My Posting Place

[Manny]

i WISH i was a FISH

 

[threefirefour]

i WISH i was a FISH

Hey what a coincidence me too

 

[Zeneth]

our deliverance from this nightmare may be sitting on a shelf in Boston right this moment and we have to sit around for years and years so that the government says we can have it.

Didn't trump sign a Right To Try act? Shouldn't that be able to help ussss

 

[JohnAdams]

Didn't trump sign a Right To Try act? Shouldn't that be able to help ussss

That's pretty much only for terminal patients and the company has to agree to sell the drug.

 

[Zeneth]

That's pretty much only for terminal patients and the company has to agree to sell the drug.

Damn bro, I guess one could argue that people who literally want to kill themselves are terminal, but that doesn't count does it.

 

[JohnAdams]

Why isnt the American Tinnitus Association composed of actual doctors and researchers that can help coordinate overall research nationally?

We would probably be cured by now if they had taken on a roll like that a long time ago. This condition is not taken seriously and as far as I am concerned they abdicated their legitimacy with that tweet about most people's tinnitus fading away, then they added insult to injury by not apologizing and getting all defensive even though they know they pissed us off. They are completely useless. Because of their position and name combined with their uselessness, they are probably the most detrimental group regarding finding a cure. They suck at fundraising, and from my conversation with one of their people, I think they are arrogant snobs.

 

[Zeneth]

The CEO of FrequencyTX has a pretty active twitter account.

 

[JohnAdams]

Damn bro, I guess one could argue that people who literally want to kill themselves are terminal, but that doesn't count does it.

I completely agree. Back in October/November I was trying really hard to galvanize this community to get ourselves organized to lobby the ATA and BTA to in turn lobby the government for us to get access to FX-322 faster than the current protocol would allow for and I got completely shut down and ridiculed. I even cited the right to try laws many times, but I just got continually spat on by people claiming the FDA process was immutable. Go back in the Frequencytx threads and MyPostingPlace and check out the arguments. I simply gave up when it became extremely obvious that the people that we would need to be influencers were totally against the idea.

 

[Zeneth]

I completely agree. Back in October/November I was trying really hard to galvanize this community to get ourselves organized to lobby the ATA and BTA to in turn lobby the government for us to get access to FX-322 faster than the current protocol would allow for and I got completely shut down and ridiculed. I even cited the right to try laws many times, but I just got continually spat on by people claiming the FDA process was immutable. Go back in the Frequencytx threads and MyPostingPlace and check out the arguments. I simply gave up when it became extremely obvious that the people that we would need to be influencers were totally against the idea.

I remember! Although I wasn't very active at the time. I honestly still think you're right, but it would be beyond helpful to know if Fx-322 even cures tinnitus first though. So many people with T and barely any hearing loss at all, including me.

 

[JohnAdams]

I remember! Although I wasn't very active at the time. I honestly still think you're right, but it would be beyond helpful to know if Fx-322 even cures tinnitus first though. So many people with T and barely any hearing loss at all, including me.

Yeah. Well, I bet they know at this point. I doubt all of their last trial participants were all completely tinnitus free.

Now it's a corporate secret.

 

[Manny]

Why isnt the American Tinnitus Association composed of actual doctors and researchers that can help coordinate overall research nationally?

We would probably be cured by now if they had taken on a roll like that a long time ago. This condition is not taken seriously and as far as I am concerned they abdicated their legitimacy with that tweet about most people's tinnitus fading away, then they added insult to injury by not apologizing and getting all defensive even though they know they pissed us off. They are completely useless. Because of their position and name combined with their uselessness, they are probably the most detrimental group regarding finding a cure. They suck at fundraising, and from my conversation with one of their people, I think they are arrogant snobs.

I hope the ATA shuts down soon, that will increase our chances of an effective treatment or cure!!!

 

[JohnAdams]

I hope the ATA shuts down soon, that will increase our chances of an effective treatment or cure!!!

we need to start our own tinnitus association and usurp them.

any ideas for a name?

 

[Zeneth]

we need to start our own tinnitus association and usurp them.

any ideas for a name?

We'll be the ATA
the Actual Tinnitus Association

 

[annV]

ATA shutting down would decrease our chances for a cure. At least they fund research with half a mil every year.

JohnAdams should stop crying foul all the damn time. Join the ATA board of trustees if you wanna make a difference. Amateur you are

 

[annV]

Can MPP people list their age, profession and country? Thank you

 

[incelitus]

29, neurosurgeon, norway

 

[85dB T]

3, retired, tinnitus hell

 

[JohnAdams]

JohnAdams should stop crying foul all the damn time.

your obsession with me is very disturbing. leave me alone.

 

[85dB T]

your obsession with me is very disturbing.

It's a complement. She just recommended you to the board of directors. I concur.

 

[JohnAdams]

 

[PDodge]

28, watch homeless people do drugs. Some city north

 

[Contrast]

 

[Contrast]

 

[incelitus]

tfw bad day getting triggered by t and double triggered by floaters

 

[Kain]

got released from the hospital woooo

 

[85dB T]

View attachment 25504
got released from the hospital woooo

Hoping your lungs are breathing freely! (hopefully I remembered correctly)

 

[Kratos]

tfw bad day getting triggered by t and double triggered by floaters

I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.

 

[Kratos]

Can MPP people list their age, profession and country? Thank you

I will tell if you tell.

 

[85dB T]

I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.

Same here. Now I see a floating sea of trash.

 

[TheDanishGirl]

tfw bad day getting triggered by t and double triggered by floaters

I have floaters too and the only time I notice them is when someone mentions them here in TT. The last time I noticed them before reading your post was like 3 months ago, LUL.

Do you have them bad? Like worms/strings all over your vision? I do, and even though I can forgot them sometimes.......they do bother me some everyday. Some days more then others. I have had them for years before T, but I do feel they have gotten slightly worse lately......I plan to have surgery for them at some point.