Freerunner

Freerunner

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  • Freerunner
    I tried,I really did fight it.But I cant win -it is worsening with enormous steps and have robbed my life.Two incurable destructive diseases
    View previous comments…
    Freerunner
    I don't know if I am going to survive this. Tinnitus and H are on its severest form. Literally.
    SD7
    Hearing ailments are awful I grieve for you my brother, you have the fact that your case is still acute it can and usually does get better in time. None of this is meant to diminish the authenticity of your suffering I know you're hurting but only to give real hope.
    Freerunner
    @SD7 it is literally 10 times worse since the onset and I wonder how am I going to manage? It spikes like hell for no reason. It is god damn loud with 6-7-8 tones spinning together in both ears. H is severe I have to wear earplugs all day at home and it used not to be the case. I have a job that does not allow me 100 % work from home. It is so hard and I think I might soon be gone for good.
    Freerunner
    I can't just isolate and live like a hermit. I am heading towards the end. I do not want to die but living like this is equal to death
    Freerunner
    After Christmas gathering - suffered a spike and ended up aggrevating the tones - one changed pith and it is constant. H is unbearable...
    Freerunner
    There was no music - just 7-8 people talking. I was wearing earplugs and even made regular breaks every 30 minutes or so .... Now everything pierces through the earplugs and causes me pain and discomfort. Fucking 21 century plague

    Tinnitus is more bothersome than ever and spikes from taking a deep breath
    Freerunner
    H and T at suicide levels. Worst they have ever been. My ears feel fatigued all the time and all the tinnitus tones are higher...
    View previous comments…
    Freerunner
    Like my ears are hot and there is ache
    Freerunner
    I cannot even bear my own voice for longer period of time. How is this torture going to end? How am I supposed to go to the office for work and not loose my job and life? Why is there so many different tones inside my head which are raging for no reason?
    ibeca
    Try not to use earplugs at home, it its will only cause stress to your ears, and humidity inside your ears. To beat H you need to expose your ears to normal sounds. It is better if you just hold your fingers to your ears when you need to.
    I know how it feels. My own voice used to knock me off my feet. It takes time, bit H will get better. And when H gets better T tends to ease a bit too.
    Freerunner
    Does having various tones mean your chances for recovery are minimal?
    View previous comments…
    D
    @Wrfortiscue Yeah true, it can get better both objectively (volume, intrusiveness etc) and subjectively (habituation). The 2-3 mild-moderate tones I initially developed, disappeared after a few months and they were replaced by other less intrusive milder ones. The damn thing is unpredictable as fuck, but time most likely works in favour of us...
    Freerunner
    @aura , hiss(reactive ring), whoosh, zap, morse code, screech, tea kettle, head tinnitus
    aura
    @Freerunner , just like me! I don t have the tea kettle( yet) but a crystal glass sound effect .
    Freerunner
    Nooooooo, new morse code now...... Noooo. Why ??? Why am I not given a chance to get through this?
    View previous comments…
    Steph1710
    I have always have a morse code sound, right from the beginning. I actually prefer it to my other many sounds.
    aura
    @Steph1710 maybe you got used to it? I really hate it.
    The " morse code & crystal glass" combo puts me on straitjacket mode.
    IntotheBlue03
    Hey @aura when u say Crystal glass do you mean like a clanging of glasses? I have this oscillating metallic hiss with painful metal zings that might match that.
    Freerunner
    Baseline significantly changed after the cafe/bar. Although spike subsided after two days, now there are new sounds in both ears-screaming
    Freerunner
    I do not want to die, but I do not want to live like this either. What should one do? Keep on suffering your whole life?
    View previous comments…
    IntotheBlue03
    I like your optimism @danielthor but quick question, you need to know the cause of your Tinnitus in order to treat with stem cells correct?
    danielthor
    @IntotheBlue03 Yeah after reading about it for some time now; from what I understand stem cells will only work for tinnitus if your tinnitus is related to immune system dysfunction, as stem cells primarly work as immune-modulators. There's actually no proof that they cross the blood brain barrier and become nervecells or anything like that
    Cory_
    @Zugzug Have you heard what danielthor just said about stem cells? Your issues were caused by autoimmune disease, yes?
    Freerunner
    T and H are through the roof - 12/10. Two times worse since they were. Stupid me
    View previous comments…
    kingsfan
    It's usually temporary. Can take a long time for things to settle. Sometimes it's overnight, sometimes it takes weeks, sometimes months. I don't think one event at moderate volume would be catastrophic. Rather, it's cumulative.
    Freerunner
    Well, it is still bad. My tinnitus is really bad . It spikes much more and I have way more sound distortions than before...
    Freerunner
    It calmed down but not fully. My baseline changed and new screeching sounds appeared.
    Freerunner
    Biggest mistake of my life - going to the cafe for 30-40 minutes caused the worst T and H I experienced so far .......
    View previous comments…
    Shelbylynn
    I'm
    Sorry cafes are usually the quieter outings of mine but some have blenders etc
    Wrfortiscue
    Allow your ears to heal. Setbacks happen
    Freerunner
    It was 75 db according to my app but I know think it might have been louder. I think it is not just a setback but a permanent worsening. So far my spikes has been cleared for 2 days top. Now it is different. Tinnitus is raging and H is the worst. I barely slept 3-4 hours wil 6mg melatonin and atarax
    Freerunner
    Can hitting two plates together cause damage? My left ear feels muffed and hearing less. This H is fucking me up real bad.
    View previous comments…
    Stacken77
    @Freerunner The screeching can go down. Mine can get to what I call an "angle grinder" for a few days and then revert back to a more tolerable ring.

    Do you have pain with your hyperacusis?
    Freerunner
    @Stacken77 , Yes, now I do have pain. Previously, I had mild pain from time to time but nothing too serious.
    I woke up today, H was okay, went to work, and I am now in the office. It is pretty quiet since it is a big open space and only a bunch of people are coming due to Covid. However, without exposing to loud noise, my H is bad, I man really bad now. I have not had it that bad.
    Freerunner
    I might recover a bit from H, since I done this in the past, but every change in T so far has been permanent (new sounds coming and staying, getting louder with time). At least H was bearable - I could listen to the TV at a normal volume, listen to music a bit. I did not wear earplugs while at home, only when vacuuming and doing the dishes.
    Freerunner
    Now head Tinnitus sound above all others...
    Freerunner
    From several days - all sounds have been noticeably louder, except the hissing which is reactive. So all sounds that appeared as slight ones over time are now raging. I mean ... I am a bad case or what? Is the H giving me all these sounds?
    Freerunner
    How Am I going to live with this. I am even short of two months and I have worsened more than people do in years to come ... I just want to habituate and live somehow normal live and socialize a bit, but I start to think that would not be possible in the next year at least.
    Freerunner
    I am 90 percent sure it will not go away so I have to live with it. but God - at least stop it from progressing with such high speeds... It is not normal behavior. I did not find anyone on the forum who has worsened so fast..
    Freerunner
    Ok, how do I get used to a tinnitus which changes 20 times on a daily basis? Every little thing seems to trigger it, I already have 5 sounds
    Ava Lugo
    @Freerunner, I have no idea as i suffer from reactive T everyday and still havent gotten use to it.
    Freerunner
    Today I woke up to the usual hiss which throughout the day will become more of a ringing. However it is accompanied with high pitched dog whistle which does not seem to be triggered by any noise.
    Freerunner
    After 10 minutes laying in bed, the hiss noticeably became a higher pitched tone. What the fuck? Not to mention the electrical buzz in the right ear which I can actually feel and the other screaming sounds which come and go.
    Freerunner
    How do you manage hyperacusis pain? Today I feel it is at its worst since the onset after 2 hour ride with earplugs in...
    Freerunner
    Spikes do not fully subside when I wake up. Previously I would wake up to a hiss, now it is between hiss and ring... Did my baseline change?
    View previous comments…
    Freerunner
    Mine has only been changing for worse since the onset (a month ago). I also struggle with hyperacusis. Tinnitus is so reactive I have several spikes a day which last hours. I do not how to handle it.
    Freerunner
    I did not have a single good day so far. IT has been alright only in the mornings. However, since the Valsalva and the fight with my family, baseline is not hissing anymore and there are many new sounds.
    Wrfortiscue
    I didn't have T when I woke up but I do now so I'm assuming it worsened
    Freerunner
    Why does T worsen everyday from every little thing? How can someone bare 5 sounds developed for a month?
    View previous comments…
    Stacken77
    I can attest that tones do come and go. I raked up 10 tones at one point spanning both ears, which later went down to what I now consider 4. If you can protect and avoid to get more tones, then I think yours can improve.
    ZFire
    @Damocles I think I have that conversation tinnitus too… its so hard to describe it…sounds like someone is shouting at me sometimes
    ZFire
    I too can confirm what @Stacken77 and @Damocles have said. My onset started in April and I've had many tones as well as musical tinnitus that have come and gone. it's a process that's going to take time to manage. First year is indeed tough and I'm still struggling at times.
    Freerunner
    Furthermore, new high pitched tones appeared. Others changed intensity and volumed up. 5 tones now in left and 4 in right. What is happening
    ThomasF
    I dont know what it is but I want you to know that things will be okay.
    Freerunner
    I appreciate your kind words but I really doubt this man .. It all started with a high pitched hiss that I would now kill to have back. Every little thing seems to permanently worsen my tinnitus. I do not find it normal to have 4 more tones developed for 1 month.
    Freerunner
    I wear hearing protection when outside, when chatting with someone, when in the office - only when I am alone I don't. I prefer to be deaf with one year but not have tinnitus... Really. Unfortunately I really think my life ended with this , which was on top of every other sh*t I was already in and was barely managing to function even before tinnitus.
    Freerunner
    After a short fight yesterday - spike. After sleeping, spike has not subsided fully even though it always happened to be the case so far.
    Freerunner
    New tone just starting to emerge in the left ear. Come on man, I think I've had enough. I developed 3 new tones for a month. Is this normal?
    View previous comments…
    Freerunner
    Even if I had perfect health, which I am honestly far away from - Tinnitus would still have crushed my whole being. I was the guy who always wanted silence - always. I enjoyed sleeping with earbuds so much. I just found a nice silent apartment for rent after my split up and I was kind of happy for this, because I know how difficult this is when you live in a big busy city.
    Freerunner
    However, God obviously wanted to try me even more and bring me this dreaded condition. I am almost sure I am not going to be a success story even though it has only been a month - I keep worsening constantly since the onset even though I am protecting from loud noises and using ear buds when outside or when even talking with someone ...
    B
    • B

      buttercake

    Please do not go yet, stay with us a bit longer. You might want to give a chance to some medications first (LDN, Keppra, Gabapentin, Benzos... honestly, whatever it takes to stay afloat). You are still in the very acute phase, chances of major improvements are high for you. Plus, the impression I always had by reading this forum is that hyperacusis after a noise insult clears up quite often.
    Freerunner
    Left ear muff, accompanied with pain and spike Spike hearing 8000 hz tone from a You tube video only for half a second at a low volume....
    View previous comments…
    Freerunner
    After I slept, the spike has subsided a bit. However, ear is still muffed and I cannot seem to pop it order to equalize. WTF is happening with my ears... I used to have perfect hearing and one minute caloric test ruined them for the rest of my life.
    Freerunner
    I am even willing to undertake stem cells procedure and go into debt but the uncertain results are holding me back for now. My ears continue to worsen since the onset even though I am diligent in protecting them. I just do not see it how I am going to get through If I do not get a little bit better. I am also considering laser therapy. What are your thoughts on these procedures, @Damocles ?
    danielthor
    @Freerunner With regards to stem cells, @Tau Is in the process of getting it done in Germany. If that turns out a success I would definetely go for it
    Freerunner
    Massive spike after pouring Cue eardrops to soften earwax... Please help guys, what do I do ? I am afraid this might be my new level now
    Freerunner
    I week after the caloric test - my ears still ringing although a new sound appears and I developed sensibility to sounds. My ears hurt.
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