BrOKeN_1

BrOKeN_1

Member 45 From Utah
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  • BrOKeN_1
    It gets better. The ringing doesn't rule me anymore. It's there it's loud its a part of me. But thank God the fear is gone. Better days
    ASilverLight
    I'm definitely less bothered these days but I'd still kill for something that keeps my T from fluctuating by the hour
    kuromi
    I feel the same way. I'm completely adjusted to it now I'd say. Hope you're well buddy.
    BrOKeN_1
    Officially 6 months since onset. Mild acceptance at best. Still quite bothersome. All day.. every day. At least sleep has improved. YOLO!
    BrOKeN_1
    Took my son to see Godzilla vs Kingkong! Glad I took plugs! Awesome Movie. Very Loud! #protectyourself #livealittle
    BrOKeN_1
    At this point I don't think the T volume changes.. merely my perception of the volume. Highly dependent upon environment and stress level.
    BrOKeN_1
    May be sabotaging myself. Trying to enjoy previous habits got me spiking a bit. I know.. I know.. 'stupid is as stupid does'. Forest Gump
    starrynights
    What kind of hobbies?
    twa
    hugs~
    BrOKeN_1
    The kind some T sufferers would frown upon. I'll leave it at that. ;)
    BrOKeN_1
    Just another T-eriffic Saturday night! Evenings are always annoyingly loud or at least precieved that way... another day in paradise.
    BrOKeN_1
    @twa started Journaling about 3 weeks from onset.. I've actually gauged my progress on less but more positive entries.
    BrOKeN_1
    It hurts my heart that other can not at least enjoy low volume entertainment. Please don't be too hard on yourselves. Much Love!
    BrOKeN_1
    @Steph1710 Music and Podcasts are essential to my sanity.. I cannot.. Will not.. stop. Music stays at or below comfort level always.
    View previous comments…
    Bill Bauer
    If you are getting T spikes after these music/podcast sessions, you are playing with fire.
    Steph1710
    @Bill Bauer, me, personally, I don't ever have spikes from sound. Also, I only listen to music whilst wearing earplugs, and I mostly listen to it when I'm working outside. I also play it through my Bose speakers which are very good quality. :)

    Oh, and if I think my ears aren't enjoying a certain frequency, I soon turn it down or off.
    BrOKeN_1
    @Bill Bauer fortunately I never get spikes from music either. I understand the sentiment. My audiologist suggested that my T might get worse after returning the hearing aids I couldn't afford a few days ago. Whether that is true or he is just disappointed about not making a sale. Idk. I refuse to be a slave to this incessant noise though.
    BrOKeN_1
    Must manage perceived volume.. had to return the hearing aids today. Skeptical of aid help. Or if tolerance improved. Either way.. looking^
    tracyNYC
    If I didn't have hearing loss, I'd return mine. I keep wondering (worrying!) if they are worsening my tinnitus.
    BrOKeN_1
    Hurry Up And Wait... On the cusp of month 4 now. Coping better and not downward spiraling anymore. T is still constant.. life goes on.
    BrOKeN_1
    3 1/2 months later.. tone and pitch remain steady. Tolerance much improved. Steady we go... baby steps.
    Ilias T
    Hopefully turn into giant steps. I wish I got this when I was like 50 or something but not 15 :(
    B
    • B

      buttercake

    Kinda same here, except that I am almost 4 weeks behind you. Sursum corda!
    BrOKeN_1
    Took the family tubing and ice-skating yesterday. Was a good distraction. Wish that worked for everyone here. Never a dull moment with T.
    BrOKeN_1
    @Orions Pain Have you tried crickets? They are almost as annoying as the T. Yet I've learned to almost enjoy the chirpy little bastards!
    O
    I have :( any audio from a speaker flares my face/ear pain badly. Thank you though
    BrOKeN_1
    Sorry to hear that brother. I'm such a puss I can't imagine have pain accompanied tinnitus. Stay strong man.
    BrOKeN_1
    Played some FFX Remake today.. tolerated it ok. It's a hard life for a gamer with T. No more FPS for this guy.
    Gareth Davies
    I'd recommend Subnautica; no guns in sight. Buuuut you might want to avoid if you have thalassophobia.
    BrOKeN_1
    Uncomfortably Comfortable.. Excitedly Anxious.. Obnoxiously Noisy.. Neverending Nervousness.. Obsessively Compulsive.. Sleep Deprived Daily.
    V
    Tell me about it.
    Drachen
    Would love to have some nootropic of some sort that just allows your brain to *chill* without messing with the necessary functions. It honestly seems like so much of the problem just deals with overexcitation.
    BrOKeN_1
    Can someone pull the T over and let me out. Its been fun and all but I'd like to go home now and get some sleep. Does humor help? Idk... :/
    Drachen
    I'm with you there. This has certainly been an experience of which I no longer wish to be a part. When things calm down, I will most certainly have a better appreciation of life. This all has trivialized a great majority of my depressive triggers from before. Quality of life is of utmost importance.
    BrOKeN_1
    Drachen
    Certainly interesting indeed, and a lot of what he said rings (sorry!) true, but he also takes a bit of a "doctor good, supplement scary" approach, especially with that last line. He doesn't seem to understand how many ENTs/audiologists don't know/care about the condition and can't really consult with you anyway on supplement strategies.
    BrOKeN_1
    @Drachen Good luck with the ENT today. Fingers crossed you'll find some relief bud.
    Drachen
    How I wish that were the case. If you're interested, I updated my introduction thread with how it went and how today is going. Not feeling too hot, but I appreciate your warmth.
    BrOKeN_1
    Stuck in a strange sleep cycle.. 4 hrs.. 6 hrs.. switching each night for the last 8 days. Maybe it's the meds? I guess I should be grateful
    View previous comments…
    BrOKeN_1
    I take lorazepam 1mg before bed and Prozac to beat back the Devil. I've quit taking all but a couple supplements because they are expensive and weren't doing much. I wasn't sleeping at all a week ago. That's why I say I should be grateful.
    Drachen
    That's certainly odd. I wonder if your rhythm is still out of whack in some way. I've been going between 3 and 6 straight, but I've never clearly alternated like this.
    BrOKeN_1
    Still better then a couple weeks ago. Getting off graveyard shift was the right thing to do.
    BrOKeN_1
    Just a couple days away from the 3 month onset. I know acute.. sub acute.. and chronic are all subjective anyways. Just keep Swimming!
    Drachen
    That's terribly unfortunate, but here's hoping there isn't a fourth to worry about!
    Bill Bauer
    I've never heard of it going away during one's fourth month.

    It might go away either during the first week, or after 1-3 years.
    BrOKeN_1
    Pro Tip from a newbie... get out of the house! Bird watching may be my new thing :D sing for me you little shit! Haha
    BrOKeN_1
    I've been trying out some Oticon hearing aids for the last few weeks. With a masking feature added this week. So I guess we'll see.
    View previous comments…
    BrOKeN_1
    @Drachen No my hearing is still pretty good. But since my tinnitus is in the high Frequency it helps alot to have some masking. Normally I would pass but I'm fortunate to have an employer who will pay for them. At first they were really frustrating because having all the extra noise seemed to aggravate the T. But that has gotten better.
    BrOKeN_1
    Audiologist believes they will provide relief as well as help me habituate. With my poor mental state I need supplemental support until we get something like FX-233 on market.
    gameover
    @BrOKeN_1 Have the hearing aids helped you?
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