MuteButton

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#871
Ecip said:
Can someone give a summary? The device seems to have been released... so why is it not up for sale?
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It was first released a couple of years ago, but was pulled from market (I don't think it has been published why).

Now it's coming to market again, read these two posts for updates:
Those two posts should answer your other questions as well.

Ecip said:
As a community, why don't we pool our resources and purchase a few of these, and let Tinnitus Talk users try it out? We rotate the devices between the users. If it doesn't work for you, pass it along. If it does work, finish treatment, then pass it along. If you wanna keep it, buy it. I mean, FFS, why can't we work together in this? Collaborate.
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This was an idea that @JohnAdams had earlier, and it's not a bad one.

We need to see how the device works. The previous version of the device required buying and having it set up to your unique tinnitus profile via an audiologist.
 
#872
I know somebody already said that the device is not dependent on the peer review.

But I sent a tweet to Neuromod to hear it from them.

So now the question is will they wait for the peer review to be published or not before putting it up for sale in the EU.

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#874
Markku said:
It was first released a couple of years ago, but was pulled from market (I don't think it has been published why).

Now it's coming to market again, read these two posts for updates:
Those two posts should answer your other questions as well.


This was an idea that @JohnAdams had earlier, and it's not a bad one.

We need to see how the device works. The previous version of the device required buying and having it set up to your unique tinnitus profile via an audiologist.
Click to expand...

I'll gladly pay for a local audiologist to set this thing up.
 
#875
Ecip said:
I'll gladly pay for a local audiologist to set this thing up.
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There might be licensing involved, i.e. only certain audiologists selling it and having the software to set it up, and I wouldn't be surprised if they required you to buy the device from the same place.

But it's all speculation at this point, we need to wait for Neuromod to publish more details. The Q&A @Steve is setting up with them for later in the year should be good.
 
#876
Sadly we can read some negative comments about it (irishhealth.com)

"My partner's experience of the Mutebutton is that it didn't work for him but try phoning the Beacon clinic"

"My husband's tinnitus is very bad and it is awful to see him suffer. Can anyone recommend a hypnotist in Ireland who has successfully treated a tinnitus patient? He tried the MuteButton but with no success"​
 
#877
Don Tinny said:
Sadly we can read some negative comments about it (irishhealth.com)

"My partner's experience of the Mutebutton is that it didn't work for him but try phoning the Beacon clinic"

"My husband's tinnitus is very bad and it is awful to see him suffer. Can anyone recommend a hypnotist in Ireland who has successfully treated a tinnitus patient? He tried the MuteButton but with no success"​
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Where did you get this from?

Was this from pre-2014 studies or recent?
 
#878
Don Tinny said:
Sadly we can read some negative comments about it (irishhealth.com)

"My partner's experience of the Mutebutton is that it didn't work for him but try phoning the Beacon clinic"

"My husband's tinnitus is very bad and it is awful to see him suffer. Can anyone recommend a hypnotist in Ireland who has successfully treated a tinnitus patient? He tried the MuteButton but with no success"​
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Interesting find.

Some other comments from the IrishHealth website (these were posted a couple of years ago when the device was being marketed for the first time):

"Hi, about the Mutebutton. Saw a lady on Ireland AM some time ago. She has Tinnitus for 30 years and she's using the Mutebutton. Her tinnitus is gone from 10 down to 7..that was several weeks ago. So it may help, but very expensive.."

"As for the Mutebutton, I knew someone close to this and was asked to take part in the clinical trials of this. Although I heard some got improvment, I found it did nothing for me when I used it."

"I tried it , did not work for me."

"It didn't work for me either am afraid. I see now James hostpital are trialing mutebutton. A waste of money in my view. I was part of the very first trial with no effect."​
 
#879
Markku said:
Interesting find.

Some other comments from the IrishHealth website (these were posted a couple of years ago when the device was being marketed for the first time):

"Hi, about the Mutebutton. Saw a lady on Ireland AM some time ago. She has Tinnitus for 30 years and she's using the Mutebutton. Her tinnitus is gone from 10 down to 7..that was several weeks ago. So it may help, but very expensive.."

"As for the Mutebutton, I knew someone close to this and was asked to take part in the clinical trials of this. Although I heard some got improvment, I found it did nothing for me when I used it."

"I tried it , did not work for me."

"It didn't work for me either am afraid. I see now James hostpital are trialing mutebutton. A waste of money in my view. I was part of the very first trial with no effect."​
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A problem with these comments is that we don't know whether these individuals were a part of the control group or the treatment group. It also seems all of these comments are from the pre 2014 trial groups because as I understand it the current trial groups that came after 2014 most likely had to sign non-disclosures since we can't find any information from anyone who participated. Hence "didn't work for me" could mean many things.

Sometimes, like with the University of Michigan, they test different timings and stimulation to see if it has different effects. One of our own posters talked about this. Not all the testing done is targeted just to reduce tinnitus. Sometimes they will see if they can increase it temporarily in order to better understand it. Seeing that it was these comments all prob came from the testing phase and not the final treatment they could have been doing just that.
 
#883
Don Tinny said:
Do you think this time it will work better? I am feeling down after reading those comments.

Only FX-322 left. :S
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I don't think so. They have come out and said "positive results", which would be super misleading if it didn't work. I'm not saying there is no chance it won't work, because that is a reality as well, but I'm saying that based on their current direction it doesn't seem so. Before they release their product they are going to get peer reviewed, which will validate their claims of the device further legitimizing it. If they were afraid that it wasn't going to work, they wouldn't bother with peer review and just release it.

Again I have no idea, this is just me being optimistic and trusting that peer review will legitimize it.
 
#886
john paul said:
It sounds to me like the MuteButton is just TRT gadgets packaged up with a different name.
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I don't think so. It appears to be a similar concept to the University of Minnesote and University of Michigan devices. Bimodal stimulation.

I just hope it works!!
 
#888
john paul said:
Still I look on with a glimmer of hope.
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I'm not sure why you feel this way. The science behind the device has been proven to be effective and there are two other groups working on the same project. You can't be suggesting that all this time and money is being put into something that doesn't work?
 
#890
There's no point being negative about it when we don't actually have all the facts.
Don't try it then when it eventually gets released. Gees.
 
#891
Jack Straw said:
I'm not sure why you feel this way. The science behind the device has been proven to be effective and there are two other groups working on the same project. You can't be suggesting that all this time and money is being put into something that doesn't work?
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Is that why they promote TRT?
 
#892
Did the three groups (MuteButton, University of Minnesota, University of Michigan) come up with this idea each independently? That would give it a lot more credence.
 
#893
Manny said:
Did the three groups (MuteButton, University of Minnesota, University of Michigan) come up with this idea each independently? That would give it a lot more credence.
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That's what is seems like.
 
#896
If a mechanic can't identify cause of a noise in an automobile and installs instead a new stereo speaker and circuit board to emit a frequency that counters the offending sound with a frequency of the same magnitude, will it matter when the ECU burns up a few years later?
 
#897
Laurie1961 said:
If a mechanic can't identify cause of a noise in an automobile and installs instead a new stereo speaker and circuit board to emit a frequency that counters the offending sound with a frequency of the same magnitude, will it matter when the ECU burns up a few years later?
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I don't think this analogy fits with neuromodulation.
 
#898
Manny said:
Did the three groups (MuteButton, University of Minnesota, University of Michigan) come up with this idea each independently? That would give it a lot more credence.
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They all come from a neuromodulation background: the alteration—or modulation—of nerve activity by delivering electrical or pharmaceutical agents directly to a target area.

These devices all use different nerves as pathways to the brain, and also act on different parts of the brain.

You should really question neuromodulation first. Can we alter nerve activity with electrical or pharmaceutical agents?
 
#899
kelpiemsp said:
They all come from a neuromodulation background: the alteration—or modulation—of nerve activity by delivering electrical or pharmaceutical agents directly to a target area.

These devices all use different nerves as pathways to the brain, and also act on different parts of the brain.

You should really question neuromodulation first. Can we alter nerve activity with electrical or pharmaceutical agents?
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Yes, we can. Look at people who has Parkinson's or essential hand tremors. When DBS devices are used it rids them of their tremors because it stops the nerves from misfiring signals.

 
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