Suicidal
- Thread starter jeremy06
- Start date
Member- Jun 13, 2019
- 1,108
- Tinnitus Since
- 10/2018
- Cause of Tinnitus
- Started with a cold, possibly worsened by medication/noise
Very poignant, @Christiaan, and indeed as @Kriszti says there is basically very little to no help. Even benzos don't work for me, at least at reasonable doses. I suspect they actually make things worse.
You are right to warn people about noise but this hellish condition can hit you also simply because of a cold, stress or medication. There is no excuse for medicine to have underplayed this horror for so long. I have found empathetic doctors who want to help me but they don't know how and I often show them research papers myself to try medications.
I'm so sorry you are going through this. We can put some hope in the upcoming treatments, the question is whether we will make it till then. I don't feel I can make it unless this horrid progression stops and reverts. I hope you can make it.
You are right to warn people about noise but this hellish condition can hit you also simply because of a cold, stress or medication. There is no excuse for medicine to have underplayed this horror for so long. I have found empathetic doctors who want to help me but they don't know how and I often show them research papers myself to try medications.
I'm so sorry you are going through this. We can put some hope in the upcoming treatments, the question is whether we will make it till then. I don't feel I can make it unless this horrid progression stops and reverts. I hope you can make it.
I managed to habituate to my tinnitus pretty well since last week. I heard it at night but didn't care at all. However now I am focusing on the hissing again, and I am legit feeling it louder, and I am afraid to go suicidal.
Is this a spike or just my anxiety?
Is this a spike or just my anxiety?
- Aug 5, 2019
- 1,852
- Tinnitus Since
- 05/2019
- Cause of Tinnitus
- Autoimmune hyperacusis from Sjogren's Syndrome
For what it's worth, I'm just a common folk, but I am very optimistic about OTO-413/FX-322 for noise-induced sufferers -- in particular that it will reduce the intrusiveness of tinnitus. I can't speak for other conditions, but logic says that noise-induced sufferers have hair cell/synapse damage. If I was a noise-induced case, I would absolutely not kill myself before we know the possible benefits of these medications. And actually, SPI-1005 should be out soon as well, which could help some.
Drug enthusiasts and my psychiatrist.
Edit: I like having a time out period every week. I know I can't extend it beyond that. Looking forward to Xanax + PS5 next month.
Agreed here. I think the combination of these three meds will bring even the most severe noxacusis sufferers back to an only hearing T in quiet room stage and also completely eliminate the pain and loudness since input to the cochlea will be restored (going off current theories). In fact, SPI-1005 could be on the market as soon as 2021 for off-label use and it will eliminate hyperacusis inflammation.
Too exciting of a time to be offing ourselves yet.
- Oct 19, 2019
- 862
- Tinnitus Since
- 2016/2017/2019
- Cause of Tinnitus
- Unknown
It's really hard to tell. Were you exposed to loud sounds, tried new medicine, slept worse or did anything out of the ordinary happen?
If it's only louder when you are focusing on it, possibly it's anxiety.
I'm so sorry to read the comments and the feelings of utter despair and fear. These are normal reactions, but they are terrifying.
I experienced what I believe to be similar when my tinnitus started in March this year. I spiralled. It was the worst time of my life, I thought my life was over and I searched online daily for any possible cures or glimmers of hope whilst numerous docs appointments / MRIs / hearing tests said that there was nothing wrong.
This is a bold thing to write so please bear with me and allow yourself to believe as much of this as possible, because I have seen it with my own experience:
- You can live a normal, healthy life again, even with tinnitus
- There is no magic cure
- It is hard work and not a quick fix, but focus inward
- Our brains are amazing things that can either work for or against us - the trick is to start using it as your ally
- The best thing I ever did was to focus on Dr Bruce Hubbard's work. He lives with tinnitus and helps others by relaying the facts and by CBT sessions to help you re-wire your brain
https://www.cbtfortinnitus.com/
If you're struggling - please try watching his 90 min webinar about tinnitus. Please also reach out to him - he can hold virtual coaching sessions and offer support.
Please consider getting yourself the support of a great counsellor or therapist. Tinnitus feels like a physical illness, but it's such a mental one to overcome and you CAN do it.
Thinking of you all xxx
I experienced what I believe to be similar when my tinnitus started in March this year. I spiralled. It was the worst time of my life, I thought my life was over and I searched online daily for any possible cures or glimmers of hope whilst numerous docs appointments / MRIs / hearing tests said that there was nothing wrong.
This is a bold thing to write so please bear with me and allow yourself to believe as much of this as possible, because I have seen it with my own experience:
- You can live a normal, healthy life again, even with tinnitus
- There is no magic cure
- It is hard work and not a quick fix, but focus inward
- Our brains are amazing things that can either work for or against us - the trick is to start using it as your ally
- The best thing I ever did was to focus on Dr Bruce Hubbard's work. He lives with tinnitus and helps others by relaying the facts and by CBT sessions to help you re-wire your brain
https://www.cbtfortinnitus.com/
If you're struggling - please try watching his 90 min webinar about tinnitus. Please also reach out to him - he can hold virtual coaching sessions and offer support.
Please consider getting yourself the support of a great counsellor or therapist. Tinnitus feels like a physical illness, but it's such a mental one to overcome and you CAN do it.
Thinking of you all xxx
Very possible, since dysacusis is likely either a result of inflammation or damaged hair cells, both of which are being worked on. I also notice that my dysacusis tends to get worse after a setback, telling me it has something to do with inflammation. Sound Pharmaceuticals' SPI-1005 should be available for off-label use sometime early 2021.
I have a feeling there will be very very soon
Also, tinnitus is a very physical condition caused by cochlear damage or head trauma.How long will we really have to wait? It would be nice if these drugs can come out next year. I was born with severe hearing loss too but my dysacusis and reactive tinnitus came from a virus so I'm hoping some of these drugs could also help me.Very possible, since dysacusis is likely either a result of inflammation or damaged hair cells, both of which are being worked on. I also notice that my dysacusis tends to get worse after a setback, telling me it has something to do with inflammation. Sound Pharmaceuticals' SPI-1005 should be available for off-label use sometime early 2021.
I have a feeling there will be very very soon
The ironic thing is I took multiple hearing tests after this and it shows my hearing loss has remained the same as it was so either inner ear inflammation made my mild tinnitus severe or something. Not sure what exactly this virus did to give me reactive tinnitus as there was no vertigo or vomiting, just a cold, but it was last November.
We would have to get a prescription from the doctor for these drugs right? Sorry I'm still learning about this stuff.
GaryTH
Member
- Sep 14, 2020
- 39
- Tinnitus Since
- 03/2020
- Cause of Tinnitus
- noise exposure, stress, NSAIDS, eabuds, shingles vaccine
Benzos ruined my life after only 3 months used nightly for sleep. Dangerous withdrawal symptoms had me thinking way darker thoughts along with depersonalization/derealization than tinnitus and hyperacusis ever did. I highly regret taking them and am still suffering protracted effects including worse insomnia and anxiety than before I took them.
FX-322 is an injection and OTO-413 is a pill and both are administered by ENTs. SPI-1005 is prescription.
What were you taking and how much?
I'm worried the doctor won't prescribe those drugs to me :/ the drugs won't only be for noise induced hearing loss, right? I mean I was born with my hearing loss and I have an ear that is like 85 percent deaf with sensorineural hearing loss.
- Jan 21, 2020
- 28
- Tinnitus Since
- Nov 2019
- Cause of Tinnitus
- coke with anabolic steroids + HGH
Check out my thread about safe benzo drug:
Here's a Safe Benzo Drug for Tinnitus Sufferers: Tofisopam (Emandaxin, Grandaxin, Sériel)
As I said, there might be a price to pay.
Then again, we are all so different. I've seen people quit after years and years of continuous benzo use with no withdrawal symptom whatsoever.
There's no general rule that can apply here.
- Dec 7, 2018
- 554
- Tinnitus Since
- 03/2018
- Cause of Tinnitus
- Unknown
Agree, they don't deserve a dime unless they reform, but to be fair, the research they fund is cure based.
G
GoatSheep
Guest
This man had been a firefighter, had probably been exposed to very loud sirens for years. He went on disability due to an injury and at some point went to a loud club and got tinnitus, which apparently cause him to start thinking of suicide immediately. He tried to kill himself within weeks of getting tinnitus. He failed the first time but was successful within a couple of months.
I'm sorry to say, but this man sounds mentally unstable to me. Maybe it was the meds he was given, or something else that pushed him over the edge. At one point, during his tinnitus depression, his wife decided to attend music shows, without him. What kind of a person would do this, when married so someone that is extremely depressed about having tinnitus and hyperacusis?
Only 0.5mg once a week? My god man, my hearing issues now aren't half as bad as yours sound and yet I thought I was disciplined sticking with 1mg Klonopin a day
How DO YOU exercise such self-control!Ya, I think you'll be ok. And I agree that everybody is different with Benzos, but the scaremongering here is just comical.
Don't apologize for looking forward to taking it. There are too few pleasures in life as it is even without fucking tinnitus.
It would depend on what caused the hearing loss i would think. If you had hair cell loss in utero from a CMV infection, for instance, I don't see why this wouldn't work but if you have a Otoferlin mutation or other genetic deafness it may not be. It really depends.
FX-322 is not just for noise induced. Tinnitus Talk did a podcast with the company and it's worth listening to (and is captioned if needed):
Hearing Lost and Found — Frequency Therapeutics (and captions)
Clearly he killed himself because his wife went to concerts without him. I found this article quite good because most of such articles imply that the one who committed suicide must have done so because of some mental health problem instead of tinnitus.
I've heard he only crossed the Rubicon because he couldn't hear all the senators shouting at him from the other side due to his tinnitus.
Log in or register to get the full forum benefits!
Similar threads
