Retigabine (Trobalt, Potiga) — General Discussion
- Thread starter Mpt
- Start date
Member
That's really good news. I think it goes to show that retigabine is like rolling the dice. We don't know if we're going to win or lose when taking this drug.
Could you share with us what medical examination or tests you had before beginning retigabine, and what medical tests you have had while you've been on it? Did you have an EKG, stress test, complete blood panel, et cetera?
OK-so let me get this straight - apparently this new drug is actually helping people? I've kind of gone offline for a while to wallow in my own pity and hadn't really thought about trying for a cure, but rather focusing on just getting used to living with it. (forget what you guys call it.) But is is getting worse and making me crazy. Does this drug really help??? Are there side affects? How long do you need to take it for and when you stop, does the T come back?
Questions hoping someone can answer:
Anyone have luck getting us doc to prescribe?
Any luck with insurance companies covering?
Anyone know of cross side effects with Zoloft?
Any problems for people with depression or anxiety?
Any troubles with high blood pressure?
Anyone take it and it worked and then stopped taking it? Does it return?
Any chance of making the t worse?
Anyone have luck getting us doc to prescribe?
Any luck with insurance companies covering?
Anyone know of cross side effects with Zoloft?
Any problems for people with depression or anxiety?
Any troubles with high blood pressure?
Anyone take it and it worked and then stopped taking it? Does it return?
Any chance of making the t worse?
ruben ruiz
Member
Your questions are answered in various places on this retigabine thread. Please read the pinned retigabine threads on the Treatment forum. They're the first two listed. The second pinned subject is User Experiences. It will take you a long time to read through the regitgabine thread and the User Experiences thread, but the information is priceless.
https://www.tinnitustalk.com/forums/treatments.13/
Christian78
Member
- Dec 17, 2013
- 965
- Tinnitus Since
- (Sep 2013)
- Cause of Tinnitus
- progressive tinnitus, time of expiring in next 3-6 months
I use 300. 300, 400. from july last year.
Anyone have luck getting us doc to prescribe?
i got it from Swedish doctor
Any luck with insurance companies covering?
yes partly
Anyone know of cross side effects with Zoloft?
well, i dont know, zoloft is for depression, and it can cause tinnitus too, but i don't believe, you can try little dosage and sea, search on internet
Any problems for people with depression or anxiety?
well, it kills depression, can make you more anxiety.
Any troubles with high blood pressure?
yes, but then it returns to normal, for me it was making it lower
Anyone take it and it worked and then stopped taking it? Does it return?
Yes, even for Daniel. BUT his did not return totaly back
Any chance of making the t worse?
No one made it worse it it is not problematic that way, it have side effects
As Daniel said it does work, but on some people side effect are too strong, like @dan .
For me it lowered it 80% but then slowly came back after 4 months. I till take it it make me bit numb and I dont know, helps to sleep a lot.
you need 20-30 day to use med on 250-300 mg*3 to get effect. You will be drugged and not be really be able to drive car etc. It should lower your t 60%. If you dont get serious side effects. Danny boy is only one who used it and got permanent reduction of several of us... but he used many mixes of medication, even took 1200x1. he is very resistant to side effects, because he was using some time 3 diferent medication and i would not survive it.
We still dont know will he have problems when he gets a bit older because of straining body but for now he is much better. What will happen we will see. Anyway he has stash of trobalt in a case it gets bach and that is trauma from tinnitus, PTSD, he must have meds becouse of fear from tinnitus coming back.
Tinnitus is very nasty disease, people with cancer don't keep cancer meds, but tinnitus is severe.
Wow so you finally are tappering off this? Great work Danny!
Does it stay for you so low when you do just 400mg once a day? I suppose you take it before sleeping?
are they starting phase 1 of retigabine trials at the end of the year? hopefully after they adjust it ,we can be somewhat safe taking this drug
Trobalt trials?
Just trying to clarify. Are you still taking trobalt or are you completely off it? If still taking it, how much do u take and how is ur t? If not taking at all, how long has it been and how is ur t?
Are you currently taking other drugs?
How long has it been since you stopped? And did ur t increase a bit or stay at the very low level ?
I dont get you danny
You just said you reduced to 1x400mg and now you say you dont take it anymore at all.
I dont get you danny
I was talking in past tense. I was on 400x3 then lowered to 400x1 then went off of it.
I reduced the dosage to 300 mg/day and my T still lower I don't know what's happened to my tinnitus
I will be off of trobalt in 7 days I hope My T still lower as it is today.
I will be off of trobalt in 7 days I hope My T still lower as it is today.
- May 7, 2015
- 1,054
- Tinnitus Since
- 29.09/2014
- Cause of Tinnitus
- Acoustic trauma using headphones
I guess you mean the SF0034 by Dr. Tzounopoulos. We have an own thread about it. Its similar to RTG, yes, but works on fewer and more specific Potassium-channels.
Some info here:
http://www.sciencedaily.com/releases/2015/06/150623180317.htm
So i just took my first dose of potiga 100mg.. Ima take 3x100 a day for a week and see how it goes..
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