Suicidal

[serendipity1996]

Has anyone had any luck with CBD oil for hyperacusis/trigeminal irritation?

 

[bobvann]

Has anyone had any luck with CBD oil for hyperacusis/trigeminal irritation?

I just did but it is considered weak. I will be trying a more potent concentration next week. Beats taking Benzos as far as I am concerned.

 

[dan]

@FGG how would the pill know what frequency is the hearing loss the patient needs to regenerate?
Is it a "smart pill" or something? What I mean is hearing loss can be anywhere from 0-18,000 Hz, how will it target the exact cells that are dead/missing?
Or will the cochlea automatically distribute the regeneration where it is needed?

Do you get what I mean? Thanks.

Dan

 

[valeri]

I'm not too optimistic that any of these will help me as it seems to be developing into a Trigeminal nerve issue.

Haven't seen too many success stories with my type of issues.

I'm sorry you're also having to deal with the same issue I don't wish this on anyone. Endless torture with no help.

My mother had a rather severe case of trigeminal neuralgia and after months and months of suffering she was literally cured by Endep 10mg.
It was prescribed by oral surgeon.

I'm not sure if this is what you have but it may be worth exploring.

 

[Bartoli]

Has anyone had any luck with CBD oil for hyperacusis/trigeminal irritation?

I tried it for tinnitus. I also have moderate hyperacusis. Didn't do anything for either. Only had the 5% full spectrum oil so maybe I didn't take enough? (5 drops)
@bobvann what dosage seemed to help you?

 

[Mister Muso]

So I had one of those dark thoughts today.

I've recently been put on furlough and told if my employer can't find another role for me, I'll lose my job on 3rd June. Not sure of all the reasons for this - COVID-19 is the obvious one, there are a few of us in this situation - but I have been falling out with members of the support team who I work with occasionally. I got some negative feedback from them at my performance review, though my boss understands the difficulties I've had with tinnitus, with my mother passing away and other challenges lately.

I've never been made redundant or had periods of unemployment since my first job, and I'm getting a bit old now to change jobs, though my last four job interviews resulted in a job offer within a few days. It's a different jobs market now though. As a computer programmer, I've not really kept up with modern languages like I should. I'm redressing that now, doing online training whilst being on furlough.

The kids' school fees are the biggest worry. We have enough savings to cover the next year in addition to my wife's salary. But I just had the horrible thought today that, if I was to be no longer on this earth, the life insurance payments would be enough to cover the following two years as well, which would see them through school. I've been in tears with myself for going down that dark path once again.

Thanks for reading. I don't have anyone else I can talk to about this except you folks here.

 

[GregCA]

As a computer programmer, I've not really kept up with modern languages like I should.

What languages are you proficient with?

 

[Orions Pain]

Has anyone had any luck with CBD oil for hyperacusis/trigeminal irritation?

I use a high potency full spectrum CBD oil and so far haven't noticed any effect. If anything my burning has gotten worse in this time but that doesn't mean it's from the CBD.

 

[Mister Muso]

What languages are you proficient with?

You're a programmer too aren't you? I'm kind of a traditional Oracle database guy. Done lots of Unix scripting too. I've dabbled with the likes of C#, Java, XML, ASP and so on but I wouldn't pass myself off as proficient in anything other than Oracle.

Currently teaching myself Python for data science in my spare time, as this seems to be one of the more in-demand skills at the moment and looks quite interesting too.

Had a more positive afternoon - reached out to a couple of people and starting to get better feedback. It's a roller-coaster ride alright - just got to keep busy and keep the forward momentum going.

 

[Zugzug]

Has anyone had any luck with CBD oil for hyperacusis/trigeminal irritation?

During my second upswing (I've had two in the past year), I had started CBD oil the week before. Granted, I have taken CBD since and still had bad hyperacusis so it's not clear. I consider it a nonnegative aid, with lots of uncertainty on how much it's helping. Bare in mind that my problem is disease oriented so it's always hard to tell if a supplement is helping in that I would be even worse without it.

I have severe loudness/annoyance hyperacusis, with loud and reactive tinnitus. I also get facial pain and headaches when I talk.

 

[Zugzug]

You're a programmer too aren't you? I'm kind of a traditional Oracle database guy. Done lots of Unix scripting too. I've dabbled with the likes of C#, Java, XML, ASP and so on but I wouldn't pass myself off as proficient in anything other than Oracle.

Currently teaching myself Python for data science in my spare time, as this seems to be one of the more in-demand skills at the moment and looks quite interesting too.

Had a more positive afternoon - reached out to a couple of people and starting to get better feedback. It's a roller-coaster ride alright - just got to keep busy and keep the forward momentum going.

I'm a mathematician and a computer hacker. By hacker, I don't mean so skilled at programming that I can hack, but that I write code like a monkey in order to solve my math equations. I wish I was more knowledgeable on programming, particularly basics on run-times and efficient code writing.

 

[Contrast]

You know how in a fighting game you how are suppose to play safe, defensive and choose the safest low risk moves to avoid losing, and everyone calls you boring for playing smart?

That's exactly what the Government and Medical facilities are doing. They are choosing the "safest, low risk options". Surgeries, regenerative medicine and biomedical research require HUGE RISK and may fail.

CBT, ACT and pain killers that have been on the market for decades are easy and safe and have no risk.

In certain cases of chronic pain, muscle decompression surgeries are avoided because of risk and the required specialist needed for them are illusive. It's so much easier for doctors go to with the safest option unless the patient has tons of money to take risk. The insurance companies in the US comply with this obviously.


Medical innovation is slow because all businesses HATE RISK. They will always choose the safe familiar options. We get scripted treatments for that reason.

 

[acute]

They believe that I am going to live on my knees. Being a complete waste of space and time. They are crazy. I am in an enormous level of suffering all the fucking time.

Fuck, I'm not even sober anymore. I can't function properly. I'm just pretendeing.

I will off myself before 2021 begins.

Send me strength to be able to get to the other side.

 

[acute]

I don't want a semi-life, I don't want a semi-me like @GlennS explains sometimes. I WANT my FULLY ME. My full myself, what I could have done without this fucking tinnitus shit. I don't want and nor accept any different.

I will never accept or get used to something that is not me anymore, i'ts just a worsened version of me how I was pre tinnitus. This is like surrender. I want MY FULLY SELF. What I was capable to do and achieve before this shit came in.

 

[Orions Pain]

I wonder if medications prescribed for trigeminal neuralgia could potentially help us. Or nerve blocks or something.

My doctor prescribed me Carbamazepine but I'm scared to take it.

 

[Greg Sacramento]

My doctor prescribed me Carbamazepine but I'm scared to take it.

Carbamazepine is about as safe as it gets with having tinnitus.
https://www.ehealthme.com/ds/carbamazepine/tinnitus/

 

[Orions Pain]

Carbamazepine is about as safe as it gets with having tinnitus.
https://www.ehealthme.com/ds/carbamazepine/tinnitus/

I had about a week and a half of consistent ear burning (usually it's on and off). Was hoping to see an improvement if any prior to taking these sort of meds as I don't want to take them if it's something that comes and goes. More poison for the body and if I'm on them I'll never know if it gets better.

I was more worried about worsening my visual snow :/

Thank you for sharing though, very helpful information for future references!

 

[PeteJ]

I am so angry that people on this forum struggle to get diagnosed with facial nerve pain that is triggered by noise. This problem is so obvious to many of us. I had experienced it personally and still do. I am surprised it is not medically recognized.

The ENT says see a orthodontist. The orthodontist says see a ENT. It's a circular loop that obviously requires cross discipline research that was neglected. Loud noise damaging the inner ear can trigger some kind of facial nerve disorder. Scientists need to research this shit.

Is it possible I have that?

The pain doesn't go down my face but is in the upper cheek area but where it's attached to my ear.

 

[MrCrybaby]

Is it possible I have that?

The pain doesn't go down my face but is in the upper cheek area but where it's attached to my ear.

Yes, that's the same sort of nerve pain I have had too. Directly triggered by my noise incident.

Probably the majority of facial pain cases here are related to acoustic trauma.

 

[serendipity1996]

Yes, that's the same sort of nerve pain I have had too. Directly triggered by my noise incident.

Probably the majority of facial pain cases here are related to acoustic trauma.

I hope the regenerative drugs benefit us. Logically it makes sense since presumably it'd be getting at the underlying cause but I don't know, the symptoms are so baffling.

 

[MrCrybaby]

I hope the regenerative drugs benefit us. Logically it makes sense since presumably it'd be getting at the underlying cause but I don't know, the symptoms are so baffling.

I hope so too. Once a regenerative drug is out we'll be able to get anecdotes.

 

[valeri]

I don't want a semi-life, I don't want a semi-me like @GlennS explains sometimes. I WANT my FULLY ME. My full myself, what I could have done without this fucking tinnitus shit. I don't want and nor accept any different.

I will never accept or get used to something that is not me anymore, i'ts just a worsened version of me how I was pre tinnitus. This is like surrender. I want MY FULLY SELF. What I was capable to do and achieve before this shit came in.

It's a hard one isn't it?
I wonder every day: why me?
I wonder how different my life would be if I didn't have tinnitus, how many great things I would have achieved, how many destinations I would have seen...

This life is a complete failure... complete and utter waste of time and space!

With kids grown up, with me not being me, no job, no hope for better future, with so many limitations what I can do.... seriously what's the point

 

[Lucifer]

I hope the regenerative drugs benefit us. Logically it makes sense since presumably it'd be getting at the underlying cause but I don't know, the symptoms are so baffling.

I hope that's the case with our pain hyperacusis. It just seems logical once we get our hair cells regrown, especially OHCs, it should stop sending pain signals to the type 2 nerve fibres. Please hope FX-322 will cure pain hyperacusis.

 

[Contrast]

The CFS community is already ahead of us. A bunch of little @JohnAdams
https://www.meassociation.org.uk/20...igue-biomedicine-health-behavior-7-july-2016/

 

[dan]

They believe that I am going to live on my knees. Being a complete waste of space and time. They are crazy. I am in an enormous level of suffering all the fucking time.

Fuck, I'm not even sober anymore. I can't function properly. I'm just pretendeing.

I will off myself before 2021 begins.

Send me strength to be able to get to the other side.

You could give Trobalt a quick shot - sold in Spain. Few days to see if you respond.
If you get temporary improvement that would indicate Thanos Tzounopoulos' Trobalt would work for you 15x better!

 

[dan]

It's a hard one isn't it?
I wonder every day: why me?
I wonder how different my life would be if I didn't have tinnitus, how many great things I would have achieved, how many destinations I would have seen...

This life is a complete failure... complete and utter waste of time and space!

With kids grown up, with me not being me, no job, no hope for better future, with so many limitations what I can do.... seriously what's the point

Hi Valeri, you tried Trobalt and it helped you, that's huge! So now it's a matter of time till Thanos Tzounopoulos' version comes out.

 

[Zugzug]

The CFS community is already ahead of us. A bunch of little @JohnAdams
https://www.meassociation.org.uk/20...igue-biomedicine-health-behavior-7-july-2016/
View attachment 38853

My takeaway is that 50% of CFS sufferers have bad attitudes. It would be a mistake to try to figure out what's actually driving their depression.

 

[Luman]

Twelve Step programs have a success rate of 5%, for assisting alcoholics achieve total sobriety.

Cognitive Behavior Therapy has a success rate of about 80%, for helping people to successfully cope with many diverse problems and mental health issues.

There are a few people here who have never even tried it (CBT), yet dismiss it as a possible aid.

If CBT doesn't work for you, as part of the 20% of those who try it and are dissatisfied, I understand - but it's simply wrong to take swipes at it, while ignoring or denying the fact that most people who try it, find it to be helpful.

 

[Zugzug]

Twelve Step programs have a success rate of 5%, for assisting alcoholics achieve total sobriety.

Cognitive Behavior Therapy has a success rate of about 80%, for helping people to successfully cope with many diverse problems and mental health issues.

If CBT doesn't work for you, part of the 20% of those who try it and are dissatisfied, I understand - but it's simply wrong to ignore or deny the fact that most people who try it, found it to be helpful.

I actually agree with this. I've always been an advocate for CBT, and have successfully used it in the past.

 

[Contrast]

Twelve Step programs have a success rate of 5%, for assisting alcoholics achieve total sobriety.

Cognitive Behavior Therapy has a success rate of about 80%, for helping people to successfully cope with many diverse problems and mental health issues.

There are a few people here who have never even tried it (CBT), yet dismiss it as a possible aid.

If CBT doesn't work for you, as part of the 20% of those who try it and are dissatisfied, I understand - but it's simply wrong to take swipes at it, while ignoring or denying the fact that most people who try it, find it to be helpful.

We aren't denying that CBT is effective. It's people against being told "it's all in your head" and money that could be going towards biomedical science is instead going towards this ad nasseum.