Lenire — Bimodal Stimulation Treatment by Neuromod

[threefirefour]

Would it not? What is it, 2 to 3 grand for the device, multiple flights (long depending where you come from) and hotels. I can't see it being that cheap...

If you buy it now it might come close to 5000 grand? Assuming you live in America or some far off place, of course. If you live in Europe it's a hop.

 

[GlennS]

Would it not? What is it, 2 to 3 grand for the device, multiple flights (long depending where you come from) and hotels. I can't see it being that cheap...

It depends on how far you are from Dublin. For me it wouldn't be that bad for an American since I'd be flying from Boston. For someone in California or Australia, a lot worse.

 

[bobvann]

If you buy it now it might come close to 5000 grand? Assuming you live in America or some far off place, of course. If you live in Europe it's a hop.

Are you including the device and all the flights required? Is that 5 grand US which would be 7 to 8 CAD and that's a conservative estimate.

I am in Western Canada so I don't see it being much less than 7 to 8 grand. I'm including all the extras. Sure if it were available locally it would be a different matter. I get the feeling it would probably still be in the 5 grand range on par with TRT...

But hey some folks obviously have the means. I just wish it would help them. I know it is for some.

 

[threefirefour]

Are you including the device and all the flights required? Is that 5 grand US which would be 7 to 8 CAD and that's a conservative estimate.

I am in Western Canada so I don't see it being much less than 7 to 8 grand. I'm including all the extras. Sure if it were available locally it would be a different matter. I get the feeling it would probably still be in the 5 grand range on par with TRT...

I didn't think about that. I assumed you were using USD. You said TRT costs 5 grand, but it costs 5 grand USD, which would be a lot more in loonies. Neuromod has been pretty consistent about their ~$2,300 USD price tag, even when they started another location in Germany. Assuming this when it moves to the New World, even if you have to fly around, it will probably cost significantly less than TRT.

 

[Sironketchup]

@pinklights98 thanks for your report.

Sorry to hear that your tinnitus got worse, but let me tell you, I would go on. I would still use it 2x30 min. If you can't sleep, maybe get some medication for the time of the treatment.

I think it is a good sign that your tinnitus reacts. For many people (mostly with non-somatic tinnitus) their tinnitus does not even react.

Try to have 3 months of treatment. You have nothing to lose.

I had another thought, as far as I know, the brain naturally tries to tune out the tinnitus. If Lenire amplifies your tinnitus, your brain will start trying to tune that new, louder tinnitus out.

If you finish the treatment after 3-4 months, hopefully your tinnitus will go back to normal levels, but the brain is used to a higher level and might tune out the normal tinnitus better.

That's just a thought...
No warranty.
Cheers!

 

[Don Tinny]

I read @pinklights98's review and it's hard to stay positive about Lenire.

 

[HootOwl]

I read @pinklights98's review and it's hard to stay positive about Lenire.

Yeah... I was pretty excited until I think it was July or August where we found out so many people got temporary worsenings and the CEO said they thought most resolved. That left a really bad seed of doubt in me... I always thought but there's got to be some where it doesn't.

It also stood completely at odds with Dr. Shore's device where no one got deleterious effects from her clinical trials. I still don't quite understand this discrepancy. Perhaps someone with more knowledge behind the sequencing and programming of the two different devices could explain?

 

[EDDTEKK]

It appears that Lenire is like Russian roulette after reading the latest review by @pinklights98. Of course it might be too early to draw conclusions but it definitely does not sound good...

 

[Lurius]

I read @pinklights98's review and it's hard to stay positive about Lenire.

He used it for 2 weeks, give Lenire a break.

 

[Star64]

He used it for 2 weeks, give Lenire a break.

Yes, she has only used it for two weeks, so it is early days yet. I just hope nobody gets a permanent increase from it.

 

[bobvann]

Lenire is not worth the $$ right now IMO.

I get we need something. Mine has taken a turn for the worse recently. I like what I told a hearing "specialist" I saw in the early days. She asked me how I was doing, I said "I don't want to walk off a building anymore." Her reply was "You are getting used to it." Riggghhhhht. My WNGs were $2700 CAD (which is about the same as Lenire) after my insurance plan's portion and discounts. 20 minute drive to the clinic. Does not help my tinnitus. By May got a full refund. It's all the extras that kill you.

If Lenire gets worldwide approval it will probably take several more years to be available. Do they open a clinic or will they have training for audiologists?

As for the Dr. Shore's device, from what I understand, it's a TENS device right? The Dr. Ho is under $200.00 with a wack load of accessories. So what, are we going to pay a $2000 desperation tax?

 

[Ruse]

As for the Dr. Shore's device, from what I understand, it's a TENS device right? The Dr. Ho is under $200.00 with a wack load of accessories. So what, are we going to pay a $2000 desperation tax?

No it is not a TENS device. I suggest you do some research on bimodal neuromodulation.

 

[bobvann]

No it is not a TENS device. I suggest you do some research on bimodal neuromodulation.

Ok thanks, will do.

 

[PDodge]

I'm also in Western Canada. I know the reviews are not great at the moment, but if Lenire was available close to me I wouldn't hesitate to give it a shot.

 

[GlennS]

He used it for 2 weeks, give Lenire a break.

That's easy to say when you're not the one terrified that your new tinnitus tones are going to wind up being permanent. Anyone with tinnitus understands the constant anxiety we all feel that something we'll do or not do will worsen our tinnitus. I still haven't forgiven myself for going to the movie I saw that made my tinnitus worse. To be expected to casually shrug off worsening tinnitus symptoms because Neuromod just says it will go away is a tall order. I'd be curious to know what sort of indemnification clause Neuromod may have put in its contract to protect itself from worst-case-scenarios.

 

[Bartoli]

@pinklights98

I've read you review. I'm sorry to hear Lenire spiked your tinnitus. There can be many reasons why it gets worse.

I'm definitely not going to be the person that tells you to tough it out and continue. Can you give them a call before proceeding with the treatment? Maybe go in for another MML test to objectively assess whether or not it got worse? Stress can also wreak havoc on our tinnitus as I'm sure you know.

From reading some of your posts I see you're definitely very sensitive to sounds these days and worried over a lot of sound exposures. With the onset of tinnitus, many people develop some sort of hyperacusis (don't know if it's really hyperacusis, but some hypervigilance around any loud sounds) that fades over time. You were quick to get into Lenire after onset, maybe too soon?

You say you can't use other sound therapies on YouTube. Do you listen to these with headphones? If so, maybe you're overdoing the auditory stimulation? I guess not, because of your cautiousness around sounds.

These are all just some thoughts I had while reading your post. I have no real answers and just wanted to say I'm sorry you're going through this. It's probably good to point out @Redknight had some initial worsening.

All the best. I hope it settles.

 

[Candy]

I met an elderly lady at the reception, she was part of the clinical trials 1.5 years ago. She has had tinnitus for 6-7 years before starting the treatment, she said that after 3-4 months of using Lenire her tinnitus was totally gone and remains like that until now.

Hi Mentos, was it the lady in the Neuromod video?

 

[Lurius]

Hi Mentos, was it the lady in the Neuromod video?

I definitely thought of her as well, would be surprised if it was someone else. But also pleased, as that means more people who experienced a miracle. Oh, btw haven't seen you around in a while @Candy. I hope you're ok

 

[Sironketchup]

@Mentos,

Yes was it Patricia?



But that wouldn't fit with the 6-7 years of tinnitus. She said 3-4 years.

 

[ThomasW]

I think it is consistent with their understanding of the device. They have made it very clear from the beginning that this not a cure. Rather this makes it a bit better for those that it works for.

In early videos I watched they said the goal of Lenire was to get people back to work. It was never marketed directly as a cure.

 

[Mentos]

Hi Mentos, was it the lady in the Neuromod video?

I saw her only for a brief moment when leaving the lobby so I'm not 100% sure but I think she was someone else. The one I met had no glasses for sure.

 

[JohnK]

I'm in California, each trip costs me $1k and my employer has an office in Dublin where I can drop in and work so it's not costing me PTO. I'd obviously rather not be spending money but it's worth the try.

 

[Candy]

Hi @Lurius,

I'm up and down tbh. The crazy tinnitus levels of summer died down but I have had a rocky couple of weeks. It keeps me on my toes, what can I say...

 

[Candy]

Thank you guys x

 

[Mentos]

Hi @Lurius,

I'm up and down tbh. The crazy tinnitus levels of summer died down but I have had a rocky couple of weeks. It keeps me on my toes, what can I say...

How is your Lenire treatment going on @Candy? Does it have any effect on you?

 

[Lynny]

@Annpann Thanks for sharing your experience so far! I was starting to get quite worried about the possibility of placebo effect as the only explanation for any of the experienced improvements, but I cannot imagine being in 'complete silence' - as you described it - possibly being part of that.

 

[JohnK]

FWIW, I neither need nor expect complete silence. I'd love to just get back to where I was before getting screwed by Neomycin ear drops. I think reasonable expectations of just taking the edge off are helpful here.

 

[GregCA]

I'd love to just get back to where I was before getting screwed by Neomycin ear drops.

Was your ear drum perforated when you used the drops?

 

[JohnK]

Was your ear drum perforated when you used the drops?

No, however I used it for well above the recommended 7 days. As noted by the lovely experts at Chicago Dizziness & Hearing, "With repeated dosing, progressive accumulation occurs in the inner ear. Release occurs slowly over several weeks after dosing has been stopped." I read somewhere else it takes months for levels accumulated in the inner ear to go down to zero.

But on the plus side, all the hair cells I killed are right at the edge near the round window membrane in the high frequencies where FX-322 seems to be at its most promising.

 

[Christopher805]

Lenire sounds promising. Is there any discomfort experienced during treatment?

Also, it appears it's only offered in Europe. Does anyone know when it may come to the US?

For all those currently using the device I wish you success and to please keep updating us. God Bless. Peace.