_Shoto_

_Shoto_

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  • _Shoto_
    Less than a year ago I was a fully abled person with *okayish* future. I had everything. I lost everything. And will continue to loose all.
    _Shoto_
    My T will be getting worse in the future no matter what I do and how much I protect. These thoughts are really heavy. The truth hurts.
    _Shoto_
    Going to PCP tomorrow to get referred to neurologist. I hope PCP will prescribe extra methylprednisolone for as needed basis. They won't tho
    _Shoto_
    My good ear got dysacusis. And all of this because of 3 seconds smoke alarm in a next room. Took methylprednisolone rn. 3 days later. 8mg
    _Shoto_
    My faint wind tone in left ear is still raging up. I hate it so much. I can't sleep. Fuck fire alarms above 100 decibels. 75 is enough!
    _Shoto_
    Half a day after smoke alarm and so far my tinnitus is only 10% worse. Left ear got a new tone that's not that loud but still...I feel angry
    _Shoto_
    I'll unplug all smoke alarms in my new apartment I don't give a fuck. Holy shit how much pain I feel rn in my ears. Like lava inside of them
    _Shoto_
    I'm not eligible for SSI disability support and never will be. That means I'm stuck to 100% being homeless in the future. What a nice day...
    _Shoto_
    Mom triggered smoke alarms and now my ears in pain. I'm crying. This was the only time when I was not in my headphones/earplugs. Crying
    _Shoto_
    My today's hearing test is exactly the same as 6 months ago. Normal hearing with mild loss at 250 and 8khz. With 4% improvement in right ear
    _Shoto_
    I have no idea what was that but..it's the first time when this happened to me. I have T for more than 7 months so I hope it's not Ménière's
    _Shoto_
    Got severe vertigo and balance issues for solid 5 seconds. I thought our planet lost gravity and I started seeing backwards and upside-down
    _Shoto_
    Woke up with T spike in left ear. I would say it's about 20-30% louder but no new tones. Weird but okay. Too soon to panic.
    R
    hi, do u know what caused it? Hows the dental search going? I might be going to mine this week.
    _Shoto_
    Will ask PCP for neurologist referral to get pregabalin or at least gabapentin for H and TTS. Can't wait to hear "I don't know what this is"
    _Shoto_
    This Friday I have a hearing test(again) with the same audiologist who doesn't believe in hyperacusis and tinnitus. But it's free so why not
    cjbhab
    that's unbelievable. if only tinnitus was just my imagination, then i could imagine it away.
    Calapsodis
    Honestly if they don't believe in either condition they need to be reported because that's dangerous. Complete lack of care or compassion. These are the kinds of people that give genuine audiologists and ENTs a bad name.
    _Shoto_
    Pain clinics will 100% say go to psychiatrist. Psychiatrist will say the otherwise. The audiologist can't prescribe at all...what do I do
    _Shoto_
    How do I find a doc who's willing to prescribe pregabalin? PCP can't prescribe C2-5 drugs, my psych probably will say to seek pain clinics..
    View previous comments…
    _Shoto_
    Hi @RunningMan. Your situation is really weird. Lexapro is a "safe" drug so every doctor pushes it for everything. Anxiety, depression, anger issues, stomach aches etc. However, why would doc agree to prescribe benzos and z-drugs (which are C4) but not gabapentin (uncontrolled) or pregabalin (C5)? Seems fishy and it's a huge red flag to me
    kingsfan
    Neurotologist
    RunningMan
    @_Shoto_ It's because gabapentin and pregabalin are not FDA approved for anxiety & insomnia, so it's off label for what I wanted treatment for. In fact, he also took away my z-drug so that I could dry Quviviq (a DORA class sleep med). Sertraline for a week followed by Lexapro is what gave me stomach pains which persisted over 7 months since weaning off. Dr. wants me to take more benzos.
    _Shoto_
    Took .5 Clonazepam and 10 mg of d8. I know none of this will help with a possible spike but at least now I have some chance to fall asleep..
    RunningMan
    0.5 mg is somewhat safe to take occasionally. I do the same thing with 0.5 mg Lorazepam. D8 didn't help my sleep at all, even at a larger dose.
    _Shoto_
    I'm so shaking rn. It was a beautiful week without hyperacusis spikes. This probably ruined everything. I'm shaking. Holy shit I'm shaking
    _Shoto_
    Mom made a very very loud sound right next to my ears. It was around 90 db. It's been a minute, so far no worsening. I am shaking. I can't
    _Shoto_
    Update: I got a new quet tone in my left ear. It's around 2-5 decibels. Very sad. So stupid. That situation was so stupid. Funny that I protect my ears 16 hours per day. Double protection. And just one SMALL mistake made by my mom worsened my condition. I don't know what to think about it. Praying it's a temporary sound and it will go away after several days
    _Shoto_
    Stay safe today and be prepared for fireworks. Do not leave your home unprotected even for a "5 seconds". Need to go out? Double protection!
    R
    Many fireworks lol! Also i found another method for cavities its called air abrasion its even less noisey than laser wasterlase. Air abrasion is the most quiet method and second is the laser. Did u find a dentist yet?
    _Shoto_
    Hi @Rich123! Yes, I know about air abrasion, but unfortunately the closest one is in a 2 hour drive. It's really sucks to live in a city of 350K. I have no idea why the city of this size doesn't have any dentists who know something about laser or air abrasion :(
    R
    Hello @_Shoto_ hat stinks but it might be worth travelling farther if you can. Did you call or search around for waterlase? There should be a few that do it. Its kinda common nowadays.
    _Shoto_
    Please, if you are from USA, wear double protection outside of your home today. Foam earplugs and ANC headphones/earmuffs on top of them!
    Varda
    ANC doesn't work for sudden loud sounds. It only erases steady background droning/humming noises.
    _Shoto_
    Hyperacusis is indeed one of the most weird disorders/disabilities. So many questions and so little answers
    _Shoto_
    Hyperacusis is so weird. These past few days I almost didn't feel like I have it. But sometimes I can't even take a shower without muffs...
    _Shoto_
    Went to the FOREST and there are two kids on scooters. Holy shit they are so loud. Scooter + concrete plates = 90 decibels of hell
    R
    Take noise cancelling headphones with u outside and you can put them on easily in a few seconds. Or some good earplugs. Did u get a spike?
    _Shoto_
    Hi @Rich123, thankfully I feel completely fine. No spike! From now on I will always carry ANC headphones with me lol
    _Shoto_
    Mom rn dropped a fork on the floor. So fucking loud. Oh my god. Please no spike please no spike please no spike please no spike. God please
    R
    Hi, I saw a comment you made about needing cavities filled just wondering did you go through with it? I'm in the same boat.
    View previous comments…
    R
    That stinks I hope you can find something. My current dentist only does air powered ones and said he would only need one minute to drill but i dont know if I can take that risk. I found a place near me that use waterlase laser technology im probably gonna give them a call. How many cavities do u have?
    _Shoto_
    @Rich123 Unfortunately I have more than 10 cavities :( I wasn't able to brush my teeth for 5 months due to hyperacusis. Also, thank you, I didn't know about waterlase laser! I will try to find someone with it in my city
    R
    Ya, man waterlase should work many dentist should have it even though you mentioned living in small city get it checked out. Im getting mine checked out this week.
    _Shoto_
    Every day I'm checking on Michigan device discussion thread in a slight hope to see "FDA has officially approved a new unique device for T"
    streifzug
    Me, too!
    RunningMan
    Then you can run down to Walgreens the next day to buy it. hehe Oh wait, just kidding. Hopefully, it will be available throughout the country by the end of 2025.
    _Shoto_
    Moderate T and H spike out of nowhere. Hoping it will go down on its own tomorrow. No idea what caused it. I was very protective of my ears.
    _Shoto_
    Accidentally drank milkshake with 800mg of caffeine. I was caffeine free for years. Very shitty feeling but my T and H didn't spike! Yay!
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