Member- Jul 8, 2017
- 711
- Tinnitus Since
- 6/2017
- Cause of Tinnitus
- Neck/Jaw misalignment
Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
Solution: stop taking the meds... during treatment. If the meds are for the tinnitus, you wouldn't need it afterwards if it worked anyway. I mean, the treatment doesn't go on forever. Unless the meds are life or death they can probably be temporarily stopped. Once the neuroplasticity does its thing, then go back on the meds if necessary. Once the mental rewiring is complete the meds won't be able to undo it.
Supposedly it works better for people with hyperacusis. But I'm not sure it actually reduces noise sensitivity per se. I'm not counting on it and it's the tinnitus that really stresses me out.
Pleasure_Paulie
Member
I didn't read the paper, I was just replying to what you said and clarifying the difference between clinical significance and statistical significance. Ideally it would be both! But the authors should not mistake the difference regardless.
Pleasure_Paulie
Member
Bingo! The concern sometimes is with these clinical studies... Is 7 points or more improvement in THI actually a difference patients would notice...
Just to jump in as someone who has recently done this -- I think the above is too simplistic a view. You shouldn't just temporarily stop taking a medication. Believe me, it is very hard to judge exactly what they are doing for you and how much you need them. They don't just switch on and off like that anyway -- you have to taper very slowly over weeks, and it will take a while for it to be completely out of your system. If you then feel you need to go back on, it's about two months before they start working again. So not a decision to take lightly, and a very long time to be without them if you need them.
Also, coming off and on medication can cause spikes in tinnitus, so there's that to consider.
Maybe discuss with the ENT doctor before the treatment, but my advice is don't just stop.
- Jul 8, 2017
- 711
- Tinnitus Since
- 6/2017
- Cause of Tinnitus
- Neck/Jaw misalignment
I don't know. Some days your tinnitus could be actually the same as the previous day and yet it could be 10 THI points different.
I think they need to release this thing now, we have waited long enough =\
Hopefully the June leak is true.
Hopefully the June leak is true.
Rafaa
Member
- Mar 1, 2018
- 103
- Tinnitus Since
- 2012
- Cause of Tinnitus
- Who knows? I have Patulous ET and ETD + Other things
What kind of ear spasms do you get? Ear drum spasms or inner ear spasms at the same frequency as your tinnitus?
Well, since the patients do report the THI and there is a 7 point difference those 7 points should be felt. Otherwise there is no difference between 37 and 30 point results etc.
Issue would be that if you have 90 points and get 7 points reduction it might not feel as much. Or it might feel more since it takes you below the insanity level.
There are some yellow flags regarding Neuromod's delays and non-communication which is worrying. Apart from that, there are quite a few good scientists tied to the project and hence Lenire is our best bet. And if it's efficacious for 80%, then it would be worth a shot for everyone I would say.
I don't get how a 10 point decrease in THI is statistically significant. I'd hope most got MUCH more than that. And only 66% met this criteria. So the people for who it completely eliminated tinnitus are rare and we shouldn't expect results like that. But they can happen.
But if a 17 dB reduction is about average like that Facebook post said then that's pretty good.
But if a 17 dB reduction is about average like that Facebook post said then that's pretty good.
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
Deborah Hall was involved in ACRN, for your information.
https://www.frontiersin.org/articles/10.3389/fpsyg.2017.01893/full
ajc
Member
- Feb 6, 2018
- 1,170
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
I feel like they're getting ready. Just seen a post on Twitter from the Digital Hub, saying Neuromod met with them yesterday. There isn't a link I can find but have a look on Twitter if you can 
FounderI feel like they're getting ready. Just seen a post on Twitter from the Digital Hub, saying Neuromod met with them yesterday. There isn't a link I can find but have a look on Twitter if you can
Leave it up to me to say this comment but... (giggling) Is it only me that thinks the purple pretty packaging looks great!? Even the laptop is purple. If it works as good as it looks we have a winner!!
Not that I care about the packaging, I'll rip that box open in a second the minute I have it in my hands...lol...
Great photo shoot.
Just throw it at us already please!
- Jan 25, 2013
- 3,597
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
Dumb question:
What do you all think about going for Lenire vs. Dr. Susan Shore - I have no hearing loss up to 8 kHz and have a history of TMJ. However I was exposed to a loud noise when it happened and I am not able to change the pitch of my tinnitus with any movement.
What if my tinnitus is one subtype and by using this machine it interferes with my neurons and gives me another type of tinnitus or messes with my pathways (I have a background in humanities rather than science as you can probably tell!!!), so that I can't use the Dr. Susan Shore method later as by then I might have acquired noise induced tinnitus?
What do you all think about going for Lenire vs. Dr. Susan Shore - I have no hearing loss up to 8 kHz and have a history of TMJ. However I was exposed to a loud noise when it happened and I am not able to change the pitch of my tinnitus with any movement.
What if my tinnitus is one subtype and by using this machine it interferes with my neurons and gives me another type of tinnitus or messes with my pathways (I have a background in humanities rather than science as you can probably tell!!!), so that I can't use the Dr. Susan Shore method later as by then I might have acquired noise induced tinnitus?
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
I believe it was mentioned somewhere that for those whose tinnitus increased during trials, the effect was only short term and this resolved shortly following treatment.
Don't underestimate the plasticity of the brain! I'd say it's unlikely that using Lenire will completely block any potential effects of another similar device.
I think the laptop might be purple because of the reflection of the box OnceLeave it up to me to say this comment but... (giggling) Is it only me that thinks the purple pretty packaging looks great!? Even the laptop is purple. If it works as good as it looks we have a winner!!
Not that I care about the packaging, I'll rip that box open in a second the minute I have it in my hands...lol...
Great photo shoot.
Just throw it at us already please!
But don't let that put you off - I'm sure it's still good! 
I also think the branding and marketing looks very slick. Here's hoping for a less than slick price point and a pic of Ann's boobs!
After so many pages I'm not sure if this version has something different from the previous one. If so, there are 1 or 2 comments in Irish Health which do not help me maintain optimism. The comments are old but is the device 100% the same?
The physical device doesn't determine whether it works. It's the parameters that are programmed into it, which have changed.
@OnceUponaTime such a lovely essay by your little one, you should send it to Neuromod.
It brought tears to my eyes. I have an 11-year-old who got quite upset the other day.
Anyhow, I'll be on a boat to Ireland if I don't get back to baseline the day it's released, camped outside their offices.
It brought tears to my eyes. I have an 11-year-old who got quite upset the other day.
Anyhow, I'll be on a boat to Ireland if I don't get back to baseline the day it's released, camped outside their offices.
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