I guess I'm just wondering who you have seen recovered from something like this and how long did it take them?
@AnthonyMcDonald and
@weab00 were the worst cases I ever encountered, who later saw
massive stabilisation and
complete remission.
@AnthonyMcDonald, especially. That is to say, if you had asked me last year, where I thought he would be now, I would genuinely have struggled to come up with anything other than his account becoming inactive, and perhaps if we were "lucky", getting one of those posts from a random member confirming an
an-hero, later down the line. What I certainly would not have predicted: was a flight, followed by a week long holiday in Cuba.
Then there's me,
@ZFire and
@chinup, who share pretty similar cases. While I doubt any of us had hyperacusis quite as severe as yours, between 2009 and 2011, I couldn't watch TV or hold a conversation with even one person, without hearing protection on; so severe, all the same.
That's no longer the case for me now, and
@ZFire and
@chinup also, have both reported significant improvement.
@ZFire has even written a
success story sharing of his improvement over the last two years.
So there are four I can be sure of. Unfortunately it's hard for me to give you a plethora of accounts, because in the space of fourteen years, individual stories start becoming hazy and just sort of merge together. But on the flip side of that same issue, I can confidently say I've noticed a trend; similar to how I came to the conclusion
tinnitus tended to be worse in the left ear.
Following that trend were two young girls I spoke with who joined the forum both
this year and
last year. Like most people new to tinnitus and hyperacusis, they had problematic hyperacusis, that later diminished. I realise that for them, youth played a massive part in their rapid improvement, but the emphasis there should be on
rapid; people in their later years should still see improvement, just it will theoretically be a lot slower than for someone in their teen years.
Additionally there are the people who attributed a decrease in hyperacusis to a
medication or
supplement. Personally, I wonder about cases like these, and question if it wasn't just time that did the trick, like with people who undergo, and later credit, CBT and/or TRT for their recovery.
Of course, I'm aware of the cases of severe hyperacusis/noxacusis that haven't gotten any better, like
@Brian Newman's. So realistically, I cannot say things always improve. But it would be crazy to make an exit before something like
XEN-1101 is available, given that so many people saw improvements (albeit alongside nasty side-effects) with
Trobalt (2014-2017).
Basically, what I've noticed (including based on my own experience) is that natural recovery from hyperacusis tends to be slow, but actually occurs (unlike with tinnitus) for most. It can take years, but in that time there might be some sh*t that really does help, also. So it's definitely worth sticking around (imo).
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