment, as such, do not exist. The problem gets little attention. You need to learn how to regenerate the hair cells. Vps is also tinnitus, does it not affect your performance?
 
Do you think? It's strange to me that there is still not even a single theory of tinnitus. What a complex system of inner ear. There are 2 basic theories - Peripheral theory of tinnitus and Central theory of tinnitus. Have you adapted? Do you have hearing loss?

I don't have hearing loss in the speech range of frequencies but having been listening to loud music through headphones for years (to relieve stress) I suspect I have hearing loss in the upper frequencies. Some music, etc, violins can sound a bit distorted at the high end.

I have had Ti for over a year and suppose I have just got used to it

What is the peripheral theory of tinnitus? I'm beginning to understand the central theory
 
I don't have hearing loss in the speech range of frequencies but having been listening to loud music through headphones for years (to relieve stress) I suspect I have hearing loss in the upper frequencies. Some music, etc, violins can sound a bit distorted at the high end.

I have had Ti for over a year and suppose I have just got used to it

What is the peripheral theory of tinnitus? I'm beginning to understand the central theory
How did you get used to it? Have you taken antidepressants / tranquilizers? Loud sounds do not annoy you? According to the first, peripheral (or cochlear) theory, tinnitus is considered as a reaction to the death of cells in the inner ear - those that transform sounds into nerve impulses. This is due to a constant sound load of great strength, which we are accustomed to and do not notice in everyday life. Auditory cells do not die right away, but for a while they are in a dying state - parabiosis - while their function is abruptly broken and they are no longer able to generate impulses specific for each sound, but send a "constant stream" of information to the brain that we and perceive as noise. Over time, some cells die, but others are in a state of parabiosis. According to this theory, tinnitus originates in the peripheral nervous system and cochlea.
 
How did you get used to it? Have you taken antidepressants / tranquilizers? Loud sounds do not annoy you? According to the first, peripheral (or cochlear) theory, tinnitus is considered as a reaction to the death of cells in the inner ear - those that transform sounds into nerve impulses. This is due to a constant sound load of great strength, which we are accustomed to and do not notice in everyday life. Auditory cells do not die right away, but for a while they are in a dying state - parabiosis - while their function is abruptly broken and they are no longer able to generate impulses specific for each sound, but send a "constant stream" of information to the brain that we and perceive as noise. Over time, some cells die, but others are in a state of parabiosis. According to this theory, tinnitus originates in the peripheral nervous system and cochlea.


How did I get used to it? Probably just like the traffic outside my window... but it does give me gentle reminders from time to time when stress makes it louder

Thanks for the explanation
 
How did I get used to it? Probably just like the traffic outside my window... but it does give me gentle reminders from time to time when stress makes it louder

Thanks for the explanation
How long did it take you? Do you have a hearing loss on the audiogram? What medicines do you take / take?
 
After 20 years I can tell you i have no hope. Its just getting louder and louder...that's about it. Doctors are 100% useless. But cure will come along with nano technology, but not for at least another 25-40 years. Tinnitus is deep in the brain they cant do much with current technology. jmho
 
Do you believe that you will hear the silence in this life? That you as before, can enjoy silence. Do you think there are prerequisites for this, is science ready to make discoveries in the direction of tinnitus and sensorineural hearing loss at least in the next 7-10 years? What could it be? Stem cells, gene therapy? Is there any real hope?

I am loosing all hope. I doubt that I will ever hear silence again, but the worst thing is H. It is making my life so difficult. Not a day passes by where I don't cry..
 
In the first line of Tinnitus 101, it will say that tinnitus can be caused by many things. The list is long and some of those things include hearing loss, but also included are ear wax and ETD. Health conditions, disease and the aging process may be a factor. Sometimes improvement of problems such as with neck and jaw can lower ringing.

Getting real, the only thing that can help the masses of tinnitus sufferers turn the ringing off is a FDA approved block buster brain drug. All compounds must be tested and that will require a lot of capital and commitment from the large drug companies.
 
I believe there will be cures soon from certain causes of T. How I see it is we know whole lot more than what we did before. For example stem cells that helped other animals hear again from too much sound and soon to be tested on people. That's a step forward. We didn't have that around before until some what recently. Everyday/month there's a new discovery which helps them come closer. Remember that now we live in an age where technology is advancing. What we ALL need to do is help bring awareness so there's is more money to fund research. The more money they have the better speed of treatment,cure,prevention they can provide. The more ,they'll able to understand with increase in testing and trails comes in from funds . More awareness=more funds for research=increase speed to cures and better treatments. Thats just my thoughts
 
Tinnitus is deep in the brain they cant do much with current technology. jmho

Depression, anxiety, parkinson etc. is also very much deep in the brain and we have been treating those conditions for decades now. Either there will be a breakthrough in stem cell technology or there will be a drug that at least can provide some relief.. That´s what I believe after my 20 years of suffering. If I stop believing I could just give up...
 
Well I don't think they know much more...I was on a board like this 15 years ago discussing exactly same treatments. So from my negative perceptive they don't know much at all...they have a lot of speculation.
 
No no silence.. at least no cure .. we do understand too little about the T itself .. .. .. maybe in 100 years ... still will try stem cell in hmm 6-18 month as soon I get the 25k together ... you do not need silence to have a great life ... well I hope I am mistaken but I rarely am :) .. hope is overrated ... live now not tomorrow ...just my honest opinion
 
No no silence.. at least no cure .. we do understand too little about the T itself .. .. .. maybe in 100 years ... still will try stem cell in hmm 6-18 month as soon I get the 25k together ... you do not need silence to have a great life ... well I hope I am mistaken but I rarely am :) .. hope is overrated ... live now not tomorrow ...just my honest opinion

Life with T at low level is manageable but H is not.
 
Life with T at low level is manageable but H is not.

Yep I must fully agree as someone who had it at all levels, once you reach a certain T noise level point its a whole new beast. I hope I can adjust because there is only two ways out, you adjust or you lose your mind. Its very scary.
 
Yep I must fully agree as someone who had it at all levels, once you reach a certain T noise level point its a whole new beast. I hope I can adjust because there is only two ways out, you adjust or you lose your mind. Its very scary.

It is truly frightening.
 
Well I don't think they know much more...I was on a board like this 15 years ago discussing exactly same treatments. So from my negative perceptive they don't know much at all...they have a lot of speculation.

I totally understand you, I really do.
But, there are things happening now that did not take place 15 years ago dont you agree?
It has to start somewhere, and suddenly it will be some breakthrough... I wish that for all of us.
 
Life with T at low level is manageable but H is not.

HI @dpdx

Please print and read the articles that I have given you in the links. It is important that you read them regularly because they are a form of counselling. By reading them regularly and reading the messages on the "positivity thread" from members in this forum, you will reinforce positive thinking. This is very important especially in the early stages which you are in. The negativity that you are feeling and your emotional response to tinnitus and hyperacusis, are part and parcel of this condition. It is for this reason, I have advised you to see your GP/doctor. Something may be prescribed to help your moods. With time you will improve but you have to be patient. Read the articles as I've advised and the positivity messages in this forum.

Michael
 
After 20 years I can tell you i have no hope. Its just getting louder and louder...that's about it. Doctors are 100% useless. But cure will come along with nano technology, but not for at least another 25-40 years. Tinnitus is deep in the brain they cant do much with current technology. jmho

You say doctors are 100% useless. That is your experience from a very small sample of doctors that you may have encountered during your life. Of course, there are many doctors who don't understand tinnitus but making such sweeping stereotypical statements just highlights your apathy towards them.

I was negative once but hey - life's too short. I have other things to worry about such as chronic back pain for the last 20 years. My tinnitus doesn't even come close now in comparison
 
Celgene's stock price is dropping considerably today due to sales of two approved drugs. One drug indirectly does connect to tinnitus as it's for arthritis. Just too many side effects.

I've been to a few drug and bio conferences a few years ago, and at that time I was laughed at when I mentioned drug development for tinnitus. The common response was - we have shareholders to consider. It's always a shot in the dark when considering neuro drug development for any condition.

Every major drug company has considered stem cell research, but many large public drug companies have given up on stem cells all together. Some do use pathways like with cancer and tissue regeneration. Many smaller companies that were involved in stem cell research have gone under. The hearing stem cell companies show promise, but none of them will get funding from larger drug companies if they focus too much on the tinnitus aspect.

Tinnitus is a dirty word to large drug companies. To our disadvantage, a block buster neuro drug will be the only treatment that will help the masses of tinnitus sufferers. Stem cell treatment will only help a limited few with tinnitus.
 

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