Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
MemberI've heard no reports of people who used Neuromod's hardware who had a relapse but in theory I guess it could happen. What would happen if you tried the device again after a long gap is anyone's guess but if you look at drug tolerance, usually that tolerance eventually wears off although it takes a long time. So if the effect wears off I suspect the brain is shifting back to the state it was that allowed the effect to happen in the first place, hence you could repeat it.
- May 9, 2017
- 929
- Tinnitus Since
- 2013
- Cause of Tinnitus
- Noise-induced
According to the interview it won't, the Loudness Discomfort Levels of the participants with hyperacusis did not significantly improve, so they conlcuded that Lenire isn't helping with hyperacusis. However, people with hyperacusis responded the most to Lenire in terms of tinnitus improvement.
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
- Aug 21, 2014
- 5,049
- Tinnitus Since
- 1999
- Cause of Tinnitus
- karma
You may have more reactivity than I do, but FWIW my tinnitus is also quite variable and I did feel the UMich device helped significantly; in fact a big part of it was that it seemed to remove that variance, or at least constrain it, down into the lower echelons of intensity.
This is a concern, but for one thing Neuromod claims their data actually indicates a cumulative positive effect, and no one I spoke to at UMich seemed to think this was that likely, given continuous access to the device.
Put differently -- in the normal, pre-damaged state, there was no tinnitus. This device is trying to trick the DCN into thinking it's getting a normal amount of audio input. Could the brain adapt to that trick? Sure, but even if it's a "use it for 4 months, then need a 2-month washout period before using it again" that would be a big deal.
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
I believe the leaked TENT-A2 results showed on average a reduction of 18-20ish points in the THI score (if I remember correctly).
That would put you down to a 38-40 points which is where I am at now. Not pleasant but manageable!
Oh no... Disappointment. Thank you for answering me.
We only have @Clare B in this forum that was in Neuromod's Lenire clinical trial?
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
Hi @Allan1967
You are being far too hard on yourself and possibly comparing your tinnitus and how it affects you to other people with the condition. If I am correct, then this is entirely the wrong thing to do. Tinnitus comes in many forms and intensities and no two people experience it the same. There are many factors involved and the most important, is how it affects our mental and emotional well-being.
You are much stronger than you think, for the simple fact you are managing to cope with the condition by whatever means and still here on solid ground.
All the best
Michael
- Mar 1, 2018
- 871
- Tinnitus Since
- birth/ recent spike 2/2018
- Cause of Tinnitus
- Born with ETD, several acoustic traumas, most recently ETD
My trial was designed and run by Neuromod's Chief Scientific Officer, Hubert Lim. We have reason to believe the outcomes and effects will be very similar!
- Dec 18, 2015
- 618
- 45
- Tinnitus Since
- 03/2015
- Cause of Tinnitus
- Noise induced, loud rock concert
We know your tinnitus improved after treatment vs. the spike you experienced in 2018.
Is your tinnitus now even lower than it was before 2018?
If my quite severe tinnitus happened to drop by 10-20% in volume with this kind of treatment I would be absolutely elated!
Also what makes me curious is what if one had a few 6 week sessions and what that might potentially do as far as bringing the volume down even further if one had good luck using the device during the first round of treatment?
Lastly I am quite excited about trying this treatment at some point with the hope of getting permanent relief and quite frankly I would give my last dollar if it meant turning the volume down of this horrible ailment!!
Also what makes me curious is what if one had a few 6 week sessions and what that might potentially do as far as bringing the volume down even further if one had good luck using the device during the first round of treatment?
Lastly I am quite excited about trying this treatment at some point with the hope of getting permanent relief and quite frankly I would give my last dollar if it meant turning the volume down of this horrible ailment!!
Could longer periods of treatment put our tongues at risk?
If I`m not wrong in the trial there were a few (very few) cases of ulcer. Of course, it is not something serious like tinnitus.
If I`m not wrong in the trial there were a few (very few) cases of ulcer. Of course, it is not something serious like tinnitus.
- Oct 21, 2018
- 999
- Tinnitus Since
- 1997
- Cause of Tinnitus
- Ear infection
They can strap it to my Charlie and fry it as long as it gets rid of this noise.
I think that we're all very anxious about whether this will work on us or not which is where all the negativity/skepticism comes from.
I just want to wish to every single person who tries Lenire or any other upcoming actual treatment to find some relief. As a fellow sufferer, I know how much tinnitus sucks... and that's an understatement at least. However, a positive mind is more susceptible to positive change.
I just want to wish to every single person who tries Lenire or any other upcoming actual treatment to find some relief. As a fellow sufferer, I know how much tinnitus sucks... and that's an understatement at least. However, a positive mind is more susceptible to positive change.
In Lim's presentation they say that the improvement flatlines after a while. Then they tried to mix up the timing half-way through and it drove some additional improvement and that's where they currently are as far as maxing things out. So no, it doesn't sound like continuing to use it beyond the prescribed period would help, but that's just where they are now with it. Still early days...
The Vimeo video is no longer up, but I don't believe Hubert Lim said that. I believe he said that switching up the timing resulted in a greater quantity of improvement months after the conclusion of treatment than did constant timing. But none of the treatment periods were longer than six weeks, so the effects of repeated treatments remain to be seen.
That is what I believe he said, but of course I may be wrong.
Mine was SUPER LOUD in month 2 and 3. I am 5 months in and the volume has decreased a lot. From like 9/10 which was INSANELY LOUD to mainly hearing it pretty loudly in quiet surroundings at 5 or 6/10.
It should get quieter over time if you protect your ears. The beginning for most people is the worst. Some people don't see improvements in volume until 6-8 months.
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
Sadly yes. That's not how capitalism works. You're describing a socialist medical model.
My recollection is that the treatment had the most effect after six weeks (roughly the halfway point) and the remainder of the treatment period was turning into sort of a waste of time, so that's when they started experimenting with mixing up the timing for the remainder, which resulted in some additional improvements.
They kind of are if you consider Hubert Lim jumping ship. He will take his expertise from Susan Shore with him.
That being said I'm not sure how I feel about Susan Shore continuing as though Neuromod doesn't even exist. I guess she (or Minnesota) may come up with approaches that are better than Neuromod, but if you're talking about total number of participants, Lenire is poised to dwarf the other two, which means they should be able to gather orders of magnitude more data and hopefully learn a lot more from that.
It could very well be that the anatomical point of stimulation does matter but after reading through these threads I see no data to indicate any clear advantages of one vs. another. If there are it will be deduced by trial and error.
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