Suicidal

I now truly understand what is like to want to kill yourself over tinnitus.

I have suffered from tinnitus on and off since 2015. Initial noise damage due to concert which resulted in bilateral tinnitus that resolved after 2 years. No measurable hearing loss. Last year, I suffered mild unilateral hearing loss with unilateral - left tinnitus. Habituated and then had another shift in hearing and increased unilateral
tinnitus in same year. It resolved after I regained my hearing as a result of steroid treatment.

Tinnitus Talk has been a lifeline for me on and off over the last six years. I've definitely struggled along the way for sure, but the one thing I was always so grateful for is that I could generally mask my tinnitus. It was a lot of work but ultimately I could mask it.

For 1.5 years on and off I have also had a high pitched hiss/whine. It was not easily masked but it was pretty low in volume so it never really bothered me too much. Although I could experience it in both ears it was mostly my right ear that was problematic and consistent. My left was often silent. I've had a number of hearing tests including three this year and I've had no hearing loss in the right ear since my baseline test in 2015. It started in May of last year and subsided in September and did not return until March which coincided with an early allergy season. I always attributed this to to my TMJ (per the dentist) and/or my allergies since it's resolved a number of times and in the absence of measurable hearing loss. I can also modulate it. I can move my neck a certain way and it will get louder. Jaw movements make it louder, chewing can make it louder. Try to wear my retainers at night. You can see that I chewed up my Invisalign and my jaws are very tight and click constantly. I get pain in my left ear and sometimes the right. Doctor says it is 100% TMJ related. My right ear also pops constantly.

Over the last week it has taken a completely different direction. It's gone from a hiss to a full on whine, which is very high pitched like a tea kettle. And very, very loud. I can't mask it and it's driving me crazy. I feel like if I plug my ears and I listen to it, it comes in waves - gets really loud and then a little duller and then really loud and then a little duller. I'm supposed to be on vacation on Cape Cod with my family and I'm miserable. I'm putting heat on my jaws to relax them, taking my Nasal spray, decongestants, Ibuprofen now a then to try to decrease the inflammation in my jaws. But it had never been fully sustained like this, or as loud. It was always coming and going of fluctuating throughout the day. But over the last week it's just been a study high-pitched noise and louder than ever. I can't imagine what changed. I am at a loss. I'm taking Klonopin to calm myself down. Although it doesn't impact my tinnitus. But I don't want to continue to use it. I was in the process of slowly, and I mean slowly, weaning myself off. Now I've had to up my dosage again.

I can't imagine how I will live a life like this. I'm having a hard time working or concentrating on anything. I can't enjoy anything. I can't imagine how I will ever cope up with this. I'm supposed to take my son to California in two weeks and I'm dreading it.

I feel like with tinnitus you are always waiting for the other shoe to drop. Waiting for it to get worse or something to change. For me it's happened a number of times since 2015 and I've been lucky to have it truly off more than once. But this feels different

I've have taken excellent care of my ear since 2015. I am so dejected.

Tinnitus makes it impossible to plan for future because you don't know what's going to happen with your ears. I know I am here and I am listening to this thinking there's no way I'm going through the rest of my life like this. But I have kids. So I'm coming down to hell I need to function for them.

I feel like my life as I know it is definitely over.
 
I see my relationship with my new "friend" having him since 2019 in a way that it is not me who have to live and deal with the tinnitus. In an opposite way I say that the tinnitus himself has to live with me. That doesn't mean that we both have fallen in love to each other, but we have a kind of temporary peace or armistice. He must live with my way of living, he must accept that i try to ignore him, even when he tries to get worse on some days...

So never ever give up! I think that giving up fighting is the worst decision one can make.
 
For 1.5 years on and off I have also had a high pitched hiss/whine. It was not easily masked but it was pretty low in volume so it never really bothered me too much. Although I could experience it in both ears it was mostly my right ear that was problematic and consistent. My left was often silent. I've had a number of hearing tests including three this year and I've had no hearing loss in the right ear since my baseline test in 2015. It started in May of last year and subsided in September and did not return until March which coincided with an early allergy season. I always attributed this to to my TMJ (per the dentist) and/or my allergies since it's resolved a number of times and in the absence of measurable hearing loss. I can also modulate it. I can move my neck a certain way and it will get louder. Jaw movements make it louder, chewing can make it louder. Try to wear my retainers at night. You can see that I chewed up my Invisalign and my jaws are very tight and click constantly. I get pain in my left ear and sometimes the right. Doctor says it is 100% TMJ related. My right ear also pops constantly.
I'm sorry for your suffering. I wonder if you have tried mouth guards for night time clenching. Especially since it's unilateral, it definitely seems like TMJ could be a strong co-factor. Another product that I like a lot is this, which I've used for both hot and cold compresses. I actually have TMJ that comes and goes in intensity, but it has nothing at all to do with my tinnitus or hyperacusis (i.e. I've noticed no fluctuations based on the severity). Of course, TMJ is obviously not my cause.

When your tinnitus improved in the past, was it correlated with TMJ and/or allergy improvements?
 
I'm not doing well.

Very depressed, even on two ADs (Venlafaxine, Mirtazapine AKA "California Rocketfuel").

Living my life in bed, hiding from noise.

Masking my tinnitus, but so sick of the white noise all day long too.

Severe tremors and anxiety all day long.

Woke up in an adrenaline surge today.

Thanks for asking @Chinmoku!
I've been thinking of you lately since I also have strong urges to hang myself. My god, you've been through hell, and to have Benzo withdrawal on top of noxacusis... man, the world isn't fair.

Definitely a good move to try the antidepressants and get as much sleep as possible. Lean on support and feel free to let the suffering out; we understand here. Are you working with a doctor on a very scientific benzo withdraw plan or are they just dismissing it like they usually do?
 
I'm sorry for your suffering. I wonder if you have tried mouth guards for night time clenching. Especially since it's unilateral, it definitely seems like TMJ could be a strong co-factor. Another product that I like a lot is this, which I've used for both hot and cold compresses. I actually have TMJ that comes and goes in intensity, but it has nothing at all to do with my tinnitus or hyperacusis (i.e. I've noticed no fluctuations based on the severity). Of course, TMJ is obviously not my cause.

When your tinnitus improved in the past, was it correlated with TMJ and/or allergy improvements?
Thank you.

I can't equate my tinnitus improvement with anything except allergies die down in the fall and winter. This presentation of tinnitus is actually bilateral but louder and more noticeable in the right ear. It seems to be better in the am and gets worse as the day goes on - probably related to stress on the jaws from talking and tense my face and jaw muscles when I get stressed too, which is every day.

Re: the mouth guard, I have an Invisalign retainer that my dentist said serves the same purpose. It does protect my teeth but I can't see how it lessens the stress on the jaws.
 
@Brian Newman, from your posting mentions including distortions and injury, have you had X rays or digital motion X rays of your C spine? If your C spine isn't close to perfect, such as straightening or disc problems, then digital motion X rays may be easy to narrow any associated problem.

Digital Motion X-Ray | Seattle Back Pain, By Energize Chiropractic

Place digital motion X rays into internet search.

For others, when TMJ is present, it needed to know if grinding/clenching, having mouth open too long, etc; as being secondary as to neck injury being primary.
 
Thank you.

I can't equate my tinnitus improvement with anything except allergies die down in the fall and winter. This presentation of tinnitus is actually bilateral but louder and more noticeable in the right ear. It seems to be better in the am and gets worse as the day goes on - probably related to stress on the jaws from talking and tense my face and jaw muscles when I get stressed too, which is every day.

Re: the mouth guard, I have an Invisalign retainer that my dentist said serves the same purpose. It does protect my teeth but I can't see how it lessens the stress on the jaws.
I'm assuming you are taking Flonase for the allergies, but if not, I would consider trying that. As far as Ibuprofen, it is a COX inhibitor that increases fluid retention; hence it spikes blood pressure and tinnitus. I've actually recently experimented with several COX inhibitors and they greatly worsened me. Granted, Ibuprofen in low amounts shouldn't be dangerous, but long-term or high dose use can worsen the condition.

Regarding the retainer, it seems like what matters here is whether the jaw clenching is reduced at night or not. I don't want to push you messing with your orthodontal work, but I do wonder if trying a mouth guard for a couple of days could be worth it to see if there's a difference. Of course, don't get to the point where the retainer doesn't fit right and the dental work is in jeopardy of being reversed, etc.
 
I now truly understand what is like to want to kill yourself over tinnitus.

I have suffered from tinnitus on and off since 2015. Initial noise damage due to concert which resulted in bilateral tinnitus that resolved after 2 years. No measurable hearing loss. Last year, I suffered mild unilateral hearing loss with unilateral - left tinnitus. Habituated and then had another shift in hearing and increased unilateral
tinnitus in same year. It resolved after I regained my hearing as a result of steroid treatment.

Tinnitus Talk has been a lifeline for me on and off over the last six years. I've definitely struggled along the way for sure, but the one thing I was always so grateful for is that I could generally mask my tinnitus. It was a lot of work but ultimately I could mask it.

For 1.5 years on and off I have also had a high pitched hiss/whine. It was not easily masked but it was pretty low in volume so it never really bothered me too much. Although I could experience it in both ears it was mostly my right ear that was problematic and consistent. My left was often silent. I've had a number of hearing tests including three this year and I've had no hearing loss in the right ear since my baseline test in 2015. It started in May of last year and subsided in September and did not return until March which coincided with an early allergy season. I always attributed this to to my TMJ (per the dentist) and/or my allergies since it's resolved a number of times and in the absence of measurable hearing loss. I can also modulate it. I can move my neck a certain way and it will get louder. Jaw movements make it louder, chewing can make it louder. Try to wear my retainers at night. You can see that I chewed up my Invisalign and my jaws are very tight and click constantly. I get pain in my left ear and sometimes the right. Doctor says it is 100% TMJ related. My right ear also pops constantly.

Over the last week it has taken a completely different direction. It's gone from a hiss to a full on whine, which is very high pitched like a tea kettle. And very, very loud. I can't mask it and it's driving me crazy. I feel like if I plug my ears and I listen to it, it comes in waves - gets really loud and then a little duller and then really loud and then a little duller. I'm supposed to be on vacation on Cape Cod with my family and I'm miserable. I'm putting heat on my jaws to relax them, taking my Nasal spray, decongestants, Ibuprofen now a then to try to decrease the inflammation in my jaws. But it had never been fully sustained like this, or as loud. It was always coming and going of fluctuating throughout the day. But over the last week it's just been a study high-pitched noise and louder than ever. I can't imagine what changed. I am at a loss. I'm taking Klonopin to calm myself down. Although it doesn't impact my tinnitus. But I don't want to continue to use it. I was in the process of slowly, and I mean slowly, weaning myself off. Now I've had to up my dosage again.

I can't imagine how I will live a life like this. I'm having a hard time working or concentrating on anything. I can't enjoy anything. I can't imagine how I will ever cope up with this. I'm supposed to take my son to California in two weeks and I'm dreading it.

I feel like with tinnitus you are always waiting for the other shoe to drop. Waiting for it to get worse or something to change. For me it's happened a number of times since 2015 and I've been lucky to have it truly off more than once. But this feels different

I've have taken excellent care of my ear since 2015. I am so dejected.

Tinnitus makes it impossible to plan for future because you don't know what's going to happen with your ears. I know I am here and I am listening to this thinking there's no way I'm going through the rest of my life like this. But I have kids. So I'm coming down to hell I need to function for them.

I feel like my life as I know it is definitely over.
I'm so sorry to hear this and I can relate very much. I'm 14 months in and I was "lucky" to get struck with severe tinnitus right from the get go. No increase or variation, just brutal severe tinnitus right away. That's why I'm still struggling with habituation, although I'm making small progress here and there.

If you managed to get used to the variations in the past, I'm sure you can do it with the current one too. It will just take much more time and probably a different strategy, which you just need to find.

I know @Ken219 has lots of experience habituating to spikes and it takes time. But it should somehow stabilise later.
 
I'm not doing well.

Very depressed, even on two ADs (Venlafaxine, Mirtazapine AKA "California Rocketfuel").

Living my life in bed, hiding from noise.

Masking my tinnitus, but so sick of the white noise all day long too.

Severe tremors and anxiety all day long.

Woke up in an adrenaline surge today.

Thanks for asking @Chinmoku!
How many tones do you have?

Can you hear your tinnitus outside clear as day?
 
TMJ dysfunction can cause tight facial muscles and clenching of the teeth.

Allergies can cause TMJ dysfunction.

When both are present, most likely allergic excess mucus production is cause of tinnitus, but is reversible. Excess mucus production can obstruct the Eustachian tube, which is the drainage passage for the middle ear. The middle ear amplifies and transfers sound from the outer ear to the inner ear. Any inflammation or blockage in this area can cause tinnitus.

I need to have all my teeth removed due to gum recession from mouth trauma.
 
Any inflammation or blockage in this area can cause tinnitus.
How can you determine if you have something like that?

I have felt like something isn't right with my Eustachian tubes, I'm getting a loud crackling sound when swallowing etc, but the ENTs always only examine the outer ear it seems.
 
High end hearing aids to me are expensive and a good brand. Google the top rated hearing aids in 2021. It will give you the pros and cons of each brand.

I hope that helps.
Thanks, I think all brands stops around 8 kHz, that's one of the reasons why they reduce tinnnitus for some and not others depending on where the tinnitus damage is on the frequency scale.

Good to hear another person responding nevertheless :)
 
How many tones do you have?

Can you hear your tinnitus outside clear as day?
This unfortunately is my kind of competition. Amazing I'm reduced to a creature with only this useless torturing ability...

F... huurraay....

1. I have more tones than possible to count with fingers, and seems ever increasing...

2. Yes, I can hear it outside, and seems ever increasing...
 
I've been thinking of you lately since I also have strong urges to hang myself. My god, you've been through hell, and to have Benzo withdrawal on top of noxacusis... man, the world isn't fair.

Definitely a good move to try the antidepressants and get as much sleep as possible. Lean on support and feel free to let the suffering out; we understand here. Are you working with a doctor on a very scientific benzo withdraw plan or are they just dismissing it like they usually do?
Isn't there a clinic in Russia that Jordan Peterson got treated at? He had the akathisia bad, no tinnitus though...

They basically put him in a coma and tapered him off benzos.
 
TMJ dysfunction can cause tight facial muscles and clenching of the teeth.

Allergies can cause TMJ dysfunction.

When both are present, most likely allergic excess mucus production is cause of tinnitus, but is reversible. Excess mucus production can obstruct the Eustachian tube, which is the drainage passage for the middle ear. The middle ear amplifies and transfers sound from the outer ear to the inner ear. Any inflammation or blockage in this area can cause tinnitus.

I need to have all my teeth removed due to gum recession from mouth trauma.
Sorry to hear about your teeth. That really sucks. Is this because of TMJ?

May I ask, I have a constant feeling when I swallow like there's fluid in my ear. It make a sound and it's a sensation. I'd chalk it up to ETD but I think it might have something to do with TMJ. It also feels like my eardrums and ear canal are being stretched or that they are not flexible. It feels like if you were listening to a stethoscope and you rubbed your finger on it. It's like an amplified sound/feel in f coming from the ear drum.

I don't know if what I wrote makes any sense, but do you think it could be TMJ related?
 
TMJ dysfunction can cause tight facial muscles and clenching of the teeth.

Allergies can cause TMJ dysfunction.

When both are present, most likely allergic excess mucus production is cause of tinnitus, but is reversible. Excess mucus production can obstruct the Eustachian tube, which is the drainage passage for the middle ear. The middle ear amplifies and transfers sound from the outer ear to the inner ear. Any inflammation or blockage in this area can cause tinnitus.

I need to have all my teeth removed due to gum recession from mouth trauma.
How do you correct this? Allergy meds?
 
This unfortunately is my kind of competition. Amazing I'm reduced to a creature with only this useless torturing ability...

F... huurraay....

1. I have more tones than possible to count with fingers, and seems ever increasing...

2. Yes, I can hear it outside, and seems ever increasing...
Very sorry to hear that, sounds like mine.

Why isn't it stabilizing? It's been 2 years since my 2nd trauma and it's ever increasing.
 
May I ask, I have a constant feeling when I swallow like there's fluid in my ear. It make a sound and it's a sensation. I'd chalk it up to ETD but I think it might have something to do with TMJ. It also feels like my eardrums and ear canal are being stretched or that they are not flexible. It feels like if you were listening to a stethoscope and you rubbed your finger on it. It's like an amplified sound/feel in f coming from the ear drum.
Appears to be throat - amplified - like listening to a stethoscope - sound traveling up the Eustachian tube, not TMJ. The condition (venous congestion) is most common for those who are particularly slender or athletic, and condition often starts from doing aerobic exercise, but more common from some kind of exercise where breathing reaches a high limit. The symptom is sometimes relieved by lowering the head, which increases CO2.
How do you correct this? Allergy meds?
Best to see an allergist, but yes allergy meds may be needed if you have going on, what I mentioned.
 
This unfortunately is my kind of competition. Amazing I'm reduced to a creature with only this useless torturing ability...

F... huurraay....

1. I have more tones than possible to count with fingers, and seems ever increasing...

2. Yes, I can hear it outside, and seems ever increasing...
Same. I can hear it outside. It's both an amusing and depressing question.

I also thought, briefly, weeks ago, that my left ear tinnitus was faint but now I hear it. The right ear is way louder and that's why it was difficult to perceive how loud it is in the left ear. Then there's the "tinnitus perceived coming from the head/brain."

Do you have one ear worse than the other? What about perceived tinnitus tones/noise "coming from the brain?"

I read something on that here, a technical discussion but can't find it. I tended to think it's just caused when the ringing and tones are so loud in the ears, that you 'perceive it resonating through the brain too' but I don't know how else to describe it.
 
Very sorry to hear that, sounds like mine.

Why isn't it stabilizing? It's been 2 years since my 2nd trauma and it's ever increasing.
Yeah, the people who say it fluctuates or they can only hear it in quiet areas, I consider that they have mild tinnitus or no worse than moderate.

When it is severe and unbelievably loud, it seems like a random (albeit, loud) noise will spike it and then you have to worry whether this spike will become a louder tinnitus, a new baseline is how people describe it here?

So, how fucked are our ears when noises which are random and normal to people who have normal ears (no tinnitus) can handle such noises? And we can't? I live in a noisy area so I fucking hate living every day. I haven't even mentioned the hyperacusis. The tinnitus is worse.

I want to smash my head in, anything to stop (hearing) the ringing and tones. Even if it means death. That's not healthy. But, I can't help it. I think most people would think that way if their tinnitus was that loud.

People who have mild tinnitus are able to ignore it or cope. It bothers them but not to the same degree. They don't seem to get spikes either or have their tinnitus progressively worsen or become louder. It's like their ears are damaged but not as susceptible to spikes or worsening tinnitus (from random noises)?
 
Same. I can hear it outside. It's both an amusing and depressing question.

I also thought, briefly, weeks ago, that my left ear tinnitus was faint but now I hear it. The right ear is way louder and that's why it was difficult to perceive how loud it is in the left ear. Then there's the "tinnitus perceived coming from the head/brain."

Do you have one ear worse than the other? What about perceived tinnitus tones/noise "coming from the brain?"

I read something on that here, a technical discussion but can't find it. I tended to think it's just caused when the ringing and tones are so loud in the ears, that you 'perceive it resonating through the brain too' but I don't know how else to describe it.
Well my good ear which started up 3 months after my trauma, is indeed the highest volume, but it has the most stable noises so I often don't recognise it at all...

Mine is like yours, when the noise gets to a certain sound/noise level it feels to be coming from the brain or better put from the whole head so it's very difficult sometimes to recognise where the sound comes from.

I believe some can have real head tinnitus. And also from my experience early on, moments of very low tinnitus can have a feel of coming from the head. Unless you plug the ear to find out it doesn't.

Sending hugs to all of you on yet another blue meaningless Sunday evening...
 
I now truly understand what is like to want to kill yourself over tinnitus.

I have suffered from tinnitus on and off since 2015. Initial noise damage due to concert which resulted in bilateral tinnitus that resolved after 2 years. No measurable hearing loss. Last year, I suffered mild unilateral hearing loss with unilateral - left tinnitus. Habituated and then had another shift in hearing and increased unilateral
tinnitus in same year. It resolved after I regained my hearing as a result of steroid treatment.

Tinnitus Talk has been a lifeline for me on and off over the last six years. I've definitely struggled along the way for sure, but the one thing I was always so grateful for is that I could generally mask my tinnitus. It was a lot of work but ultimately I could mask it.

For 1.5 years on and off I have also had a high pitched hiss/whine. It was not easily masked but it was pretty low in volume so it never really bothered me too much. Although I could experience it in both ears it was mostly my right ear that was problematic and consistent. My left was often silent. I've had a number of hearing tests including three this year and I've had no hearing loss in the right ear since my baseline test in 2015. It started in May of last year and subsided in September and did not return until March which coincided with an early allergy season. I always attributed this to to my TMJ (per the dentist) and/or my allergies since it's resolved a number of times and in the absence of measurable hearing loss. I can also modulate it. I can move my neck a certain way and it will get louder. Jaw movements make it louder, chewing can make it louder. Try to wear my retainers at night. You can see that I chewed up my Invisalign and my jaws are very tight and click constantly. I get pain in my left ear and sometimes the right. Doctor says it is 100% TMJ related. My right ear also pops constantly.

Over the last week it has taken a completely different direction. It's gone from a hiss to a full on whine, which is very high pitched like a tea kettle. And very, very loud. I can't mask it and it's driving me crazy. I feel like if I plug my ears and I listen to it, it comes in waves - gets really loud and then a little duller and then really loud and then a little duller. I'm supposed to be on vacation on Cape Cod with my family and I'm miserable. I'm putting heat on my jaws to relax them, taking my Nasal spray, decongestants, Ibuprofen now a then to try to decrease the inflammation in my jaws. But it had never been fully sustained like this, or as loud. It was always coming and going of fluctuating throughout the day. But over the last week it's just been a study high-pitched noise and louder than ever. I can't imagine what changed. I am at a loss. I'm taking Klonopin to calm myself down. Although it doesn't impact my tinnitus. But I don't want to continue to use it. I was in the process of slowly, and I mean slowly, weaning myself off. Now I've had to up my dosage again.

I can't imagine how I will live a life like this. I'm having a hard time working or concentrating on anything. I can't enjoy anything. I can't imagine how I will ever cope up with this. I'm supposed to take my son to California in two weeks and I'm dreading it.

I feel like with tinnitus you are always waiting for the other shoe to drop. Waiting for it to get worse or something to change. For me it's happened a number of times since 2015 and I've been lucky to have it truly off more than once. But this feels different

I've have taken excellent care of my ear since 2015. I am so dejected.

Tinnitus makes it impossible to plan for future because you don't know what's going to happen with your ears. I know I am here and I am listening to this thinking there's no way I'm going through the rest of my life like this. But I have kids. So I'm coming down to hell I need to function for them.

I feel like my life as I know it is definitely over.
Mild tinnitus is a picnic compared to this beast. I want my maskable tinnitus back that I took for granted. I was supposed to go on vacation to Florida next year but I won't be able to enjoy the sound of ocean waves because my tinnitus will be riding on top of it :(
 
@Brian Newman, from your posting mentions including distortions and injury, have you had X rays or digital motion X rays of your C spine? If your C spine isn't close to perfect, such as straightening or disc problems, then digital motion X rays may be easy to narrow any associated problem.

Digital Motion X-Ray | Seattle Back Pain, By Energize Chiropractic

Place digital motion X rays into internet search.

For others, when TMJ is present, it needed to know if grinding/clenching, having mouth open too long, etc; as being secondary as to neck injury being primary.
Yes I got checked for TMJ; I don't have it. I got CT scans, X-rays, I was going to the chiropractor for a while. My C1 and C2 were out of line, it's straight and I notice no difference. I suspect it's a CSF leak or fistula but I'm going to bring that up to Dr. Silverstein next week.
 
@Ava Lugo, I'm not able to completely mask it but I try the best I can to make it more bearable. I went on a carnival ride over the weekend without earplugs and it's gotten worse... of course.

Thanks for the reply.
 

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