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@aot How did you manage to find a psychiatrist who also has tinnitus?

Yes pls.

Struggling.

I sure hope so.

I went for a walk outside today in a very hilly area. This is the second day in a row that this has happened but my hissing sound disappears and gets replaced with a vacuum sound in my right ear specifically. I’d describe it as not the sound a vacuum makes when you’re right by it, but the high...

Hi Michael, How loud would a sound have to be to pass through ear plugs and cause a spike? This is my worst fear (assuming I’m able to be in the mood to ever socialize again)

Getting harder and harder to hang in there every day. What is the point of being here if I am miserable daily. What am I living for? Like there is no purpose. The purpose of life is to live, to make memories, make mistakes and learn and move on. Life won’t be perfect, but you’re not supposed to...

Hi Claire! I'm 26 and also have had it about 3 months now. Also struggling a lot, my life has literally come to a pause ever since I got it. You're definitely not alone in this.

9 weeks and going strong.

Signed and shared on Twitter.

Fred, I am so sorry your daughter and family is having to deal with this. It honestly makes me sick to my stomach how greedy the insurance/medical system is (not even sure who is at fault here) but whoever makes these types of regulations is absolutely evil. Disgusting.

100% agree. And all the guys that I do know that have tinnitus have a very very mild case of it so it will be hard to get past that “overreacting with ear plugs” phase. I definitely agree on the feeling like a burden thing. I don’t want someone to miss out on certain life experiences or have...

I don’t think anyone here actually wants to die. We just don’t want to live like this. If you can even call this living.

I’m 26 years old. So not that much time :( At the moment my left ear is driving me crazy. It’s so hard to describe the sensation that I’m feeling. It’s like a fullness, but then almost feels like someone is blowing into my ear if that makes sense and it hears a weird whistling over external...

Hi Jazzer, Thank you for your kind words. I am struggling greatly because all of the people in know in real life who have tinnitus seem like they’re dealing with a different version than me. They just have the classic eeeee in silent rooms. Mine his a weird hiss, combined with head pressure...

Hello. If you’re finding relief only 4 days in, you’re doing way better than I’d say most people on this website. My advise, get away from this forum for at least a few months. Don’t go down a rabbit hole of scary stories. Protect your hearing!! Not sure how old you are but I’d say avoid loud...

I wouldn’t say mine is so much loud as it is uncomfortable. I have a base of a nonstop hissing, but then on top of that will have these electrical zaps to where all throughout the day I feel like I’m in a house with a TV on. There’s no “sound” really but it’s just that sensation, or perhaps it...

I 100% agree. I wouldn’t say mine is severe but it’s not mild by any means so it’s only going to get worse from here on out. I can hear it at all points in the day. I also hear an overlaying whistling tone with almost all sounds like my fan and TV so it makes masking impossible I am absolutely...

But seriously, what is the point of continuing to live if nothing brings you happiness anymore. I can’t travel because air planes will probably make it worse. Most parts of the world are noisy as well. Why would I spend thousands of $$$ to wear ear plugs on a different piece of dirt 10 hours...

What’s the point of living with this? I can’t do anything I enjoy anymore. I am literally afraid of sound which is like being afraid of rain. The way I explain the condition to people is like living in Seattle and having a severe itching brought on by rain/mist and there’s no cure, it can only...

If I was one of those people who got it mildly for a few hours/days after concerts/clubs... hell yeah my hypochondriac ass would have ordered ear plugs right away Just talked to a friend about my issue and she asked me if it’s that “mild ringing you get after concerts” UGH. Why do others get a...

I have the same problem too. My ears constantly build up pressure and when I swallow I get a tiny bit of relief and it happens all over again. My left ear is the one I got water stuck in after a shower and the one I messed with - I used a blow dryer a about a foot away, banged my head gently...

10/10 do not recommend watching Moonlight Sonata on HBO when you’re feeling sad. Not sure why I’m doing this to myself right now but 10 min into it and literally waterworks.

I don’t seem to get spikes from malls. Lately I’ve been going to the mall or random stores just to occupy myself so I don’t die of boredom. I did walk by one of those “children's playpen” things in the mall, filled with the shrill voices of 20+ kids and I SPED by as fast as possible. I’ve been...

All I wanted in this life was a cozy home, a nice husband, and kids of my own. I don’t have anyone in this world except my mom and my dad so once they’re gone, I’m literally going to be alone. For the holidays, through hardships, etc. Life is already hard enough as it is. Getting married and...

What does your tinnitus sound like? I also think I have a bit of hyperacusis but at the same time I don’t know if it’s actual hyperacusis or anxiety.

I don’t know who to believe or what is over reacting and what isn’t and it’s literally driving me insane. I’m tired of being a hermit at home, this is so lonely But I am so afraid of making it worse and not knowing what can make it worse is so hard (besides the obvious concerts/places with loud...

So your tinnitus hasn’t gotten worse in the last 8-9 years other than the hyperacusis?

Exhibit A

Ever since getting my tinnitus, I’ve realized it’s fairly common. I work in a fairly small office, and 3 of us have it (all in our mid twenties). I’m sure others have it as well, it just hasn’t been discussed as I’m not on that level of “closeness” with them There are also so many instances of...

But 4 years later you’re still on here?

Neither of the ENTs I saw mentioned anything about protecting my hearing nor what is actually damaging. Yes, concerts and clubs are somewhat obvious. I measured the dB levels of my car on the freeway with music on and with the music being on for what I didn’t see as loud, it could get up to 80...

This is so encouraging to read! May I ask what kind of tinnitus she had though? Some people mention just a mild ringing at bed time. Others even say they have tinnitus when in fact they just have the fleeting kind that most people get. Did she describe hers?

There was this tweet going around a few days ago, thought I’d share! I think some smart people DO protect their hearing, we just don’t notice it. It’s kind of like before I got my tinnitus, I never noticed people’s hearing aids out in the public - ever. Now every time I go to the store or...

Had a thought today. Tinnitus is basically another form of natural selection in a way. Those with “weak” ears and severe tinnitus who develop depression are probably less likely to reproduce (for numerous reasons). Speaking for younger people here. While those with “strong” ears can abuse them...

I think ENTs just say this to not freak you out so they don’t have to deal with anxious patients in their office tbh... The trend seems to be either they say it will go away, or they give you a brochure or pamphlet to “read on your own” that mainly explains its likely to be permanent. As...

Do you know what led to it getting worse?

Having another rough day today. This electrical current/cicada sound is nearly impossible to max. Was just thinking about how a year or so ago, a recruiter for a major tech company sent me an email for a potential job offer but it was in MICHIGAN, Ann Arbour! I literally scoffed at the...

How is it possible to train the brain to ignore this mess if it’s an issue with the brain in the first place?

I want to move back in with my parents. Being home helps me so much and my mom is always there to calm me down. But I don’t want to keep hurting her and stressing her out. Moving home won’t make my tinnitus go away at all, and will lead to arguments because my parents also don’t understand how...

Happens for me as well. I have tinnitus in both ears, so I just have to pick whichever ear is feeling better that night to sleep on. Sometimes I’ll put my arm under my head and sleep on that so there’s at least a little bit of room for sound to go through. Usually lying on my “good ear” of the...

I don’t mean to diminish your problems but I wish mine had waited until my late 40’s I’m so sorry you are struggling as well though, none of us deserve this no matter how old we are.

I don’t know how I’m supposed to get over it when the sounds change every day and are impossible to mask.

No medication. I’ve literally been at home this entire weekend other than a quick trip to the beach on Saturday. I’ve just been in bed watching TV. Why me. I’m literally on the brink of ending it all. This is PURE TORTURE. I can’t live like this. It’s only gonna get worse from here on out this...

Mine has never lasted longer than a few seconds. Now my right ear feels full and heavy. This can’t be good.

HOLY CRAP IT JUST GOT LOUDER OMG WHY RIGHT AFTER I TYPED THAT I GOT FLEETING T AND THE SOUND STUCK IN MY RIGHT EAR AND HASNT GONE AWAY I HAVEN’T BEEN AROUND ANY LOUD NOISES WHAT IS THIS NO NO NO NO OMG

I just turned 26. Loudness depends on the day. Usually it’s a very loud hiss/cricket sound that I hear over my TV with a fan. Sometimes when I’m at work I hear a beeping (truck backing up) over the ambient noise in the office. If I’m outside, or in a store it kinda just sounds like electricity...

Angry about the lack of awareness about hearing protection, and ear plugs at concerts. Angry that others received a warning about it and were able to catch their tinnitus before it got worse. I’ve probably been to at least 1 concert a year since I was 17/18. I am 26 now. None of my friends...

TV is usually my go to for when I have a meltdown. I wrap myself up in a blanket and try to not focus on anything except the shows. I’ve started watching random shows like My Strange Addiction and Swamp People because my usual go-to’s were depressing me (seeing people normal and happy). I...

I have no issues sleeping because I’m usually so exhausted from crying before bed, I fall asleep fairly quick. Staying asleep is a different story as I wake up several times through the night. At least the cold sweats are gone, I think I’ve just become numb to this all. I’ve read enough horror...

8 weeks in and this still doesn’t feel like my life. I’ve spent the entire weekend in bed. I feel sick to my stomach knowing that this is actually real although some moments I feel like a spectator I can’t eat. Nothing brings me joy anymore. I keep on having thoughts of what my poor parents...

All over the place. Started out super bad - cicadas in both ears, then a beeping in my right ear that would eventually turn into longer and longer beeeeeps and eventually become a ringing. Often 3 tones in one ear. On a good day it sounds like sand pouring on glass with a very faint beeping...

Ugh honestly I feel this so much. I am so sorry you’re experiencing the same thing. I’m trying to find ways to turn my life around a bit and find things I like to do that are quiet but it’s so hard. My life used to be sports events, concerts, bars, trips that involve going out with the girls...

I was in the shower the other day and looking up there was this annoying whistle noise coming from the water. When I looked down, it almost stopped. I’m not sure if it’s the movement that’s causing it, or just the position of my ears in relation to the noise. Right now I have our house heater...

But most people get some sort of minor ringing. And then it keeps happening and happening before it becomes permanent. I never had this so how did it get so bad so fast :(

Hi Krizsti, love the way your name is spelled. I can identify with everything you said. Especially snapping at family. My mom follows up with me all the time and she just doesn’t understand there isn’t much doctors can do for this. She’s very much stuck on the “only older people and those who...

The thing that confuses me the most was the onset of mine. I’ve never heard any sort of ringing. I did go to a concert 4 days before my tinnitus began, so I suspect that’s what did the damage, but it seems like most people here get it immediately that night or the same morning. I have read...

Hoping I get spared and killed at some point before I do it myself. With my luck, I’ll live to be 105.

I don’t want to hang out with any of my girlfriends because all I’m going to hear is about their dating lives, careers, fun things they have planned, etc. I also don’t want to sit around and cry about myself because I’m embarrassed of having a mental breakdown in front of them. I just want to...