Lenire — Bimodal Stimulation Treatment by Neuromod

[AfroSnowman]

Some users described an increase of their tinnitus, could it be because the sound level of Lenire is too loud? I am wondering if the sound level is adjustable.

It adjustable and like I said in the User Experiences & Reviews thread I was surprised by how mild it was. I guess they have to adjust to your hearing so maybe everyone's experience is different but for me it was no louder than what I would play something at an ear safe level. I'd guess maybe 50-55 dB. I think the disimprovements refer more to people that have improvement and then lose some of the improvement. Otherwise lots of people report short term spikes (30 minutes or so). They also warned me that it is common to have some temporary worsening in the first couple/few weeks of treatment. Typically they said it subsides in a week or two. Otherwise if it is too much and you stop, they expect that you will revert to baseline within a week.

So far 2 days in and I find it quite soothing. No spikes at all so far.

 

[Laure Chauvin]

It adjustable and like I said in the User Experiences & Reviews thread I was surprised by how mild it was. I guess they have to adjust to your hearing so maybe everyone's experience is different but for me it was no louder than what I would play something at an ear safe level. I'd guess maybe 50-55 dB. I think the disimprovements refer more to people that have improvement and then lose some of the improvement. Otherwise lots of people report short term spikes (30 minutes or so). They also warned me that it is common to have some temporary worsening in the first couple/few weeks of treatment. Typically they said it subsides in a week or two. Otherwise if it is too much and you stop, they expect that you will revert to baseline within a week.

So far 2 days in and I find it quite soothing. No spikes at all so far.

Thank you for your explanations. I am happy to know that Lenire has not made your tinnitus worse. That's great news!

I have my first appointment in early February but I am still not sure if I will buy the device as the results have not been too good for some users.

I want to talk with the Neuromod's medical team about the permanent worsening of tinnitus in some users.

I am okay to have some temporary tinnitus spikes but certainly not to have one permanently.

 

[GlennS]

the worsenings of Lenire when the Dr. Shore trial did not have any. (To be fair the Dr. Shore trial only had 20 participants though.)

People are setting a really low bar on Lenire because it's the only game in town. Competition is a good thing. Competing devices will reveal whether Lenire's results reflect the best anyone can expect or that Neuromod just doesn't have a handle on it.

 

[threefirefour]

People are setting a really low bar on Lenire because it's the only game in town. Competition is a good thing. Competing devices will reveal whether Lenire's results reflect the best anyone can expect or that Neuromod just doesn't have a handle on it.

Yeah this is pretty true. Lenire is the best thing on the market but since it's the first chances are it's not going to be nearly as good as future products. I imagine Lenire compared to the Dr. Shore device or Minnesota device would be like a GameBoy compared to a Nintendo DS.

 

[AfroSnowman]

People are setting a really low bar on Lenire because it's the only game in town. Competition is a good thing. Competing devices will reveal whether Lenire's results reflect the best anyone can expect or that Neuromod just doesn't have a handle on it.

Yup. My hope is this does enough to make life good enough while I wait for the next generation of devices to become available.

 

[El BUZZ]

Could someone please tell me how exactly is the MML test?

Thanks!

 

[acute]

All of you who are trying that device and are reporting the experience, are brave and beautiful souls.

Thank you.

L enire is the best thing on the market for now. If you can afford it I think is worth triying.

 

[Laure Chauvin]

All of you who are trying that device and are reporting the experience, are brave and beautiful souls.

Thank you.

L enire is the best thing on the market for now. If you can afford it I think is worth triying.

Thank you for your kind message. Lenire seems to be working for some users but unfortunately seems to be harmful for others... So it's difficult to definitely rejoice with the effectiveness of the device. As some people said before, it's more like Russian roulette for the moment.

 

[LongWait]

Yup. My hope is this does enough to make life good enough while I wait for the next generation of devices to become available.

I think the low bar has been set by real user reviews. Yeah I would pay a couple of grand for some sort of reduction, but if my tinnitus gets any worse I'm in deep shit.

 

[Gabriel]

What is good about Lenire, is that even though it's not as successful as we all expected it to be, they are still collecting a lot of data, which means they are getting a significant amount of knowledge and they can improve the treatment with experience.

So there are two things that are good about the future:
1. As mentioned earlier in the thread, Lenire is the first device of its kind, which means there will be others and they will be better and better as the technology improves and time pass.
2. Even Lenire itself will improve, Neuromod can make adjustments or create new devices which will be better and more efficient.

Tinnitus is a b*tch but we're getting closer to knocking it out.

Some will think or say: "yeah but we were saying the same 10 years ago and there is still nothing on the market that is truly effective"

I will reply: 10 years ago the tech was not the same as today, and 10 years ago tinnitus didn't have that much research going on, let alone public awareness. For the first time, I saw on national television at prime time an ad about tinnitus, not about hearing loss, tinnitus.

And as well as tech, research for tinnitus is evolving exponentially, which means it's happening faster and faster every day.

So everyone hang on, relief is coming.

 

[Laure Chauvin]

What is good about Lenire, is that even though it's not as successful as we all expected it to be, they are still collecting a lot of data, which means they are getting a significant amount of knowledge and they can improve the treatment with experience.

So there are two things that are good about the future:
1. As mentioned earlier in the thread, Lenire is the first device of its kind, which means there will be others and they will be better and better as the technology improves and time pass.
2. Even Lenire itself will improve, Neuromod can make adjustments or create new devices which will be better and more efficient.

Tinnitus is a b*tch but we're getting closer to knocking it out.

Some will think or say: "yeah but we were saying the same 10 years ago and there is still nothing on the market that is truly effective"

I will reply: 10 years ago the tech was not the same as today, and 10 years ago tinnitus didn't have that much research going on, let alone public awareness. For the first time, I saw on national television at prime time an ad about tinnitus, not about hearing loss, tinnitus.

And as well as tech, research for tinnitus is evolving exponentially, which means it's happening faster and faster every day.

So everyone hang on, relief is coming.

I partly agree with you but how many countries in the world are really concerned with tinnitus?

I live in France and from the beginning I have met a lot of specialists with the same speech, each time.

For them tinnitus is not a priority because it's not fatal (they absolutely don't care about people who commit suicide), so we are a waste of time on their schedule. They repeat the same old crap, "listen to sweet music, do some yoga and take antidepressants if you're desperate,
you will get used with it"...

The truth is research to cure tinnitus is not lucrative enough business. If ALL the people in the world had chronic tinnitus we would already have a treatment. Money rules the world. It is as simple as that.

 

[Ruse]

The truth is research to cure tinnitus is not lucrative enough business.

Total rubbish sorry.

Prevalence of tinnitus in general population is reported to be at around 5-10%.

If say only 2% of the world sought treatment, that's 140,000,000 customers.

That's not even taking into account future or repeat sufferers.

Whoever cures this is going to be very very rich.

 

[Don Tinny]

Prevalence of tinnitus in general population is reported to be at around 5-10%.

But how many are severe sufferers? For most people it´s like "oh, yes, I can hear a tone when I go to bed"

 

[Ruse]

But how many are severe sufferers? For most people it´s like "oh, yes, I can hear a tone when I go to bed"

I don't think that it's only severe sufferers that seek treatment though. Far from it actually.

 

[JayBowson]

But how many are severe sufferers? For most people it´s like "oh, yes, I can hear a tone when I go to bed"

Even if someone didn't suffer greatly it doesn't mean they wouldn't seek treatment though. Assuming it was relatively inexpensive and had a negligible non-responder rate.

Case in point: Here I am a relatively mild sufferer about to try an expensive treatment with a non negligible response rate which is a far cry from a cure. I'd agree, whomever finds a definitive cure for this will be made of money.

 

[El BUZZ]

But how many are severe sufferers? For most people it´s like "oh, yes, I can hear a tone when I go to bed"

I know a few mild cases who are looking desperately for a cure. I also know people with severe tinnitus who don't even care about anything 5inni5uw related. I consider myself a very severe sufferer. I can hear my tinnitus everywhere, really loud, angle grinder sound, both ears. There are some days when I think "I can live with this. I am not going to bother to try Lenire".

 

[Don Tinny]

I know a few mild cases who are looking desperately for a cure. I also know people with severe tinnitus who don't even care about anything 5inni5uw related. I consider myself a very severe sufferer. I can hear my tinnitus everywhere, really loud, angle grinder sound, both ears. There are some days when I think "I can live with this. I am not going to bother to try Lenire".

It´s sad to hear about your loud tinnitus. Mine is similar, as you know, I am losing my "moderate" days, so I am really desperate for real relief. Everything changed in the last 2 weeks. I was nearly well some days.

Now I read this thread 50 times per day, hoping to read a post like "I can´t believe it, I can´t hear my tinnitus anymore when I am outside".

 

[RaZaH]

I went for the first appointment today. I was surprised that I could go for the fitting and take the equipment on Wednesday. I was not expecting that or I would have planned to stay longer so I guess I will have to postpone that and come again in a couple of weeks.

By the way, they were only open for 3 days a week at first but are now open 5 days a week so they are hoping to shorten that waiting list.

I didn't ask that many questions to be honest, I wasn't even sure what to ask

 

[El BUZZ]

I went for the first appointment today. I was surprised that I could go for the fitting and take the equipment on Wednesday. I was not expecting that or I would have planned to stay longer so I guess I will have to postpone that and come again in a couple of weeks.

By the way, they were only open for 3 days a week at first but are now open 5 days a week so they are hoping to shorten that waiting list.

I didn't ask that many questions to be honest, I wasn't even sure what to ask

You mean you got your device the same day as they gave you all the tests?

 

[Sironketchup]

You mean you got your device the same day as they gave you all the tests?

Today is Thursday and I think he means next Wednesday.

Anyway, great news that the waiting time is that short.

I'm looking forward to my appointment on 6 February.

Well, that's the only thing I can think of at the moment.

Hopefully I will get the fitting on 7-10 February.

Trying to kill the time with playing CS GO (great way to forget the tinnitus guys).

I wish you all great success with the treatment.

Cheers!

 

[threefirefour]

To anyone with Visual Snow who tried Lenire, how has your VS responded?

 

[Sytex75]

I'll be heading over the pond on February 19 to begin the Lenire challenge.

I am not under the impression that this is a cure all for our affliction, but if I don't give it a shot I could be doing my self a great injustice. Even if this current device isn't the answer for many it is like a lot of people have stated on Tinnitus Talk a great stride in the awareness, the studies and perhaps a real cure for our calamity.

Now that Neuromod is running 5 days a week it looks like more people will be experimenting and getting their results back to us...

I'll be looking forward to giving my reaction to the device after I begin.

Good luck all and hello soon to the great country of Ireland...

 

[pinklights98]

I took a three day break (will probably make it four) from Lenire because of extreme wax buildup that I originally thought was an ear infection. I'm very happy it was not an ear infection, but regardless I still think it's a good idea to give my ear some time to recover from the manual extraction I had today.

Will update when I start using it again.

 

[winstona]

I went for the first appointment today. I was surprised that I could go for the fitting and take the equipment on Wednesday. I was not expecting that or I would have planned to stay longer so I guess I will have to postpone that and come again in a couple of weeks.

By the way, they were only open for 3 days a week at first but are now open 5 days a week so they are hoping to shorten that waiting list.

I didn't ask that many questions to be honest, I wasn't even sure what to ask

They are allowing people to pick up the devices in less than a week now? Wow that's good news for us international travelers. I wonder if eventually they will just give you the device on the same day...

 

[ChrisBoyMonkey]

I took a three day break (will probably make it four) from Lenire because of extreme wax buildup that I originally thought was an ear infection. I'm very happy it was not an ear infection, but regardless I still think it's a good idea to give my ear some time to recover from the manual extraction I had today.

Will update when I start using it again.

Has the tinnitus still been all elevated and reactive?

 

[pinklights98]

Has the tinnitus still been all elevated and reactive?

My tinnitus has still been elevated, but this could also be due to my clogged ear wax buildup that occurred quite suddenly three days ago. I got it out today, but my ears still feel irritated from the whole ordeal.

I want to say it calmed down a little from stopping the use of Lenire, but the very high pitch tone it caused is still present as I write this.

 

[aHuman]

I have tinnitus from noise exposure (headphones, I'm 99% sure).

So I just clenched my teeth. When I clench my back teeth, the tinnitus noise becomes significantly louder. It's basically a white noise sound, not a tone. When I unclench, the sound level drops down again.

Moving my neck or jaw does not change the sound.

I'm curious, does this mean that my tinnitus is somatic, at least to some extent? Or, not necessarily?

If so, what are the implications of this? Does it mean that perhaps I'd be a good candidate to be helped by Lenire or similar treatment, or not necessarily?

How about acupuncture/massage/anything else? Until reading the post above, I hadn't considered that the tinnitus might be somatic.

Thanks for any thoughts.

To my understanding, yes, that is somatic. Someone please correct me if that's not right.

Acupuncture, massage, etc does nothing.

 

[RaZaH]

They are allowing people to pick up the devices in less than a week now? Wow that's good news for us international travelers. I wonder if eventually they will just give you the device on the same day...

Yes, seems like it. Wish I had known beforehand. Getting on my flight now and will have to come back as I did not plan for this.

 

[Laure Chauvin]

My tinnitus has still been elevated, but this could also be due to my clogged ear wax buildup that occurred quite suddenly three days ago. I got it out today, but my ears still feel irritated from the whole ordeal.

I want to say it calmed down a little from stopping the use of Lenire, but the very high pitch tone it caused is still present as I write this.

Hello! Is the very high pitch tone caused by Lenire or your ear wax?

 

[uae96]

People who have hyperacusis respond best to Lenire.