Solsaem Clinic (Dr. Minbo Shim) Experience

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#901
I think something is different...

It's been two weeks since we've been back from Seoul. My treatments began almost a month ago, and ended two weeks ago. I'm noticing something odd, besides having up and down changing tinnitus.

I'm trying not to use my hearing aids most of the time, since I'm back. They're big, powerful honkers that fill my ears. I want to see my hearing get better without them. I'm believing my hearing will improve without them.
Although it doesn't seem like sounds and people are any louder without my aids, today I'm noticing that my when I had my hearing aids in earlier today, they are uncomfortably louder. I may need the aids adjusted or something.
They are getting too loud to wear, if I want to wear them.
 
#902
@GlennAz
I'm not surprised to read this at all. You're still also very early into this with at least two more months before you get the full results. I'm excited to see your future updates.

Please keep us updated.
 
#904
7Thunder said:
@JohnAdams

Have you got any improvement on hearing or any slightly changing sound wave? When are you going to post your new audiogram?
Click to expand...
Probably when he gets back from his second trip... Though him getting another set of treatments makes me wonder what his plan will be as well.
 
#905
JohnAdams said:
Of course there is a limit. You could theoretically have complete restoration of all hair cells and the range of hearing would still be limited by the resonant frequencies of the different parts of your cochlea and your hearing sensitivity would be limited by the minimum mechanical stimulation threshold to cause an impulse at the nerve.
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Sorry, my question wasn't specific enough.

Do multiple treatments make sense? Like two visits in one year? That's more along my thinking, what would the ideal time be between follow ups? Are follow ups advised?
Are you planning another treatment to maximize the PRP?
 
#908
@JohnAdams I am just waiting for your audiogram report. When are you going to post it? I'm dying from this miserable disease. Anyway I have been contacted by Dr. Minbo for treatment but I will not proceed till I see your audiogram. I need green light damn it!!!
 
#909
JohnAdams said:
Wutchu talkin bout?
Click to expand...
Wait, you're not planning on going again? Expected you would be in a few months after that accident. You made it sound like it destroyed your progress. Then again, that trip is expensive... so unlikely.

Whatever, I have exams to study for, so I haven't been paying attention to this place lol.
 
#910
7Thunder's said:
@JohnAdams I am just waiting for your audiogram report. When are you going to post it? I'm dying from this miserable disease. Anyway I have been contacted by Dr. Minbo for treatment but I will not proceed till I see your audiogram. I need green light damn it!!!
Click to expand...
I believe the audiogram is important, but as discussed before at length about audiograms, I'm still interested in the subjective reviews from John Adams pertaining to tinnitus, hyperacusis, everyday quality of life concerning hearing etc. The audiograms are important, but for me there are other questions that are pertinent as well. Any negative changes? What positives etc...? I know John will do us justice when he's finished writing. Hope you're doing well John Adams, and GlennAz as well.
 
#911
Daniel, you are totally correct. The subjective is very important too.
When I get my hearing tested, I hear a few beeps. Good.

But when they get to the word recognition part, on a good day, my left ear might get 44% correct. My right used to get 8% correct. Until recently, it started getting 0%. My right ear is a vestigial organ. Understanding words requires more than just hearing a few beeps. I look forward to hearing more beeps, but I really hope Dr Shim's treatments will help the word recognition for me.

Hearing people is most important.
 
#912
7Thunder's said:
@JohnAdams I am just waiting for your audiogram report. When are you going to post it? I'm dying from this miserable disease. Anyway I have been contacted by Dr. Minbo for treatment but I will not proceed till I see your audiogram. I need green light damn it!!!
Click to expand...
I don't think he needs to be pressured in any way. Did Dr. Shim give you a quote on his treatment?
 
#915
GSC said:
What a shitty anniversary.
Click to expand...
I was having a blast!
giphy.gif
 
#916
just1morething said:
I don't think he needs to be pressured in any way. Did Dr. Shim give you a quote on his treatment?
Click to expand...
No, I haven't yet. Still waiting for this. Many factories played a role in my hearing loss and I am pretty sure Dr. Shim is determined to provide me with treatment.

He called me "You are a very special case" -- not sure if he's calling or using same tone for every patient.
 
#917
7Thunder's said:
He called me "You are a very special case" -- not sure if he's calling or using same tone for every patient.
Click to expand...
Hard to say. I would wait for the longer term results from @JohnAdams and @GlennAz before going for it myself. It's a very tough condition to live with no doubt and definitely puts you in a state of panic at times.
 
#918
Hi 7 Thunders, Dr Shim is a positive person. I don't think he dwells on the negative, though I can't read his mind.
And everyone is special, and he will do his best for you. He's probably not feeding you a line
 
#920
First e-mail from Dr Shim:

I've checked your medical history and audiogram.
You are a very special case.
It seems like your inner ear has been damaged severely by your immune system.
In this situation, there should be two strategies.
One is about the regeneration of your inner ear, and the other is about keeping them alive while your immune system is trying to attack your inner ear again.

So, we maybe help you restore your hearing to some degrees.
But after you've got our treatment, you'd better off following the suggestions of the doctor, Bryan, to keep your inner ear cells alive.
You have to be treated both ears simultaneously.

Second email from Dr. Shim:

Your middle ear and even inner ear can be affected by abnormal Euastachian tube function which is caused by congested turbinate, called rhinitis.
So usually we do turbinoplasty- surgery for reduction of turibinate - before starting any treatment for inner ear regeneration.

Our way of treatment also works for the problem of dizziness and balance , because the cochlea is connnected with the semicircular canal which in charge of your balance.

You have to be here for 2 weeks.
We will treat your both ear.
The cost is $18,000.
 
#921
Question @JohnAdams @GlennAz

Do you have a similar situation in your case? Or anyone?

$18000 is a huge amount. I don't have that much money to get treatment. But I don't care, I'll sell everything I own or whatever take to get the treatment. I just need to be 100% sure that he will succeed.
 
#924
Hi 7Thunders, so you have an autoimmune thingy wrecking your hearing? That totally sucks.
I got my septum repair nose job on the first day. It's helped my breathing and coughing a lot.
With my hearing and crummy cochlears, I can't say yet how much will come back. Dr Shim can't promise what degree will come back either. As with any medical doctor here, there are no guarantees.

Don't forget airfare cost. It was $900 return from LAX, per fare, and the AirBnB about $450. And if you have a dizziness problem, it would be very helpful to bring someone along...my suggestion.
 
#925
Hi guys, I've been corresponding with Doctor Minbo Shim for a year now.

He just quoted me $18,000, for ear work. I haven't responded, when and if I do I will haggle for something more reasonable. Bummer.

Back to my original assertion about @JohnAdams experiencing moments of silence before going to Dr. Shim as opposed to a constant unchanging noise... another time... I will expound.

The pricing has doubled since the first American's voyage... not comforting... but human nature is fairly predictable.

There are no guarantees 7Thunder's, it's a leap of faith, I suppose that is part of the praying over the patient's head, for good measure.

We all need help... we are all desperate... if you go back to the original charts you can see the margins on the hearing exams... not overwhelming. Having said that some patients did have some decent improvements and claimed there tinnitus went or was less bothersome.

Now we have two patients from the forum on opposite sides of the hearing spectrum. One with " some" high frequency loss as I understand it and the other who wears hearing aids with severe hearing loss. One whose tinnitus was changing, affected by sleep and turmeric, and the other's seemed unchanging.

It's all very confusing and the pricing adds to the fog.

Await John and Glenn's feedback.
 
#927
7Thunder's said:
Your middle ear and even inner ear can be affected by abnormal Euastachian tube function which is caused by congested turbinate, called rhinitis.
So usually we do turbinoplasty- surgery for reduction of turibinate - before starting any treatment for inner ear regeneration.
Click to expand...
Couldn't your local ENT do this procedure for you? In case part of your noise is coming from ETD. I appear to have a mucous problem and then my ears don't crack when I swallow. I was doing pretty well last night and then I woke up with low pitched static, especially in my left ear. Trying Mucinex and an EarPopper. I was told by an ENT that my left Eustachian tube is narrow.
 
#928
@7Thunder's,

I realize that much regarding stem cells is under debate, but Mesenchymal Stem Cells are thought by some to be the best immune modulators known to man. I write this because ATEOS was inspired by maybe the best success story that this community is aware of regarding hearing loss and T; it concerned a woman who received stem cell therapy who had autoimmune causation. Regardless, it is worth looking in to ATEOS' threads before committing to something like PRP and $18K.
 
#929
humptydumpty69 said:
@7Thunder's,

I realize that much regarding stem cells is under debate, but Mesenchymal Stem Cells are thought by some to be the best immune modulators known to man. I write this because ATEOS was inspired by maybe the best success story that this community is aware of regarding hearing loss and T; it concerned a woman who received stem cell therapy who had autoimmune causation. Regardless, it is worth looking in to ATEOS' threads before committing to something like PRP and $18K.
Click to expand...
Autoimmune causation of tinnitus?
 
#930
@JohnAdams,

I may have been mistaken about the tinnitus, appears it was hearing loss; but if autoimmunity is the source of symptoms, it is the same premise

"I happened to come across the story of Chloe Sohl who had gone through an experimental stem cell procedure because of autoimmune hearing loss. She had been battling the condition for some time as she failed to respond adequately to conventional therapy. With all options exhausted she, along with her parents (who are physicians themselves), decided to attempt an experimental procedure whereby her own stem cells were harvested from her belly fat and subsequently reintroduced intravenously. In total, Chloe received three injections and saw dramatic improvements in the weeks that followed the transplantation. The outcome had my interest for two reasons: firstly because of the reversal of hearing loss itself, and secondly, because of the specific type of hearing loss Chloe was suffering from. Mesenchymal stem cells (MSCs) are immunomodulatory and are hence known to potentially work really well in the instances where there is an autoimmune component associated with a medical condition."

-ATEOS
 
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