bill 112
Member
The thing that makes me question this is if Harvard can't restore hearing using Stemcells yet what makes us think that some lads in Thailand with a fancy clinic can?
My Trip to Bangkok: Stem Cell Treatment [Comments]
- Thread starter Markku
- Start date
monacco
Member
May be because in US there are a lot of hearing aids companies
are you understanding me?
bill 112
Member
Loud and clear MonaccoMay be because in US there are a lot of hearing aids companies
MemberAgreed, and its good to be skeptical with this stuff. I hold out hope though after reading some of the success stories of people that have done a similar procedure and benefited from it. You have the Gerbils in the UK that 4 years ago got some of their hearing back with this procedure. You also have the trials going on in the children's hopitals where they are doing this and some of the kids have benefited from the procedure.
The problem is that all we have are stories. Most of those trials were in 2012. We have had 4 years now. You would think we could get a bit more concrete info than what we have read. What about all the participants? What happened to them? Did it work? There is almost nothing on the net that tells up what happened.
Big pharma won't support stem cells since they can't make money on it, so the only way this is going to work is if a clinic picks this up and starts doing these procedures.
Its a big risk though and if they were serious, they would have before/after audiograms with stories of real people that have benfited from this procedure.
So it would seem, they have yet another new page on their website for tinnitus treatment:
http://stemcells21.com/stem-cell-tinnitus-treatment/
...and hyperacusis is referenced also.
As always, follow them on Facebook for new updates. Their posts have been pretty interesting this week!
https://www.facebook.com/stemcells21
I agree. Although an audiogram is only valuable if you know it is not made up. Unfortunately you can not know this.
The lack of follow up stories makes me less enthusiastic. 2012 Is a long time ago when we talk about important "breakthroughs". This is why I am starting to think it just is not yet working for the majority of cases. Perhaps only for very few people.
On the other hand I am excited that stemcell21 is starting with treatments especially for hearing disorders.
They are not the only one: the-stem-cell-center.com/component/content/article/39-deafness.html
Perhaps we will see what Action On Hearing Loss, Stanford, Hearing Health Foundation etc....have to say about these clinics. If more of these clinics offer stem cell therapies for hearing disorders, perhaps there will be a response from them?
In the meantime I will continue saving. Let just see what the situation is in five years with stem cell therapy
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
@attheedgeofscience
What do you think about this. You who have been there? Correct me if I´m wrong, but I also think I´ve read somewhere that you have been working/advocating for this special procedure(intratympanic injection of sc) to be performed also?
I don´t know. Would just be interesting to hear your thoughts on this procedure.
What do you think about this. You who have been there? Correct me if I´m wrong, but I also think I´ve read somewhere that you have been working/advocating for this special procedure(intratympanic injection of sc) to be performed also?
I don´t know. Would just be interesting to hear your thoughts on this procedure.
monacco
Member
They didn't give me the number but they told me that they have treated a
lot, this is what they said me :If you want to talk to our treated patients please let us known, or I can organize a phone consultation from our treating team
OK I'm been saying this for thousand times the companies selling hearing aids they don't care for the real treatment We have to stop buying hearing aids in the USA or never will we get to get a real treatment they spend millions of dollars buying hearing aids and they have to sell them out everything is connected the government hearing aids companies we have to stop buying hearing aids again or never we going to get the real medication that's why clinical trials for real treatment get to Long way because those companies pay them to stop the trials believe me I spoke to somebody very close to the government in the health department and he told me that's what happen that's why every time you go to ENT they recommend to you to audiologist and then of course they try to put you In hearing aids or TRT is the same thing so please don't buy no more hearing aids
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
AAM
Member
I really like the way StemCells21 are taking the 'bull by the horns'. Gives us all a bit of hope.
bill 112
Member
Hi everybody
I have a question/critic: this experimental treatment seems very exciting, and I hope it will work for some of the people who want to try it. I'm thinking about it too, but after discussing with a friend about stemcells, we were wondering that the cells imported to our body are coming from other persons so their DNA will be mixed with ours.
If you already have children, I think it way worth it. But in case you want to have children, what about the mixture of DNA?
Just asking and of course I rather be T free even I have to adopt a kid rather than making one (in case my question does really make sense).
I have a question/critic: this experimental treatment seems very exciting, and I hope it will work for some of the people who want to try it. I'm thinking about it too, but after discussing with a friend about stemcells, we were wondering that the cells imported to our body are coming from other persons so their DNA will be mixed with ours.
If you already have children, I think it way worth it. But in case you want to have children, what about the mixture of DNA?
Just asking and of course I rather be T free even I have to adopt a kid rather than making one (in case my question does really make sense).
undecided
Member
There is no issue about DNA being mixed. If that was the case, we'd be talking about possible body mutations.
And if you prefer, stem cells can be harvested from your own body (they are not as potent as donated embryonic stem cells though).
I believe that ateos has given a nice description of the different types of stem cells in his journal, I think you can find the link on the first page of this thread.
And if you prefer, stem cells can be harvested from your own body (they are not as potent as donated embryonic stem cells though).
I believe that ateos has given a nice description of the different types of stem cells in his journal, I think you can find the link on the first page of this thread.
@undecided
Thank you. That's interesting. So if I have one of my sister pregnant, can I use her embryonic stem cells? (just asking)
I mean, would be the better case, I think...
Thank you. That's interesting. So if I have one of my sister pregnant, can I use her embryonic stem cells? (just asking)
I mean, would be the better case, I think...
undecided
Member
I would suppose so (I'm certainly no expert though).
However, your question would not apply in the context of this thread, because:
As you can see, they won't use embryonic stem cells anyway.
However, your question would not apply in the context of this thread, because:
http://stemcells21.com/about-stem-cells/ said:
As you can see, they won't use embryonic stem cells anyway.
I understand embryonic stem cells are only used for research in limited capacity, but aren't they the only ones that you can truly call regenerative and are able to differentiate into just about anything?
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
A link that was posted two three times already. And in discussion on the thread! Just seemed unmotivated to post links if he dont follow the thread. Maybe I´m irritated by nothing. I have Tinnitus!
mmmm what?
dude
i understand your irritation out of nothing, i have had that too lately.
no hard feelings, but an advice...in the future just ignore when someone does something that bothers you...
we are in this to help each other not to become internet hateful trolls.
bill 112
Member
I know and I see your point but there's no need to start an argument,if that irritates you just bite your lip and let it slide or else this whole thread will take a nose dive and go completely off subject with people bickering over links,see my point?Anyway this looks interesting and I'm in contact with this clinic now,but I'm not overly convinced by them yet,just check out their Facebook page and you'll see what I mean,seems fishy but of course I'm a huge sceptic of things until proven otherwise so I could be completely wrong and most likely am.
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
- May 7, 2015
- 1,045
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
Totally agree. There is no room for bickering. And this is serious. This is life and death-serious for many of us.
I find it really hard to make my mind up about this myself. I mean on paper this seems so ingenious. Injection of biological seeds right where it hurts. But any intelligent human would want some kind of documentation of its effect before one splashes the cash. It´s not exactly cheap this treatment.
Im no expert, but whats bugging me is that if maybe its the synaps(don´t even really know what that is, but think it is nerves that the haircells are attached to) are the culprit of T and H you can regrow as much HC you want but the signals still wont get through. Can the synaps also be regenerated?
Anyway. Its healthy to be sceptic too. God knows us T-sufferers have been tried taken advantage of before.
bill 112
Member
Completely agree 100%,there comments on this procedure just seem so under-whelming and very laymanny if that makes sense?Just seems like they're explanation for this treatment is very basic,"cells go in,hearing gets better"but there's so much more to the picture than that and it's things like this that make me doubt them.Even on their Facebook page anytime someone asked an educated question or even a question for that matter they just ask them to write it in an email,why not answer it for all to see?
But to answer your other question there's been evidence that when new haircells are made the auditory nerve sprouts out and makes new connections with them so in a way yes,we do make new synapses after haircell regeneration from what I've read.But again it's still not that simple.
bill 112
Member
Even their reviews seem odd,not like genuine patients to write things like this but more so staff members.....
The other questions are......
The 18k, is that for one ear or both? If it is per ear than its a good chuck of change.
Are they really going to inject a shot into your cochlear? hardest bone in the body? I know there are ways to do this, but not sure if I would let a clinic do something like this.
The new device that draper came out with puts medicine in while it extracts liquid out. I don't think you can just add more stem cells like the way they show.
Most of the research I have read takes stem cells and converts them to hair cells and then puts them in the ear. I think the 2012 experiments just put stem cells into the ear from the persons own umbilical cord cells. I did read, that although they had some success with this, I think they determined it wasn't a good way to go, but again no backup on any of the info.
The 18k, is that for one ear or both? If it is per ear than its a good chuck of change.
Are they really going to inject a shot into your cochlear? hardest bone in the body? I know there are ways to do this, but not sure if I would let a clinic do something like this.
The new device that draper came out with puts medicine in while it extracts liquid out. I don't think you can just add more stem cells like the way they show.
Most of the research I have read takes stem cells and converts them to hair cells and then puts them in the ear. I think the 2012 experiments just put stem cells into the ear from the persons own umbilical cord cells. I did read, that although they had some success with this, I think they determined it wasn't a good way to go, but again no backup on any of the info.
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