Lenire — Bimodal Stimulation Treatment by Neuromod

[Sironketchup]

So glad to hear good news guys. That really makes me calmer and gives me hope.
And if this really works, for, maybe 33% of people, you know what that means?
Neuromod folks are going to become billionaires, big companies are goping to jump in and in ~5-10 years there will be more (and even better) neuromodulation therapies widely available (with enough money).

5-10 years. That is a fair time frame. Hope.

Until then: *uck you tinnitus!

 

[Redknight]

It feels like a soft breeze to read reviews such as the one @Redknight just shared with us. Asking him all those details can add valuable information to the data we all are collecting here but I insist in the fact that the ultimate way of knowing if Lenire works for oneself is just trying it. Who's more determined to try it is a question of the severity of the subject's tinnitus.

I agree with you!

From my perspective, as one of the few who can truly comment on the experience of Lenire. It seems clear to me that Lenire works for some, but not all (at least up to the 12 week mark). I speak to quite a few other Lenire users and we generally all have two things in common, optimism and realism in healthy measures.

We all know this might not work, but hope it does.

People need to ask themselves;

• Am I a perfectionist, will I be angry if this fails or I have a mild benefit?
• Can I resolve the fact that I might be wasting money on a chance of a better life?

These are serious questions and I am not implying that answering yes or no makes you a good or bad person. There is no wrong answer, just an honest one.

The only true way of knowing if Lenire can help you it's to try it. No amount of comparing the sound, tone, age, THI score etc is really going to tell you that.

You're right to challenge Neuromod's figures, until there is official scientific data. But that is even more true of a few testimonials on the internet.

My tinnitus may have been mild to moderate by most standards on Tinnitus Talk, but I'm a 'fixer' and it was really bothering me, despite the newness. For me personally, it was worth the 1 hour drive to Dublin and the money, for a chance to get my life back.

A

 

[Redknight]

Can I ask you please if your tinnitus was originally tonal or hissing?

Both, but mostly hissing.

 

[ChrisBoyMonkey]

One good story in a sea of "meh" is so-so. And let's remember Redknight has only had tinnitus for 6 months. It could have gotten better without any intervention. We need Redknight stories from people who have had killer suicide tinnitus for many years.

The thing about the sea of "meh" is that there is also an ocean of good to great that some people are choosing to write off as "placebo" or "natural improvement".

 

[GlennS]

there is also an ocean of good to great that some people are choosing to write off as "placebo" or "natural improvement".

What there is... (other than @Redknight maybe) is an ocean of unmitigated meh that you're pretty much single-handedly trying to classify as good to great.

 

[ChrisBoyMonkey]

What there is... (other than @Redknight maybe) is an ocean of unmitigated meh that you're pretty much single-handedly trying to classify as good to great.

View attachment 32921

 

[ChrisBoyMonkey]

So glad to hear good news guys. That really makes me calmer and gives me hope.
And if this really works, for, maybe 33% of people, you know what that means?
Neuromod folks are going to become billionaires, big companies are goping to jump in and in ~5-10 years there will be more (and even better) neuromodulation therapies widely available (with enough money).

5-10 years. That is a fair time frame. Hope.

Until then: *uck you tinnitus!

I'm certain we'll have more treatments before then. Dr. Shore's device is probably next, and it could be as soon as late 2020 if we're lucky.

 

[hans799]

My theory is that people who had tinnitus longer will simply need a longer treatment time to respond. I'll be a good experiment, because my tinnitus is similar to @Redknight's, but I have had it for 31 years, not 5 months. If the initial 12 weeks don't yield any results, I'm determined to do Lenire at least one year long (and yes I know I'll need more tongue tips).

Once the brain has been doing something for 3 decades, it might need more than 3 months to unlearn it. The tech seems to be working so I'm giving it a full chance.

 

[UKBloke]

My audiologist said that, given the extent of my hearing loss, my tinnitus "was not bad at all."

"Oh, really?", I said to myself.

In my view, this is a prime example of why THI is so flawed. I'm waiting and hoping for the day when practitioners and tinnitus device manufacturers focus on objective measurements and outcomes instead of opinions.

 

[Ruse]

"We have not yet scheduled any 2020 appointments as we are trying to obtain more appointment times/days so that we can work through the waiting list much quicker. We will email you as soon as we can with an appointment .

Many Thanks,
Siobhan"

 

[El BUZZ]

My theory is that people who had tinnitus longer will simply need a longer treatment time to respond. I'll be a good experiment, because my tinnitus is similar to @Redknight's, but I have had it for 31 years, not 5 months. If the initial 12 weeks don't yield any results, I'm determined to do Lenire at least one year long (and yes I know I'll need more tongue tips).

Once the brain has been doing something for 3 decades, it might need more than 3 months to unlearn it. The tech seems to be working so I'm giving it a full chance.

Same here.

My tinnitus is very similar to Redknight's except mine falls more in the severe ballpark. 4 years now since onset, with a recent spike which I am afraid I should start calling a permanent worsening. I can't wait to give Lenire a shot and go further than the initial 12 weeks.

 

[UKBloke]

Once the brain has been doing something for 3 decades, it might need more than 3 months to unlearn it.

Amen.

 

[Sironketchup]

"Hi Simon,

Yes your place on our waiting list still stands. We are hoping to start allocating patients to our 2020 appointments very soon. We will email you with an appointment as soon as we can.

Many Thanks,
Siobhan"

 

[Krolo]

Hey all. Picking up the unit tomorrow at 11.30am, so if there is anyone in the vicinity who wants to grab a Guinness in the afternoon, I'm game.

 

[threefirefour]

@Liz Windsor thank you for your in-depth update.

 

[Ruse]

"Hi Simon,

Yes your place on our waiting list still stands. We are hoping to start allocating patients to our 2020 appointments very soon. We will email you with an appointment as soon as we can.

Many Thanks,
Siobhan"

Poor Siobhan must be absolutely sick to death of us.

 

[ajc]

Poor Siobhan must be absolutely sick to death of us.

Who can Neuromod blame but themselves for their disastrous communication skills. It's horrible how bad they are about it.

How hard can it be to have a webpage showing the current status of appointments? Just something like: "Updated in Nov 2019: We're sending appointment notifications for 2020 in the coming weeks/months, please stay put."

I'm sure some of you Neuromod preachers can explain that away too, like all of their mishaps (like how they promised peer reviewed results published ages ago, but always comes another "delay"...)

 

[JayBowson]

How hard can it be to have a webpage showing the current status of appointments? Just something like: "Updated in Nov 2019: We're sending appointment notifications for 2020 in the coming weeks/months, please stay put."

They're a tiny company of a few handfuls of individuals. The very last thing on their minds will be pandering to a vocal minority of message board whiners.

I'm sure some of you Neuromod preachers can explain that away too, like all of their mishaps (like how they promised peer reviewed results published ages ago, but always comes another "delay"...)

Yup this one is explained in the phrase itself. Peer review. Reviews done by Neuromod's peers. Not Neuromod themselves. Neuromod aren't in control of this process. And neither should they be.

I've come to a crossroads here. It's becoming difficult to pin down what will actually provide better THI scores overall. Lenire giving a majority of users a moderate THI improvement. Or the Tinnitus Talk 'negativity at all costs' brigade improving their THI by Lenire being a fud. Hard to tell.

 

[JohnAdams]

Who can Neuromod blame but themselves for their disastrous communication skills. It's horrible how bad they are about it.

Because they're secretive corporate robots.

 

[ajc]

Yup this one is explained in the phrase itself. Peer review. Reviews done by Neuromod's peers. Not Neuromod themselves. Neuromod aren't in control of this process. And neither should they be.

You should read up on academic peer review process. It doesn't work like you think.

FIRST Neuromod has to submit a paper / study results to a medical journal, whose peer reviewers then decide if the paper is worthy of publicizing, if it meets the standards.

AFTER Neuromod has submitted the paper, it will take about 3-9 months for the peer review to complete, depending on how many revisions are needed.

CURRENT STATUS is that Neuromod has not even bothered SUBMITTING the paper... Why? Does not make you cautious at all?

 

[JohnAdams]

The very last thing on their minds will be pandering to a vocal minority of message board whiners.

If anyone is a whiner it's you whining about people that are critical of this device and their company.

 

[Ruse]

They're a tiny company of a few handfuls of individuals. The very last thing on their minds will be pandering to a vocal minority of message board whiners

Dr. O'Neill mentioned in the podcast they now prefer to make announcements once they have reached milestones or something is actually happening.

Look what happened in here when Dr. O'Neill announced in advance that they aimed to launch in Q1 and ended up being 2 months late. I can't say I blame them.

 

[JayBowson]

You should read up on academic peer review process. It doesn't work like you think.

FIRST Neuromod has to submit a paper / study results to a medical journal, whose peer reviewers then decide if the paper is worthy of publicizing, if it meets the standards.

AFTER Neuromod has submitted the paper, it will take about 3-9 months for the peer review to complete, depending on how many revisions are needed.

Nothing that you say here in any way contradicts what I wrote?

CURRENT STATUS is that Neuromod has not even bothered SUBMITTING the paper... Why? Does not make you cautious at all?

I can think of any number of reasons. The problem only comes when everyone assumes that Neuromod are not submitting it for some nefarious reason under the guise of "asking questions".

The simple answer is we don't know. Speculating does nothing.

If anyone is a whiner it's you whining about people that are critical of this device and their company.

Ah hun has the glimmer of hope from the User Experiences recently gotten you riled? But what about the whiners whining about me whining about the whiners eh? What about those cool humans?

 

[Liz Windsor]

My theory is that people who had tinnitus longer will simply need a longer treatment time to respond. I'll be a good experiment, because my tinnitus is similar to @Redknight's, but I have had it for 31 years, not 5 months. If the initial 12 weeks don't yield any results, I'm determined to do Lenire at least one year long (and yes I know I'll need more tongue tips).

Once the brain has been doing something for 3 decades, it might need more than 3 months to unlearn it. The tech seems to be working so I'm giving it a full chance.

I do agree with you. Neuroplasticity I believe is a long term aim, not a quick fix. If you've had tinnitus a long time it stands to reason it's likely to take longer to make a difference.

 

[El BUZZ]

Hey all. Picking up the unit tomorrow at 11.30am, so if there is anyone in the vicinity who wants to grab a Guinness in the afternoon, I'm game.

A bit off topic but may be helpful to some of us visiting Dublin to grab the Len-Fuc**ng-Ire.

I have been to Dublin several times in my lifetime and despite not liking the city at all there's a pub you guys should visit: O'Donoghue's. Cozy, warm, quiet and reasonable prices.

For those of you looking for accommodation there's the Gardiner House Hostel where you can grab a bed in a bunk for around 20€ per night, breakfast included. There's a bowl on the counter with a bunch of packaged earplugs for free so we can call the place a tinnitus friendly hostel...

 

[GlennS]

I don't know the context but when I was in NYC the hotel room I stayed in had earplugs. It wasn't so much for the tinnitus but because NYC is a constant sturm and drang of construction during the day and sirens at night.

 

[El BUZZ]

I don't know the context but when I was in NYC the hotel room I stayed in had earplugs. It wasn't so much for the tinnitus but because NYC is a constant sturm and drang of construction during the day and sirens at night.

In this case is because the dorms could be shared with up to 14 other persons. Imagine the coughs, snooring, sneezing, walks in the middle of the night, etc... I thought I would have needed a pair of earplugs for my nostrils but luckily they weren't needed this time...

 

[Rafa03]

Hi @valeri,

I have had low drone tinnitus for about 4 years (along with high pitch tinnitus) in my left ear, I've pretty much learnt to ignore it but it has become more intrusive lately to the point that I can barely sleep.

I would like to know if anyone with similar tinnitus has tried Lenire? Me personally, I am waiting for Neuromod to contact me so I can get the appointment.

I hope you're doing well.

@El BUZZ, soy Rafa, esta es mi nueva cuenta x

 

[Krolo]

A bit off topic but may be helpful to some of us visiting Dublin to grab the Len-Fuc**ng-Ire.

I have been to Dublin several times in my lifetime and despite not liking the city at all there's a pub you guys should visit: O'Donoghue's. Cozy, warm, quiet and reasonable prices.

For those of you looking for accommodation there's the Gardiner House Hostel where you can grab a bed in a bunk for around 20€ per night, breakfast included. There's a bowl on the counter with a bunch of packaged earplugs for free so we can call the place a tinnitus friendly hostel...

I just love Dublin. It's like another version of a tiny New York.

 

[El BUZZ]

I just love Dublin. It's like another version of a tiny New York.

Can't stand being there knowing what's just a few miles around it.

Good you got your device today, mate. Hope this is your first step towards some well deserved relief.