Juliane

Juliane

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  • Juliane
    I almost feel that it is wrong not to give up. I should call in sick and wait to get fired. Would that not be the best thing?
    Juliane
    More than a year since my worsening and no progress. As in none at all. Life officially sucks. Don't care anymore
    View previous comments…
    L along the way
    Do you sleep well? I've had so much troubles with falling asleep... it was rough beyond words.. now i'm using temazepam, and i can at least sleep. I tell myself that things can get better by plenty of resting & healthy living, and time... because a life with t not getting better.. pffft i find that an unbearable outlook... i hope things may improve for us all
    gameover
    My progress is hardly a progress. T is louder, H is barely better, Nox creeps in more frequently. Life is there but I am watching from a distance. This is not a way to live.
    crescentsky
    T is a disease that keeps on giving. At first I thought oh will get better in 3 months...6 months...12 months...18 months...
    Juliane
    If I ever heal, I will write a book about this. I will do my best to create awareness about this horrible disease so completely ignored
    Juliane
    Whether I eat healthy or not or drink coffee or not, my T does not sod off. Might as well eat and drink as I please
    Juliane
    When my therapist says T is not dangerous I want to slap her! How can something that has made my life nonstop torture NOT be dangerous?
    Juliane
    I have some fantasy about moving to the countryside to heal. Is that Just a stupid dream? Moving would be horribly stressful in itself
    gameover
    I am working towards it, but also wondering if I can handle the move. Also we already live in rural area, just not as quiet/nice as I would like.
    Pinhead
    I would move to the countryside, but then I would be in the place I dislike most: the countryside.
    It's probably better for me, but my favorite spaces are urban.
    crescentsky
    I need to move away as well with acres of land. I didn't realized how loud this world was until T assaulted me. My neighbor is doing some crazy landscaping (that is not even needed) as I type this. The whole block is shaking.
    Juliane
    All of the insane shit going on in the world is making it impossible for nervous systems to heal. Part of the reason too I believe
    Juliane
    Sorry if I sound insane, but I believe this could be some kind of attack on us. Why are we suffering so badly? Havana syndrome?
    SumGuy
    It really is harsh that we have to suffer through this. Hope you feel better
    Juliane
    Thank you! I cannot take it much longer unfortunately. Suffering too inhuman. No help. I don't want to live like this
    Juliane
    Hope you feel better too!
    Juliane
    That is where the true evil of this condition comes in. Nothing to "do" to ease the suffering. All about enduring. For what purpose?
    gameover
    Indeed. Fucking mild maskable T should not be called the same thing. Completely different ball game.
    Juliane
    People who talk about fighting disease don't know anything. With T, fight makes everything worse! All we can do is pause life and suffer
    crescentsky
    others have meds while we have the magical powers of exercising our brain...wooohooo
    4Grace
    @julian - so true. I walk and bike. Exercise daily. It's all I got left. The wind noise is making me worse even with some protection.
    Juliane
    I seriously believe T is on the top 3 of worst diseases on the planet. Someone "up there" must really hate me badly
    Juliane
    Offering people who suffer like we do "therapy for coping" is beyond offensive. I hate that shit so much.
    crescentsky
    it's complete shit. can't even have some peace and quiet after a long day.
    Juliane
    It is the worst. Just torture basically. Non stop.
    Juliane
    Invited to a nice gathering in a building with unknown acoustics. Need to cancel of course. Risk too huge. Sad.
    M
    Can you tell us more about your first dealings with Tinnitus? How did you get well from it? You indicated that from 2011 so (8 years) of chronic tinnitus you recovered? Is it worse now? not the same? wishing you well
    H
    Hi Juliane... I also have severe T that gets worse with triggers.. I am also feeling extremely desperate and have suicidal thoughts often..
    Juliane
    Sorry to hear @HearingKoala. This community offers a lot of understanding and support when the world and family members do not. All the best!
    Juliane
    Thinking of all my friends in here. Sorry I don't have energy to look through all comments atm. You are all in my thoughts
    4Grace
    @Juliane - never feel the need to respond. Im sorry. I can be a bother. Same questions all the time. We are running out of words I know. I understand. I more then understand. We love you. This is hard.
    Juliane
    @4Grace I never replied to your kind message. Appreciate your always kind and loving words. I sense that you are a very good and kind soul ❤️
    4Grace
    ❤️
    4Grace
    How are things going? It's scary to think that it has been a long time. I don't think I am any better. Just louder and louder.
    View previous comments…
    object16
    Her house was a storehouse of cocaine. Loneliness. Isolation. She kept her dignity though. @Grace I like your name.
    object16
    My friend did a lot of mental health work with me in an imaginary place called healing temple. Dr Jack Kornfield style. The mind is very powerful.
    object16
    My friend's pain was intervertebral disc. Crushing unimaginable, what we have is serious, but actual pain pain, reach for cocaine.
    Juliane
    My tinnitus is getting worse all the time. Something is seriously wrong
    View previous comments…
    object16
    So I'm on like 6+ meds, and so what if I have music and restful rain soundtrack all night. So I can't get to sleep, all the time. It hasn't killed me yet.
    object16
    The meds are not the best thing to be on, they have side effects, but I'll wait it out. My life is shitty. ok. but so what. what else is new.
    4Grace
    @Juliane - I am so sorry to hear this. Honest to God. When you are carful and still worsen. We love you and wish you better days. I feel that if all my pain goes away I might have a chance at a smile. I wish you well.
    Juliane
    Mild T is not an issue. Sorry if this offends someone. But with mild T there is still so much to enjoy
    RunningMan
    Yeah, I used to have mild T, for quite a few years. Never thought about it much unless it was quiet or was trying to sleep. I didn't like it, but I would love to have that now compared to severe tinnitus that I hear all the time throughout the whole day.
    4Grace
    I could not agree more.
    Juliane
    Part of my problem is that even at my worst like now I am still a perfectionist. I still take on too much of everything
    BellaMia
    Same but look at you, you're still going strong even in the thick of the storm.
    Juliane
    All so predictable. The constant torture and complete lack of joy and sleep will weaken my health until I develop something fatal and die
    4Grace
    I have so much stress related pain it's insane. Destroying my health daily. I have had a painful soar throat for weeks. It's adding to the stress. I love you guys.
    Juliane
    I am not going to make it. Too much horrible suffering. Hate how life has turned out
    View previous comments…
    gameover
    @4Grace, @Juliane is not 24, she is a Gen X, like me. Btw, somehow, among many people here, I relate to her and her suffering the most. I wish we come out on the other side of this, I really hope, but the relentless torture kills hope. I am getting some relief lately from time to time, yet I still don't believe in a lasting improvement, just delaying the inevitable.
    4Grace
    Juliane
    @4Grace I wish I was 24! LOL. A bit older :-) Still hope healing is possible for us in our 40es and 50es
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