The Current Year Is 2018

I understand what you are saying, but Fibromyalgia , HIV, Nerve Injury, ALS, Alzheimer, Ms, Blindness, Stroke Repair, Body Trauma... the list is really long. Because you are suffering from T makes you wonder about T, but the same happens for people that suffer from other ailments.

The world is evoluting fast, but medicine has been quite stagnant in terms of progression, we are using many medicines that were used many years ago, even from 50's or before.

We should support R&D investment, the knowledge of the human body and demand for more investment, because the knowledge on many of these diseases will also help ours.
No one here is disputing that the list is long. Many of these can be treated. T can't be.
It gets back to the point that we are still in the dark ages. More money is spent on fighting wars and weapons. It's that simple.

I have more issues than T that cant be cured. But they can be treated. Nothing else messes with my life as much as T and the associated afflictions such as H, ASD and TTTS.

So, basically we have T but can't even let off some steam about it? We just have to suck it up? Can't even joke about it?
@fishbone I don't think anyone here even mentioned cure. OP said treatment. Also I can't live my life carefree with T, H, TTTS and chronic ASD. T is a horrible horrible sound, but can't hurt you physically. ASD involves pain, temporary conductive hearing loss, fugue, burning sensations, amongst other things.
 
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The good news is the majority of the tinnitus community isn't like that. To any researchers reading this, just know that most of us DO NOT FEEL THIS WAY in any way, shape, or form. please keep that precious cure-sauce coming.

@ Charles Liberman
@ Roland Schaette
@ David Lucchino

@all hearing loss and tinnitus researchers and scientist and bio tech firms

upload_2018-4-8_0-40-6.png

I'M A MENTALLY ILL PERSON AND HEARING LOSS AND TINNITUS RUINED MY EXISTENCE
BEFORE I HAD TINNITUS MY LIFE WAS SHIT BUT I GOT SOME ENJOYMENT OUT OF IT, NOW IT'S LITERALLY HELL ON EARTH! PLEASE PLEASE PLEASE CAN I HAVE COCHLEAR HAIR CELLS BACK THAT I STUPIDLY DESTROYED. I CAN'T LIVE THIS WAY, IF THERE ISN'T A CURE OR CLOSE TO A CURE WITHIN 5 YEARS FOR HEARING LOSS I'M JUST GONNA END MY LIFE.
THANK YOU FOR ALL THE RESEARCH AND INNOVATION YOU ALL DID BUT IT PROBABLY WON'T DO ME ANY GOOD
USER]
 
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@ Charles Liberman
@ Roland Schaette
@ David Lucchino

@all hearing loss and tinnitus researchers and scientist and bio tech firms

View attachment 16612
I'M A MENTALLY ILL PERSON AND HEARING LOSS AND TINNITUS RUINED MY EXISTENCE
BEFORE I HAD TINNITUS MY LIFE WAS SHIT BUT I GOT SOME ENJOYMENT OUT OF IT, NOW IT'S LITERALLY HELL ON EARTH! PLEASE PLEASE PLEASE CAN I HAVE COCHLEAR HAIR CELLS BACK THAT I STUPIDLY DESTROYED. I CAN'T LIVE THIS WAY, IF THERE ISN'T A CURE OR CLOSE TO A CURE WITHIN 5 YEARS FOR HEARING LOSS I'M JUST GONNA END MY LIFE.
THANK YOU FOR ALL THE RESEARCH AND INNOVATION YOU ALL DID BUT IT PROBABLY WON'T DO ME ANY GOOD
USER]
An effective treatment would be something.
 
I do care less. I don't obsess over a cure. I live my life! If they do find a cure, that's awesome but I will not stop living my life and creating threads like this :)

Ok. You are back on ignore :)

@fishbone people like you are the reason nobody will take this this community seriously. Your entire persona on this website is ridiculous.
 
@fishbone people like you are the reason nobody will take this this community seriously. Your entire persona on this website is ridiculous.

It's people like me that gives HOPE to this board. Go right ahead complain all you want, while I tell others to live their lives and let them know things are going to be ok.

You have no clue what HELLs i lived in and what i carry on a daily basis and I am DAMN proud of myself and my persona. Don't assume that you know me, take care of yourself and your own life. I will come here and support those that suffer. I careless what you or negative people think of me. My only goal is to support people and not tell them to stop living because a cure is not found.

A cure is something we all want but these threads simply, say that we need to stop living till we have a cure. There is no cure right now and I do not see it for awhile. Like i said, I come here to help people and motivate them to live their lives even with bastard level tinnitus (which I have).

I have every reason to be just as negative or even more negative. What good does that do me? Where does that get me? Does it improve my life? NO.NO.NO

Life has dumped on me more than a bird has on a clean car. Am I going to constantly post negative threads? NO

I own up to my life and live it to the best of my capability, no complains...NONE!
 
So why is there absolutely no treatment for tinnitus?
It's 2018 and the closest thing to a treatment is TRT, and of course, that isn't actually a treatment. If we were, I guarantee you that we would have at least a medicine that reduces noise or something. The fact that tinnitus treatments have literally never improved is embarrassing.

Tinnitus today and the way I see it.

Tinnitus has been around for centuries and goes back to the Egyptians, when the first written account and medical treatment for it was recorded. Some say not much progress has been made in the medical field for treating it and I disagree. With such a close mind it's not surprising they have difficulty accepting medications, therapies, white noise generators and hearing aids have been effective in helping people to have a better quality of life.

I believe we have come a long way since the Egyptians applied infused oil, frankincense and tree sap to the external part of the ear using a reed stalk. The Mesopotamians found benefit chanting a mantra or meditated to help ease the whispering in the ears as it was called. Physicians believed in those remedies and therefore, who are we to say they didn't make life more tolerable for some people?

A cure hasn't been found for tinnitus but many live in hope. I once read a newspaper article that mentioned: nineteen out of twenty medical conditions cannot be cured although many can be treated. I will assume those affected by tinnitus throughout the centuries weren't too dissimilar from the people of today. How did they manage or more importantly how did they learn to accept it since there was no cure? It is probably fair to say we might never know, unless someone has a DeLorean to go back and find out. Seriously though, how did they cope considering modern day medicine was not available then? Has the world become a much noisier place and made it more difficult to accept tinnitus and habituate to it? I don't think this is the case.

I believe the wearing of headphones and the advancement in technology where most people have a mobile phone on their person enabling earbuds, to be attached so they can listen to music, has contributed to the increase in noise-induced tinnitus particularly amongst the young. Not to mention nightclubs and concerts where high sound levels are easily reached and hearing damage becomes all too real. Exposure to loud noise is the most common cause of tinnitus and often hyperacusis accompanies it, which can make a bad situation worse.

Other conditions not associated with loud noise also cause tinnitus. Otoscelerosis is the abnormal bone growth in the ear that affects the stapes making it fuse together with surrounding bone and eventually becomes fixed so it's unable to move. It is a progressive condition that results in hearing loss and tinnitus. Rarely does it cause total deafness so hearing aids can be helpful. Surgery is also an option to improve hearing known as stapedectomy.

Meniere's disease is a disorder of the inner ear that causes tinnitus and hearing loss. Dizziness, sickness and fullness in the ears are usually experienced with it. An attack can last minutes or hours, typically though two or three hours duration is likely and can be quite unpleasant for the individual. Fortunately hearing aids and white noise generators have proven to be helpful for the tinnitus and hearing. Medications can help relieve nausea, vomiting and vertigo.

TMJ is pain in the jaw. It comprises of muscles that are attached to the joint that connects the lower jaw to the scull. A disorder known as TMD Temporomandibular disorder can affect it causing pain in the face and jaw. Headaches can follow along with ear pain and tinnitus. People affected by it often get relief under the care of a dentist or orthodontist. Special mouth splints can prevent clenching of the jaw and helps relieve tension on the muscles. Sometimes steroid drugs are injected into the temporomandibular joint to reduce inflamation. Braces and oral surgery are known to be helpful.

I have touched on a few of the common conditions that can cause tinnitus and there are others. It may not always require treatment as many people naturally habituate in time. There is no doubt that when tinnitus is severe it can be very debilitating and a person may need the help of a Hearing Therapist or Audiologist trained in tinnitus management. Ultimately, I think each person will have to decide what he or she wants and hopes to achieve living with it because many have coped over the centuries with tinnitus.

We have the advantage over those before us afflicted with this condition, as they didn't have the treatments that are available now. I think it's something we should embrace and be thankful for. Not only that but consider, the wealth of information online and the support one can get at a tinnitus forum, which wasn't around thirty years ago. Science still isn't sure how the Egyptians built the great pyramids. I wonder sometimes what they and the Mesopotamians would think of our modern tinnitus treatments compared to their own.

Michael
 
It's people like me that gives HOPE to this board. Go right ahead complain all you want, while I tell others to live their lives and let them know things are going to be ok.

You have no clue what HELLs i lived in and what i carry on a daily basis and I am DAMN proud of myself and my persona. Don't assume that you know me, take care of yourself and your own life. I will come here and support those that suffer. I careless what you or negative people think of me. My only goal is to support people and not tell them to stop living because a cure is not found.

A cure is something we all want but these threads simply, say that we need to stop living till we have a cure. There is no cure right now and I do not see it for awhile. Like i said, I come here to help people and motivate them to live their lives even with bastard level tinnitus (which I have).
Firstly, the OP said treatment, not cure.
Secondly, I do care. Like others I am trying and I am positive. But you can't just say people need to get on with their lives. Wildly fluctuating symptoms with T and other things like ASD mean not everyone can habituate. Don't make it out to be a simple thing. I try but then the game changes all the time.
I still wake up and go to work, for my family. But it's not living a carefree life. This thread has its place on this forum.
 
Hey I am all for them finding a cure, but to stop living our lives(people can live their lives, with all intensity levels of tinnitus) and not moving forward till a cure comes, that's where I draw the line....Tinnitus is a tough battle and a complex one. Like i said, I was in your shoes before and know how you and many feel here......
That's physically impossible for me now. Would you like to know where I am at this point?

I can't enjoy music anymore. I can't enjoy anything on television anymore. I use to game a bit to keep in contact with far away friends. That's gone. If I force myself to watch television, my ears start to bother me. Probably an indication that they can't take too much noise so I keep the volume down. Of course, when the volume is down I can barely hear anything. This extends to my social life. If I expose myself to anything loud, my ears get bothered and I easily get a spike. So I stay at home. I got into reading again recently. Went through the Tolkien books last year (first time) and really enjoyed them. This hobby has been robbed from me because of Tinnitus. Can barely focus with this stupid sound in my head. Bought a bunch of books for no reason.

I can't sleep properly anymore so I'm always tired. Even if I manage more than 4 hours a night, I wake up not refreshed. Yes, this means I quit my job. Back in December and I've been home ever since. Wasted years at university to end up here. Trying to move everything home so I can work there. I haven't even mentioned this yet but I'm slowly developing Visual Snow. Started 4 years ago, coincidently when I put the earbuds in my ears for the first time. I didn't know what it was till recently, when it fully transformed into impaired night vision. It's still slowly getting worse and most liekly will lead to day static vision. To add insult to injury, I'm now reading about possible connections between T and VS. *CLAPS LOUDLY* Imagine that. My very first symptoms of hearing damage. Eye problems. They had me running back and forth between doctors with no diagnosis. Have you heard of anything more ****ing stupid?

This is me right now. I'm in survival mode. Drifting from day to day while looking like a zombie. This is why I'm more in line with @threefirefour and @Contrast. We may not be dying but our quality of life has turned to crap. Explain to me how I get around this mountain and continue with my life? And please don't think I'm trying to be an ass here. I understand you've had a different experience with this beast so you're probably approaching this from a much different angle. Tell me how you would move forward if you were me?
 
Firstly, the OP said treatment, not cure.
Secondly, I do care. Like others I am trying and I am positive. But you can't just say people need to get on with their lives. Wildly fluctuating symptoms with T and other things like ASD mean not everyone can habituate. Don't make it out to be a simple thing. I try but then the game changes all the time.
I still wake up and go to work, for my family. But it's not living a carefree life. This thread has its place on this forum.

I never had it easy and I don't have it easy right now either. Tinnitus and coping/adjusting/habituation can take time. It took me a long time to get to this level I am at now. All I say is that...Yes, I understand the frustrations. I had them too and I still have them. We just need to take small steps and move forward. It may not happen tomorrow but it can happen. Nothing is impossible and I APPLAUD those that take these small steps.

With every ounce of negativity, I still see some positivity. That's just how I am wired. I have tons of health issues myself that would keep people in bed all day long. I use to be in bed as well and not wanting to get up and get out of it. I know PAIN firsthand, trust me. My life dealt me it from the very beginning.

I applaud you for going to your job and taking care of your family. I applaud those that take a stand against tinnitus.

Be well :)
 
Funny how being open and honest is deemed to be negativity on this forum.
Life has both so why can't this forum just be about support and being honest? Not sugar coating things and telling people to suck it up.

All other support communities for other ailments are about searching for treatments and cures. They don't just tell sufferers to deal with it. So why shouldn't it be the same for tinnitus et al?
 
That's physically impossible for me now. Would you like to know where I am at this point?

I can't enjoy music anymore. I can't enjoy anything on television anymore. I use to game a bit to keep in contact with far away friends. That's gone. If I force myself to watch television, my ears start to bother me. Probably an indication that they can't take too much noise so I keep the volume down. Of course, when the volume is down I can barely hear anything. This extends to my social life. If I expose myself to anything loud, my ears get bothered and I easily get a spike. So I stay at home. I got into reading again recently. Went through the Tolkien books last year (first time) and really enjoyed them. This hobby has been robbed from me because of Tinnitus. Can barely focus with this stupid sound in my head. Bought a bunch of books for no reason.

I can't sleep properly anymore so I'm always tired. Even if I manage more than 4 hours a night, I wake up not refreshed. Yes, this means I quit my job. Back in December and I've been home ever since. Wasted years at university to end up here. Trying to move everything home so I can work there. I haven't even mentioned this yet but I'm slowly developing Visual Snow. Started 4 years ago, coincidently when I put the earbuds in my ears for the first time. I didn't know what it was till recently, when it fully transformed into impaired night vision. It's still slowly getting worse and most liekly will lead to day static vision. To add insult to injury, I'm now reading about possible connections between T and VS. *CLAPS LOUDLY* Imagine that. My very first symptoms of hearing damage. Eye problems. They had me running back and forth between doctors with no diagnosis. Have you heard of anything more ****ing stupid?

This is me right now. I'm in survival mode. Drifting from day to day while looking like a zombie. This is why I'm more in line with @threefirefour and @Contrast. We may not be dying but our quality of life has turned to crap. Explain to me how I get around this mountain and continue with my life? And please don't think I'm trying to be an ass here. I understand you've had a different experience with this beast so you're probably approaching this from a much different angle. Tell me how you would move forward if you were me?

I do sympathize with your issues. I faced them myself and I know just how horrible they can be. I have full compassion for those that suffer, I do. I had hyperacusis and it was brutal for 3-4 years and I never knew what it was. I read your post and the posts of many here and I see the pain and horrors that afflicted me. Things take time to get better, your case of tinnitus is fairly new and all of us including ME....struggled pretty badly.

So my post was to never demean your pain and your struggles, because i faced them too and still face many horrors daily. My posts are all about taking baby steps and moving forward. I was in the PITS many times and still am , but I wake up each day trying to make my life better. Some way, somehow. This intrusive tinnitus has no mercy on me. So i have to have mercy on me and push forward.

Give it some time, take baby steps and don't ever give up :)
 

Tinnitus can be very debilitating so there is nothing wrong with feeling occasionally negative about it. However, negativity must be kept in check otherwise it can become all consuming and a person, will find it difficult to pull themselves out of it and move on with their life.

Tinnitus and the negative mindset.

Whether a person is new to tinnitus or has had it for a while, they will know how debilitating it can be when it's loud and intrusive. If hyperacusis is present it can make a bad situation worse and I fully understand this, as someone who's had tinnitus for twenty-one years and once had very severe hyperacusis that has been cured for the passed eighteen years.

I am not going to pretend and say the habituation process is an easy one, although some will find the journey easier than others. My first noise trauma took two years to recover and the second four years. Throughout both ordeals I never allowed thoughts that my tinnitus would never improve or that my life was over to take hold, as I believed negative thinking would reinforce the belief that I faced a future of impending doom. I will admit that occasionally they crossed my mind but just for a fleeting moment and then I'd let them go and direct my thoughts elsewhere. Going out for a walk, playing relaxing music or even doing work around my home brought about the desired effect and helped me to focus on something else.

2010 was a particularly low point in my life as I was having a lot of difficulty coping with the tinnitus and asked my consultant to be candid about my condition, because I felt I had reached a plateau with TRT and wasn't making any more improvement. Unfortunately it wasn't as successful as the first time. My doctor confirmed what I had suspected but wasn't prepared when told, I was the second worst tinnitus patient that she had met in all her years of practicing Audiovestibular medicine. I wanted the floor to open so I could fall in and all my troubles would be gone. I sensed a feeling of dark clouds looming over my head having been told something that I wish I hadn't asked for.

My doctor said she would never give up on treating me and I was prescribed clonazepam. My recovery was slow but determined not to let the cacophony of noise that at times was tormenting, send me on a downward spiral into oblivion. Although my experience is unique because no two people experience tinnitus the same, it will not be strange to those that have travelled a similar road and come through it to tell their story.

I believe one of the biggest problems a person faces with tinnitus is having a negative mindset. This is completely different from feeling occasionally down or even negative which is something that this condition does to a person as it directly affects one's emotions but doesn't take hold or is allowed to fester. Having a negative mindset is not allowing any positive thoughts to come through about your tinnitus. The thought that it will never improve and you won't respond to treatment takes precedence over everything else. If hyperacusis is present this can be intensified by the overuse of hearing protection, which reinforces negative thinking that even slightly raised sound levels are harmful. If one isn't careful a fear of sound can develop known as phonophobia, to the point where a person feels scared to leave home thinking environmental sounds will make their condition worse.

Unfortunately it doesn't stop there as relationship with people often suffers as a person becomes more withdrawn. This can induce depression and one can start to feel angry about their circumstances and vent their frustrations on those nearest to them. It can become an unhealthy situation to be in. Therefore, if person is slipping into a negative mindset, my advice is to seek help by contacting their GP. Perhaps getting a referral to a Hearing Therapist, psychiatrist or counsellor. Someone to talk to before the situation gets out of control.

My purpose for writing this post wasn't to give an account of what I've been through with tinnitus but felt it necessary, to give a little background information as some people might think: It's alright for you but you haven't lived my life or know what I have to go through daily with tinnitus. I hope the above information will have given you some insight into what I've been through, as I know how debilitating this condition can be when severe. I have counselled people with it and continue to do so. Tinnitus has been around for centuries and like many medical conditions, a cure hasn't yet been found. However, in most cases it can be successfully treated and there are a variety of different options available, enabling people go on and lead a normal life doing everything that they want to.

I wish you well.
Michael

https://www.tinnitustalk.com/threads/inspiration.22894/
https://www.tinnitustalk.com/threads/can-tinnitus-counselling-help.22366/
https://www.tinnitustalk.com/threads/tinnitus-and-mental-health.21978/
 
I do sympathize with your issues. I faced them myself and I know just how horrible they can be. I have full compassion for those that suffer, I do. I had hyperacusis and it was brutal for 3-4 years and I never knew what it was. I read your post and the posts of many here and I see the pain and horrors that afflicted me. Things take time to get better, your case of tinnitus is fairly new and all of us including ME....struggled pretty badly.

So my post was to never demean your pain and your struggles, because i faced them too and still face many horrors daily. My posts are all about taking baby steps and moving forward. I was in the PITS many times and still am , but I wake up each day trying to make my life better. Some way, somehow. This intrusive tinnitus has no mercy on me. So i have to have mercy on me and push forward.

Give it some time, take baby steps and don't ever give up :)
Thank you for the reply. I'm really trying here but it feels like I have to give up way too much to adapt to this new lifestyle. If it was only the noise, sure. But the HL makes it so much worse. This is beyond anything I can handle. I'm glad you found a way along with so many others. I really do but I still need to make my path.
 
Thank you for the reply. I'm really trying here but it feels like I have to give up way too much to adapt to this new lifestyle. If it was the eyes only, sure. But this is beyond anything I can handle. I'm glad you found a way along with so many others. I really do but I still need to make my path.

All of us including me, had to make our paths and I am still trying to find answers to life and create paths on a daily basis. It's a tough life, I agree with you and I know just how painful it can be. I have no family and there is no support system for me. My main support comes from my dogs, my martial arts and my faith. I push each day to not fall into depression, it's a hard life. I do feel your pain, but understand that it will take time. I was in your shoes and worst off when I got tinnitus and that nasty hyperacusis.

I am aways open to support anyone on this board, I just hate negativity. Negativity held me back, for many years and I don't want that to happen to people here :)
 
I agree that the lack of treatments for tinnitus is a shame. I hate seeing the post of a desperate person whose life is being completely ravaged by tinnitus and there is nothing I can say to console them other than the standard "there is no cure so you will have to get used to it".
 
I am aways open to support anyone on this board, I just hate negativity. Negativity held me back, for many years and I don't want that to happen to people here :)

Well said @fishbone. Tinnitus is one of many health conditions that cannot be cured at the moment. As far as treatment goes there are various kinds that I've mentioned in my post above. If a person is looking for a complete cure then they will be disappointed. The majority of people do habituate with or without specialist treatment. Depending on the individual this may take some time.

If a person is able to work and earn a living in my opinion, they do not have serious debilitating tinnitus. If it was then they wouldn't be able to work and they should try and see positivity in that because things could be a lot worse. I am not saying a person will not experience difficulty or severe episodes of tinnitus where it becomes very intrusive, but it is not severe enough to disable them for many days at a time, where medication might be required as they are unable to carry out normal daily functions.

Even if someone were to have access to some of the best treatments for tinnitus which are: TRT, CBT, counselling, white noise generators, mindfulness, medications etc. If they allow negative thinking about this condition to take over their life they will not make any improvement.

Michael
 
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It's people like me that gives HOPE to this board. Go right ahead complain all you want, while I tell others to live their lives and let them know things are going to be ok.

You have no clue what HELLs i lived in and what i carry on a daily basis and I am DAMN proud of myself and my persona. Don't assume that you know me, take care of yourself and your own life. I will come here and support those that suffer. I careless what you or negative people think of me. My only goal is to support people and not tell them to stop living because a cure is not found.

A cure is something we all want but these threads simply, say that we need to stop living till we have a cure. There is no cure right now and I do not see it for awhile. Like i said, I come here to help people and motivate them to live their lives even with bastard level tinnitus (which I have).

I have every reason to be just as negative or even more negative. What good does that do me? Where does that get me? Does it improve my life? NO.NO.NO

Life has dumped on me more than a bird has on a clean car. Am I going to constantly post negative threads? NO

I own up to my life and live it to the best of my capability, no complains...NONE!

I do sympathize with your issues. I faced them myself and I know just how horrible they can be. I have full compassion for those that suffer, I do. I had hyperacusis and it was brutal for 3-4 years and I never knew what it was. I read your post and the posts of many here and I see the pain and horrors that afflicted me. Things take time to get better, your case of tinnitus is fairly new and all of us including ME....struggled pretty badly.

So my post was to never demean your pain and your struggles, because i faced them too and still face many horrors daily. My posts are all about taking baby steps and moving forward. I was in the PITS many times and still am , but I wake up each day trying to make my life better. Some way, somehow. This intrusive tinnitus has no mercy on me. So i have to have mercy on me and push forward.

Give it some time, take baby steps and don't ever give up :)

@fishbone

I absolutely must jump in here.
When my noise ramped up I was in total despair. I wanted to die, as soon as possible. I was finished.
It was all over for me.
I asked my wife to take me to Dignitas.
She flatly refused.

Then I found some writings by fishbone, who told me,
"Dave - my noise is as loud as hell, maybe even louder than yours, but I face it with courage and determination, and I live my life.
If I can do it - you can too."

It was exactly what I needed to hear.
Somebody actually believed I could 'make it!'
He made a difference.
I learnt to believe what he said,
and guess what - he was right.

I have a very noisy head, which I don't like, but I no longer live in despair.

I would like to ask @Charles_T who thinks that fishbone's presence on this site is ridiculous, if he has ever been able to offer such concrete support to anybody, or perhaps he believes that supporting other sufferers is ridiculous?

Fishbone makes a difference !!!
 
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You know what field is even worse than a tinnitus treatment...the eye floaters one. Literally nothing happening there apart from one intrusive procedure that could potentially make you blind, or a laser that could make things a 100 times worse
 
Tinnitus is complex, but if I had to put the majority of it into an one sentence definition - nerves, veins and arteries are often involved per something gone wrong. The something gone wrong could be multiple combinations that causes other multiple traumas and often there's differences between one and another. So how can judge one another!!! We can't. Not all advice fits all.

The neck, face and brain is very complex. For some with certain tinnitus related conditions even moderate noise exposure can make tinnitus worst. Some are not able to live a full life if they have associated physical or personnel conditions/problems direct or non direct to ringing. Unless one stands in the shoes of someone whom they are commenting to, then stop the disagreements. Why some place walls against others is inconsiderable.

There are general suggestions and support that we can make, along with love and understanding. There's no tinnitus related guidelines that fits all and none of us are smart when it comes to persistent longer term tinnitus.
 
Well said @fishbone.
If a person is able to work and earn a living in my opinion, they do not have serious debilitating tinnitus. If it was then they wouldn't be able to work and they should try and see positivity in that because things could be a lot worse.
This is really offensive. The moderators should delete this kind of horrible comment.
I don't have debilitating tinnitus, true. But it does ramp up to very intrusive levels when I get incredibly painful ASD symptoms. T doesn't hurt physically, ASD does. It's pretty much like a kind of neuralgia or fibromyalgia. Look up the symptoms. Do you know what it's like to have half your head jammed up so bad you get conductive hearing loss in one ear? Feeling like your head is going to explode on one side? Pains in your jaw, neck, tongue, behind your eyes, in and around your ears, in your head. Sinuses block up like crazy. Dizziness. Confusion.

Also there's not always a way to predict when or what is going to trigger it. There's always a set back with T and H when it does happen. I wish I could just have T like before, but it seems to be chronic.

So yeah, I go and earn money for my family otherwise that's it. My kids deserve a decent life even if I have to go through hell to provide for them.

I know in a lot of ways I am lucky, things could be worse and are worse for others but I just have to point out how your statement is just so pathetic.

By the way, no one said cure. A proper treatment would be good.
 
Hearing Therapist or Audiologist trained in tinnitus management
So I waited 5 months to get to NHS tinnitus clinic, Iwas told TRT was an old model with limited success and was offered 5-18 hours CBT, I do not have depression and anxiety I have torture.
The audiologist told me the sound machines were to distract me from the noise, they do not do that for me.

AM I REALLY MEANT TO BE POSITIVE ABOUT THIS?
 
By the way, no one said cure. A proper treatment would be good.

You are entitled to your opinion. My opinion is based on 22 years experience with tinnitus and counselling people with the condition. I spent two years habituating to tinnitus the first time and four years the second. My post was referring to tinnitus and no other medical ailment. I meant no offence but if you wish to view it as such that is entirely up to you.

I wish you well.
Michael
 
You are entitled to your opinion. My opinion is based on 22 years experience with tinnitus and counselling people with the condition. I spent two years habituating to tinnitus the first time and four years the second. My post was referring to tinnitus and no other medical ailment. I meant no offence but if you wish to view it as such that is entirely up to you.

I wish you well.
Michael
Ok but ASD and TTTS are strongly connected to tinnitus - only they specifically involve the middle ear. I have all and hyperacusis. Thankfully I'm beginning to see results with hyperacusis, although ASD flare ups cause a regression. I wish I could keep things under control to be able to habituate again.
 
So I waited 5 months to get to NHS tinnitus clinic, Iwas told TRT was an old model with limited success and was offered 5-18 hours CBT, I do not have depression and anxiety I have torture.
The audiologist told me the sound machines were to distract me from the noise, they do not do that for me.

AM I REALLY MEANT TO BE POSITIVE ABOUT THIS?
I have had TRT twice on the NHS with good results. TRT must be administered correctly otherwise the treatment will not be successful. It is not a cure for tinnitus but many people have had good success with it. As you know it is an expensive treatment. Therefore, it is not widely available on the NHS. Even when it is, some hospitals practice elements of the treatment and not the full package although good results can sill be obtained. I vehemently disagree with what you have been told, that TRT is old and has limited success. On the contrary, it can be effective when done correctly although results will vary between people.

If one has a negative mindset no tinnitus treatment will be effective. One can do a lot to help themselves. Start by accepting the CBT treatment that been offered to you. Read, listen and follow the advice from people such as @fishbone You have to try and reinforce positive thinking. It doesn't happen overnight but you have to start somewhere. Click on my links below and read my articles on tinnitus. If you have a printer then print them and refer to them often. They are a form of counselling and will help reinforce positive thinking because this is what is required. Positive thinking doesn't mean you shouldn't feel down or negative about tinnitus. Just try not to make these adverse feelings overwhelm you.

All the best
Michael

https://www.tinnitustalk.com/threads/new-to-tinnitus-what-to-do.12558/

https://www.tinnitustalk.com/threads/tinnitus-a-personal-view.18668/

https://www.tinnitustalk.com/threads/hyperacusis-as-i-see-it.19174/

https://www.tinnitustalk.com/threads/is-positivity-important.23150/

https://www.tinnitustalk.com/threads/tinnitus-and-the-negative-mindset.23705/

https://www.tinnitustalk.com/threads/acquiring-a-positive-mindset.23969/

https://www.tinnitustalk.com/threads/the-ent-doctor-and-hearing-therapist.24047/

https://www.tinnitustalk.com/threads/inspiration.22894/

https://www.tinnitustalk.com/threads/can-tinnitus-counselling-help.22366/

https://www.tinnitustalk.com/threads/the-habituation-process.20767/

https://www.tinnitustalk.com/threads/a-change-of-lifestyle.20643/

https://www.tinnitustalk.com/threads/tinnitus-and-negative-counselling.26669/

https://www.tinnitustalk.com/threads/the-complexities-of-tinnitus-and-hyperacusis.25733/
 
@Michael Leigh she told me NHS does not give TRT as a treatment. I asked her what has happened to all the therapisst of TRT, she told me she is an ex-TRT therapist. How can I have any trust in NHS treatments or lack thereof?
 
Ok but ASD and TTTS are strongly connected to tinnitus - only they specifically involve the middle ear. I have all and hyperacusis. Thankfully I'm beginning to see results with hyperacusis, although ASD flare ups cause a regression. I wish I could keep things under control to be able to habituate again.

I fully sympathize with you. I have full blown Fibro/arthritis and it came into my life 11 years ago. It has forever changed the landscape of my life. It is awful and living with chronic pain and bad flare ups is the worst. That's why I can relate to majority of the members here and come and support you folks.

Every day waking up and taking an action requires courage, it really does and I applaud all that do this.....

Be proud of yourself for your achievements. My thread - https://www.tinnitustalk.com/threads/you-are-a-champion.23000/ is written for members such as yourself and many here on this site.

Keep up the good work :)
 

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