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Tryn2BHopeful
Thinking about my future is depressing... Will I make it 1, 2, 5 years? I am still feeling the latest set back more than ever, persistent humming, higher hissing, ear discomfort and sensitivity... Guess I am cooked....
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Tryn2BHopeful
@adpolandam Almost 2 years for me as well... started after a couple doses of Lexapro... Not sure if that was a the catalyst or what, but it doesn't much matter anymore. My daughter is the only one who seems to empathize with me and offer me some support, otherwise I have been on my own like many people here. Turned away at every ENT/Audiologist again like many people here.
MindOverMatter
@Tryn2BHopeful
Even though you might struggle at the moment, things can shift with time. Ive seen and experienced this so many times myself. Ive had long lasting setbacks that has resolved after 4-6 months ++ several times. You will make it through 🙏
Tryn2BHopeful
@MindOverMatter I certainly pray that comes to fruition. I always appreciate your positivity. Especially when I am having trouble seeing it. Trying to stay strong. Hard day today.
2049v
How are you doing mate?
tomytl
Hi,
after a while of a slight recovery, I am again tortured of this ear pressure and also new high pitched T.
I also got a covid infection 6 weeks ago, this made my system even more messed up!

How are you doing? I really hope much better, Mate!
2049v
I'm trying to do better but you know how this thing is. It's been a long time since we talked 😃
J
Hi Dr Nick. Just wondering if your low pitch hum ever went away? And how are you coping with it? Mine is similar to yours in that it is spiked by car trips. Having a terrible time currently and would love your insight. Thank you
henkess
I miss when you was little, no trouble and life was good :)
2049v
Yeah dude I know exactly what you mean. Those days are gone forever.
henkess
For shure man
Lynny
Rereading my old posts from years ago made me shed a tear. After losing my hearing aids a lot of old fears and memories came back. I almost forgot how hopeless and dark it used to be. I don't think people understand how traumatic going through something like this can be. Wishing everyone else on here an upward process, perseverance and hope for the future.
L
Ugh. Nursing a spike. LOUD motorcycle drove close to me. I am so mad at myself for being nearby. I am feeling very frustrated.
henkess
Doctors are not helping me for my problem with spasm in ear :( happy that a fan and magnesium work alittle atleast
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cjbhab
what kind of magnesium are you using? i recommend adding potassium too. i'm beginning to get bad spasms the last couple days again. I've had it before, im confident it can go away.
henkess
I take Biscycinat, thanx i will try that! Thats to bad, have you tried muscel relaxers?
cjbhab
@henkess i have tried some OTC muscle relaxers, i dont think they helped. I seem to get this problem for 1-2 months at a time and then it will go away and return again later. not sure what makes it come and go.
SharonBell
I actually ordered it off Amazon. I sleep with it on every night, leave it on nonstop in my bedroom and sleep with my fan on that has helped me so much.
henkess
Thanx will try it for my Tensor tympani syndrom :) i have a fan on when my ears start to spasmer it helps. I cant hear my spasmer in ear then
Nes
A car alarm also went off during my sleep, and my tinnitus has mimicked that for a few days now.
henkess
happened to me to, i hate that. It takes some days for me to settle down
Nes
@henkess it's gone now, but it took almost a week to go away. Usually, it lasts four days max.
Nes
I cannot WAIT to move out. Got woken up by someone vacuuming for the second time in the week. When it's not vacuums, it's alarms. I rarely have a full night of sleep; it's insane.
Juliane
How are you all doing? Life is tough on me atm. Hugs to you
henkess
Sorry to here that, hope it gets better :) i´m struggle to with tenstor tympani syndrom
adpolandam
Hey. Nice to see you :) I don't feel well, I would say it's getting worse. One day we'll meet, all the sufferers on the other side:) We'll have a big party. There'll be loud music, fireworks and screaming, and we won't care :)
Lynny
Everything was going better until I lost my hearing aids😭 I'm too broke to replace them… does anyone have suggestions?
Nes
I get a tingling sensation from my cheekbone to above my lips when i'm exposed to too much sound. It's not painful but it's annoying. I used to get that when i was very stressed or when my tmj is very bad.
Does anyone else have that?
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Nes
@Scruffiey probably just stress as I do not have (visible) hearing loss! I always thought my tmj damaged my nerve, but the tightening hypothesis makes much more sense
S
@Nes Could just be the TMJ, but I'm thinking if it was nerve damage you'd be getting more actual numbness than just tingling and possibly some pain or cold/warmth.
Guess one way to test it... once it's settled down, purposefully tense up your face for a minute or two and see if it's the same feeling?
Nes
@Scruffiey IT IS! Why did I never think of that!
Sodlin
Today there was a "heated meeting" for like 20-30 min where ppl where raising their voices alot talking about some issues at my workplace. i sat there like an idiot without earplugs and got stressed in this 4X4 metre room with like 10 people. Should just have put my earplugs in. Got a spike. Hopefully just because of the stress of being in that enviroment. Just use ur normal indoor voice god damit....
hunu92
do u have any hearing loss? have u tested extended high frequencies?
vilebubbles
Yesterday wasn't too bad. We will see what today holds. Left ear feeling very sensitive and popping along with unstable tinnitus and H in both ears still. Nox seems…controlled? (Fingers crossed).
Joshua Macleod
My fingers are crossed for you, mate. Taking it day by day feels so difficult but you're doing great.
vilebubbles
thank you. Today was weird. I took a nap and as I was falling asleep my ears began just screaming with a new tone. It left but it was terrifying…for now I'm back to baseline auditory nightmare lol.
orenge01
I'm skeptical of the idea of making tinnitus worse at very low volume from headphones, especially if you take frequent breaks and such.
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orenge01
@adpolandam Yeah sorry if it came off a bit ignorant. That's good that you can give up using headphones. I wish I geniunely could but at the moment it doesn't feel like I can :/
S
@orenge01 Well, it's really your call... can you cope with a worsening of your tinnitus? Was it originally caused by noise damage?

Me, this level of tinnitus is something I can just about deal with, it was noise induced and no in ear audio seems like a really small sacrifice even if it just potentially prevents worsening.

If it gets bad, you'll be sacrificing more than headphones.
orenge01
@Scruffiey I feel like its been ok, and I barely listen to music or audio as much as I used to anymore through headphones. That's why I use a balanced approach I don't know what else to do. Probably caused by loud noise, but it was loud I listen to and I listen 1-2% volumes always now for years. But just wearing normal non-anc headphones without sound is apparently bad as well. Idk.
Nes
Well, i don't think i'll be able to get out of my protections in my house. Constant vacuum and power tool noises today. Yesterday got blasted with a high pitch pure tone coming out of nowhere. Looking to move out
vilebubbles
So sorry. Same for me. Constant cars going by and family. Love them so much but they can be loud.
S
i injected lidocaine inside my eardrum, T immediately got turned off, but I got vertigo because the fucking cochlear and vestibular are connected to each other, I got punished heavily for this try by the creator.its like they are telling me don't touch the untouchable
D
Complete turn off or reduction? How long did it last? Any other side effects? Sorry too many questions. I guess you can take some vertigo medication with it and balance it out?
S
like completely turned off but the total sound also got thinner, after about 20 minutes , t started slowing fade in, then about two hours, it completely returned to normal level, at the same time the vertigo started to fade out but not completely disappear even after very long time
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