C
Capstan
Guest
If you still find enjoyment (in an argument) then I doubt your suicidal.
Maybe you just like planting seeds of doubt and hopelessness to those that are struggling?
Suicidal
- Thread starter jeremy06
- Start date
Maybe you just like planting seeds of doubt and hopelessness to those that are struggling?
He's been threatening to commit suicide here for a year soon and encouraging others to commit the act.
Despicable.
Member
HootOwl
Member
Huh? How does the coronavirus negate all of the current clinical trials for regenerative medicine?
The economy is slowed to the pace of a snail. It's not cancelled it's just in a long traffic jam.
HootOwl
Member
This... this did not address my question at all... and makes no sense in relation to current clinical research. The only trial put on hold due to COVID-19 is PIPE-505.
And that doesn't destroy hope because Otonomy is still moving forward with OTO-413 regardless of the current economic climate - or at least they haven't announced otherwise.
Neither Frequency nor Audion have announced delays as far as I'm aware.
So what exactly are you trying to say? I don't mean that in an accusatory way, I'm genuinely puzzled.
other health problems I have are not even close.
TinnitusTalk is a very rare place on the internet that gives patients for tinnitus a voice, other health problems don't have that.
Hi HO,
I have been really concerned about the coronavirus slowing things down for us, tinnitus sufferers in particular who are keen on regenerative drugs.
I like your optimistic stance and I hope you are correct. I guess my inclination is to be more pessimistic, or cynical, and I was seeing a "traffic jam" as well.
Hope you are right... we need help so bad, as you know.
Take care.
HootOwl
Member
Ah gotcha. It was this quote -
And I just checked and Frequency hopes that they can reach their end goals with the trial participants they currently have so as not to delay their trial results.
That leaves Pipeline as being a confirmed delay and Otonomy as up in the air at this point, but having spoken to them in October they had hoped to have their trials completed by end of Spring 2020 in preparation for their data reporting for Q3/4. If they were delayed it would most likely be minimal.
That confused me because even if things are delayed by 6 months or so it doesn't mean any of this is dead or anything.
And I just checked and Frequency hopes that they can reach their end goals with the trial participants they currently have so as not to delay their trial results.
That leaves Pipeline as being a confirmed delay and Otonomy as up in the air at this point, but having spoken to them in October they had hoped to have their trials completed by end of Spring 2020 in preparation for their data reporting for Q3/4. If they were delayed it would most likely be minimal.
i've helped thousands of people avoid BS products like Sonus Complete and Tonaki Tinnitus Protocol.
The Sonus complete thread has freakin views, which implies people are viewing this thread and making their mind up about Sonus Complete as opposed to all the propaganda put out by the scammers.
If I leave this will not happen. The only thing for supplement reviews will be coming from the scammers websites. Dr. Ossai's website is buried deep in Googles search result unfortunately. For some reason our forum is not. I helped more people avoid health scams then anyone.
The Sonus complete thread has freakin views, which implies people are viewing this thread and making their mind up about Sonus Complete as opposed to all the propaganda put out by the scammers.
If I leave this will not happen. The only thing for supplement reviews will be coming from the scammers websites. Dr. Ossai's website is buried deep in Googles search result unfortunately. For some reason our forum is not. I helped more people avoid health scams then anyone.
I think there is big promise in Shore and Lenire's research but anything to do with regenerative biology is much higher risk involved. The system is set up in a way that makes it more risky then devices.
I don't think anyone with kids or loved ones should kill themselves, they should keep fighting for them.
I just know my goose is cooked. Others are probably in scenarios they can find their way out of and I encourage them to do so.
I don't think anyone with kids or loved ones should kill themselves, they should keep fighting for them.
I just know my goose is cooked. Others are probably in scenarios they can find their way out of and I encourage them to do so.
Do you live in an apartment complex? If so how can you turn off your fire alarm in your space?
I mean don't you have fire drills and false alarms?
Do you have wisdom teeth coming in by any chance? Those can make t worse temporarily and cause headaches.
This is like telling someone with a broken leg that they'll give them an energy drink to help run a marathon.
That is so true it's torture.
I just don't see where the hope is when literally the clinical world has a cookie cutter script to deal with tinnitus and other health problems.
It's so predictable what goes on. New comers have hidden hearing loss and burning ear pain and get flowcharted and told it's all fine and dandy TRT it, it's like a bad joke that keeps repeating.
The reason I get so frustrated is because our suffering is basically a comedy from an outsiders perspective. The clinical world is obvious, the science and research world was held back three decades, and most tinnitus sufferers don't know what we know and they buy snake oil supplements on Amazon. That's what makes us hopeless. Especially considering the fact that the ATA itself is why Jastreboff rose to power.
People who come to this forum are a vocal minority that know what's really going on. But that doesn't change the establishment. The US and the UK both neglected tinnitus research for decades. We are doing the right thing but had this process started earlier, things would have been different.
Tinnitus Talk is playing catch up and recover for 30 years of damage that would have never happened in the first place if people were diligent. That's why I say the playing field is biased.
The reason I get so frustrated is because our suffering is basically a comedy from an outsiders perspective. The clinical world is obvious, the science and research world was held back three decades, and most tinnitus sufferers don't know what we know and they buy snake oil supplements on Amazon. That's what makes us hopeless. Especially considering the fact that the ATA itself is why Jastreboff rose to power.
People who come to this forum are a vocal minority that know what's really going on. But that doesn't change the establishment. The US and the UK both neglected tinnitus research for decades. We are doing the right thing but had this process started earlier, things would have been different.
Tinnitus Talk is playing catch up and recover for 30 years of damage that would have never happened in the first place if people were diligent. That's why I say the playing field is biased.
- Sep 21, 2016
- 1,051
- Tinnitus Since
- 2011 - T, 2016- H, relapsed 2019
- Cause of Tinnitus
- noise-induced
Totally agree and then so many patients end up being gaslit and told their hearing is 'perfectly fine' just because they pass a standard angiogram which is really a very crude and outdated measure of damage. Or patients with hyperacusis who get told that pain from noise is "all in your head" or that it's not possible for certain noise levels to cause spikes or further damage.
Had mild Tinnitus for 4.5 years. I've been hearing voices since about a week. They probably are probably auditory hallucinations, and they make me feel really helpless, and I feel like I'm in a horror movie. These voices are harrasing and torturing me, they are kind of intelligent.. It doesn't take a long way from here, to take any actions that will ease my suffering.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6817772/
Despite having the word "pain hyperacusis" in the study they don't talk about it particularly at all. Just about how CBT and internet based CBT can help. Ofcourse CBT is better then nothing, but I don't get why they need to write papers about this stuff till the cows come home.
In the study they also claim they don't know if TRT is better or not. Despite the BTA already coming to conclusions that CBT is more cost effective.
\
Despite having the word "pain hyperacusis" in the study they don't talk about it particularly at all. Just about how CBT and internet based CBT can help. Ofcourse CBT is better then nothing, but I don't get why they need to write papers about this stuff till the cows come home.
In the study they also claim they don't know if TRT is better or not. Despite the BTA already coming to conclusions that CBT is more cost effective.
C
Capstan
Guest
I actually met with one of the authors of that pub today (Danesh). Nice guy. A lot of the discussion revolved around removing the reaction to tinnitus/hyperacusis. I've got a lot of issues that makes me skeptical that it can be effective for me. However its either try or die proposition and I'd like to see my kids grow up. So here goes nothing.
I will say that a lot of this stuff gets published so that these PhDs can build credentials for their clinics, practices, teaching and speaking gigs. In that particular world it's pretty important to be published.
This guy's particular practice isn't doing strict CBT or TRT. However counseling is a big component. Hopefully it'll result in cost efficiency while providing some efficacy.
This link may possibly provide some reassurance (about the voices not the tinnitus).
I don't hear voices myself. With me it's just loud tinnitus.
I only occasionally visit this forum these days and just thought that it might be worth a mention.
- Oct 19, 2019
- 862
- Tinnitus Since
- 2016/2017/2019
- Cause of Tinnitus
- Unknown
What did they want to hear? Was it in order to let you out? If it's not too personal, how did you end up in a hospital?
HootOwl
Member
I'm so fucking sorry acute. 3 years ago when my tinnitus worsened considerably I had a breakdown and told my mom I just wanted to swallow all my Ambien pills and never wake up. She (understandably) got scared and called 911 hoping they could talk to me and calm me down. By the time the police arrived I was pretty much over the wave, and when they offered for me to come back to the hospital to talk to a doctor about my feelings and be home within a few hours I agreed, because why not right? Maybe talking it out would give me a little more peace.
I get to the hospital to find out it was all a fucking lie. When we arrived I told the receptionist what the officers had said about talking to a doctor for an hour or so. This was around 4pm and she looked at me in confusion saying all of the doctors leave by noon and that I had been 5150'd (without my knowledge). This is despite the officers making notes about how calm I was when they arrived, and making no mention of the 5150.
When my mom called in absolute anger asking why I couldn't come home and that we had been utterly lied to by the officers, they threatened to keep me for 3 weeks and not 3 days. I don't think she's ever really forgiven herself for that.
So it was 3 hellish days of no masking, no sleep, and no understanding by any of the doctors there. Like you, I lied everyday. "Yep, feeling better, the sounds aren't so loud today. Yep, feeling good, I think all I needed was some way to relax and feel better." Participating in group therapy was mandatory and I just made shit up there too.
They still kept me all three fucking days despite saying I could get out early due to my "positive behavior".
Oh and did I mention we only got 15 minutes of outside time a day?? And one day they forgot (it was at a set time) and when I asked them hey, it's a half hour past that they shrugged and said too bad. There were no windows in this place so the time progression seriously fucked up my mental health and being outside for those 15 minutes was the only thing keeping me sane. Being in basically the same 2 rooms for almost 72 hours straight did an absolute number on me...the sad thing is everyone loved being outside and you could see how much calmer and happier people were in the yard (even those with severe mental problems) and even allowing us an hour a day would have done wonders. And then they were surprised when people were shuffled back in like cattle and regressed almost immediately. Fucking hell.
I will never trust any officer in such a capacity ever again. I reached out for help and got burned so bad. The only thing the experience taught me was that if I ever want to kill myself, to do it right so that you never end up back in one of these places ever again.
Huge fucking hug to you. When I say I know how you felt going through that, I really mean it.
The US will be better off without Donald Trump. A guy that suggests sick people to inject bleach. Such an idiot.
This forum archives so much knowledge that the vast majority of tinnitus sufferers have probably never heard about.
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