Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
Member
Thank you for telling me.
I was very anxious at first for not being able to get an appointment in my early stage with tinnitus... and I thought maybe I ruined my chance to recover. They did not allow me to get an appointment in 2019 because I was only 2 and half months into my tinnitus when they contacted me
Do you have 4 months with tinnitus?
Yes - but it feels much longerThank you for telling me.
I was very anxious at first for not being able to get an appointment in my early stage with tinnitus... and I thought maybe I ruined my chance to recover. They did not allow me to get an appointment in 2019 because I was only 2 and half months into my tinnitus when they contacted me
Do you have 4 months with tinnitus?
They had good and bad responders right across the 'length of tinnitus' range. They saw no correlation.
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
Purple dot farthest left started with THI of 24. After 12 weeks of use THI was at 9.
Each dot represents a patient. For each dot use a vertical ruler placed on the dot and see where it intersects on the x (or horizontal) axis, the one labelled THI at baseline. This is their THI when they started. For the same dot use a horizontal ruler on the dot and see where it intersects on the y (vertical) axis, the one labelled THI at final. That's their THI when they finished their treatment.
My THI is around 20-30 and if I look at the graph, those with THI 24, 32, 33, 34, 34 went to 9,16,0,5, 24 respectively. Average reduction of about 21.
Minimal clinically important differences. They have said the standard reduction in THI to be considered clinically significant is a reduction of 7 points or more.
How much left or right (x axis) is how bad their tinnitus was before treatment. How far up or down (y axis) is how bad their tinnitus was after treatment.
The treatment appears to average at something around a 25 point THI reduction; as you can see there are some outliers. The most interesting ones to me are the ones that were in the 50-60 range at baseline and reduced to near 0 after treatment. This may be an indicator that these people started experiencing "quiet days" or reduced to mild fleeting tinnitus.
Thanks for the info, but sorry my English is limited, does it mean good news???
The odds are greatly in our favor, but as exemplified by the two that reported slightly worse; the treatment may not be for all of us completely, but will work for the vast majority of us.
Minimal Clinically Important Difference. I think a reduction of at least 7 on the THI scale is rated by patients as an important difference.
RichardGuy
Member
This tells me a few things.
1. If you have severe-catastrophic tinnitus, you can still see an excellent reduction in handicap, but it won't be as dramatic as those below a THI of 70.
2. If you're below a THI of 70, it's possible for your tinnitus to fade entirely or become a non-factor.
3. Those below a 60 had the biggest reduction, with a 50 and 30 at entry reporting a 0 at exit, and most were below 30.
The number 3 is especially telling. It seems like people with moderate tinnitus are really given a huge push by this device, like anything below, say, a 40 on the scale is not too difficult to deal with.
That's really useful info.
Is there a scatter plot available for all participants?
Also what do they mean by compliant subjects only?
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
Thanks for the explanation. I think I have seen this data before, in the Hubert Lim presentation that briefly surfaced, but I didn't really understand it at that time. Given the chance to consider it with a bit more insight, that's making my heart beat a bit quicker. What about the jammy sod who went from 70 to 10!!!!!
I do not like the THI measurement much, maybe it's not too precise. I know it's subjective, like tinnitus. For example, I have between 78 and 88 points on the THI. The description for that number of points says:
"78-100 Catastrophic: Always heard, disturbed sleep patterns, difficulty with any activity."
However, in my case I do not always hear my tinnitus (in my first months yes, but luckily not always now). Although the other affirmations are correct. That is, my tinnitus causes me a lot of anxiety, stress and sadness, fear that it will get worse, however, I do not think it is as loud as the tinnitus of other folks on Tinnitus Talk.
I do not know if I explain myself well. But considering that Lenire is about lowering the volume of our tinnitus or improving it... THI seems to be imprecise but perhaps there is no better way to measure this.
"78-100 Catastrophic: Always heard, disturbed sleep patterns, difficulty with any activity."
However, in my case I do not always hear my tinnitus (in my first months yes, but luckily not always now). Although the other affirmations are correct. That is, my tinnitus causes me a lot of anxiety, stress and sadness, fear that it will get worse, however, I do not think it is as loud as the tinnitus of other folks on Tinnitus Talk.
I do not know if I explain myself well. But considering that Lenire is about lowering the volume of our tinnitus or improving it... THI seems to be imprecise but perhaps there is no better way to measure this.
They also used the TFI in the trials which uses a scale of 1-10 and 1-100 which is more sensitive.
If you believe that your tinnitus isn't that loud, and the stress and anxiety surrounding it is causing you more distress, I would suggest getting the anxiety addressed. You should go talk to the mental health specialist because even you recognize that the mental aspect of it is causing you more distress than the sound.
How loud is your tinnitus? Can you hear it in the shower? Can you hear it driving? Can you hear it with the TV on?
Sorry for the possible off topic.
I understand what you say, but considering that I'm fairly new at this, I guess anxiety and stress are relatively normal. My life changed completely when tinnitus started, three months ago. I had to quit my job because it was impossible for me to concentrate.
The first two and a half months, I heard my tinnitus on the streets, while driving and when I watched TV (impossible to see anything on TV, I could not concentrate).
Fortunately, it seems that these last days/week my tinnitus is improving. IT SEEMS. Maybe it's an illusion. I am very afraid that it will get worse again. But I think it's less loud now.
Anyway, I'm still interested in trying Lenire in case my tinnitus does not improve or gets worse again.
I am also at a NO-noises restricted regime. Maybe that is why I am better?
- Jun 13, 2019
- 1,108
- Tinnitus Since
- 10/2018
- Cause of Tinnitus
- Started with a cold, possibly worsened by medication/noise
I want to stay positive but the plot is not too encouraging.
On the positive side there are almost no points above the diagonal, meaning that cases of worsened tinnitus are rare and the worsening limited.
However, the reduction, especially for severe cases, is limited. I would have liked to see more points well below the diagonal. The reduction in severe cases was 90 to 65 and 90 to 70 circa. It's still good but I was hoping that also in severe cases one could get to 40 or 50. But it's just a few data points. A couple spectacular results from 70 to very low. A lot of points near the diagonal.
I wonder if by repeating the treatment one could improve further. I need some hope for my severe case.
I still suggest seeing a mental health specialist even if it is to do CBT. It can greatly help you.
I, like many others, can also hear our tinnitus while doing many activities. It's not about not hearing the sound, but just ignoring it and distracting yourself so the sound isn't at the forefront of your mind.
RichardGuy
Member
Your case sounds a lot like my own. After the first month passed for me, and my hopes that my tinnitus would leave on its own vanished, I became a wreck. I drove for a company at the time and constantly hearing my tinnitus on the road distressed me greatly. It has become slightly better in this regard - I may hear it quite a bit, but my reaction to it is less, and I think my brain has tuned it out at least a little.
I've found it also helps to have something like the ACRN protocol playing on your phone during your drive, or to listen to music.
Well I avoided this thread since I'm not a 3 month+ sufferer yet.
But it's soon my 2 month anniversary and I think it's time to consider this treatment because I'm likely a chronic tinnitus sufferer now.
I see great news. It gives me some hope.
But it's soon my 2 month anniversary and I think it's time to consider this treatment because I'm likely a chronic tinnitus sufferer now.
I see great news. It gives me some hope.
- Jun 18, 2019
- 294
- Tinnitus Since
- 05/24/2019
- Cause of Tinnitus
- Chronic headphones use and acute noise induced trauma.
I just completed my booking assessment. I will see how it goes, my tinnitus is moderate, currently at a THI of 42. I am months away from getting any appointment anyway.
Either way, I am in Paris, so that's less than 2 hours plane away from Dublin and I have the money.
Either way, I am in Paris, so that's less than 2 hours plane away from Dublin and I have the money.
These observations from posters tend to keep repeating, but remember when looking at the graph that it's not breaking it down based on hyperacusis vs. no hyperacusis. My THI is probably on the upper threshold... but I have hyperacusis and they say those are "super-responders" so I'm going to expect a greater than average improvement. Do you have hyperacusis?
Maybe you asked this question as well: Does the cause of the tinnitus matter?
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