Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
MemberI'm sure after you've had the baby you'll be eligible Allan
. Sorry, couldn't resist...
Yes, it did.
I was wondering what habituation means for you. Even though I'm very well habituated, I get a lot of anxiety about tinnitus worsening, which causes a lot of suffering even though my volume doesn't change much and spikes always tend to fade. It seems it's similar for you as well, which confirms that I'm not uniquely weak or something. Thanks man.Here's to hoping for an excellent TENT-A1 paper.
The day when new tinnitus patients will be feeling mildly annoyed when they learn that it can take up to 12 weeks for their condition to be silenced and will come to this forum to whine about tolerating tinnitus for that long.Imagine if one day we can have a spike, roll our eyes and blow the dust off our tongue zappers like we're popping an aspirin
They've given a spread of patient responses which probably reflects the spectrum of results they got. @Clare B got total silence but she wasn't featured in a testimonial so there must be others who had good results too?
I have both 
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
Do you actually read any of the threads? He's posted loads, on various threads about being on a trial for A DIFFERENT DEVICE.
'Also' how the hell is he gonna know what the exclusion criteria are, unless he actually works for Neuromod??
Do your own research man! It's not difficult, you just have to read the threads!
When you tamper with nerve cells together with acoustic input - who knows what can happen?
Where is the positive science behind all of this.
To me it smacks of trial and error.
We all wish for a cure of course, but are there risks that our conditions could get worse?
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
I don't think that'll exclude you. Loud music along with ETD both contribute to hearing loss. As Ross O'Neill (The CEO) said they are in the train of thought that hearing loss is the cause of tinnitus - like choking a hose pipe and the water tries to get through as he puts it - that's what the brain is doing by trying to pick up the lost frequencies. Also, if you don't have a measurable hearing loss on an audiogram doesn't mean you don't have damaged hearing. I think you'd pass the criteria given the information in your posts X
It's a good point of concern that we all have. However it could be that Neuromod picked a variety as not to overpromise. If they picked all the ones that sure complete elimination of it - that would be misleading to the consumer and a overpromise. Ross O'Neill stated that there was people who said "it went away" but notice how he was careful not to use the word "some people were cured". They have to be responsible if they are going to be taken seriously by the tinnitus community.
The results were seen within the first 6 weeks of treatment - that's the thing with this product. You don't have to wear it for ridiculous amount of hours a day over months and months for it to be effective (like Desyncra claimed of the ACRN product).
I can think of absolutely no reason why being pregnant or wearing a pacemaker would stop this product working for you. I think you have as much chance of this working for you Allan as everyone else - relax my friend, you are suffering but hold onto hope.
I second that about not having hope with tinnitus. I lost hope once and was in a mental hospital. Very dangerous but slowly the hope came back and I got better - even though the tinnitus stayed the same.
Like Allan, you are reading far too much into the negative aspects. If anything, bimodal stimulation increasing tinnitus should help prove that tinnitus can in fact be modulated. The majority improved - focus on that!
If you have comorbid hyperacusis with your tinnitus - the results are showing you have a better chance of responding. Sure, hyperacusis sucks but that is a reason to be hopeful that you are more likely to be a super responder. It won't help your hyperacusis, but you have a much better chance of it helping your tinnitus!Now I am once again worried if those of us with worse than mild hyperacusis cannot use Leniere
I find it completely bizarre that they used testimonials from people with extremely limited responses and yet didn't bother to use someone like Claire that appeared to have an extremely positive response to the treatment.
Thank you for writing that. I'm back to being a little more hopeful than I was earlier! I need to do a bit more research on it x
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
A few members I have spoken to suffer this way. They are habituated to their tinnitus, but scared it will get worse with time. I do, and I contribute it to an anxiety issue rather than a tinnitus issue. I think some anxiety is healthy. There was a member not long ago, who was adamant he wasn't going to stop going to raves and let the tinnitus stop him. There was a flood of messages how loud music can make it worse, but the anxious person would do the sensible thing and knock the raves on the head. You've caught the tinnitus early and recognised what it is and know how bad it can get - that anxiety has helped you protect and be careful going forward.Yes, it did.
Here's to hoping for an excellent TENT-A1 paper.
I suffer in the same way as you regarding the anxiety of it getting worse. I have found cognitive behavioural therapy beneficial if you put the work in. Just protect yourself as much as you can and try to balance that without trying to stress too much out about the what ifs! Easier said than done. But I realised I was habituated when I could hear the noise and not feel the immense depression I once had.
Hopefully, Lenire will help alleviate our anxieties. Even though I'm habituated, doesn't mean I like it and I would certainly try a treatment out like Lenire. If it worked for me, I think it would also help reassure me something can be done if it did ever get worse.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
If you look at the inclusion criteria, I think it was no more than >80 dB loss in the 2-8 kHz range and no more than >40 dB loss in the 0-1 kHz range.
Although the results have not been published there has been no indication the amount of hearing loss reflects the amount of improvement to the public.
We'll have to wait and see the results and what they conclude to it. It's important to note that the configuration will be tailored to your audiogram, so we can assume that they configure the frequency ranges so you get all the stimulation you need for neuroplastic changes to occur with the tongue tickler.
Hey, so quick question... is this the same thing (link below)? If so then the exclusion criteria is there... and I would have been rejected from the trial because of a few reasons...
https://clinicaltrials.gov/ct2/show/NCT03530306
https://clinicaltrials.gov/ct2/show/NCT03530306
In the patient videos from the Lenire trials, many of them say the tinnitus spikes don't happen anymore. If I could have the assurance that I could diminish my tinnitus and not increase it in many situations, I could be very happy and this could be a pivotal change in my life, not being afraid of louder places.
Crossing fingers and hope to try it soon! Saving already
Crossing fingers and hope to try it soon! Saving already
Neuromod and Susan Shore are different. I thought Susan Shore - if that's where you went - wanted people who had a somatic element to their tinnitus.
Unless you went to Minnesota.
- Mar 17, 2019
- 47
- Tinnitus Since
- Early 90s
- Cause of Tinnitus
- Bowie, The Chameleons, etc.
They did have someone like Claire. The lady who said she didn't want to give back the device at the end and kept it a bit longer. I've forgotten her name. Ginger haired lady. She said her tinnitus went away. That's basically the same thing Claire said.
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
@kelpiemsp, considering that these devices from Lenire and Minnesota are based on the same principles of timed electrical stimulation, paired with tones, do you think that replacing the Lenire tongue electrode with an electrode applied to the neck instead, would effectively give you one and the same device?
Surely timings must be the same for both to be effective. What do you think?
Surely timings must be the same for both to be effective. What do you think?
'Thalidomide' - to counteract nausea during pregnancy...?
The medical field is littered with failures where the pathology was not specific enough.
That's good then. So it means it may still work for me (potentially) even if I have a few points listed in the exclusion criteria? x
Good advice for all, but sorry to say that for the most part, it will be likely be ignored.
- Aug 21, 2014
- 5,049
- Tinnitus Since
- 1999
- Cause of Tinnitus
- karma
This isn't going to work for 100% of people and it doesn't create "silence".The day when new tinnitus patients will be feeling mildly annoyed when they learn that it can take up to 12 weeks for their condition to be silenced and will come to this forum to whine about tolerating tinnitus for that long.
It's a palliative aid. It's not a cure. If it works at all. Horse <- Cart.
Log in or register to get the full forum benefits!
Similar threads
