P

Paulmanlike

Benefactor Hall of Fame
Member
Messages
1,419
Reactions
3,051
Points
1,241
Joined

Profile posts Postings About

  • P
    My T changed throughout the day, from hissing, to low pitched to high pitch anybody else?
    lucy_snow
    Mine. From hissing to tone, to bells, to high pitch, to ringing and then, here we go again!... with no particular order.
    Holly1987
    Mine changes all day. I have three tones that swap around, on bad days it's all three at once but these days actually aren't the worst as the loudest tone tends to do a good job masking the others. If that makes sense!
    GBB
    Mine is always changing like there is an MC somewhere. Dentist drill to chimes to ringing to wind.
    P
    Do you think mute button will work for us?
    View previous comments…
    PDodge
    I think so, seems like they've worked hard since 2015. But still I'll believe it when I see it., AND OH I WANT TO SEE IT
    Bill Bauer
    It might ;)
    OnceUponaTime
    @Bill Bauer You sound positive!!!! :) Yes, I hope it works for us all! Trial and error...you keep working on it until you get it right! How did we get electricity?? or the Internet? Or airplanes to fly?? Read the story of the Wright brothers!
    P
    Neuromod has trailed 500 patients with 80% reporting improvement, with 2/3's of that reporting clinically significant improvement, wow
    View previous comments…
    threefirefour
    You're right it goes both ways with uMinn. And thanks it seems some people want me to leave because my T is gone.
    Manny
    IDK but I like you around here. A lot! Also once you have T and join up, you're part of the community, period (unless you leave). WTH SMH now they're gonna boot Kelpie and Clare too? Lol
    threefirefour
    Funny how they only do it when I disagree with something they like.
    P
    My T is heard mainly indoors, from the left side of my head. At first it was an electrical noise, that over the years went to a constant his
    P
    On dsyenca website 4,000 patients have been treated with many reported "complete elimination of tinnitus"
    View previous comments…
    Manny
    I don't know what to make of Desynchra. I'm confused as to why I haven't heard more good things about it.
    threefirefour
    It's expensive, an arduous process, and the general improvement is in the ballpark of 25%-33%.
    Manny
    The "free version" (generalfuzz's ACRN tool) works for me slightly; sometimes.
    I really really hope bimodal simulation (Neuromod etc) will be significantly better!!
    InfiniteLoop
    T research is underfunded. Much less going on than you think. The last few years have had the usual string of failures: AM-101, AUT-0063, SoundCure, etc....
    View previous comments…
    threefirefour
    Well he's right here. It's because your hearing is the last sense to go, and as it fades out, external sounds begin to fade out first.
    Zeneth
    That's really interesting

    I should rephrase: I don't believe that T will be the last thing I hear when I die, because hopefully there'll be a cure before then.

    There better be a cure by then, I'm only 16.
    P
    Likely to have other maladies when you die
    P
    I'm predicting bi-modal stimulation to treat tinnitus for the next 5 years giving some relief then a cure with regeneration
    View previous comments…
    InfiniteLoop
    Having no hope keeps me going. False hope will consume you.
    P
    I was suicidal for months when the no hope got to me. Hope helped me with depression associated with it. After a while, the depression had gone and although I don't think a cure will come 2moro, everyday that passes is a step closer.
    P
    T research is miles better than it was in 2008 - & there was only snake oils back then. The high unmet clinical need is only going to drive development for new, better treatments.
    P
    Can't wait for mute button, even if it offers temp relief for a few hours after say an hour usuage id be grateful....can hear t everywhere!
    P
    Microsuction caused inflammation, been 8 days now how long does it take for it take to go down??!!
    S
    Are you taking anything for the inflammation? Perhaps curcumin, if you aren't taking anything.
    P
    Was these inflammatory ear drops mate pain has gone just still got very slight muffled hearing and fullness when move my head. Just scared it won't go away
    P
    Anybody get a hiss that comes from within the head ontop of usual ear tinnitus??
    katri
    All the time. When I'm standing up and doing stuff I don't notice it. Even when it's quiet. It's usually there at night for me.
    P
    Can anybody give me updates on the latest research/treatments in development and where we are yet? Been off the site 6+ months
    katri
    Frequency Therapeutics has started their clinical trial to reverse hearing loss in humans. In other studies, it has been successful so we are all waiting on that.
    Contrast
    Frequency Therapeutics is going to show some results for cochlear hair cell regeneration in December 2018.
    P
    That's amazing news, I sure hope it also solves tinnitus
    threefirefour
    He wore an ITSY BITSY TEENY WEENY TINY WHITY TIGHTY THINGY
    Contrast
    He's tall, smart and handsome and invest in bio tech and always stays up to date with the latest research to inform his fans on TinnitusTalk.

    I didn't say his name but he popped up in your head didn't he?
    P
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu