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a quick google search of this guy and it sounds like he still has it.... unless there is another luke brody posting on tinnitus boards... maybe he is "cured" though, because he also has some videos up of him playing drums in relatively small, enclosed places... cured or not that's stupid... I...

http://www.headspace.com/forum/viewtopic.php?f=8&t=465 http://www.headspace.com/forum/viewtopic.php?f=8&t=465 Dr. Gans, I started back on a meditation practice around the first of this year, a few weeks I asked you about this phenomenon the first time. My own experience mirrors the guy who...

Just checking in.. I haven't been on the forum in awhile, as far as tinnitus goes-- I don't have it. Curiously though I started back with a meditation practice and on my third day of silent meditation I started hearing/feeling a low hum in my brain so I stopped cold turkey at that point. The hum...

Uh... I sat in an audiologist booth and didn't need to do a loudness match because I heard nothing... while also wearing noise canceling headphones.

our good friend was probably too busy getting aroused by the"elegance" of the heller and bergman "experiment" back during his ATA years to ever asks simple questions of why lidocaine may temporarily abolish tinnitus and how that could pave the path for future inquiry...

interesting that you posted this today... this is the avenue that should have been explored 20 years ago as this phenomenon with lidocaine has been documented for awhile now-- lidocaine is a calcium channel blocker- and some potassium channels open in response to calcium- calcium channels...

i'm crossing my fingers for the results of richard tyler's 100k music therapy experiment funded by the ATA to be released... hilarious and sad... I'm sure these hacks have to be intimidated by the work going on in actual brain biochemistry currently-- this should have been done 20 years ago but...

another tinnitus suicide... I know its dark, but a count should be kept to dispute the "therapy" community's talking point that tinnitus doesn't lead to increased likelihood of killing oneself- it seems like that would be something that the ATA would track as it could highlight the seriousness...

decibel levels aren't arithmetic, 20db is approximately 10x as loud as 10 db( not twice as loud)- so the good professor Jastebroff's argument there doesn't hold water, but I digress, Dr. Gans I would like any thoughts about the following link and this person's experience meditating after having...

If by"relief" you mean never hearing severe tinnitus (that I heard every second of the day for 5 months when not in the shower- and occasionally even over the shower)- then count me in My tinnitus reduced significantly within a couple weeks of starting retigabine - to the point of being very...

tinnitus isn't a disease it's brain music---

Good to see others having some success... the thing that concerns me about the autifony trials is the short time frame- 4 weeks I believe, I definitely had an incredible reduction during that time frame but it was during my 2nd month on the drug where my tinnitus basically disappeared...

people....its music of the brain that everyone hears in silence, jastebroff says this is unrelated to damage... granule and fusiform cell aren't mentioned in the "model"- they must not exist... look away flat-earthers, look away so that science doesn't interfere with jastebroff's narrative

i'm competely off and have been for several weeks

Hi all... sorry it has been awhile since posting, it was my own fault for constantly ingnoring the boards netiquette rules.... in regards to my current tinnitus after tapering down, I never hear my tinnitus anymore ever under any normal circumstances. It's literally just when plugging my ears to...

according to Dr Nagler tinnitus sufferers commit suicide no more frequently than the general population--- where's that data from Dr?-- seriously... I know of anecdotal evidence of 3 tinnitus sufferers commiting suicide since the first of this year... I'm on other forums and haven't heard of one...

its 2014 and this is the widely accepted "gold standard" therapy (at least the "counselling" module of it) for tinnitus, comparisons to trains going by with tinnitus...really, so ridiculous, so funny and yet so sad... I'm going on vacation for the next 3 weeks, I just hope their aren't too many...

care to answer my very basic question (that was in response to your question of me)-- I am legitimately curious I'm not trying to enrage you

care to answer?

eat Thai food and wake up with screaming tinnitus, wow sign me up

hey rhea... do you think that you overprotected before your tinnitus worsened as well?

I guess THE NAGLER deleted his post where he said that he chose not to answer my question for reasons that were very important to him personally... really strange

me too, that's all I wanted from the beggining: I guess the central principle of "the model" is a closely held secret

Dr. Nagler has made it known that he won't respond to my question, anyway it is what it is... draw your own conclusions

Thank you for posting this and keeping the discussion open-- I'm not trying to be inflamatory... all I want is an answer to my question.

Dr Nagler, I’ve read the book and papers by Jastebroff and Hazlett, the below is my understanding of TRT, please let me know what I have right/ what I have wrong, etc. The crux as I understand it is that through counseling aimed at informing a sufferer that the tinnitus signal isn’t harmful...

I would take what my dog has to say about tinnitus with more seriousness than anything coming from the ATA

I've been using Nasonex for the past 10 years basically-- my tinnitus had nothing to do with eustachian tube conjestion, etc...it was from trauma after having my ear syringed. I used Nasonex over the course of my first 5 months withs tinnitus, then I started retigabine and within two weeks my...

Hey Everyone, I just wanted to let everyone know that starting this Wednesday I'm going to be "offline" for about 3 weeks. I have a cousin who is termanally ill, but is currently in pretty good shape physically and he wants to go hiking on the Appalachian Trail (a mountain trail here in the...

seriously.....--- I learned a long time ago that arguments made by illustrative comparisons in regards to disimilar situations are usually made when the argument itself lacks substance, bravo ... many plaintiff attorneys would be proud of this ... I never received your critique of my TRT...

I would like an actual substantive response- despite the reading I've done, I very well could be wrong or ill-informed about TRT and I admit that---I don't want to go too far because I don't want this thread taken down: Dr Nagler please let me know my mistake in regards to TRT, Jastebroff's...

What is the "fundamental principle" in my impression of TRT is incorrect?

I’ve read the book and papers by Jastebroff and Hazlett, but I’ve never hired a tinnitus professional like yourself to explain it to me, so I’m looking forward to this bit of free therapy. The crux as I understand it is that through counseling aimed at informing a sufferer that the tinnitus...

Thank you for proving my point- fairy tales and fictitous theories don't appear that way in the eyes of the true believer. When you explain "the model" to your patients, that is a fairy tale (but of course to you it isn't)-- not a literal "fairy tale" but like a fairy tale in that it is a...

I was referring to "environmental" silence too, and yes environmental silence or very quiet surroundings are normal environments in which humans spend decent amounts of time-- both in the natural world, and especially in the world man has existed in since building habitable structures several...

...that must have made you feel great

I think it can obviously, and I think it will be-- the one thing that concerns me with trials is that people are given the drug for a long enough period-- I had great improvement after 1 month, but it took two months basically to get to the point where I would consider myself cured-- only in the...

Progress Report Progress Report Date: Sep 11, 2014 Current Retigabine Dosage: 800mg a day Current Side Effects: tiredness Current Tinnitus Severity: 1 out of 10 Changes in Tinnitus: My tinnitus basically doesn't exist. I still considered myself as having tinnitus after 1 month on the...

New User Information Gender: Male Age: 36 How Long Have You Suffered From Tinnitus? (Date of Onset): Jan 27, 2014 How Did You Get Tinnitus?: Other (define below) Explain How You Got Tinnitus: ear syringing Is Your Tinnitus in Which of the Following?: Both Ears What Kind of Tinnitus...

...couldn't have said it half as well myself

this is not true- why would an IV of lidocaine temporarily do away with tinnitus for people who have had it over a decade if the tinnitus was somehow magically memorized or encoded in the brain--- just more deductive crap ( much like jastebroff's "the model") from tinnitus experts which will...

and for translation purposes in American English sap = fool

my plan is to come completely off of it, and if I'm still clear - I'm going back to my audiologist (we discussed this yesterday), I'm going to sit in the audiologist booth for 15 minutes and if I hear nothing like I did yesterday, the audiologist and my gp father-in-law who originally prescribed...

I greatly admire this young woman, no human being should have to endure what she does, or what anyone with obtrusive tinnitus endures... I think one thing that needs to be stressed is that while life quality (the meaning you make from loving others, work, etc) can be better than before with...

Just more tired in the evenings, but thats about it

I'm reducing 100mg every five days.. so it will take about a month and a half to taper completely

I haven't mentioned it on the forum yet, but I have to several members over pm-- I did recently start tapering (unlike my taper up, I'm doing this slowly)... so far so good, I will let you all know if that changes

Yes I did-- no clinically relevant hearing loss- loss of 10-15 db across the board and then loss of either 20 or 25 db at 8000... haven't had a hearing test since I've been on retigabine

I had an audiologist appointment yesterday to get some new musician quality ear plugs, get molds taken, etc- my audiologist knows about my "success", not only did I not hear anything with the plaster, or whatever it is in my ears-- out of curiosity he actually then suggested I go sit in the...

I have contacted him two different times to let him know about my results. He emailed me back once and wrote a short note about , I don't think he is really willing to advise regarding dosages, etc for retigabine as (and I'm speculating here) that isn't what his research has been focused on and...

silence isn't deadly... that's a lie, neenie--- whether you believe it or not tinnitus isn't music of the brain or something most people hear in silence or anything else that nagler and the polish engineer think it is... it is abnormal--- get that- you are in audiology school if i'm not...

send this to Charles Large

If I were you I wouldn't do it... my tinnitus is basically cured and I will never go to another live concert ever again; this "keep living your life" idea expoused by all tinnitus therapy clinicians is dangerous when applied to musicians (even when plugging up)... its great advice for 99% of...

realized it had been over a week since my last update-- the past week was the best week ever, and after having my progress kind of "stall" after my my initial improvement, I can definitely say that I have witnessed a further improvement the past few weeks- I can't remember the last time that I...

yep-- went tan office party to whirlyball-- a go-kart/lacrosse type game that we have here in the states- loud, indoor track, 80's - def leperdish rock blaring from speakers-- probably 85db or so-- was there for two hours- no reactivinty, no tinnitus sounds afterwards last night or today-- I...

i agree-- a wikipedia write up would be great

https://www.tinnitustalk.com/threads/retigabine-trobalt-potiga.5074/

I hate to say this but you probably need to quit making music

http://www.freepatentsonline.com/8722695.html

one question that I have out of curiosity-- autifony has published the chemical patent for their drug with the chemical formula-- how hard would it be to get a lab somewhere to "manufacture" the compound- as it wouldn't be manufactured for sale, it wouldn't be breaking a US patent,- I guess this...