Suicidal

[Jazzer]

My Last Letter To All The People With Tinnitus

Hi Dear Friends,

I am already planing my suicide. One year ago after MRI my tinnitus worsened and since then I have been disabled. One month ago the tinnitus worsened further. I have had tinnitus for 20 years that gradually became unbearable. I have 2 types of tinnitus, one is noise induced and the other is from Trigeminal Neuralgia. Both of them not treatable.

I would like to say thank you to the people that created Tinnitus Talk. They have done more than any doctor or scientist.

This condition was never taken seriously and this is our own fault. If any of us with tinnitus including me was fighting for a cure, some of us wouldn't have to kill ourselves and leave our families and all the lovely people we know devastated.

Remember if you want your voice to be heard you need to shout. Let everyone know how badly you are struggling. Use social media, use YouTube, create videos of how bad tinnitus can be.

If every person with tinnitus made their own video "Tinnitus - My Story", do you know how much awareness you would be creating?

Make the people who don't have a clue about tinnitus understand what you are going through.

Why do you suffer in silence? Does it not make you feel bad that there is a pill for everything but tinnitus? Are you not tired to be scared of every noise that can make it worse? You are not helping yourself this way. You need to be proactive. If every person with tinnitus let the world know how bad it is then things would be different.

If you happen to read this, you have the power to change things. You have the power to save lives. Don't just get better and go on with your life as there is no guarantee that down the line you won't be exposed to dangerous levels of noise or ototoxic substances or have head or neck injury and your tinnitus misery will start again. And because you had not been proactive, you did not donate to research, you did not advocate, and so when you come back to Tinnitus Talk you will find that nothing has changed in the tinnitus field. Welcome to the tinnitus hell again.

My last wish is to the people who are managing Tinnitus Talk to ask new and existing members if they feel comfortable creating short videos of what caused their tinnitus, how does it sounds, how they feel about it and what their doctor recommends.

My final words:

If there were more awareness of tinnitus, my story and many more could have been different. My son is 2 years old and my daughter is 16 years old. They could have still enjoyed their lives with their father. If you don't want that to be your story or someone else's, please protect your ears, donate for research, advocate, create awareness.

If all of us gave something from ourselves, we could change that "nothing could be done, go and learn to live with it".

I will now go and donate and after that I will create "Tinnitus - My Story" video.

I will then take my own life to stop this torture.

Son, daughter, wife, mother, please forgive me.

Oh Stan
I understand completely.
As you may know, I made a video
'Dave's Tinnitus Story'
- and decided I must be brutally honest.
I was criticised in some quarters for not offering a solution or a treatment - for being 'negative.'

Us severe sufferers 'know' there is nothing to help us - no treatment - no cure.
Somehow - only by means of deep meditation - I have just about managed to keep going for over six years now.
It is sheer 'hell on earth' but still I try to keep going.
I now have Parkinson's disease, which can be an extension of tinnitus.
I have learnt that our ears are a soft gateway to all other neurological diseases.
Selfishly, I wish you would stick around to keep speaking up about this hateful f#€£ing' SHIT, but I understand you so well, and envy your determination.
With love and understanding my brother,
Dave xx
Jazzer

 

[PeteJ]

My Last Letter To All The People With Tinnitus

Hi Dear Friends,

I am already planing my suicide. One year ago after MRI my tinnitus worsened and since then I have been disabled. One month ago the tinnitus worsened further. I have had tinnitus for 20 years that gradually became unbearable. I have 2 types of tinnitus, one is noise induced and the other is from Trigeminal Neuralgia. Both of them not treatable.

I would like to say thank you to the people that created Tinnitus Talk. They have done more than any doctor or scientist.

This condition was never taken seriously and this is our own fault. If any of us with tinnitus including me was fighting for a cure, some of us wouldn't have to kill ourselves and leave our families and all the lovely people we know devastated.

Remember if you want your voice to be heard you need to shout. Let everyone know how badly you are struggling. Use social media, use YouTube, create videos of how bad tinnitus can be.

If every person with tinnitus made their own video "Tinnitus - My Story", do you know how much awareness you would be creating?

Make the people who don't have a clue about tinnitus understand what you are going through.

Why do you suffer in silence? Does it not make you feel bad that there is a pill for everything but tinnitus? Are you not tired to be scared of every noise that can make it worse? You are not helping yourself this way. You need to be proactive. If every person with tinnitus let the world know how bad it is then things would be different.

If you happen to read this, you have the power to change things. You have the power to save lives. Don't just get better and go on with your life as there is no guarantee that down the line you won't be exposed to dangerous levels of noise or ototoxic substances or have head or neck injury and your tinnitus misery will start again. And because you had not been proactive, you did not donate to research, you did not advocate, and so when you come back to Tinnitus Talk you will find that nothing has changed in the tinnitus field. Welcome to the tinnitus hell again.

My last wish is to the people who are managing Tinnitus Talk to ask new and existing members if they feel comfortable creating short videos of what caused their tinnitus, how does it sounds, how they feel about it and what their doctor recommends.

My final words:

If there were more awareness of tinnitus, my story and many more could have been different. My son is 2 years old and my daughter is 16 years old. They could have still enjoyed their lives with their father. If you don't want that to be your story or someone else's, please protect your ears, donate for research, advocate, create awareness.

If all of us gave something from ourselves, we could change that "nothing could be done, go and learn to live with it".

I will now go and donate and after that I will create "Tinnitus - My Story" video.

I will then take my own life to stop this torture.

Son, daughter, wife, mother, please forgive me.

I already explained that no one will listen. People can post on social media all day, all they want.

I challenge anyone on this site to prove me wrong.

People don't listen. You need to find doctors and researchers to speak for us. Governments and the health industry don't listen to tinnitus sufferers. There is nothing physical that you can show someone. You can't show an X-Ray of your tinnitus. Only researchers or those who have accreditation in a medical field and BELIEVE US can do anything - that is, in theory - they should have the potential to help.

I am sorry for your pain. I don't have your experience but I have those feelings of stopping the tinnitus permanently even if that means suicide.

 

[Christiaan]

My Last Letter To All The People With Tinnitus

Hi Dear Friends,

I am already planing my suicide. One year ago after MRI my tinnitus worsened and since then I have been disabled. One month ago the tinnitus worsened further. I have had tinnitus for 20 years that gradually became unbearable. I have 2 types of tinnitus, one is noise induced and the other is from Trigeminal Neuralgia. Both of them not treatable.

I would like to say thank you to the people that created Tinnitus Talk. They have done more than any doctor or scientist.

This condition was never taken seriously and this is our own fault. If any of us with tinnitus including me was fighting for a cure, some of us wouldn't have to kill ourselves and leave our families and all the lovely people we know devastated.

Remember if you want your voice to be heard you need to shout. Let everyone know how badly you are struggling. Use social media, use YouTube, create videos of how bad tinnitus can be.

If every person with tinnitus made their own video "Tinnitus - My Story", do you know how much awareness you would be creating?

Make the people who don't have a clue about tinnitus understand what you are going through.

Why do you suffer in silence? Does it not make you feel bad that there is a pill for everything but tinnitus? Are you not tired to be scared of every noise that can make it worse? You are not helping yourself this way. You need to be proactive. If every person with tinnitus let the world know how bad it is then things would be different.

If you happen to read this, you have the power to change things. You have the power to save lives. Don't just get better and go on with your life as there is no guarantee that down the line you won't be exposed to dangerous levels of noise or ototoxic substances or have head or neck injury and your tinnitus misery will start again. And because you had not been proactive, you did not donate to research, you did not advocate, and so when you come back to Tinnitus Talk you will find that nothing has changed in the tinnitus field. Welcome to the tinnitus hell again.

My last wish is to the people who are managing Tinnitus Talk to ask new and existing members if they feel comfortable creating short videos of what caused their tinnitus, how does it sounds, how they feel about it and what their doctor recommends.

My final words:

If there were more awareness of tinnitus, my story and many more could have been different. My son is 2 years old and my daughter is 16 years old. They could have still enjoyed their lives with their father. If you don't want that to be your story or someone else's, please protect your ears, donate for research, advocate, create awareness.

If all of us gave something from ourselves, we could change that "nothing could be done, go and learn to live with it".

I will now go and donate and after that I will create "Tinnitus - My Story" video.

I will then take my own life to stop this torture.

Son, daughter, wife, mother, please forgive me.

I feel for you @BrStan@. It breaks my heart to read that you need to leave your family behind in order to relieve yourself of all the pain and suffering. This disorder is so cruel it should not even exist. Your words mean very much to me and I will make a video to help the cause, even if it helps just a little. I really do hope you can stick around for a while. There are many things in the pipeline, and some will be on the market in a year or two, and maybe, just maybe, it might help you do get your life on track. All the best, Christiaan

 

[asey20]

This thread scares me. I don't check it often but sometimes I make the mistake of going back here. I just stopped thinking about this topic for a week and was feeling better and now I'm starting to think about this again.

I'm not going to lie. I thought my life wasn't great before but I realized I had many great experiences and would go back in a heartbeat to how I felt before. I have a lot of health anxiety issues and things I don't like about my body. I truly feel like life hasn't treated me fairly in this regard.

Really tho, things were great last year and were really turning up. I traveled. I got a girlfriend. I thought the same would happen this year, but then COVID-19 happened. And then my girlfriend broke up with me. I was heartbroken for months. I thought this was the worst. I was wrong. It just kept getting worse.

I started getting headaches at one point and that's when my health anxiety, which was under control for years, started off again. Except much worse. One symptom led to another, which led to another and now I'm here. Out of all the things I've experienced though, tinnitus is the one thing I would like to go away completely at some point. And yes, I do also have visual snow, but for some reason I just don't give a shit about it.

The worst thing that happened was having to take my mom to the emergency because she wasn't acting like herself. If the world knew one way to absolutely destroy me then it sure decided to do it. It turned out she had a brain tumour, which came from breast cancer. Now there is good news to this story as well, however I absolutely lost it. I think I became psychotic. My whole perception of life and what I expected for the future was ruined.

I never expected life to be fair, but I never thought it would destroy me like this. I became so depressed. I am still struggling with it. But things are getting better and I'll make another post somewhere about the good news in my life soon.

I just wish it was never like this. I wish that what I thought about happening in the future was true. And even though I'm getting better, this topic still crosses my mind sometimes. I think about what if this gets worse and I can't bear it anymore. I really hope there is meaningful treatments in the future and I hold up until then. I want to get my life together and live happily. I'm still scared though, but I hope I make it.

I just wanted to share since I've been thinking about this topic again. I hope I don't reach that point.

Thanks for whoever listened.

 

[Tanni]

This thread scares me. I don't check it often but sometimes I make the mistake of going back here. I just stopped thinking about this topic for a week and was feeling better and now I'm starting to think about this again.

I'm not going to lie. I thought my life wasn't great before but I realized I had many great experiences and would go back in a heartbeat to how I felt before. I have a lot of health anxiety issues and things I don't like about my body. I truly feel like life hasn't treated me fairly in this regard.

Really tho, things were great last year and were really turning up. I traveled. I got a girlfriend. I thought the same would happen this year, but then COVID-19 happened. And then my girlfriend broke up with me. I was heartbroken for months. I thought this was the worst. I was wrong. It just kept getting worse.

I started getting headaches at one point and that's when my health anxiety, which was under control for years, started off again. Except much worse. One symptom led to another, which led to another and now I'm here. Out of all the things I've experienced though, tinnitus is the one thing I would like to go away completely at some point. And yes, I do also have visual snow, but for some reason I just don't give a shit about it.

The worst thing that happened was having to take my mom to the emergency because she wasn't acting like herself. If the world knew one way to absolutely destroy me then it sure decided to do it. It turned out she had a brain tumour, which came from breast cancer. Now there is good news to this story as well, however I absolutely lost it. I think I became psychotic. My whole perception of life and what I expected for the future was ruined.

I never expected life to be fair, but I never thought it would destroy me like this. I became so depressed. I am still struggling with it. But things are getting better and I'll make another post somewhere about the good news in my life soon.

I just wish it was never like this. I wish that what I thought about happening in the future was true. And even though I'm getting better, this topic still crosses my mind sometimes. I think about what if this gets worse and I can't bear it anymore. I really hope there is meaningful treatments in the future and I hold up until then. I want to get my life together and live happily. I'm still scared though, but I hope I make it.

I just wanted to share since I've been thinking about this topic again. I hope I don't reach that point.

Thanks for whoever listened.

We are always here to listen @asey20. I'm sorry to hear that you have had such a hard time and I hope your mother makes a full recovery.

Tinnitus has many ups and downs early on so please don't be despondent if you are having a bad week with it. The fact that you were feeling better previously is excellent progress -- please hold on to this.

I know it is hard, but have you considered taking some time away from this forum, or at least from the support section? It's natural to seek reassurance on here, but you will also come across a lot of posts from us severe sufferers that may feed your health anxiety. You are incredibly new to Tinnitus and have already reported such positive improvements -- I think you are worrying prematurely about this being a long term condition for you.

Stay strong

 

[asey20]

We are always here to listen @asey20. I'm sorry to hear that you have had such a hard time and I hope your mother makes a full recovery.

Tinnitus has many ups and downs early on so please don't be despondent if you are having a bad week with it. The fact that you were feeling better previously is excellent progress -- please hold on to this.

I know it is hard, but have you considered taking some time away from this forum, or at least from the support section? It's natural to seek reassurance on here, but you will also come across a lot of posts from us severe sufferers that may feed your health anxiety. You are incredibly new to Tinnitus and have already reported such positive improvements -- I think you are worrying prematurely about this being a long term condition for you.

Stay strong

Thanks for this post.

My mom is doing much better now. She had successful brain surgery to remove the tumour that had spread. Thankfully, she was under the care of a very skillful neuro surgeon at a very good hospital. She recently had a CT and its all clear. She also had a 50% reduction in size in the breast tumour, which is the origin of all this, after only 2 chemo treatments. The treatment has been very effective so far.

Honestly, it's these little things that make me happy and keep me going. The situation still sucks but I told her that we will both heal together. I hope I can be as strong as her.

Yeah. I've been planning on taking a break from this site from a bit, but it's hard when this has basically been my life the last month. I have seen improvements but I won't mention anything yet. I can say that my right ear still really bothers me though. I don't want to jinx it and I also feel guilty. I really hope for a treatment for all.

I know I'm prematurely worrying but I'm also not sure exactly when I got tinnitus. I just noticed it recently when it was really bad, however something could've been there before. It's hard for me to say, but I just wanna feel like I did before all this. It's also really hard for me to not worry when I always thought years into the future. However, recently I've just been trying to take it day by day.

I'll keep trying to take the small victories, but I still struggle immensely from time to time. Healing is slow.

 

[100Hz]

Stay strong minded @BrStan@ (and everyone). Very painful to read especially as you have kids, stay strong for them.

20 years ago, even 10 years ago I'd have felt hopeless but with the current momentum behind hearing regeneration, it's worth waiting to see how it goes for the next few years.

 

[Kriszti]

@PeteJ
Pretty simple... Just don't eat or drink anything starting now. 5-6 weeks you shut your eyes and don't wake up...

I'm only 3 months in - if not improved at 6, that's my plan.

I'd prefer something quick and relatively painless. We're suffering enough as it is. Also, if you start to starve yourself, in my country at least, someone would interfere, get you to a hospital, start on IV.

 

[dan]

My Last Letter To All The People With Tinnitus

Hi Dear Friends,

I am already planing my suicide. One year ago after MRI my tinnitus worsened and since then I have been disabled. One month ago the tinnitus worsened further. I have had tinnitus for 20 years that gradually became unbearable. I have 2 types of tinnitus, one is noise induced and the other is from Trigeminal Neuralgia. Both of them not treatable.

I would like to say thank you to the people that created Tinnitus Talk. They have done more than any doctor or scientist.

This condition was never taken seriously and this is our own fault. If any of us with tinnitus including me was fighting for a cure, some of us wouldn't have to kill ourselves and leave our families and all the lovely people we know devastated.

Remember if you want your voice to be heard you need to shout. Let everyone know how badly you are struggling. Use social media, use YouTube, create videos of how bad tinnitus can be.

If every person with tinnitus made their own video "Tinnitus - My Story", do you know how much awareness you would be creating?

Make the people who don't have a clue about tinnitus understand what you are going through.

Why do you suffer in silence? Does it not make you feel bad that there is a pill for everything but tinnitus? Are you not tired to be scared of every noise that can make it worse? You are not helping yourself this way. You need to be proactive. If every person with tinnitus let the world know how bad it is then things would be different.

If you happen to read this, you have the power to change things. You have the power to save lives. Don't just get better and go on with your life as there is no guarantee that down the line you won't be exposed to dangerous levels of noise or ototoxic substances or have head or neck injury and your tinnitus misery will start again. And because you had not been proactive, you did not donate to research, you did not advocate, and so when you come back to Tinnitus Talk you will find that nothing has changed in the tinnitus field. Welcome to the tinnitus hell again.

My last wish is to the people who are managing Tinnitus Talk to ask new and existing members if they feel comfortable creating short videos of what caused their tinnitus, how does it sounds, how they feel about it and what their doctor recommends.

My final words:

If there were more awareness of tinnitus, my story and many more could have been different. My son is 2 years old and my daughter is 16 years old. They could have still enjoyed their lives with their father. If you don't want that to be your story or someone else's, please protect your ears, donate for research, advocate, create awareness.

If all of us gave something from ourselves, we could change that "nothing could be done, go and learn to live with it".

I will now go and donate and after that I will create "Tinnitus - My Story" video.

I will then take my own life to stop this torture.

Son, daughter, wife, mother, please forgive me.

Hi there, could you describe your tinnitus for the record?

Perceived loudness, type of sound(s), maskability, reactiveness... etc.

How long have you had the latest level?

 

[bobvann]

We don't know what happens to us when we die? What if we're dead and still have tinnitus?

With my luck this will be most likely the case

 

[Tanni]

Hi there, could you describe your tinnitus for the record?

Perceived loudness, type of sound(s), maskability, reactiveness... etc.

How long have you had the latest level?

For what reason?

 

[Michael01]

I can admit I understand where they are coming from. My tinnitus feels like it's sucking all the enjoyment out of life, and I don't know where to go from here, although it's early days for me yet, but still I just don't know what I'm going to do.

 

[Adaś]

Why do you suffer in silence? Does it not make you feel bad that there is a pill for everything but tinnitus? Are you not tired to be scared of every noise that can make it worse? You are not helping yourself this way. You need to be proactive. If every person with tinnitus let the world know how bad it is then things would be different.

If you happen to read this, you have the power to change things. You have the power to save lives. Don't just get better and go on with your life as there is no guarantee that down the line you won't be exposed to dangerous levels of noise or ototoxic substances or have head or neck injury and your tinnitus misery will start again. And because you had not been proactive, you did not donate to research, you did not advocate, and so when you come back to Tinnitus Talk you will find that nothing has changed in the tinnitus field. Welcome to the tinnitus hell again.

My last wish is to the people who are managing Tinnitus Talk to ask new and existing members if they feel comfortable creating short videos of what caused their tinnitus, how does it sounds, how they feel about it and what their doctor recommends.

@BrStan@ please hang in there. I completely understand how you feel, but please don't end it yet. There is hope and there is some purpose in this torment i.e. to save others from this horrific condition. I completely agree with you that we need to shout in order to be heard, and I am upset that we (tinnitus sufferers) are so quiet and passive. Depending on the severity we either try to ignore and keep living and working, and when/or until it gets unbearable we start to contemplate suicide.

Apparently just a few try do to something to actually move things a bit forward, but this is far from enough. Notable example - we are stuck in this thread, two pages... 10 months... and we did not reach anyone. But we keep the gears turning in few threads in Research News section, despite us having negligible or no impact on the research.

Come on, why we cannot get a one single celebrity in this crazy world to raise some awareness!? We should be posting YouTube videos, tweeting about this horrible condition, wearing T-shirts "I have tinnitus and it sucks. Thank you modern world." etc. instead withdrawing ourselves from the society.

 

[GBB]

I am on day 42 after an acoustic trauma. Although my tinnitus was a bit more well behaved the last few days today I took a nap and when I woke up it was one of the loudest I've ever heard. This is the sound of a finger going around a wine glass but being played at an uncomfortable level in my ears loud, like a microphone. It genuinely makes me fear for my life.

Mine is really all over the place and in both ears. Just posting to try to calm myself down.

Does anyone know of someone for whom it was still really bad at 6 weeks but it eventually settled? Just really scared when this is one of the loudest days I've had...

 

[ShaunR]

I can't deal with the pain from hyperacusis anymore. I think tonight may be the night I leave this mortal coil for peace.

I'm sorry for the negativity. I just want peace. I can't deal with this anymore.

Shaun

 

[glynis]

Life with tinnitus can be hell on earth 24/7.

Mild tinnitus can be a monster and just as hard to cope as well. Our threshold varies and no two people are the same.

People ask me if tinnitus can get better and yes it can for some people but can be torture for many others as it is for me.

Without my hearing aids I have felt like giving up on life but life can change so much for the better.

I have a fulfilling life and lovely family and grandsons and a job taking care of some wonderful people who are dealing with lots of issues, who don't know what's going on, whom they are and a lot more.

I'm so glad I never gave up on life because I love my life.

I live 24/7 with severe bilateral tinnitus due to Meniere's Disease but hearing aids and medication help me cope.

Finding your own way to cope and adapting to this crazy sound in our ears takes time.

You deserve a life and deserve to be happy, so push hard even on low days and try not let the low mood win the day.

Love Glynis x

 

[glynis]

I now have Parkinson's disease

Love you Dave xxx

 

[bobvann]

As Dave says, he suspects Parkinson's is related to tinnitus. I can see it since it keeps one's nervous system in constant stress.

 

[Jazzer]

Love you Dave xxx

Thank you so much
Lovely Lady xxx

 

[Kendra]

Apparently just a few try do to something to actually move things a bit forward, but this is far from enough. Notable example - we are stuck in this thread, two pages... 10 months... and we did not reach anyone. But we keep the gears turning in few threads in Research News section, despite us having negligible or no impact on the research.

Come on, why we cannot get a one single celebrity in this crazy world to raise some awareness!? We should be posting YouTube videos, tweeting about this horrible condition, wearing T-shirts "I have tinnitus and it sucks. Thank you modern world." etc. instead withdrawing ourselves from the society.

I actually posted in Awareness / Fundraising part of Tinnitus Talk about if anyone was or knows of a graphic designer that could make T-Shirts and we could sell them and give the funds either to Tinnitus Talk or another charity/organization working on tinnitus or restoring hearing.

But NO ONE commented. For those who are able, need to raise more awareness. We can't expect others not in this condition or a celebrity to do it for us.

We must take action but it's going to take a joined effort on our part to make impact.

 

[jasonbourne]

Thank you so much
Lovely Lady xxx

I just had a diagnosis of diabetes and I'm not even fat. I'm so fucking done, I can't imagine knowing I had Parkinson's.

 

[PeteJ]

I don't know of anyone claiming they have severe tinnitus saying it got better.

 

[Pero1234]

This thread scares me. I don't check it often but sometimes I make the mistake of going back here. I just stopped thinking about this topic for a week and was feeling better and now I'm starting to think about this again.

Hi Asey20,

If you do feel the urge of visiting the forum again... why not try the success stories section for some hope.

It really supported me in those dark, depressing and anxious first months.

And if you need some scientific hope, there is the FX-322 thread of Frequency Therapeutics under Research News. And the excellent Tinnitus Talk Podcast, check it out.

 

[Pero1234]

Coming here in the support section for the first time in over a year made me choke up and shed some tears. Not for me but for you all.

Reading your stories made me remember what it feels like during those first few months. How hopeless and dark the world seems. And the fact that there is nothing we long-term sufferers can say or do that will help you directly... apart from telling you that life will eventually get better. Even with tinnitus.

And @glynis, you are a wonderful person, I see that after all these years you are still doing just that: encouraging people in this section like you did with me and countless others years ago. You deserve a medal! Thank you!

I am here to share some hope too...

Since about 1.5 years after my acoustic trauma, I have most of my life back... job, family, friends... I can enjoy a movie, a game, even a book sometimes. A movie at the theatre is possible with my custom ear plugs.

I still feel sad and disappointed from time to time... but no longer depressed or anxious. And it does no longer affect my quality of sleep.

It may be very hard to believe at this point, but for most of us... the brain adapts enough to tune out tinnitus during most activities, allowing you to have something resembling a fairly normal life.

In the meantime:

Be kind to yourself...
Forgive yourself...

And seek out anything that comforts you... whether it's the company of friends or pets, crying for as long as is needed, spending some time in the Tinnitus Talk success stories section, diving into the scientific episodes of the Tinnitus Talk Podcast (Frequency Therapeutics one gave me hope), starting yoga or meditation or ACT / CBT therapy to help you take your mind off tinnitus.

Just don't give up...

Good luck

 

[asey20]

Hi Asey20,

If you do feel the urge of visiting the forum again... why not try the success stories section for some hope.

It really supported me in those dark, depressing and anxious first months.

And if you need some scientific hope, there is the FX-322 thread of Frequency Therapeutics under Research News. And the excellent Tinnitus Talk Podcast, check it out.

Hi, I've been visiting the forum less lately but I still do visit. I'm constantly in a state between either massive improvements or huge panic in my life, but I guess this is better than before. Unfortunately, I am experiencing a lot of other symptoms than just tinnitus and it is going to take a while to find some answers.

I have already read every success story and they are nice to hear. I also know that there is a lot of research going on. I hope that means that there will be something to help stop this thing completely in the future.

I'm just tired at this point tho. I'll probably continue to visit this forum less and less. I'm trying to get better. I want to live a good life. I'm just scared of the unknown.

Thanks for the response.

 

[Michael01]

I'm just scared of the unknown.

I second you there. I'm extremely scared of the unknown at the moment, as I keep developing new symptoms and no-one can tell me what's going on here. It feels like the only thing I can do at the moment is sleep that isn't affected by my ears and I'm not sure where to go from here.

 

[GBB]

Coming here in the support section for the first time in over a year made me choke up and shed some tears. Not for me but for you all.

Reading your stories made me remember what it feels like during those first few months. How hopeless and dark the world seems. And the fact that there is nothing we long-term sufferers can say or do that will help you directly... apart from telling you that life will eventually get better. Even with tinnitus.

And @glynis, you are a wonderful person, I see that after all these years you are still doing just that: encouraging people in this section like you did with me and countless others years ago. You deserve a medal! Thank you!

I am here to share some hope too...

Since about 1.5 years after my acoustic trauma, I have most of my life back... job, family, friends... I can enjoy a movie, a game, even a book sometimes. A movie at the theatre is possible with my custom ear plugs.

I still feel sad and disappointed from time to time... but no longer depressed or anxious. And it does no longer affect my quality of sleep.

It may be very hard to believe at this point, but for most of us... the brain adapts enough to tune out tinnitus during most activities, allowing you to have something resembling a fairly normal life.

In the meantime:

Be kind to yourself...
Forgive yourself...

And seek out anything that comforts you... whether it's the company of friends or pets, crying for as long as is needed, spending some time in the Tinnitus Talk success stories section, diving into the scientific episodes of the Tinnitus Talk Podcast (Frequency Therapeutics one gave me hope), starting yoga or meditation or ACT / CBT therapy to help you take your mind off tinnitus.

Just don't give up...

Good luck

Did the level of your tinnitus go down at all? Every day is excruciating for me. I feel so numb and disassociated from myself. Without some reduction I will not be able to habituate, I am sure.

 

[BuzzyBee]

Hi, I've been visiting the forum less lately but I still do visit. I'm constantly in a state between either massive improvements or huge panic in my life, but I guess this is better than before. Unfortunately, I am experiencing a lot of other symptoms than just tinnitus and it is going to take a while to find some answers.

I have already read every success story and they are nice to hear. I also know that there is a lot of research going on. I hope that means that there will be something to help stop this thing completely in the future.

I'm just tired at this point tho. I'll probably continue to visit this forum less and less. I'm trying to get better. I want to live a good life. I'm just scared of the unknown.

Thanks for the response.

Yes, this about sums it up for me too. It just gets exhausting.

 

[Bill Bauer]

Did the level of your tinnitus go down at all? Every day is excruciating for me. I feel so numb and disassociated from myself. Without some reduction I will not be able to habituate, I am sure.

When did your tinnitus turn on?

 

[GBB]

I feel like I have two people on either side of me blowing a dog whistle into my ears 24/7 and it's been 45 days. This is literally insane! I have tried every supplement to no avail. I'm starting to crack and have tremors from stress, nightmares - goes without saying I need meds to sleep. I do not know how anyone could get used to this - I feel as though I have the 1% of tinnitus where if there is no improvement death is a foregone conclusion. The pitch it insanely high and non-stop. I feel like I'm going to vomit and honestly I want to fight but this is breaking me down.

I do not know how I can keep enduring this for only a chance at improvement. I'd rather have cancer honestly.