Suicidal

[Yuuls]

If you have "mild" tinnitus, you will get your life back 100% - I promise you that. Just takes some time:
3 months for people who don't give a fuck.
6 months for people who somewhat give a fuck.
12 months for people who are emotionally weaker.
up to 24 months for people with pre-existing anxiety disorders, etc etc.

BUT THEY ALL GET OVER IT IN THE END JUST FINE. 'TIS FOR THE MILD/MODERATE TINNITUS.

I don't know how I'm supposed to get over it when the sounds change every day and are impossible to mask.

 

[Yuuls]

I am sorry it's like that. I think a few people here describe it like that. I can't relate to that as I haven't had beeps. I had a hiss but only temporarily. I describe my tinnitus as several, loud, high pitched tones. It is like it's going through my left ear, through my brain and head and through my right ear. It seems mostly my brain or head though.

I hate when I have to wear hearing protection because the tinnitus is then totally isolated. That's all I hear then. It's as bad as there is.

I'm in my late 40s. I think acoustic trauma triggered my tinnitus but I have some hearing loss. I don't know if we need specialized treatment for our particular physical condition and tinnitus but it's my opinion that a sudden acoustic trauma is what triggers tinnitus to moderate or severe.

I don't mean to diminish your problems but I wish mine had waited until my late 40's

I'm so sorry you are struggling as well though, none of us deserve this no matter how old we are.

 

[Born To Slay]

I have a bottle of Tegretol, a 30 day supply of 400mg per day. What are the odds swallowing the whole bottle will kill me?

 

[Yuuls]

I want to move back in with my parents. Being home helps me so much and my mom is always there to calm me down.

But I don't want to keep hurting her and stressing her out.

Moving home won't make my tinnitus go away at all, and will lead to arguments because my parents also don't understand how hard this is and I just know we will start fighting a lot when I have my bad days.

I don't know what to do.

 

[Yuuls]

How is it possible to train the brain to ignore this mess if it's an issue with the brain in the first place?

 

[dan]

HOLY CRAP IT JUST GOT LOUDER
OMG

WHY
RIGHT AFTER I TYPED THAT I GOT FLEETING T AND THE SOUND STUCK IN MY RIGHT EAR AND HASNT GONE AWAY

I HAVEN'T BEEN AROUND ANY LOUD NOISES

WHAT IS THIS

NO NO NO NO OMG

I don't know how I'm supposed to get over it when the sounds change every day and are impossible to mask.

Oh darn, I thought you said it was mild, misread... well for the non maskable types it will take longer... up to 24 months to regain your resemblance or normality (?)

I agree with you the fact that you have unmaskable tinnitus in your 20's is pretty harsh, I got it at 33 (very similar) and I'm 41 now and it can get worse if you are unlucky - most of us here are unlucky...

 

[PeteJ]

I don't mean to diminish your problems but I wish mine had waited until my late 40's

I'm so sorry you are struggling as well though, none of us deserve this no matter how old we are.

Maybe younger people have a chance of their hearing and ear damage healing because exposure hasn't been as long? I dunno. I don't understand how tinnitus happens other than what we know for certain - noise exposure and acoustic trauma. But, why do people get I when they do and why do some people not get it despite noise exposure? I dunno. It's so discouraging and depressing.

 

[dan]

Rigghhht.

You don't believe in habituation?

 

[Bill Bauer]

I don't know how I'm supposed to get over it when the sounds change every day and are impossible to mask.

In a year or two you ought to feel a lot better. It will either fade, or you will stop having as strong or a reaction upon hearing it.

 

[dan]

I CAN'T WORK

Have you applied for ODSP?

 

[Mathieulh]

Because I was habituated... I'm fucked now and I want to die, but I was habituated to severe tinnitus.

Then, there is catastrophic tinnitus of course...

Because you have habituated doesn't mean everyone else will. Not all brains are the same.

 

[Harley]

Yeah I get what you're saying man. But, BUT, if you have been suffering MORE than 2 years straight with not getting better one iota, then I have serious doubt that your tinnitus is mild in loudness.
Trust me, I've been on tinnitus forums about a decade and I've seen people with soft tinnitus but have a terrible reaction to it - and they all eventually post a Success Story or recover never to be heard from again - ALL of them.

I think it IS important to gauge tinnitus loudness because I believe that is the greatest factor in tinnitus distress levels. I really doubt that you would be suffering from a noise that is maskable and/or heard only in certain environments.

If tinnitus was LOUD the same with all the tinnitus people in the world, this forum would explode and we'd have a cure by now...but 80% of people have mild tinnitus and 'tis because of THEM and their gloating that tinnitus is no big deal - that hurts OUR cause.

Our tinnitus should not even be CALLED tinnitus - they should come up with a different name for it. Tinnitus - or simply ringing in the ears, is NOT what severe/catastrophic people have, so why call it that?
Why not call it Dental Drill head syndrome or something like that...

I don't really disagree with you.

If you read any of my posts in the past, you will know that I share similar views.
All I'm adding here is the fact that the tinnitus distress is real.

Now that I think of it, maybe the THI scale should reflect this by saying, that if you have such and such score your tinnitus is severe like, or catastrophic like in order to avoid the actual designation.

In other words, if you score 90+ on the THI, this is about how it feels like to have catastrophic tinnitus.
But having said that, there are some people (a very tiny minority), whom can handle loud tinnitus without as much distress.
This has to do with their DNA makeup, brain chemistry and psychological profile.

In other words they got very lucky in that department, in relation to tinnitus.
Those are people who can do lot of damage to our cause, if they become too vocal, because they give the establishment a way out.

Now instead of putting money into research for real treatment, they can just point to those people in the "if they can do it, you can do it" type of fashion and just refer the sufferers towards some already existing coping scheme.

 

[bobvann]

You don't believe in habituation?

Hard to say. Going on 36 months, nothing close to normalcy. It all depends on what one calls habituated.

Veterans like Michael Leigh and Fishbone would not be according to another habituation cult community considered truly habituated. Since they admit that their tinnitus still bothers them and restrict them from doing certain things. According to some, to be truly habituated one can do everything they used to prior to tinnitus. I believe a chart reflecting this has been posted elsewhere on this site.

 

[bobvann]

In a year or two you ought to feel a lot better. It will either fade, or you will stop having as strong or a reaction upon hearing it.

Not always. These are the kinds of posts that can add to frustration or seeped into further depression when one does not meet this kind of timeline.

 

[bobvann]

Have you applied for ODSP?

I don't think one can get disability for tinnitus which is bullshit.

 

[Bill Bauer]

Not always.

There hasn't been any studies about it. Based on the biased sample that I got by reading this forum for the past three years, it would seem that that the chance of tinnitus improving (provided one doesn't end up hurting oneself Again) is somewhere in the 30-70% range. So it isn't always the case that one improves, but it isn't unreasonable to assume that it will.

Of course the longer there is no improvement, the higher is the chance that it won't be improving. If there is no improvement 3-4 months after the onset, it isn't looking good, but even then there is still some hope. If one notices improvement (fading or a change from a high pitch to a hiss), then chances are that it will continue to improve!

 

[bobvann]

There hasn't been any studies about it. Based on the biased sample that I got by reading this forum for the past three years, it would seem that that the chance of tinnitus improving (provided one doesn't end up hurting oneself Again) is somewhere in the 30-70% range. So it isn't always the case that one improves, but it isn't unreasonable to assume that it will.

Of course the longer there is no improvement, the higher is the chance that it won't be improving. If there is no improvement 3-4 months after the onset, it isn't looking good, but even then there is still some hope. If one notices improvement (fading or a change from a high pitch to a hiss), then chances are that it will continue to improve!

I am not saying that it is not possible but not always the case. Great for anyone that this happens to. I am not looking to be only negative or crap on anyone who has been successful. There was a guy I liked elsewhere mentioned as examples; "They can recover on x amount of time and I cant." Or someone that had habituated and now has returned in distress I am doomed for sure."

I just don't think that habituation is guaranteed for everyone, and there is no expected timelines. If you read one of the latest reviews on the Lenire, sounds like someone else may have it just affect them with further acoustic trauma.

 

[Bill Bauer]

p.s. Actually there have been some studies. Check out the many studies cited in the thread below
https://www.tinnitustalk.com/threads/spontaneous-recovery-stats-many-recover-3-studies.21441/

 

[Bill Bauer]

I just don't think that habituation is guaranteed for everyone,

It seems to me that there exists a volume level so that the vast majority of the people who have that volume level or lower will eventually habituate. Of course all bets are off when we talk about louder volumes.

there is no expected timelines

Many people here report feeling much better during their third year after the onset...

 

[bobvann]

It seems to me that there exists a volume level so that the vast majority of the people who have that volume level or lower will eventually habituate. Of course all bets are off when we talk about louder volumes.

Many people here report feeling much better during their third year after the onset...

I hope so I'm coming upon it. It certainly not feeling like it will go that way. Perhaps I will have more success with taking the edge off with WNG's this time around. I realize you are posting enthusiasm, nothing wrong with that.

 

[Bill Bauer]

I realize you are posting enthusiasm, nothing wrong with that.

In the past, I have been accused of being too pessimistic and of causing newbies to get depressed. You can't win.

 

[bobvann]

In the past, I have been accused of being too pessimistic and of causing newbies to get depressed. You can't win.

LOL

It's a tough thing when going through it and does feel like it never will end. There is the fact that offered treatments (save for CBT) has made it worse for some.

 

[Star64]

I have a bottle of Tegretol, a 30 day supply of 400mg per day. What are the odds swallowing the whole bottle will kill me?

Please go and speak with someone if you are feeling suicidal. DO NOT TAKE THE TEGRETOL!!!

Even though Tegretol is used for mood disorders it can actually cause depression and maybe it is impacting badly on your mood.

Plus Tegretol overdose would be a horrible way to die...

 

[MichaelSF]

Day went fine sat down for sleep and all of a sudden it just went bonkers. Couldn't cope took 0.5mg Klonopin-helped to give me some sleep But still jittery. I can't continue like this-if I take AD's they seem to be nightmare on their own-for a lot of people here-so you're dammed if you do damned if you don't. Slowly the veil of reality is crumbling

 

[dan]

I don't think one can get disability for tinnitus which is bullshit.

Not tinnitus per se, but for the things it causes like severe INSOMNIA, depression, physical EAR pain, insomnia (oh yeah I said that already), panic, hyperacusis , etc, you name it!!!
YES YOU CAN.
Sure you can't just walk in and say - Hey, I've got a noise in my ears, so I can't work so show me the money.

 

[dan]

Hard to say. Going on 36 months, nothing close to normalcy. It all depends on what one calls habituated.

Veterans like Michael Leigh and Fishbone would not be according to another habituation cult community considered truly habituated. Since they admit that their tinnitus still bothers them and restrict them from doing certain things. According to some, to be truly habituated one can do everything they used to prior to tinnitus. I believe a chart reflecting this has been posted elsewhere on this site.

I agree with you, we cannot expect to be who we were before severe tinnitus, but hopefully not want to off ourselves any longer and be able to enjoy something in life.

 

[dan]

Day went fine sat down for sleep and all of a sudden it just went bonkers. Couldn't cope took 0.5mg Klonopin-helped to give me some sleep But still jittery. I can't continue like this-if I take AD's they seem to be nightmare on their own-for a lot of people here-so you're dammed if you do damned if you don't. Slowly the veil of reality is crumbling

Yeah since my last noise insult, I can be Okayish and then suddelny it goes batshit insane loud.

 

[dan]

It seems to me that there exists a volume level so that the vast majority of the people who have that volume level or lower will eventually habituate. Of course all bets are off when we talk about louder volumes

I'm trying to find out what that volume is, and if I have it now.

 

[dan]

I don't really disagree with you.

If you read any of my posts in the past, you will know that I share similar views.
All I'm adding here is the fact that the tinnitus distress is real.

Now that I think of it, maybe the THI scale should reflect this by saying, that if you have such and such score your tinnitus is severe like, or catastrophic like in order to avoid the actual designation.

In other words, if you score 90+ on the THI, this is about how it feels like to have catastrophic tinnitus.
But having said that, there are some people (a very tiny minority), whom can handle loud tinnitus without as much distress.
This has to do with their DNA makeup, brain chemistry and psychological profile.

In other words they got very lucky in that department, in relation to tinnitus.
Those are people who can do lot of damage to our cause, if they become too vocal, because they give the establishment a way out.

Now instead of putting money into research for real treatment, they can just point to those people in the "if they can do it, you can do it" type of fashion and just refer the sufferers towards some already existing coping scheme.

Totally agree with you.

 

[dan]

Now that I think of it, maybe the THI scale should reflect this by saying, that if you have such and such score your tinnitus is severe like, or catastrophic like in order to avoid the actual designation.

Bingo!