Lenire — Bimodal Stimulation Treatment by Neuromod

[alex1975]

Shoot, I haven't gotten any email from Neuromod but I just signed up three weeks ago. So probably I'm in the next round? April perhaps :-/

 

[ChrisBoyMonkey]

Shoot, I haven't gotten any email from Neuromod but I just signed up three weeks ago. So probably I'm in the next round? April perhaps :-/

You never know, they might have cancellations.

 

[F-u-T]

Got my invitation to the dance as well!

 

[nuno1976]

For most people the results aren't complete silence level, but it is helping most by some reduction of volume, change of pitch, making it easier to mask and forget about in day to day life, etc. There is a small minority that it may not help much, but the overall the odds are still much in our favor for at least some reduction.

You can look over the User Experiences thread to help, but there actually has been more positive feedback here from those same users on this thread and also from people other members know but aren't on the site.

I'll put it this way. Look at how many people are happy about finally getting appointments, myself included.

Being happy about getting an appointment has nothing to do with the treatment effectiveness...

 

[AfroSnowman]

@AfroSnowman would you be so kind as to reminding us when you submitted your interest to Neuromod?

July.

 

[Ruse]

Being happy about getting an appointment has nothing to do with the treatment effectiveness...

Neither does writing sad comments on a forum late at night.

 

[nuno1976]

Neither does writing sad comments on a forum late at night.

I had no intention of being rude.
I just tried to be short and straightforward.
I'm sorry if it sounded different.

Have a great night.

 

[ChrisBoyMonkey]

Being happy about getting an appointment has nothing to do with the treatment effectiveness...

Actually it does. People are happy to get an appointment because they've been following the reviews and this thread, like I said earlier, myself included.

Now we could use more reviews to further verify what we are seeing, but so far it looks along the lines of what Neuromod has been saying all along: this is the first treatment that actually works.

 

[vttbx]

Got my invitation to the dance as well!

When did you submit your request?

 

[MRItechssuck]

I need to look into this... if it is still open... so is the travel and hotel on your personal dime?

 

[ajc]

so is the travel and hotel on your personal dime?

Obviously travel and accommodation is on your personal dime.

 

[ChrisBoyMonkey]

I need to look into this... if it is still open... so is the travel and hotel on your personal dime?

Yes, but if you book ahead the flights probably won't be too bad and you can look for a hostel to minimize expenses.

 

[F-u-T]

When did you submit your request?

June.

 

[MRItechssuck]

Thank you... I have some catching up to do!

 

[Eric N]

I got my first appoint offer for Friday, 27th of March 2020 and I signed up in June of 2019.

Now I need to think whether to go or not, based on the reviews it does not seem that it works very well but there isn't going to be another treatment anytime soon and my severe tinnitus is very difficult to live with. I also need to consider the risk of taking a plane and its noise.

What would you do?

 

[nuno1976]

Hi,

Is there any structured analysis of the Lenire Users Feedback/Reviews?

I have been reading the Lenire - User Experiences and Reviews thread and made my own summary, but wonder if anyone has any more data.

Here is my summary:
Total: 10
5 Slight Improvement
3 No Effect
1 Slightly worsened
1 Worsened


RedKnight: Slight Improvement

I now have significant periods of silence throughout the day.
That said, I was in a much better place and was happy with the treatment results.

Liz Windsor: Slight Improvement

I believe that I can now judge better what changes Lenire is potentially causing to my tinnitus. I have to say that it is in no way any worse. I do notice subtle changes. Odd things like I am definitely sleeping better. Not every night, but often enough to really notice a benefit.

CojackB: No Effect

Honestly, I've been a bit disheartened in the build up to the final appointment due to my tinnitus not really changing.

TinMan2019: No Effect

Not great news truth be told. I still have tinnitus.
Anyway, I do occasionally have good days, but I had them before I started treatment.

ruud1boy: No Effect

I'm coming to the end of my 12 weeks - I'm back in Dublin next Tuesday - and unfortunately, I haven't seen any real change in my tinnitus
-----------
My 12 week report - no improvement as yet.

BigNick: Slight Improvement

My tinnitus still fluctuates, it can be softer, it can be intrusive but in the big picture, things are a bit better.

Allan1967: Worsened

Nonetheless my experience with Lenire was that it instantly increased my tinnitus and as the weeks progressed my reactivity went through the roof as well.

Gee82: Slightly Worsened (new tone)

One thing that I noticed and to be honest didn't expect: since I started Lenire I noticed an additional tone in my left ear
Overall I am not feeling any better since I started Lenire, so at 12 weeks I line up with the other unlucky users who had no consistent improvement.

josh1994: Slight Improvement

Overall I would say that the pitch of my head tinnitus has lowered a fair bit and it is definitely a hiss now compared to the pure tone it once was. It's difficult to quantify the reduction in sound level as my tinnitus was quite mild

Drone Drapper: Slight Improvement

My tinnitus has improved more in terms of pitch and tone than actual volume, which is good.

 

[AfroSnowman]

What would you do?

I am in the same quandary you are, although my flights are going to be much much longer.

In the face of uncertain results I wasn't sure if it was worth the money and time to do it. It was my wife that convinced me otherwise. She told me to put it on the other foot, if it were her or our kid that had this condition would I push for them to spend the money to give it a try even knowing it may not make much or any difference.

The answer was yes of course I would tell her to go.

So it might be a good thought exercise to imagine that if it were your wife or child or parent (whoever you might have in your life) who was struggling through the same pain you are whether you would encourage them to give it a shot.

 

[AliceW]

I'm actually talking to a person who Lenire works very very very well for.
No more tinnitus at all after 7 weeks of tretment.
He probably will provide his feedback here on Tinnitus Talk later on.

Lenire really can work.
The first real available treatment in tinnitus history...
Let's keep up the hope!

 

[ChrisBoyMonkey]

I got my first appoint offer for Friday, 27th of March 2020 and I signed up in June of 2019.

Now I need to think whether to go or not, based on the reviews it does not seem that it works very well but there isn't going to be another treatment anytime soon and my severe tinnitus is very difficult to live with. I also need to consider the risk of taking a plane and its noise.

what would you do?

I would go get the device. Appointment, flights, and lodging all booked.

I wrote the same for someone else earlier, but some of the users also updated on this thread with a little more success and also members have reported people they know having success with the device that aren't on the forum.

It's ultimately up to you, but so far the data looks in line with their trial results. This is the first thing that actually works. Even if not for all, it appears to work for most, just not miracle level for most of the most.

 

[UKBloke]

what would you do?

Ultimately, I'd grab a piece of paper and list the pros and cons, see which ones (if any) cancel each other out then try and find my lead in what remains.

I don't mean to sound facetious but if flying presents a problem could sailing be an option? I know boats are slow and tend to be expensive but a boat won't pressurise your ears! If flying is the only option I'd talk to my GP or ENT first.

In terms of Lenire's efficacy, there's one main thing that I think I've noticed in this thread, and that's that the longer term tinnitus sufferers like us may only see marginal improvement in the condition. That said, from my own point of view, if the treatment dialed down the volume in my left ear just a little bit then I think it would be worthwhile.

What I would add is that personally I don't yet feel I'm at the point where I need the treatment. Given that Neuromod is far away, I guess whether or not you feel same is a question you should perhaps ask yourself. Another option of course is to wait until Lenire or a similar treatment is available closer to home. Again, it depends on how long you feel you can wait it out.

 

[UKBloke]

I'm actually talking to a person who Lenire works very very very well for.

If possible, would you be able to ask him how long he's had tinnitus for?

 

[UKBloke]

Is there any structured analysis of the Lenire Users Feedback/Reviews?

There will be in the New Year some time. Check the beginning of the thread.

@PeterPan is compiling stats that should prove very useful to us.

 

[ChrisBoyMonkey]

Is there any structured analysis of the Lenire Users Feedback/Reviews?

@PeterPan is working on it.

It looks like you are missing some people, but it could be that they only posted on this thread and not on the actual User Experiences & Reviews page.

@Redknight has updated he is having days of no tinnitus on here, and when he does I think he said it is only "5-10%" of what it used to be... which would probably be a huge improvement.

I remember for sure @Lucky97 and @hans799, both have last posted seeing some success, despite not being finished with the treatment.

There are also quite a few reports of members knowing people using the device or users chatting to other users at the Neuromod office reporting success with the device. There is one just added above this post and @El BUZZ knows someone too.

 

[Ivkopivko]

I'm actually talking to a person who Lenire works very very very well for.
No more tinnitus at all after 7 weeks of tretment.
He probably will provide his feedback here on Tinnitus Talk later on.

Lenire really can work.
The first real available treatment in tinnitus history...
Let's keep up the hope!

I'd also like to add something to the section called "hope".

I have occasional contact with a person that has taken part in the TENT-A2 trial and his tinnitus got greatly reduced. This guy had had tinnitus for 3 years and was a musician who never protected his hearing.

After completing the trial, he experienced that his 4 kHz tinnitus has got reduced to a level where he doesn't notice it (measured as a 20 dB decrease - I guess during the MML test). He also mentioned that during this period (in 6 months he attended many loud concerts including Metallica (measured 105 dB) with no spike or increase afterwards.

Unfortunately, the tinnitus slowly crept back up after the mentioned 6 months but not to the original pre-trial level. After commercialization he got his Lenire unit and repeated the treatment. Since he repeated the treatment, the loudness began to drop afterwards. He finished 12 weeks and is now doing 1 session per day (I guess he's somewhere between week 13-15) and the most recent statement is "to be honest my tinnitus is barely noticeable in everyday life"

For me, it is a signal that the treatment can be repeated and this repetition is again effective, which I guess is good news?

 

[AliceW]

If possible, would you be able to ask him how long he's had tinnitus for?

Yes, 13 months and no hearing loss.
But he will explain himself later.

 

[raymilf]

New appointments, new user reports. Great news.

 

[threefirefour]

I'm actually talking to a person who Lenire works very very very well for.
No more tinnitus at all after 7 weeks of tretment.
He probably will provide his feedback here on Tinnitus Talk later on.

Lenire really can work.
The first real available treatment in tinnitus history...
Let's keep up the hope!

Was he the guy you mentioned in the User Experiences thread?

 

[LongWait]

I'm trying to find any convincing success stories... Lenire has not ticked the box yet in my eyes.

Desyncra arrived on the market, and there's no proof that unit achieved anything.

Baffled, gotta say.

 

[AfroSnowman]

Looks like they are speeding up the process.

"We are currently obtaining more clinic days and staff to ensure the wait time between the initial assessment and fitting appointment is closer ie, 0 - 2 weeks. Your fitting appointment will be booked when you are in the clinic for your initial assessment as we cannot reserve appointments."

 

[vttbx]

Looks like they are speeding up the process.

"We are currently obtaining more clinic days and staff to ensure the wait time between the initial assessment and fitting appointment is closer ie, 0 - 2 weeks. Your fitting appointment will be booked when you are in the clinic for your initial assessment as we cannot reserve appointments."

Wow! That's great news for anyone coming from a far distance.