My Posting Place
- Thread starter threefirefour
- Start date
Member
That's pretty much only for terminal patients and the company has to agree to sell the drug.
Damn bro, I guess one could argue that people who literally want to kill themselves are terminal, but that doesn't count does it.
Why isnt the American Tinnitus Association composed of actual doctors and researchers that can help coordinate overall research nationally?
We would probably be cured by now if they had taken on a roll like that a long time ago. This condition is not taken seriously and as far as I am concerned they abdicated their legitimacy with that tweet about most people's tinnitus fading away, then they added insult to injury by not apologizing and getting all defensive even though they know they pissed us off. They are completely useless. Because of their position and name combined with their uselessness, they are probably the most detrimental group regarding finding a cure. They suck at fundraising, and from my conversation with one of their people, I think they are arrogant snobs.
We would probably be cured by now if they had taken on a roll like that a long time ago. This condition is not taken seriously and as far as I am concerned they abdicated their legitimacy with that tweet about most people's tinnitus fading away, then they added insult to injury by not apologizing and getting all defensive even though they know they pissed us off. They are completely useless. Because of their position and name combined with their uselessness, they are probably the most detrimental group regarding finding a cure. They suck at fundraising, and from my conversation with one of their people, I think they are arrogant snobs.
I completely agree. Back in October/November I was trying really hard to galvanize this community to get ourselves organized to lobby the ATA and BTA to in turn lobby the government for us to get access to FX-322 faster than the current protocol would allow for and I got completely shut down and ridiculed. I even cited the right to try laws many times, but I just got continually spat on by people claiming the FDA process was immutable. Go back in the Frequencytx threads and MyPostingPlace and check out the arguments. I simply gave up when it became extremely obvious that the people that we would need to be influencers were totally against the idea.
I remember! Although I wasn't very active at the time. I honestly still think you're right, but it would be beyond helpful to know if Fx-322 even cures tinnitus first though. So many people with T and barely any hearing loss at all, including me.
Yeah. Well, I bet they know at this point. I doubt all of their last trial participants were all completely tinnitus free.
Now it's a corporate secret.
I hope the ATA shuts down soon, that will increase our chances of an effective treatment or cure!!!
- Oct 17, 2017
- 646
- Tinnitus Since
- 2005
- Cause of Tinnitus
- unknown - possibly hereditary
ATA shutting down would decrease our chances for a cure. At least they fund research with half a mil every year.
JohnAdams should stop crying foul all the damn time. Join the ATA board of trustees if you wanna make a difference. Amateur you are
JohnAdams should stop crying foul all the damn time. Join the ATA board of trustees if you wanna make a difference. Amateur you are
It's a complement. She just recommended you to the board of directors. I concur.
Kain
Member
- Aug 25, 2018
- 365
- 26
- Tinnitus Since
- March, 2018
- Cause of Tinnitus
- excessive loud music through earbuds
I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.
Same here. Now I see a floating sea of trash.I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.
- May 24, 2017
- 1,622
- Tinnitus Since
- 05/2017 (H since 06/2017)
- Cause of Tinnitus
- long term noise exposure (headphones), maybe some stress.
I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.
Do you have them bad? Like worms/strings all over your vision? I do, and even though I can forgot them sometimes.......they do bother me some everyday. Some days more then others. I have had them for years before T, but I do feel they have gotten slightly worse lately......I plan to have surgery for them at some point.
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