_Shoto_

_Shoto_

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  • _Shoto_
    My hyperacusis now is 11/10. I hope this is because of tapering down of methylprednisolone. I want to hope, I reject the reality. My oh my
    Utdmad89
    Have you tried clomipramine?
    _Shoto_
    @Utdmad89 hi, no, I'm scared of any antidepressants. I can't afford destroy my ears even further :(
    Utdmad89
    I'm going to. Clomipramine Is well know to help H
    _Shoto_
    Can't do anything without headphones. I knew my hyperacusis is permanent but damn why it's slightly worse than before? Anyway whatever
    _Shoto_
    Since T/H onset my left side of head is very sensitive to touch. Especially ear and neck. Why? No idea. No doctor knows. I've seen 5 of them
    _Shoto_
    My T/H back to normal thanks to methylprednisolone. Sad I didn't know abt it half a year ago when I first got my T/H. I hate my family doc
    ECP
    I am so happy that the medication worked for you! Stay strong.
    _Shoto_
    Methylprednisolone started working. The muffling is gone. The ringing subsided too. Oh what a day... I hate lawns so so much. Plant flowers!
    SumGuy
    Did the prednisolone get rid of all your t or just helped lower it?
    _Shoto_
    Using Google maps to find a city with the least amount of lawns. Villages in death valley look so depressing but not a single lawn in sight!
    _Shoto_
    I got prescription for prednisolone, hope it will help. I'm considering moving to Arizona or death valley in California. Lawns are evil...
    _Shoto_
    I can't stop crying. I lost right ear for such a dumbass reason
    Juliane
    What happened?
    ECP
    Did you suddenly lose your hearing in one ear because of the lawnmower this morning??? I hope the medication brings it back. So deeply sorry about this.
    _Shoto_
    Hello @ECP ! Yep, this situation is so dumb. Fortunately, methylprednisolone seems to work. My muffled feeling is gone and ringing is back to normal
    _Shoto_
    Right ear lost all hearing. Ringing louder. Going to urgent care rn for methylprednisolone prescription. Crying. 6mg clonazepam don't help
    _Shoto_
    So much pain. I was so dumb. Why didn't I left the room as soon as possible. Earplugs and NC headphones wasn't enough. What was I thinking??
    Karolina
    This condition is inhumane :(( pure survival
    _Shoto_
    I found the only lawn-less apartment in my city. 3 more months and I'm in. But I won't survive this long in this apartment. Holy shit why
    ECP
    Does your apartment complex have a predictable schedule for landscaping and lawn maintenance, for example, every Friday? If so, try to avoid being home that day if possible. If the schedule is not predictable, see if your landlord can give you a heads-up the day before so you have time to prepare.
    ECP
    I can relate because they use leaf blowers and lawnmowers every Tuesday at my apartment. And I had crazy-bad luck because my husband and I have only one car, and although we both work from home, Tuesday was the only day of the week he needed to go into the office.
    ECP
    So I'd be home alone every Tuesday, moving from room to room throughout the day to avoid the noise. Even with ear protection, it was distracting and painful. I felt like a moving target.
    _Shoto_
    My apartment has grass from all 4 sides and all 4 sides are with windows. My ears hurt. It's always 95+ decibels inside when they mow lawn
    _Shoto_
    I found an appointment in my city that doesn't have any lawns in front of windows, I can't wait to move there. My ears hurt. I'm crying
    _Shoto_
    Lawn tractor outside of my windows is 113 decibels. He was riding it right in front of my window for 40 minutes
    crescentsky
    it's terrible! my neighbor is at it again mowing his barely any inch grass. can hear him even from a few houses away. Worse is those people have no tinnitus!
    _Shoto_
    Many people say clonazepam helps them tremendously, but for me it's my ADHD meds. Maybe my ADHD is what makes habituation harder?
    RunningMan
    Conazepam can become far less effective after using regularly for a short time and cause even bigger problems. ADHD and OCD could make it harder to habituate, or if you have severe T.
    _Shoto_
    My ADHD meds (dextroamphetamine) somehow make me ignore my tinnitus COMPLETELY. I can hear it only when I think about it. Feels so good...
    Thizzle
    That's a new one, meth suppresses T
    _Shoto_
    Leaf blowers are not only bad for the environment, but also bad for your sanity... Three hours of this every week. Every week
    _Shoto_
    My decibel meter recorded 102 decibel thunder right now. I miss enjoying Texas hurricanes/heavy rains so much...it was so relaxing back then
    _Shoto_
    Well. It happened again. A new tone in my right ear. Out of nowhere. I was protecting my ears ALL these days. Music at 10/100 volume...ugh
    Pinhead
    Yep. Very strange how once it starts, it doesn't seem to stop. They build up, sometimes go away, and sometimes become louder.
    _Shoto_
    It went away after 2 hours. Not for long probably tho
    _Shoto_
    Can't sleep. It's just too loud. 6 months in and still almost zero habituation :/ It's not even the loudness, it's the frequency...
    RunningMan
    I dishabituated when I turned severe 27+ months ago. It's always severe and getting worse with time, but the squealing high pitched single tone days are the worst. I can't sleep well, even with meds.
    Higo
    Does your T frequency ever change or has it been consistent?
    _Shoto_
    Hi @Higo, my frequency unfortunately never changes, however sometimes I get new tones for a few days/weeks. Some stay and some go away
    _Shoto_
    I've got a new static tone in my right ear. It's around 5-10 db. Hearing this is so weird because my other tones are around 60-70db...
    BlueMoon86
    60-70db? Compared to last month when you were 1/10? What went wrong? My effected ear is 60-70db and I could never habituate.
    _Shoto_
    So so tired. It's been less than 6 months but it feels like 2 years, I'm damn serious rn. ONLY half a year...I CAN'T believe this. CAN'T
    Thizzle
    Any improvements that are worth noting?
    _Shoto_
    Hi @Thizzle, unfortunately I had no improvements at all. Probably my hyperacusis is less bothersome, but my tinnitus is getting worse by a little bit. I am getting new tones every 2-3 months even tho I protect my ears as much as I can :/
    Thizzle
    When you say new tone do you mean like a new sound you can hear or like a pure tone
    _Shoto_
    Yesterday was my 5th month anniversary of T/H and today my T is 1/10. I think abituation started to kick in finally
    RunningMan
    Only a 1? That should be easy to habituate to. My mild to moderate tinnitus of a few years ago in the 3 to 4 range had me pretty much habituated all the time compared to when it jumped to 7 - 9 over two years ago, and I dishabituated.
    Tryn2BHopeful
    I am happy for you! I hope you can find peace and leave this place.
    _Shoto_
    I bought the sound dampening blanket for my window but just in case decided to order the size that covers the whole wall lol. I'm desperate
    _Shoto_
    Today is finally a day. I wasn't able to sleep at all these past weeks. I can't believe today is (maybe) the last night when I sleep 5 hours instead of 7! I hope it will work. If not I'll buy another sound dampening blankets and hang them in front of the others lol. I will make my room sound proof one way or another
    _Shoto_
    Fuck dog owners who let their dogs bark nonstop at the balconies before 8am. And fuck motorcyclists who try to make their bike as loud as possible and go over 110db for some reasons
    _Shoto_
    Today my soundproof blanket should arrive. I have no idea what to do if it won't help....I haven't had a good sleep for 2 months. I'm crying
    _Shoto_
    Started crying. Apartments are hell. Dogs are stupid af animals that bark at tree (leaves make sound) for 2 hours. Since 5:12 am. I can't...
    _Shoto_
    My sound dampening blanket for window is coming up next week! Can't wait! I hope it helps with 4 different dogs barkings! I will SLEEP!
    _Shoto_
    Lawn mowers are mowing on Fridays...my b day is next Friday. All day in walk-in closet...I wanted to make pizza and bake some cupcakes...
    _Shoto_
    My normal heart rate is 90-110 bpm. In grocery store it's 140 and on parking lots it's 160-200. Yep. Agoraphobia is my new friend for life
    _Shoto_
    I haven't had a headaches for almost 2 weeks now. Wow. Habituation helps probably. The loud ringing was the main reason that caused them...
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