ajc
Member
- Feb 6, 2018
- 1,170
- Tinnitus Since
- 11/2002; spike 2009; worse 2017-18
- Cause of Tinnitus
- Loud music - noise damage
Lenire — Bimodal Stimulation Treatment by Neuromod
- Thread starter Tinnitus Talk
- Start date
MemberYes, I wanted to add my thanks as well @alanisnotadj for providing your review. I'm glad things seem to be going better for you. Hopeful stories is what I cling to these days. You're not through with your full run yet and already you are seeing these kinds of results. It's better than nothing and gives hope that you might experience total silence in a while.
Merry Christmas everyone, hope you had a great holiday.
It's great to see results pouring in, the sad disheartening thing is that we have no idea when Neuromod is going to release this in North America. It looks like it does indeed work though now that we have more data.
It's great to see results pouring in, the sad disheartening thing is that we have no idea when Neuromod is going to release this in North America. It looks like it does indeed work though now that we have more data.
The good news is that Neuromod has every intention of releasing Lenire in America. We know that they really want to hit your markets ASAP, so they're working hard towards this goal. If Lenire is a success (and I believe that it is), the $$$ Neuromod will make from launching in the US will enable them to improve upon their model further and open even more clinics in Europe. The snowball is rolling, but tinnitus is a nasty waiting game if there ever was one.
- Jul 8, 2019
- 1,160
- Tinnitus Since
- 1991
- Cause of Tinnitus
- Loud Music / family history
Merry Xmas everyone, and hope we all have a prosperous and peaceful New Year.
I'd also like to add my thanks to @alanisnotadj. Great report there in the User Experiences thread. Your battle with tinnitus very much parallels mine so improvements are really good to see.
I'd also like to add my thanks to @alanisnotadj. Great report there in the User Experiences thread. Your battle with tinnitus very much parallels mine so improvements are really good to see.
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
I've seen enough now to believe that this is the first working commercialised treatment for tinnitus.
I honestly believe that the initial success of Lenire will pave the way towards a treatment which will provide complete relief for the vast majority of sufferers.
We are not quite there yet, though it's great to finally see a path of how we WILL get there. So many promising treatments in the pipeline and it can only get better from here.
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
The only reason they ask you to complete the THI questionnaire is so they have a gauge of whether the treatment is having any positive impact on you. They won't reject anyone based on their THI score.
I'm not going to dispute Big Nick's response to your post, but my experience of Neuromod is that they don't have a set list of questions to run through. There's a discussion with their audiologist - usually Caroline, the lead on the clinical trials if you're going to Dublin - about how your tinnitus arose, how it affects you and what you've done / tried in the past to manage it. As with any discussion, particularly on this forum, this could go off in any direction, but if someone has experienced mental health crises, it's likely this would come out in this discussion - unless you're resolved to present what you think is an acceptable profile to Neuromod, which they'd probably pick up on and reject you anyway.
The only way to approach this IMHO is to be 100% honest with them. They're not trying to sell this to as many people as possible, they're trying to help people who suffer from tinnitus. If they think that there is something else that has a greater chance of 'improving your tinnitus', they will tell you and not take your money.
If you want to try Lenire without Neuromod's involvement, used units will be available soon I'm sure. Ask me in the summer.
- Aug 28, 2019
- 1,496
- Tinnitus Since
- -
- Cause of Tinnitus
- -
I wonder if telling them I have OCD and taking ADs for that will make them think twice about accepting me.
Can I have first dibs on it?
Do you ever think you may have got a faulty unit? It seems as if it didn't do anything for you? I would have asked to try a different unit.
- Dec 31, 2017
- 204
- Tinnitus Since
- Mild since 2006. Severe since 2016
- Cause of Tinnitus
- An enthusiastic youth
That never occurred to me TBH. Let's be realistic, it's far more likely that my own version of tinnitus was immune to their witchcraft - their own studies indicated there would be lots of 'non-responders'.
Do you have to return it? Or do you mean that you'll be selling yours in summer? Will people with a second-hand unit be able to book appointments?
- May 22, 2019
- 257
- Tinnitus Since
- 01/2019
- Cause of Tinnitus
- NIHL & TMJ
You do not have to return the device to Neuromod once purchased, and no, they will not let you book appointments with second hand devices.
Honestly, I don't think I'll ever be honest with them. I'm not about to disclose information (meds I'm taking, suicidality) that will make them likely to turn me away. No effin' way.
They haven't mentioned any intention of coming to Australia. I put my name down for a waiting list in Germany that I'll never be able to afford.
Sometimes it just feels like why bother. Hard to keep positive when it just feels like it's getting worse every day.
We don't even have an official Tinnitus Retraining Therapy protocol here for goodness' sake.
My relationship is falling apart, I'm trying so hard, I keep returning here to try and find hope that feels a million miles away.
I'm glad for those who are getting relief with Lenire though and hope others using the device continue to improve.
Sometimes it just feels like why bother. Hard to keep positive when it just feels like it's getting worse every day.
We don't even have an official Tinnitus Retraining Therapy protocol here for goodness' sake.
My relationship is falling apart, I'm trying so hard, I keep returning here to try and find hope that feels a million miles away.
I'm glad for those who are getting relief with Lenire though and hope others using the device continue to improve.
No answer yet, let's see if they ever answer. I'm still skeptical if it might be better just to fly the Ireland.
@KotaDomowa
Thank you for you review. Let's hope that you will see more improvement in the next months.
May I ask you if you can modulate your tinnitus with you jaw, and how does your tinnitus sound like?
Thank you!
@Mentos would you hear your tinnitus in most places before starting the treatment?
Are you hearing it less now in most places and that's why you're not masking it anymore?
You and @KotaDomowa are both still pretty early in the treatment. You guys might just need more time using it.
Are you hearing it less now in most places and that's why you're not masking it anymore?
You and @KotaDomowa are both still pretty early in the treatment. You guys might just need more time using it.
Also, something else that confuses me about Lenire: it is supposed to be based off a patient's audiogram but what if a patient doesn't have hearing loss? Or what if their tinnitus frequency is at a range they don't test (i.e 1500 Hz)?
Puzzling.
Puzzling.
AfroSnowman
Member
- Jul 23, 2019
- 1,074
- Tinnitus Since
- 04/2019
- Cause of Tinnitus
- Nonnatural energy source
I think the hearing test is so that they know how loud to set the auditory portion of the treatment so you get the required stimulation. From what I understand they fit it to your hearing profile, not tinnitus profile.
Neuromod claimed that 86% of the clinical trial participants benefited from Lenire. This means more or less 380 people. That is not bad (if true).
On Tinnitus Talk, only a few people have given feedback on Lenire, some of which was encouraging.
We must be optimistic. Lenire is our only hope at the moment. If it doesn't work, we will not have another treatment in many years...
I was about to cancel my appointment because of the lack of feedback on Lenire, but now I have decided I will go. My tinnitus is getting worse for absolutely no reason month after month.
Now I can't sleep even with 15 drops of Laroxyl (Amitriptyline) + 5 drops of Rivotril (Clonazepam) at night.
I'm becoming crazy. I'm just 28 years old and my life ended 10 months ago...
On Tinnitus Talk, only a few people have given feedback on Lenire, some of which was encouraging.
We must be optimistic. Lenire is our only hope at the moment. If it doesn't work, we will not have another treatment in many years...
I was about to cancel my appointment because of the lack of feedback on Lenire, but now I have decided I will go. My tinnitus is getting worse for absolutely no reason month after month.
Now I can't sleep even with 15 drops of Laroxyl (Amitriptyline) + 5 drops of Rivotril (Clonazepam) at night.
I'm becoming crazy. I'm just 28 years old and my life ended 10 months ago...
- Dec 18, 2015
- 618
- 45
- Tinnitus Since
- 03/2015
- Cause of Tinnitus
- Noise induced, loud rock concert
It fluctuates, there are moments when i would not hear it in most of the places where it was audible before Lenire, but sometimes it is exactly the same as before treatment.
That's why I need to measure MML at Neuromod to be sure if it has improved.
Yes, my tinnitus is somatic. This is... hum? It's difficult to describe but yes, it is a strange type of hum. Occasionally something else (for example, ringing).
@KotaDomowa
You're not sure if it works, but you state "I suffer notably less". I'd take that as a good sign going forward. Whatever may be the reason behind it, it seems like you're getting some results and whether it be from Lenire or just acceptance, it's something you should embrace and be grateful for.
Thanks for the review!
Wish you all the best and hope you may experience further improvements.
You're not sure if it works, but you state "I suffer notably less". I'd take that as a good sign going forward. Whatever may be the reason behind it, it seems like you're getting some results and whether it be from Lenire or just acceptance, it's something you should embrace and be grateful for.
Thanks for the review!
Wish you all the best and hope you may experience further improvements.
After (haha he said after!) analysing the reviews I think there is a pattern:
As assumed Lenire (bimodal stimulation) works best for somatic tinnitus.
Let's see if it works for non-somatic tinnitus as well, but I doubt non-somatic sufferers will get the same results.
As assumed Lenire (bimodal stimulation) works best for somatic tinnitus.
Let's see if it works for non-somatic tinnitus as well, but I doubt non-somatic sufferers will get the same results.
I think that is a good sign. Maybe it's not a stabilized full reduction yet, but it is moving towards that direction with having new good days that weren't there before.
Even so, some days of reduced tinnitus and others of normal loud tinnitus are better than only days of normal loud tinnitus. From what the other users are reporting it keeps giving benefits the longer people use it.
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