Suicidal

[Wrfortiscue]

I'm so sorry Zug...

I'm not doing well either.
Just waiting for death.

There has to be something for you guys...

 

[PeteJ]

My parent got her retirement money cut and I get no disability (denied 4 times in a row). They want me to reapply again now and I am not in the mood for this shit. Those fuckers actually believe I am able bodied.

Join the club.

 

[PeteJ]

I'm taking "A. VOGAL" Natural herb formulation at the moment for sleep. It doesn't do much but it beats making my tinnitus worse than it already is.

I will research it. How much $ is it and where do you buy it?

I am having frequent spikes from sounds, especially my TV. I don't have $ so I am using the TV speakers. But, it's not loud enough because my tinnitus ringing is too loud. I turn up the TV but then some loud sound suddenly happens on the TV program.

I am fucked no matter what I do. :-(

P.S. I use subtitles whenever possible.

 

[PeteJ]

I spike to everything except my heartbeat and breathing. It's kinda hard to deal with. My spikes usually recedes in 20 minutes to an hour, but over time my baseline has increased with all these spikes.

If you don't spike to literally everything, wont hearing protection indoors be able to mitigate it? If need be, you could set aside some time each day for some gentle sound enrichment, if the hearing protection makes you sensitive.

Stacken

Hearing protection makes the tinnitus ringing even more prominent and isolated.

How come I am the only one saying that?

If you guys claim to have loud, severe tinnitus - how do you wear hearing protection without thinking about smashing your head open on a wall?

I use ear plugs when I absolutely have to but I hate using them for that reason. At least, the kind I have doesn't cause my ear canals pain anymore.

But, my tinnitus is louder since way back then.

 

[Ed209]

Things got so much worse. Too bad to even share on here. My entire adult life has been a lie, as it the Earth is actually flat. I will not be trusting a partner anytime soon.

There are no words, Zug. Take care of yourself because life can be one hell of a fucked up rollercoaster ride. I haven't been around much this year, so haven't really had chance to get to know you as well as others have, but it's clear - just from reading people's interactions with you - that you are loved and respected by many.

I sincerely hope that your fortunes change.

 

[PeteJ]

Just a tiny would do

Yeah, apparently he didn't watch Breaking Bad.

 

[PeteJ]

I'm taking "A. VOGAL" Natural herb formulation at the moment for sleep. It doesn't do much but it beats making my tinnitus worse than it already is.

Is it called Deep Sleep or Passion Flower, by chance? One is mostly Valerian root and the other one is... Passion flower.

 

[PeteJ]

Do any of you talk to anyone in the Research News section of the forum?

I believe there's a poll on the site - guessing when we will have a cure or real treatment. I don't think there is any way to 'photograph' or examine the inner ears. No tool or equipment exists yet. I get really mad and depressed when I think of that. It's one reason I don't go to that section anymore. It makes me more depressed than I am now. I see myself as dead or dead by suicide before the 10 or 15 years that maybe some progress is made.

I am pessimistic about it because I can't see how any significant progress can come about. The inner ear and brain seems impossible to treat or do any significant 'improvement' to. When people have a tumor, surgeons cannot fix the 'area' by laser. They just remove it. How can our ears, nerves and hair cells be "fixed?" It is so depressing. Also, there are so many different explanations or sources for people's tinnitus. I believe mine is from acoustic trauma so what will treat that? I can't fathom living like this, growing old with it. I want to commit suicide before I can't look after myself - I'm alone and I didn't even like that before/previously.

 

[Damocles]

Do any of you talk to anyone in the Research News section of the forum?

I believe there's a poll on the site - guessing when we will have a cure or real treatment. I don't think there is any way to 'photograph' or examine the inner ears. No tool or equipment exists yet. I get really mad and depressed when I think of that. It's one reason I don't go to that section anymore. It makes me more depressed than I am now. I see myself as dead or dead by suicide before the 10 or 15 years that maybe some progress is made.

I am pessimistic about it because I can't see how any significant progress can come about. The inner ear and brain seems impossible to treat or do any significant 'improvement' to. When people have a tumor, surgeons cannot fix the 'area' by laser. They just remove it. How can our ears, nerves and hair cells be "fixed?" It is so depressing. Also, there are so many different explanations or sources for people's tinnitus. I believe mine is from acoustic trauma so what will treat that? I can't fathom living like this, growing old with it. I want to commit suicide before I can't look after myself - I'm alone and I didn't even like that before/previously.

I hear you @PeteJ. Totally understand your position on this; a serious treatment that restores our hearing to it's pre-tinnitus default, feels light years away. In fact, such a thing may never emerge during what is left of human existence on this planet (if you're observing world events through the scope of an orthodox pessimist/realist).

Even so, I still believe you have every reason to live in hope. I say this because, like my mate @Stacken77 has already said in this thread; I believe what we will see within the next 5-7 years, are drugs and devices that help us manage our tinnitus, and reduce it to far more acceptable (perhaps even, for some individuals, barely perceptible) levels.

So do hang in there, and use any means you can to keep yourself well until such things come to be.
Same goes to anyone else struggling at the moment.

 

[Wrfortiscue]

Do any of you talk to anyone in the Research News section of the forum?

I believe there's a poll on the site - guessing when we will have a cure or real treatment. I don't think there is any way to 'photograph' or examine the inner ears. No tool or equipment exists yet. I get really mad and depressed when I think of that. It's one reason I don't go to that section anymore. It makes me more depressed than I am now. I see myself as dead or dead by suicide before the 10 or 15 years that maybe some progress is made.

I am pessimistic about it because I can't see how any significant progress can come about. The inner ear and brain seems impossible to treat or do any significant 'improvement' to. When people have a tumor, surgeons cannot fix the 'area' by laser. They just remove it. How can our ears, nerves and hair cells be "fixed?" It is so depressing. Also, there are so many different explanations or sources for people's tinnitus. I believe mine is from acoustic trauma so what will treat that? I can't fathom living like this, growing old with it. I want to commit suicide before I can't look after myself - I'm alone and I didn't even like that before/previously.

How loud is it? Any SSRIs help? There has to be some relief for you.

 

[Kenilworth]

Is it called Deep Sleep or Passion Flower, by chance? One is mostly Valerian root and the other one is... Passion flower.

Yes. 100%. It's Valerian root and hops. These are good and can be used for both sleep and stress.

The cost should be more or less $12.

Do you have the product in your country?

 

[Kenilworth]

I want to commit suicide before I can't look after myself - I'm alone and I didn't even like that before/previously.

I know how you feel. I'm at that point too. I've been suicidal every day for 4 months. Severe tinnitus associated with migraines and hyperacusis is no joke. I survive the day by reading other people's stories.

I don't think there is any way to 'photograph' or examine the inner ears. No tool or equipment exists yet. I get really mad and depressed when I think of that. It's one reason I don't go to that section anymore.

What do you think of Otonomy and their approach for tinnitus?

They don't promise a cure but they can help some or most manage their tinnitus better and go on with their lives.

I would like to know your thoughts.

 

[tpj]

Hearing protection makes the tinnitus ringing even more prominent and isolated.

How come I am the only one saying that?

If you guys claim to have loud, severe tinnitus - how do you wear hearing protection without thinking about smashing your head open on a wall?

I use ear plugs when I absolutely have to but I hate using them for that reason. At least, the kind I have doesn't cause my ear canals pain anymore.

But, my tinnitus is louder since way back then.

Which earplugs do you use?

 

[PeteJ]

Which earplugs do you use?

Howard Leight Laser Lite (by Honeywell). They're the only brand/type that didn't cause pain in my ear canals. Just a bit of discomfort in the beginning but now I am used to them. The problem is my tinnitus is so loud that the isolation of the tinnitus and blockage of ALL sound (or muffled sound) is not good either. A no-win situation.

Other earplugs (like the stiff orange ones) recommended by others here caused immediate pain after insertion. I'd like to sell a box. I should have only bought one pair.

 

[PeteJ]

I know how you feel. I'm at that point too. I've been suicidal every day for 4 months. Severe tinnitus associated with migraines and hyperacusis is no joke. I survive the day by reading other people's stories.

What do you think of Otonomy and their approach for tinnitus?

They don't promise a cure but they can help some or most manage their tinnitus better and go on with their lives.

I would like to know your thoughts.

I get headaches too but I don't think it's related to tinnitus or hyperacusis. Not ruling it out though.

My tinnitus is so bad (loud) that I consider it worse than my hyperacusis and ear pain - and ear pain is awful in itself since there is nothing that can be done. Ibuprofen or Tylenol might help relieve headaches but does nothing for ear pain.

Otonomy? You really want to know what I think? I want something that lowers the perceived volume and "repairs" whatever is causing the tinnitus If it could just "turn it into mild tinnitus" - at least, that could be something. I know people in real life who have mild tinnitus. They can function. I think once it reaches a certain level, especially worse than moderate, your life is over - at least, for me.

 

[PeteJ]

Yes. 100%. It's Valerian root and hops. These are good and can be used for both sleep and stress.

The cost should be more or less $12.

Do you have the product in your country?

Yes, I believe so.

 

[PeteJ]

I hear you @PeteJ. Totally understand your position on this; a serious treatment that restores our hearing to it's pre-tinnitus default, feels light years away. In fact, such a thing may never emerge during what is left of human existence on this planet (if you're observing world events through the scope of an orthodox pessimist/realist).

Even so, I still believe you have every reason to live in hope. I say this because, like my mate @Stacken77 has already said in this thread; I believe what we will see within the next 5-7 years, are drugs and devices that help us manage our tinnitus, and reduce it to far more acceptable (perhaps even, for some individuals, barely perceptible) levels.

So do hang in there, and use any means you can to keep yourself well until such things come to be.
Same goes to anyone else struggling at the moment.

Such a treatment that restores hearing and to our "pre-tinnitus" default would be ideal/preferable. Seems like a dream/fantasy. It would be like starting your life over - I liken it to waking up after a coma. Best analogy I can think of.

Do the researchers have any idea of how to get to that point?

I am not too optimistic about drugs or devices. I thought lasers and "growing" the DNA material you need would be promising. The problem is the small area of the ear and difficulty of access - not to mention how fragile.

To reiterate for the millionth time, I think this is the worst condition to have - impossible to treat and the louder it is, the worse the torture.

Yeah, it was bad enough trying to find funding for it. I'll stop there. Many people can guess what I think on it.

Many people here would rather funding $ go into other things over tinnitus - which is still shocking to me. I guess their tinnitus isn't too bad for them.

 

[Psych]

Do you guys get spikes indoors in your homes? Dropping things? The TV (accidentally too loud) - stuff that would be perhaps irritating to someone else without tinnitus or with mild tinnitus - but for you, it contributes to a louder spike?

I am absolute f***ing tortured right now and that's saying a lot since it's always bad. But, now a spike from that.

The only things that spike it this bad are fire alarms, sirens outside and dental work.

But, this time indoors - a noise too loud.

I am just curious how it happens to others here who consider their tinnitus extra loud and severe.

I know spikes can last a while but I can't curb my anxiety. This is hell. :-(

It's also affecting both ears and brain. Usually, my right ear tinnitus is noticeably worse than the left.

So sorry you're going through this, Pete. I get spikes throughout the day for, usually, no reason. Also, in response to eating, it seems. What's helping me now is keeping as busy as possible, including work, cleaning, talking with others or watching TV. Hope you get some relief soon!

 

[PeteJ]

So sorry you're going through this, Pete. I get spikes throughout the day for, usually, no reason. Also, in response to eating, it seems. What's helping me now is keeping as busy as possible, including work, cleaning, talking with others or watching TV. Hope you get some relief soon!

There's never relief but thanks for the wishes anyway.

TV is a mixed bag. Okay distraction (not as good as talking with others) but TV volume is tricky to use.

Needs to be high enough because of the tinnitus 'volume' but then there is a risk because of how programs suddenly increase/decrease volume plus various sounds that can be too loud - background noise, gun shots, explosions, even someone yelling or banging a desk hard! It's difficult to find a satisfactory balance.

 

[Kenilworth]

Otonomy? You really want to know what I think? I want something that lowers the perceived volume and "repairs" whatever is causing the tinnitus If it could just "turn it into mild tinnitus" - at least, that could be something. I know people in real life who have mild tinnitus. They can function. I think once it reaches a certain level, especially worse than moderate, your life is over - at least, for me.

I know what you mean. I've been following Otonomy for some time now. I believe the company has a way forward. As far as I know, their OTO-313 Phase 1/2 showed good enough results even for severe cases. I'm talking about severe to mild cases. I don't know whether or not there will be a cure, however I believe we will, in the near future, see an approved treatment or treatments that can help us manage this problem better.

In the meantime stay strong, my friend.

 

[kingsfan]

Hearing protection makes the tinnitus ringing even more prominent and isolated.

How come I am the only one saying that?

If you guys claim to have loud, severe tinnitus - how do you wear hearing protection without thinking about smashing your head open on a wall?

I use ear plugs when I absolutely have to but I hate using them for that reason. At least, the kind I have doesn't cause my ear canals pain anymore.

But, my tinnitus is louder since way back then.

I absolutely HATE wearing earplugs, but fear of it getting even worse keeps them in my ears. That said, I only use them in the kitchen and when I leave the house.

 

[kingsfan]

There's never relief but thanks for the wishes anyway.

TV is a mixed bag. Okay distraction (not as good as talking with others) but TV volume is tricky to use.

Needs to be high enough because of the tinnitus 'volume' but then there is a risk because of how programs suddenly increase/decrease volume plus various sounds that can be too loud - background noise, gun shots, explosions, even someone yelling or banging a desk hard! It's difficult to find a satisfactory balance.

My only solution to the sudden loud sounds in TV/movies is to get an audio receiver with Audyssey, which has options to normalize all audio to eliminate sudden increases in audio volume. The feature is called Dynamic Volume.

But audio receivers and speakers can be pricey so it's not a solution for everyone.

 

[PeteJ]

I absolutely HATE wearing earplugs, but fear of it getting even worse keeps them in my ears. That said, I only use them in the kitchen and when I leave the house.

The entire time?

 

[PeteJ]

My only solution to the sudden loud sounds in TV/movies is to get an audio receiver with Audyssey, which has options to normalize all audio to eliminate sudden increases in audio volume. The feature is called Dynamic Volume.

But audio receivers and speakers can be pricey so it's not a solution for everyone.

That's EXACTLY my plan. A friend with mild tinnitus uses a computer and Stereo A/V Receiver with 5.1 speaker system. It can balance out the sound. I like it. I don't have the $ right now to buy one, however. :-(

Hopefully, soon. I am hoping disability status can help me, at least, in these kinds of problems.

 

[kingsfan]

That's EXACTLY my plan. A friend with mild tinnitus uses a computer and Stereo A/V Receiver with 5.1 speaker system. It can balance out the sound. I like it. I don't have the $ right now to buy one, however. :-(

Hopefully, soon. I am hoping disability status can help me, at least, in these kinds of problems.

If you use streaming instead of Cable TV and DVD/Blu-ray/4K discs, Apple TV's also have volume reduction feature. That's still around a $150 US cost, but still less than all the components needed for a 5.1 system.

 

[kingsfan]

The entire time?

Yea the entire time I am out. I have taken them out at times because I felt I didn't need them, and what do you guess happens every time I take them out, some freakish loud sound immediately gets me.

 

[pleasejuststop]

I think ricin would calm us down a little bit...

That would calm me down permanently.

 

[pleasejuststop]

Can everyone share the medications they are taking for anxiety?

 

[Exit]

Can everyone share the medications they are taking for anxiety?

I took Valium for a while, got pretty numbed

 

[dan]

My only solution to the sudden loud sounds in TV/movies is to get an audio receiver with Audyssey, which has options to normalize all audio to eliminate sudden increases in audio volume. The feature is called Dynamic Volume.

But audio receivers and speakers can be pricey so it's not a solution for everyone.

How does the receiver know when a loud sound like a gunshot is coming and does it react fast enough so no loud sound goes through?