xLuchiaaa
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  • Tomorrow to a physiotherapist to look if there is something with my jaw and neck because my neck/shoulders and back are hurting like crazy
    Marina Moon
    @xLuchiaaa Yes, posture is very important! Do you have rounded shoulders, forward head posture, curve in your spine, or muscle imbalances? THese things can put pressure on your jaw and neck. Even TMD alone can cause neck pain. Did your physiotherapist identity any problems? Or give you exercises/physical therapy that relieve your pain?
    xLuchiaaa
    @Marina Moon I have actually all of it :( Tomorrow I have a appointment
    Marina Moon
    @xLuchiaaa Good luck with your appointment, i hope you find relief!
    I am so scared the whole time for why I hear so weird
    SarahMLFlemmer
    I know how hard this is. We gotta face it til' we make it-- taking it one day, one moment at a time. ❤️
    My GP said some time ago she was thinking maybe my ear eczema could be the cause of my T and that like too much stress is making it worser
    Hey Luchia, how are you holding up? Hope you're doing alright.
    xLuchiaaa
    I wish that they could understand it more people around us. Oh no, Got some Vitamin D in ?
    TheCapybara
    @xLuchiaaa Does that help? I usually just wait it out, it'll pass, thanks Luchia :) And well, I thought about that a lot too but we can't expect people to understand a situation they haven't experienced. We didn't understand any of this either when we didn't have hearing issues.
    xLuchiaaa
    I hear that it sometimes can help and I hope you feel soon better ! Indeed but that's why it's somewhere nice that we have a place like this to help each other❤️
    This morning it's a 11/10 ... I know that I have a lot of stress
    xLuchiaaa
    xLuchiaaa
    I hope you may get soon more better days and hopefully one day even more less for you ❤️ I hope you are having now a better day ? @4Grace
    4Grace
    Mentally a little better even with the condition worsening. It's honestly a 10/10 at night. My brain hurts for how loud it is. Honest to God. I feel better when I don't isolate but at the same time get worse. You are young hang in there, such a good chance of getting better. Thank you
    I can't anymore.. Feeling so tired only have to take 5 steps and i'm having trouble with breathing
    4Grace
    I am so sorry you are feeling this way. I know how you feel. Try to stay strong because every other option is worse.
    Today is so worse ... But the eczema is also leaking on the moment can it really be the cause maybe
    Today a little win been to the store myself without too much panic, Little bit panic when I was like going inside because of a kiddo yelling
    Joshua Macleod
    I'll just stand outside, plugs in, waiting for the noisy miscreant to leave. But most of the time it's fine either which way. Sounds like a good win, regardless!
    So much flakes coming out of my ear canals, It feels like there is also like leaking something multiple times
    xLuchiaaa
    No because I can't wear them in general because the eczema was first like not that bad as now and was always afraid that it would make it worser @Jsm_Joestar
    Tryn2BHopeful
    T was listed as a symptom of ear eczema. So possibly, good idea to talk to your Doc about it. Good luck!
    xLuchiaaa
    I found it also now on a other site ! It would be so amazing if this is the cause because maybe it can become at least less then now. @Tryn2BHopeful
    11/10 this morning why
    xLuchiaaa
    @4Grace Did they know what is the cause of your T ? Can you talk with your doc about this ? I think it's always good to just show him/her this. I hope that it will be better again
    4Grace
    long story. Short of it. Health cancer scare caused 5 months insomnia. Tried a few different not good for T meds to cope. During this time when I was weak my daughter yelled in my ear for 45 min. She has special needs. Also abused ears in early years of life. One week after the noise trauma during a period when I was stressed and not well, had tinnitus on set. I got it from everything known to cause tinnitus at once.
    4Grace
    I was like you. Was extremely active. You mention you struggle going outside. So do I, but can't manage to stay inside. Mentally I am better. However my T is 100 x worse. If your T is not progressing you will get use to it. Hard to believe but I would not have believed this either. In many ways I'm better. It's just that it's getting a lot worse so I'm not sure about my own scenario.
    Called for help but they can't help me now. I hate my life, Why I am always destroying my own life
    Christiaan
    I wouldn't put too much weight on those online hearing tests. Most of them aren't accurate. And believe me, your hearing is nowhere near the average hearing loss of a 50 year old. You can look at the graphic charts on this website: https://www.checkhearing.org/averagehearingloss.php
    Christiaan
    Sorry for being a bit blunt in my previous post. I think it's a good thing that you share your thoughts and feelings about your experience, as it's quite relatable to anyone here on TT that hearing loss is a difficult thing to process, let alone accept
    Christiaan
    Did you already receive help from your GGZ or other health care professionals? They might help you in this challenging process
    Friday a appointment with another ENT doc, All the docs are saying I have eczema in my ear canals but the ENT said it's the outside only
    I want to end this
    xLuchiaaa
    The first week of December I have a appointment by the center here what is specialised in T and H. Going to ask about it. May I ask what was the cause by you of T and H ?
    D
    Did anyone have their tinnitus increase after the sound therapy? Mine did after 1 day
    Michael Leigh
    I haven't experienced it. Tinnitus can increase after sound therapy - the reason is usually (but not always) because the sound therapy is set too loud. If a person is new to sound therapy then it must be introduced slowly, I have explained this in many posts on my started threads. Always keep sound therapy slightly below the tinnitus, it should never mask the tinnitus so the tinnitus can't be heard.
    I really can't live with this weird hearing, Why I always mess up everything now even my own life
    I don't know why but it feels safe to say it here, I had a miscarriage right before T got like on the way it's now and told Nobody about it
    Juliane
    So sorry to hear. I of course am no expert but seems logical to me that Trauma like that could cause or worsen T.
    BrOKeN_1
    That can be a hard pill to swallow I imagine. Maybe a blessing in disguise tho. Having a newborn while learning to cope with this condition may be too much to handle. I'm sure in time you will have another opportunity and be much more equipped to handle motherhood. God Bless.
    xLuchiaaa
    Thank you guys❤️❤️ It feels safe here to just say it and it feels like a relieve
    Reading about anxiety and the reaction of flight/fight/freeze reaction, Can my muffled hearing be here because of this ?
    Juliane
    I am wondering the same thing. The last 2-3 years before my T worsened I was getting more and more anxious. I was never really at ease, always nervous and stressed out
    Maybe getting a second opinion because the ear doc said the eczema is not in my ear canals but the dermatologist and other docs said it
    Can eczema in your ears makes it worser ? I have eczema in my ear canals also, I hear the whole time also a sound like there is soap in it
    Thinking about take the medicine to calm down but I am so afraid to take it, I don't want to worse it T
    SarahMLFlemmer
    I take lowest dose every once in a while if I have to, does not worsen my T but I use very sparingly.
    Ben Winders
    can you tell me what you have layin around?
    I'm Belgian/Dutch and here I got Deanxit , Rivotril , Clonazepam (all prescribed by De Ridder at Brain clinic in Ghent) - I'm currently not using them anymore, but i keep them on standby in case of emergency.
    xLuchiaaa
    I'm Dutch too, I have Quetiapine don't know if you know it ?
    Is this disorted hearing or hearing loss ? I can understand people but like in the store and outside all the background sounds are weird
    cyberspace
    Distortions
    xLuchiaaa
    It's a scary thing now... Like i'm in a movie or that i'm not on the world. It's like my hearing is not fully. I hope this really with be less over time
    After some helpful comments yesterday trying to start my day good, Adopting today also finally my cat what was planned.
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