Lenire — Bimodal Stimulation Treatment by Neuromod

Neuromod still has no presence in the local media or press (Germany). Doesn't Neuromod want to share their new treatment with the global media?

If I remember ANM-Medical from Jülich, they did a lot of marketing from the early on, even some presentations in the German TV including people giving their testimonials.

Does it mean anything that Neuromod acts in this way? I have the feeling their first wave of patients are Tinnitus Talk members only.
 
Yes the first wave will be people who have heard of it in the forums... I don't think they would have the capacity to cater for more... a soft launch if you like.
 
No, just no tinfoil-hat or killjoy-motivated negativity. If people say their benefits didn't last, that's a genuine report from the field.
For some of us skepticism isn't born from killjoy negativity so much as extensive past experience of hyped up medical treatments for intractable conditions.

Neuromod may well not be that. It's a huge trial and there are already good reports. But please stop discouraging critical discussion. You do know the talk of the ACRN disclaimer was based on… a report from the field?

Reports from the field are all important. Peer-reviewed publications are the highest form of evidence in theory, but even they vary in quality and veracity.
 
It's past the point where we should argue over positive/negative speculation anyway as people are now receiving their units. We should be focusing on their reports going forward.
 
Neuromod still has no presence in the local media or press (Germany). Doesn't Neuromod want to share their new treatment with the global media?

If I remember ANM-Medical from Jülich, they did a lot of marketing from the early on, even some presentations in the German TV including people giving their testimonials.

Does it mean anything that Neuromod acts in this way? I have the feeling their first wave of patients are Tinnitus Talk members only.
I don't think it means anything negative at all. They are booked solid for 2019 and probably have a waiting list long enough to fill 2020 as well. With hardly any advertising at that. If this device lives up to expectations they will have unlimited demand.

This is probably a controlled soft launch so they can figure out best practices and guidelines for launching at additional facilities. They know they have a golden goose and don't need to rush rollout to minimize any issues.

I would write them a check today if only they would take my money!
 
Yes and yes. In fact I probably said I would defy anyone with severe constant tinnitus (and not the sort you only hear just before you sleep) to NOT be depressed/down hearted.
I am down hearted since May but I'm not letting it stop me from living my life. I know I'll habituate eventually. Life has to go on. I'm here because if Lenire works I'd love to take a shortcut. Or maybe I'll habituate to the point where I cancel the appointment.

Who knows? But we have to stay positive.
 
Fair point. Other than Susan Shore's device and Neuromod, I don't see anything else coming out within 5 years, and I'm having a continuous struggle with my tinnitus.

I think a drug is 10 years off.
 
I am down hearted since May but I'm not letting it stop me from living my life. I know I'll habituate eventually. Life has to go on. I'm here because if Lenire works I'd love to take a shortcut. Or maybe I'll habituate to the point where I cancel the appointment.

Who knows? But we have to stay positive.
Even if habituation comes, I'd still recommend trying Lenire and not cancelling appointments as you never know what might happen in the future. There are many cases of people losing habituation due to new noise exposure or ototoxic medications. And what then? It's best to try to help habituation even further. The only point I could see this being okay in is if the $2K is too much for someone. But when it comes to tinnitus personally, I think investing as much money as possible into cures and donations is important.
 
Hi Guys, I had a few questions from my post where I detailed what happened when I picked up my device so here are some answers to them.

>Your experience and feelings were better at the first appointment?

I think the initial consultation was a better experience, but like I mentioned the meeting with the nurse at the clinic door sort of set my mood for the rest of the meeting.

>Were they confident you'd get relief?

Not exactly, my impression is that you try it and give it a go and see if it works but there were no promises. In the initial consultation when they were discussing price I asked what would happen if I didn't get any relief and the nurse said something along the lines of they cant help me in that case, as in there's no refunds.

>How about a selfie with your unit?

I'll upload a photo of my Lenire device in this post but I won't reveal my face due to opsec concerns. The photo is with last week's news paper, I'm not a daily paper purchaser.

Screenshot from 2019-07-19 15-09-55.png


>Did you do any research on the device before purchasing? I ask because you seem to be displeased with what you got when they have all of the information you are confused about on the website.

Being honest, I was lurking on the tinnitus subreddit for some time and it popped up as a potential cure and I put my name down. I haven't really got into the science behind the solution too much. The website doesn't instil me with confidence, I've watched a few of the testimonials but it's flashy nature makes it seem dishonest. I will go back and have another look at it though.

>The unit isn't €2000, it's €2150 in total (or €1900 on pick up) if you buy it outright and it isn't clear which you chose. If you chose option 2 or 3 you'll be paying more than the incorrect figure of €2000.

It was 250 or so for the initial consultation which gets subtracted from the devices price if you proceed. Yeah, it's 2k, lets not split hairs about a 5% difference.

>I've been following this thread and so far I don't recall seeing one post by you saying you're going for it, you've picked it up and you've used it a few times, especially when you must know there's a community here waiting for every tidbit of info.

See here:
drcross-reddit.png


>WTF has air conditioner got to do with it, or parking? After a sweaty balled journey to get there I'd be happy for a bit of cooling down and just how long were you sat there for?

Sitting in a 10 degree room in shorts and t-shirt is really uncomfortable. Irish outdoor temperatures at the moment are 18 degrees so no sweaty balls were involved.

>Nobody else has reported being treated as an afterthought... just you. I was mistaken for an earlier appointment as I was early, but I got a handshake and politely pointed in the direction of the canteen.

What do you want me to say. <shrugs>

>I wasn't given a form, I was given an iPad.

I filled that form too but there was a paper form that needed to be filled twice, one copy for me, one for them.

>Who was the audiologist you saw?

A Northy lady with straight hair.

>Considering we've all been waiting with baited breath for this, I would be listening intently to what was being said and not being 'bored' by the experience.

It's a fairly simple process and you'd be an idiot to screw it up.

>AGM headphones? You mean AKG?

Yep, my mistake.
 
@valeri I got the impression that the type of sound does not matter, it's all tinnitus. In reality there are probably subtypes but as they haven't been discovered yet I don't believe they made that distinction either. Will ask on the 2nd of August.
 
In the initial consultation when they were discussing price I asked what would happen if I didn't get any relief and the nurse said something along the lines of they cant help me in that case, as in there's no refunds.
I'd have to read back on this thread but there were rumors that you'd get a partial refund if it didn't work. I guess that's not gonna happen.
 
Hi Guys, I had a few questions from my post where I detailed what happened when I picked up my device so here are some answers to them.

>Your experience and feelings were better at the first appointment?

I think the initial consultation was a better experience, but like I mentioned the meeting with the nurse at the clinic door sort of set my mood for the rest of the meeting.

>Were they confident you'd get relief?

Not exactly, my impression is that you try it and give it a go and see if it works but there were no promises. In the initial consultation when they were discussing price I asked what would happen if I didn't get any relief and the nurse said something along the lines of they cant help me in that case, as in there's no refunds.

>How about a selfie with your unit?

I'll upload a photo of my Lenire device in this post but I won't reveal my face due to opsec concerns. The photo is with last week's news paper, I'm not a daily paper purchaser.

View attachment 31037

>Did you do any research on the device before purchasing? I ask because you seem to be displeased with what you got when they have all of the information you are confused about on the website.

Being honest, I was lurking on the tinnitus subreddit for some time and it popped up as a potential cure and I put my name down. I haven't really got into the science behind the solution too much. The website doesn't instil me with confidence, I've watched a few of the testimonials but it's flashy nature makes it seem dishonest. I will go back and have another look at it though.

>The unit isn't €2000, it's €2150 in total (or €1900 on pick up) if you buy it outright and it isn't clear which you chose. If you chose option 2 or 3 you'll be paying more than the incorrect figure of €2000.

It was 250 or so for the initial consultation which gets subtracted from the devices price if you proceed. Yeah, it's 2k, lets not split hairs about a 5% difference.

>I've been following this thread and so far I don't recall seeing one post by you saying you're going for it, you've picked it up and you've used it a few times, especially when you must know there's a community here waiting for every tidbit of info.

See here:
View attachment 31038

>WTF has air conditioner got to do with it, or parking? After a sweaty balled journey to get there I'd be happy for a bit of cooling down and just how long were you sat there for?

Sitting in a 10 degree room in shorts and t-shirt is really uncomfortable. Irish outdoor temperatures at the moment are 18 degrees so no sweaty balls were involved.

>Nobody else has reported being treated as an afterthought... just you. I was mistaken for an earlier appointment as I was early, but I got a handshake and politely pointed in the direction of the canteen.

What do you want me to say. <shrugs>

>I wasn't given a form, I was given an iPad.

I filled that form too but there was a paper form that needed to be filled twice, one copy for me, one for them.

>Who was the audiologist you saw?

A Northy lady with straight hair.

>Considering we've all been waiting with baited breath for this, I would be listening intently to what was being said and not being 'bored' by the experience.

It's a fairly simple process and you'd be an idiot to screw it up.

>AGM headphones? You mean AKG?

Yep, my mistake.


How does that sit on your tongue? Does it have a place to bite on it, to hold it in place? Or do you have to hold it with your hand?

Thanks for the follow up.
 
@valeri I got the impression that the type of sound does not matter, it's all tinnitus. In reality there are probably subtypes but as they haven't been discovered yet I don't believe they made that distinction either. Will ask on the 2nd of August.
I'm there on the 2nd as well to get my device, fancy a coffee in the canteen? What time are you there?
 
Something that caught my eye is that this tongue stimulator looks VERY different than the one they previously showed in pictures. I can't for the life of me find the previous pictures Neuromod released, but this seems like a notch down from that.

I'm not saying I don't believe you have it. I am just confused why Neuromod changed it?
They did not change the tongue tip design. Look at the official picture (first post of the thread) and it's exactly the same...
 
They did not change the tongue tip design. Look at the official picture (first post of the thread) and it's exactly the same...
You are correct. I must have confused it with something else.
 
How does that sit on your tongue? Does it have a place to bite on it, to hold it in place? Or do you have to hold it with your hand?

Thanks for the follow up.
It's hard to see in the picture, but where it tapers, near the connectors, it has a sort of U shaped bend that sits on your lips/teeth so that the connectors naturally rest on your tongue.

This looks exactly like the demo one they showed me, I'm not sure if they've redesigned it since the trials.
 
I got a little more detailed answer once I did an follow up with them explaining that it's better for me both time-wise and distance-wise to undergo the treatment in Germany, but they just don't care and they think that it's very "funny and appropriate" to fly 4 times back and forth, instead of giving at least something like "we estimate that it will be available in Germany in Q2/2020 at the earliest but cannot guarantee or promise anything!"

View attachment 31032
View attachment 31033
Mentos said this:
I was informed by Brai3n that they plan to have Lenire available as of January in Belgium.
So going by this info it should be coming to Germany anywhere between now and January 2020.
 
Finally no prediction... You MUST try and pay it to know if it works for you or not.
No Guarantees, No Promises, No Peer Review... but €2000 plus flight and hotel costs.

Puuuh... not the best starting position.

Is the treatment based on neuroplasticity in the brain or inhibitory processes? Anybody has some background on this?
 
Finally no prediction... You MUST try and pay it to know if it works for you or not.
No Guarantees, No Promises, No Peer Review... but €2000 plus flight and hotel costs.

Puuuh... not the best starting position.

Is the treatment based on neuroplasticity in the brain or inhibitory processes? Anybody has some background on this?
Plasticity. Have you seen the interview with their CEO yet?
 
I have seen the Q&A and am not sure. Ross O'Neill mentioned inhibitory effects and disruption of the neuropathology.

My guess is that it has nothing to do with neuroplasticity but I could be wrong.

On the other hand he wants long lasting effects by the repeated usage (2x30min a day) and this can drive neuroplasticity.

Just weird that the effect in some patients didn't last long. The behavior of the neuronal network is a strange thing (but extremely fascinating by the way).

I recommend the book of Norman Doidge.
 
>Nobody else has reported being treated as an afterthought... just you. I was mistaken for an earlier appointment as I was early, but I got a handshake and politely pointed in the direction of the canteen.

What do you want me to say. <shrugs>
I know what @drcross is getting at here, based on my recent visit to Dublin.

They appear to be sharing the office with an entirely different operation, so the reception desk is for two different organisations. The woman who was on the desk when I got there had earbuds in when I approached and she just ignored me. As I was timidly trying to work out what I should do, I noticed an A4 sign on the desk saying Neuromod clients should ring the bell (one of those 'Ring' video doorbell things) and wait. As I noticed it, a young lady further towards the back of the office stood up and asked what I was there for - I can't remember exactly how she phrased it, but it was something along those lines.

I told I was there for a Neuromod appointment and she knew who I was and said she'd be with me in a second.

It wasn't the greatest start from a customer service experience and I can see how some people might be a bit miffed. It would be better if they had the unit to themselves, but I guess there will be reasons why they haven't done that. There are only 3 of them and they're all on the website - Grace, the administrator / receptionist; Caroline, the audiologist / head honcho and; Ciara, the fitting person.

Once you've been there once, you'll know the score and that you have to press the button on arrival.
 
Hi Guys, I had a few questions from my post where I detailed what happened when I picked up my device so here are some answers to them.

>Your experience and feelings were better at the first appointment?

I think the initial consultation was a better experience, but like I mentioned the meeting with the nurse at the clinic door sort of set my mood for the rest of the meeting.

>Were they confident you'd get relief?

Not exactly, my impression is that you try it and give it a go and see if it works but there were no promises. In the initial consultation when they were discussing price I asked what would happen if I didn't get any relief and the nurse said something along the lines of they cant help me in that case, as in there's no refunds.

>How about a selfie with your unit?

I'll upload a photo of my Lenire device in this post but I won't reveal my face due to opsec concerns. The photo is with last week's news paper, I'm not a daily paper purchaser.

View attachment 31037

>Did you do any research on the device before purchasing? I ask because you seem to be displeased with what you got when they have all of the information you are confused about on the website.

Being honest, I was lurking on the tinnitus subreddit for some time and it popped up as a potential cure and I put my name down. I haven't really got into the science behind the solution too much. The website doesn't instil me with confidence, I've watched a few of the testimonials but it's flashy nature makes it seem dishonest. I will go back and have another look at it though.

>The unit isn't €2000, it's €2150 in total (or €1900 on pick up) if you buy it outright and it isn't clear which you chose. If you chose option 2 or 3 you'll be paying more than the incorrect figure of €2000.

It was 250 or so for the initial consultation which gets subtracted from the devices price if you proceed. Yeah, it's 2k, lets not split hairs about a 5% difference.

>I've been following this thread and so far I don't recall seeing one post by you saying you're going for it, you've picked it up and you've used it a few times, especially when you must know there's a community here waiting for every tidbit of info.

See here:
View attachment 31038

>WTF has air conditioner got to do with it, or parking? After a sweaty balled journey to get there I'd be happy for a bit of cooling down and just how long were you sat there for?

Sitting in a 10 degree room in shorts and t-shirt is really uncomfortable. Irish outdoor temperatures at the moment are 18 degrees so no sweaty balls were involved.

>Nobody else has reported being treated as an afterthought... just you. I was mistaken for an earlier appointment as I was early, but I got a handshake and politely pointed in the direction of the canteen.

What do you want me to say. <shrugs>

>I wasn't given a form, I was given an iPad.

I filled that form too but there was a paper form that needed to be filled twice, one copy for me, one for them.

>Who was the audiologist you saw?

A Northy lady with straight hair.

>Considering we've all been waiting with baited breath for this, I would be listening intently to what was being said and not being 'bored' by the experience.

It's a fairly simple process and you'd be an idiot to screw it up.

>AGM headphones? You mean AKG?

Yep, my mistake.
Capture.PNG
 
I'm new here, this is my third stint of tinnitus! And by that I mean I have had it three times... First got it in 2009 and it took 8 months of my life away, couldn't cope with it at all, I practically spent months at home not being able to function, finally got myself together after taking Zispin (Mirtazapine) for a few months, got back to normal but still with a bit of noise bothering me.

I got into the first MuteButton trial and all I can say is that there was no more tinnitus after that.

Then in January 2012 I attended a loud event and it came back, messing me up again for about 4 months. I got back to functioning again after taking Zispin, but there was still some very bothersome noise, so I took part in the 2nd trial for MuteButton in July 2012.

All I can say is that the tinnitus went away again.
Hi @Clearance.

I was lurking on here and found your post again. May I ask you a question?

From the moment you started your first stint of tinnitus, how long did it take until you got into the first MuteButton trial? Was it more than a year?

I ask you those questions because I am afraid that Lenire "only" provides you silence or significant relief If you use it in the first months after tinnitus onset.

I wish you the best with your Lenire treatment.
 

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