My Posting Place

First time posting here. Holy moly, 309 pages of what I'm hoping is quality memes.

I'm glad CBT and TRT are made fun of, both seem the equivalent of emotional Stockholm Syndrome to me.

Now, to page 1!
 
So what in hell ever happened with vagus nerve stimulation? Which, by the way Sven Vanneste was involved in (https://www.utdallas.edu/news/2013/...-Positive-Results-for-Tinnitu_story-wide.html ; he is currently involved with Neuromod)
I just fear that Neuromod is gonna go the way of Vagus Nerve Stimulation, Transcranial Stimulation, ACRN, and all those other things that apparently excited many people for a while, and had large scale trials planned or conducted - and then just drifted to the dusty shelf of unfinished history.
AARGH
 
First time posting here. Holy moly, 309 pages of what I'm hoping is quality memes.

I'm glad CBT and TRT are made fun of, both seem the equivalent of emotional Stockholm Syndrome to me.

Now, to page 1!
Yeah exactly! Thanks glad you think so. Lots of people from across the tinnitus community settled on this island of sanity.
 
upload_2019-2-5_15-53-45.png
 
Yeah exactly! Thanks glad you think so. Lots of people from across the tinnitus community settled on this island of sanity.

It's like an old Chris Rock joke about being paraplegic and being offered a wheelchair.

"I didn't say I can't sit! I can't walk!"

I was told to read up on TRT and QBT from people like my psychologist, with a view that we'd start it soon.

Honestly, reading this forum about the research that's being done to actually fix the problem has made me happier than trying to reframe how shit life with T is.

In time, I hope to provide memes of quality myself.
 
What if the reason that FrequencyTX has a DOD contract for muscle regeneration isn't because they want to use it primarily for regeneration, but generation, for super strong soldiers?
 
Just got an email about the Tinnitus Week seminar I signed up for this weekend.

A new hearing aid is being shown around. Register now!

I know this will be useful for some attending, but fuck me, that's grim.

Literally everything about the seminar right now makes me want to down all my zopiclone to go night night.
 
They don't have a page on HBOT on their website, even though anecdotal evidence has proven successful in helping lower T. At least let people know about it.

Utter wanks.

No mention of medication either, as far as I can see. Just hearing aids, masking and mindfulness.
 
the gatekeepers of tinnitus don't admit it.
They are the gatekeepers and they don't admit a lot of things.

dude if we would have gotten dexamethasone shots when we were in the acute stage we may not even have tinnitus right now.

The BTA has a mention of dexamethasone being ineffective in tinnitus but neither they nor the study they cite mentions if the subjects were in the acute stage or the chronic stage.

"Intratympanic membrane injections have been attracting some interest. The steroid dexamethasone was used on 27 patients, with 27 others in the control group receiving a saline injection. There was some improvement in both groups, but there was no significant difference between them "

Source:
https://www.tinnitus.org.uk/2018-at...lliance-tinnitus-priority-setting-partnership

From the actual study:
"The effectiveness rates of ITDI for refractory tinnitus reported in the tinnitus questionnaires, in the THI, and in the loudness matching test were all 33.3% in the steroid group, and 26.7%, 40.0%, and 26.7% in the saline group, respectively."

"Conclusions
ITDI [(intratympanic dexamethasone injections)] may not be effective for refractory tinnitus. The indication of ITDI for tinnitus needs to be limited to specific cases."

Source:
Choi SJ, Lee JB, Lim HJ, In SM et al. Intratympanic dexamethasone injection for refractory tinnitus: prospective placebo-controlled study. Laryngoscope. 2013: Nov 123(11): 2817-22. doi: 10.1002/lary.24126

re·frac·to·ry
Dictionary result for refractory
/rəˈfrakt(ə)rē/
adjective
FORMAL

    • 1.

      stubborn or unmanageable.
      "his refractory pony"
      synonyms: obstinate, stubborn, stubborn as a mule, mulish, bull-headed, pigheaded, obdurate, headstrong, self-willed, wayward, willful, perverse, contrary, recalcitrant, obstreperous, disobedient, insubordinate, rebellious, mutinous, defiant, stiff-necked, intractable, intransigent, unyielding, unmalleable, unmanageable, ungovernable, unpersuadable;

    • 2.

      resistant to a process or stimulus.
So it looks like the BTA cited a study where they used dexamethasone on CHRONIC tinnitus cases, IN WHICH IT IS NOT EFFECTIVE and downplayed its effectiveness in the only mention of it on their entire site, if you search for dexamethasone.

This flies in the face of another study that showed great success with dexamethasone as well as IGF-1 in acute stage SSHL.

'In the IGF-1 group, 66.7% (95% confidence interval [CI], 52.9–78.6%) of the patients showed hearing improvement compared to 53.6% (95% CI, 39.7–67.0%) of the patients in the Dex group (P= 0.109). The difference in changes in pure-tone average hearing thresholds over time between the two treatments was statistically significant (P= 0.003). No serious adverse events were observed in either treatment group. "

"The positive effect of topical IGF-1 application on hearing levels and its favorable safety profile suggest utility for topical IGF-1 therapy in patients with sudden deafness."

Source:

So not only is the BTA completely wrong about dexamethasone injections but they also completely ignore research into igf-1 injections which are even superior to that!

igf1.JPG

These people are not helping the situation. They are not moving us towards a cure. AND THEY JUST HIRED A TERRIBLY UNFUNNY COMEDIAN TO BE THEIR SPOKESPERSON SO THEY CAN MAKE A JOKE ABOUT HOW OUR LIVES ARE RUINED.

" a higher proportion of patients with 30 dB HL improvements in pure-tone average hearing thresholds was measured for the IGF1 group than in that the intra-tympanic steroids group. "

Source:
Insulin-like growth factor 1: A novel treatment for the protection or regeneration of cochlear hair cells Kohei Yamahara, Norio Yamamoto* , Takayuki Nakagawa, Juichi Ito Department of Otolaryngology, Head and Neck Surgery, Graduate School of Medicine, Kyoto University, 54 Shogoin Kawahara-cho, Sakyo-ku, Kyoto 606-
8507, Japan
 
There needs to be "F*cking Jokes News" thread on TT alongside Research News for all the "groundbreaking amazing" TRT and other bullsh!t studies. I and we are sick and tired of this being paraded as research.
 
The real mystery is how PJ has any time to promote TRT what with all the alt accounts he runs on Tinnitus Talk!
 
They are the gatekeepers and they don't admit a lot of things.

dude if we would have gotten dexamethasone shots when we were in the acute stage we may not even have tinnitus right now.

The BTA has a mention of dexamethasone being ineffective in tinnitus but neither they nor the study they cite mentions if the subjects were in the acute stage or the chronic stage.

"Intratympanic membrane injections have been attracting some interest. The steroid dexamethasone was used on 27 patients, with 27 others in the control group receiving a saline injection. There was some improvement in both groups, but there was no significant difference between them "

Source:
https://www.tinnitus.org.uk/2018-at...lliance-tinnitus-priority-setting-partnership

From the actual study:
"The effectiveness rates of ITDI for refractory tinnitus reported in the tinnitus questionnaires, in the THI, and in the loudness matching test were all 33.3% in the steroid group, and 26.7%, 40.0%, and 26.7% in the saline group, respectively."

"Conclusions
ITDI [(intratympanic dexamethasone injections)] may not be effective for refractory tinnitus. The indication of ITDI for tinnitus needs to be limited to specific cases."

Source:
Choi SJ, Lee JB, Lim HJ, In SM et al. Intratympanic dexamethasone injection for refractory tinnitus: prospective placebo-controlled study. Laryngoscope. 2013: Nov 123(11): 2817-22. doi: 10.1002/lary.24126

re·frac·to·ry
Dictionary result for refractory
/rəˈfrakt(ə)rē/
adjective
FORMAL

    • 1.

      stubborn or unmanageable.
      "his refractory pony"
      synonyms: obstinate, stubborn, stubborn as a mule, mulish, bull-headed, pigheaded, obdurate, headstrong, self-willed, wayward, willful, perverse, contrary, recalcitrant, obstreperous, disobedient, insubordinate, rebellious, mutinous, defiant, stiff-necked, intractable, intransigent, unyielding, unmalleable, unmanageable, ungovernable, unpersuadable;

    • 2.

      resistant to a process or stimulus.
So it looks like the BTA cited a study where they used dexamethasone on CHRONIC tinnitus cases, IN WHICH IT IS NOT EFFECTIVE and downplayed its effectiveness in the only mention of it on their entire site, if you search for dexamethasone.

This flies in the face of another study that showed great success with dexamethasone as well as IGF-1 in acute stage SSHL.

'In the IGF-1 group, 66.7% (95% confidence interval [CI], 52.9–78.6%) of the patients showed hearing improvement compared to 53.6% (95% CI, 39.7–67.0%) of the patients in the Dex group (P= 0.109). The difference in changes in pure-tone average hearing thresholds over time between the two treatments was statistically significant (P= 0.003). No serious adverse events were observed in either treatment group. "

"The positive effect of topical IGF-1 application on hearing levels and its favorable safety profile suggest utility for topical IGF-1 therapy in patients with sudden deafness."

Source:

So not only is the BTA completely wrong about dexamethasone injections but they also completely ignore research into igf-1 injections which are even superior to that!

View attachment 26516

These people are not helping the situation. They are not moving us towards a cure. AND THEY JUST HIRED A TERRIBLY UNFUNNY COMEDIAN TO BE THEIR SPOKESPERSON SO THEY CAN MAKE A JOKE ABOUT HOW OUR LIVES ARE RUINED.

" a higher proportion of patients with 30 dB HL improvements in pure-tone average hearing thresholds was measured for the IGF1 group than in that the intra-tympanic steroids group. "

Source:
Insulin-like growth factor 1: A novel treatment for the protection or regeneration of cochlear hair cells Kohei Yamahara, Norio Yamamoto* , Takayuki Nakagawa, Juichi Ito Department of Otolaryngology, Head and Neck Surgery, Graduate School of Medicine, Kyoto University, 54 Shogoin Kawahara-cho, Sakyo-ku, Kyoto 606-
8507, Japan
@David I humbly invite you to correct this on your site.
 

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