MuteButton

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#1,261
As an inventor, Edison made 1,000 unsuccessful attempts at inventing the light bulb.
When a reporter asked, "How did it feel to fail 1,000 times?" Edison replied, "I didn't fail 1,000 times. The light bulb was an invention with 1,000 steps."

Steve said:
If you shout down everything then all you do is seal your own fate. Tinnitus becomes a harder field to work in, investors are less likely to want to get into a field where the beneficiaries are going to crap over everything. We need to encourage all companies that try to do things properly to get into this field and solve the problem.

This will not work for everyone. So we need to encourage the next novel therapy that will hoover up those that get no benefit from it, and so on. We have to play our own part in the search for a cure.
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Well said.

If it helps 30 people, I'm happy it helps those 30 people from this hell.
Once...
 
#1,262
If this works at least to diminish the fluctuations, I am more than satisfied. If I can keep my tinnitus at the level of the last 2 days (not today) I will be fine!
 
#1,263
david c said:
That's what this thread is - one whole bit of hype, which has desperate tinnitus sufferers considering flying halfway round the world to try this device. Voices of skepticism are very necessary in that context.
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I would say that this thread is rather more informative than a "whole bit of hype" and Sir, with all due respect, I'll travel any place in the world if anything helps me with my tinnitus, even for a bit... I travel every weekend for my job anyway :banghead:

People can spend their time and money the way they decide to, I don't have a car but I might have a MuteButton.

I agree we cannot jump on every new device or marketing product designed to only empty our wallets, I never did... that's why I'll wait to hear the Q&A and check real good what they have to say about the clinical trials.

In 15 years I saw countless ENTs and nothing good came out from it... not even one had heard about somatic tinnitus, only 5 years ago I found one who was aware of it... Really?? Yes it's that slow, 15 years ago they didn't have a clue.

When I talked about it being pulsatile they just told me it would go away... take rivotril and go to sleep... keep your earplugs when you play and everything will be alright!! My god, bunch of amateurs who didn't know crap...

I feel science is getting closer and closer to understanding of how the brain is feeding/responding to our tinnitus and that even if MuteButton isn't the cure, it's a step forward.

Again, even for small results I would do the trip.

I agree with @Steve when he says that we have to play our own part in the search for a cure.

Science won't move without people asking for it... in other words, paying for it.
 
#1,264
Well said pochito. The amount of negativity in this thread is disheartening.

I agree that we don't know everything about this device yet and it may not work for everyone, but from Steve's comments and the knowing that Neuromod had hired researchers from the University of Minnesota study where kelpiemsp has had success we know that there is a pretty good chance that this can help us.

If a bunch of us here want to go to Ireland and try this out I would be willing to go. If I can get any relief it is truly worth it.
 
#1,265
This thread is so bipolar about this device it's insane. Lol.

@Steve you mention that your hearing loss is between two frequencies. Did they mention whether certain frequencies will not benefit from the device or is your situation unique for other reasons?
 
#1,267
Jack Straw said:
This thread is so bipolar about this device it's insane. Lol.

@Steve you mention that your hearing loss is between two frequencies. Did they mention whether certain frequencies will not benefit from the device or is your situation unique for other reasons?
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No it's set to the audiogram so it shouldn't matter.

I wondered about the dip that I have because it is a very narrow one, you'd think I would have asked about that when I was there for several hours :banghead:
 
#1,270
Hey you MuteButton guys, Glynis posted over in General Chat. She's having a difficult time and needs some hugs. Can you all go over there and deliver some? -- TC
 
#1,271
Sam Bridge said:
A full audiogram or up to 8 kHz?
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Steve said:
@kelpiemsp mentioned above the audiogram is up to 16kHz.
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Many of us go completely deaf at some point between 8 and 16 kHz (or lower). Personally I completely fade out at about 14 kHz. Critically, my tinnitus is at about that frequency as well.
This seems common to many of us, that our tinnitus frequency is centered where our hearing sharply drops.
I wonder if that would pose a problem for this treatment, as I am effectively profoundly deaf at my tinnitus frequency.
 
#1,272
Update:

I was able to submit the proposed final version (minus a small voice over that @Steve has to do over the weekend for a segment where he's testing the demo unit) of the Q&A video to Neuromod today (Friday morning, or actually it was around 3 am so well ahead of the start of the business day). Earlier this week they had promised to look at it as soon as possible, so hopefully things move along nicely on Monday.

Have a good weekend everyone. :thankyousign:
 
#1,273
Markku said:
Update:

I was able to submit the proposed final version (minus a small voice over that @Steve has to do over the weekend for a segment where he's testing the demo unit) of the Q&A video to Neuromod today (Friday morning, or actually it was around 3 am so well ahead of the start of the business day). Earlier this week they had promised to look at it as soon as possible, so hopefully things move along nicely on Monday.

Have a good weekend everyone. :thankyousign:
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Thank you @Markku!!!!! :rockingbanana::rockingbanana::rockingbanana:
 
#1,276
JohnAdams said:
How can this possibly help with hyperacusis?

Can we see some data?
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Wondering that too. I had absolutely no interest in this MuteButton thing at all until they (Neuromod) mentioned that they had success in treating hyperacusis with this. It doesn't make any sense at all so I'm still very skeptic.
 
#1,277
lapidus said:
Wondering that too. I had absolutely no interest in this MuteButton thing at all until they (Neuromod) mentioned that they had success in treating hyperacusis with this. It doesn't make any sense at all so I'm still very skeptic.
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JohnAdams said:
How can this possibly help with hyperacusis?

Can we see some data?
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Do you have the source? I remember reading it somewhere, but cannot find it now...
 
#1,281
It doesn't treat hyperacusis. The effect that was observed was that in hyperacusis patients the reduction of their tinnitus was much greater than in other groups.
 
#1,282
Steve said:
It doesn't treat hyperacusis. The effect that was observed was that in hyperacusis patients the reduction of their tinnitus was much greater than in other groups.
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"The results presented by Berthold Langguth showed that it performed particularly well for hyperacusis" is pretty easy to misinterpret I guess.

That's a bummer of course. My interest in this went back to zero :(
 
#1,283
Steve said:
It doesn't treat hyperacusis. The effect that was observed was that in hyperacusis patients the reduction of their tinnitus was much greater than in other groups.
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WHAT?! That turned everything I thought I knew, upside down :( Many people with tinnitus also have hyperacusis and those people can't use this device then, cause if it doesn't treat hyperacusis, there is a (great?) risk it could worsen it, and who would want that?

Who cares about lower tinnitus, if you get worse hyperacusis instead :/
 
#1,284
lapidus said:
"The results presented by Berthold Langguth showed that it performed particularly well for hyperacusis" is pretty easy to misinterpret I guess.

That's a bummer of course. My interest in this went back to zero :(
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I won't say it has gone to zero for me... but my hope for this has gone down quite a bit :/
 
#1,285
lapidus said:
"The results presented by Berthold Langguth showed that it performed particularly well for hyperacusis" is pretty easy to misinterpret I guess.

That's a bummer of course. My interest in this went back to zero :(
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One thing the finding does is open up a new research question.

If patients with hyperacusis have an especially significant reduction in their tinnitus, what is the mechanism at play? Could that mechanism give us a greater understanding of how to maximise the tinnitus treatment, and could discovery of the effect lead to the development of a new hyperacusis treatment?
 
#1,286
Steve said:
One thing the finding does is open up a new research question.

If patients with hyperacusis have an especially significant reduction in their tinnitus, what is the mechanism at play? Could that mechanism give us a greater understanding of how to maximise the tinnitus treatment, and could discovery of the effect lead to the development of a new hyperacusis treatment?
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I felt a bit crushed when I read your previous post but... this is a good point.

Did they only use it on patients with mild hyperacusis? Or how low can the sound be? I guess my LDL are around 50 to 60 nowadays.

I'd do anything to get rid of my hyperacusis, but if this thing improves my tinnitus that would be something.
 
#1,288
I wonder what kind of hyperacusis those people testing this device had? I am very sceptic of them having pain hyperacusis, because that kind would make it seem very difficult, if not impossible to even be able to listen to sounds through headphones...

I suspect they maybe only have a milder discomfort hyperacusis.
 
#1,289
Steve said:
One thing the finding does is open up a new research question.

If patients with hyperacusis have an especially significant reduction in their tinnitus, what is the mechanism at play? Could that mechanism give us a greater understanding of how to maximise the tinnitus treatment, and could discovery of the effect lead to the development of a new hyperacusis treatment?
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Fair point.
 
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