I'm so ill that physical exercise is impossible. The only thing I can do is walks with protection, but they help very little. I'm really desperate. I have nothing left against this monster.
Hi friend, I am sorry you are suffering so much. My X, who I'm still close to, has Myasthenia Gravis, it's an unusual autoimmune illness. She lives in London and has been getting periodic injections that seem to help. I will ask her and try to get a lead on her doctors. Maybe some possible help. I'll call her tonight.
Hey bud - really good to hear from you too. Very sorry about the worsening hearing loss. I'll keep you in mind and be hoping for the best.
I do want to paint my green Peltor earmuffs black so they look like headphones. I just need to figure how to cover the "3M" that is molded in the ear pieces so it's more believable.If you got winter all year round, you could have earmuffs under a hood and just look a little bit dodgy?
I want to paint my green Peltors too. I tried to paint a plastic chair yesterday and the result was... not so good. I used a primer and spray paint.
Yup, I figured as much. Seems there's always a catch with tinnitus and hyperacusis. My experience so far, at least. With treatments, trying something—anything—is really scary, to be honest... like playing a deadly game. You might get burned and you might get burned hard…to what extent is unknown. And there's a good chance it'll be bad. Most of my worsenings have been permanent. Not first-degree burns, like superficial sunburns with blisters and such. Those heal. I'm talking fourth-degree, where it penetrates both layers of the skin and destroys the nerve endings. That's what it's been like for me. Seems I've used up my 9 lives or something, or I've run out of resilience, or I'm super sensitive. I dunno. That's why it often feels hopeless.
I have no idea what you are talking about.
That is the absolute worst sound for me as well. Even worse than dogs barking. It's so painful, even with protection, I think of killing the one pulling the cart for a split second.
@grate_biff, that sound bothers me a lot, too, even with protection. It's just so shrill. Going to the supermarket is scary indeed. I definitely have to protect, but it's too torturous to hear the tinnitus a lot louder when I do. Are you still using Trobalt? I saw a post where you said you had boxes of it.
I'm always on edge too with that noise. I'm like Spider-Man doing backflips just to get away lol.
Yea, even with 26SNR earplugs I jump. I stand back as far as I can and wait for everyone to get their carts, but someone always comes up and grabs one full-force while I'm in the middle of carefully pulling my cart out. I don't understand how they don't see me being careful and don't realize that maybe they shouldn't be slamming shit.
This condition is diabolical precisely because of that. The same treatment or medication can have opposite effects on different people and this means that if you are already on the verge of the abyss you can't try anything. Or the few things we could try, they are in the hands of insensitive researchers who move slowly through molasses with zero sense of urgency. This is the most misunderstood condition in human history. As we said many times, we would need the whole world population or perhaps just the medical establishment and research to get catastrophic tinnitus, hyperacusis and noxacusis for one week, with the instilled fear that it could come back any minute. We might not have a cure, but for sure research would move at a much higher speed and we would have decent treatments much sooner.
Electrolux Ultra Silence!
Yup a normal one, even allergy bags available!
I looked it up, and there is a model called the UltraSilencer Zen that is rated at 58 dB.
Looks like it's an "updated" model.
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