Juliane Apr 19, 2024 Has anyone else started getting frequent infections and getting sick more often after T? I litterally get sick all the time
Has anyone else started getting frequent infections and getting sick more often after T? I litterally get sick all the time
Juliane Apr 13, 2024 I told a friend with another (treatable) disease that she should be happy it's not chronic and consider herself lucky. Think I lost a friend
I told a friend with another (treatable) disease that she should be happy it's not chronic and consider herself lucky. Think I lost a friend
Juliane Apr 13, 2024 1/2 When optimistic I think: if life conditions have become unbearable can life still be good? Can we separate the two (life and conditions)
1/2 When optimistic I think: if life conditions have become unbearable can life still be good? Can we separate the two (life and conditions)
4Grace Apr 13, 2024 Hey Julian, sorry to bother no need to respond. Just saying hello, hope you are doing a little better these days. I think of you now and then…. Wish you all the best always. You're like an old friend I have not spoken to in a while.
Hey Julian, sorry to bother no need to respond. Just saying hello, hope you are doing a little better these days. I think of you now and then…. Wish you all the best always. You're like an old friend I have not spoken to in a while.
Juliane Apr 1, 2024 I have a feeling that we would all heal a lot easier if there was peace and harmony in the world. F... war-makers!
I have a feeling that we would all heal a lot easier if there was peace and harmony in the world. F... war-makers!
Juliane Apr 1, 2024 I am ready to retire. I would not even be sad about giving up any ambitions of a work life. Only relief would be felt.
I am ready to retire. I would not even be sad about giving up any ambitions of a work life. Only relief would be felt.
Juliane Mar 31, 2024 My therapist said "But you ARE already living with this condition". As some sort of epiphany. Well, I beg to differ. This is not living.
My therapist said "But you ARE already living with this condition". As some sort of epiphany. Well, I beg to differ. This is not living.
Juliane Mar 31, 2024 Either you can live with this condition or you cannot. There is no habituation. Not for me. As a lover of silence, the odds are bad.
Either you can live with this condition or you cannot. There is no habituation. Not for me. As a lover of silence, the odds are bad.
Juliane Mar 31, 2024 I'm never going to give in to gasligthing and normalize this degenerative disease as a minor nuisance. For a year+ it has made my life hell
I'm never going to give in to gasligthing and normalize this degenerative disease as a minor nuisance. For a year+ it has made my life hell
Juliane Mar 30, 2024 I need to very soon read a genuine success story from one of the struggling members on here. Something's gotta give!
I need to very soon read a genuine success story from one of the struggling members on here. Something's gotta give!
Juliane Mar 29, 2024 I so hate knowing that if I did in fact end things people would call it depression even if I left a note blaming T. T never gets the blame!
I so hate knowing that if I did in fact end things people would call it depression even if I left a note blaming T. T never gets the blame!
Juliane Mar 28, 2024 I almost feel that it is wrong not to give up. I should call in sick and wait to get fired. Would that not be the best thing?
I almost feel that it is wrong not to give up. I should call in sick and wait to get fired. Would that not be the best thing?
Juliane Mar 25, 2024 More than a year since my worsening and no progress. As in none at all. Life officially sucks. Don't care anymore
More than a year since my worsening and no progress. As in none at all. Life officially sucks. Don't care anymore
Juliane Mar 24, 2024 If I ever heal, I will write a book about this. I will do my best to create awareness about this horrible disease so completely ignored
If I ever heal, I will write a book about this. I will do my best to create awareness about this horrible disease so completely ignored
Juliane Mar 24, 2024 Whether I eat healthy or not or drink coffee or not, my T does not sod off. Might as well eat and drink as I please
Whether I eat healthy or not or drink coffee or not, my T does not sod off. Might as well eat and drink as I please
Juliane Mar 24, 2024 When my therapist says T is not dangerous I want to slap her! How can something that has made my life nonstop torture NOT be dangerous?
When my therapist says T is not dangerous I want to slap her! How can something that has made my life nonstop torture NOT be dangerous?
Juliane Mar 24, 2024 As soon as a person gets diagnosed with T they should automatically have the option of VAD for free. All else is inhuman
As soon as a person gets diagnosed with T they should automatically have the option of VAD for free. All else is inhuman
Juliane Mar 24, 2024 I have some fantasy about moving to the countryside to heal. Is that Just a stupid dream? Moving would be horribly stressful in itself
I have some fantasy about moving to the countryside to heal. Is that Just a stupid dream? Moving would be horribly stressful in itself
Juliane Mar 24, 2024 All of the insane shit going on in the world is making it impossible for nervous systems to heal. Part of the reason too I believe
All of the insane shit going on in the world is making it impossible for nervous systems to heal. Part of the reason too I believe
Juliane Mar 24, 2024 Sorry if I sound insane, but I believe this could be some kind of attack on us. Why are we suffering so badly? Havana syndrome?
Sorry if I sound insane, but I believe this could be some kind of attack on us. Why are we suffering so badly? Havana syndrome?
Juliane Mar 24, 2024 That is where the true evil of this condition comes in. Nothing to "do" to ease the suffering. All about enduring. For what purpose?
That is where the true evil of this condition comes in. Nothing to "do" to ease the suffering. All about enduring. For what purpose?
Juliane Mar 24, 2024 People who talk about fighting disease don't know anything. With T, fight makes everything worse! All we can do is pause life and suffer
People who talk about fighting disease don't know anything. With T, fight makes everything worse! All we can do is pause life and suffer
Juliane Mar 24, 2024 I seriously believe T is on the top 3 of worst diseases on the planet. Someone "up there" must really hate me badly
I seriously believe T is on the top 3 of worst diseases on the planet. Someone "up there" must really hate me badly