Suicidal

[Daniel Lion]

But the unique blend of torture, unknowns, debilitation, zero societal understanding, it's extremely hard to compete with hyperacusis.

I agree. I am representing team hyperacusis in the rock diving competition at the next suicide games.

 

[high frequencies]

@PeteJ, you could try this stuff. It fizzes when you add to hot water. I use a Kuerig. I had horrible static the last few days and it seemed to help. I also got my clonazepam refill today so not sure what all helped? My body was so stiff and sore also.

View attachment 38776

How long and how many mg per day do you take Clonazepam?

 

[just1morething]

How long and how many mg per day do you take Clonazepam?

My prescription is for .5mg twice per day. I usually take 300 or 600mg gabapentin with it. The Natural Calm says it helps if you have low magnesium levels. Seems to help me so far. Sure beats nasty static sound I had.

 

[PeteJ]

Have you gotten a CT scan to rule out TMJ or seen a neurologist regarding trigeminal neuralgia? I think you might actually be able to treat your tinnitus now, because based off your symptoms I'm not entirely convinced your tinnitus is cochlear.

If it is, you should see a reduction with regenerative medicine, but if this is a severe case of TMJ then you likely could find relief much more quickly if we can get you a proper diagnosis. A CT scan would be the first step.

I think CT scans are too loud.

 

[PeteJ]

Forgive my memory, but what caused your issue in the first place? Your problem doesn't sound like standard tinnitus; I wonder if certain tests could reveal a physical issue.

Have you tried magnesium, Neurontin, B12, Ginkgo Biloba? Do NSAIDs help the pain?

I Take drinks and food with B12. I take magnesium supplements.

My tinnitus started after acoustic trauma.

 

[Kriszti]

I think CT scans are too loud.

Have you tried a CT? Because I was told that they are not loud and other than radiation they are not a threat. I'm planning to get a HRCT hoping that it will give me information about the bones in my middle ear.

 

[Orions Pain]

I think CT scans are too loud.

I had one yesterday, they're not loud. The doors slamming in the hospital and people directing the parking lot were louder.

 

[HootOwl]

I think CT scans are too loud.

Unlike MRIs, CT scans are supposed to be very quiet. Just confirm with the tech beforehand that there is no added music or anything playing. I believe @FGG had one done and said it wasn't loud at all.

 

[PeteJ]

Have you tried a CT? Because I was told that they are not loud and other than radiation they are not a threat. I'm planning to get a HRCT hoping that it will give me information about the bones in my middle ear.

No, I haven't.

 

[FGG]

Unlike MRIs, CT scans are supposed to be very quiet. Just confirm with the tech beforehand that there is no added music or anything playing. I believe @FGG had one done and said it wasn't loud at all.

Mine wasn't loud. Especially the upright one used for TMJ diagnostics. I can't remember how loud the more general one was (might be more useful if looking at the entire facial structure). Maybe someone else knows?

 

[PeteJ]

Unlike MRIs, CT scans are supposed to be very quiet. Just confirm with the tech beforehand that there is no added music or anything playing. I believe @FGG had one done and said it wasn't loud at all.

Hmmmm... :-/

I could have got one before. Now, I would have to visit my Dr first?

 

[PeteJ]

I had one yesterday, they're not loud. The doors slamming in the hospital and people directing the parking lot were louder.

I just had some strange chest pain thing happen and I decided not to go to the ER because of the noise in hospitals. I think the periodic beeping would bother me the most besides the wait.

 

[Orions Pain]

I just had some strange chest pain thing happen and I decided not to go to the ER because of the noise in hospitals. I think the periodic beeping would bother me the most besides the wait.

How about foam plugs or muffs? Hospitals aren't super crowded right now due to COVID-19.

If your hearing sensitivity is 10/10 I'd suggest foam plugs because you will have to talk to techs, check in clerks, etc and deal with general noises. The CT scan room had a radio playing when I went in kinda loud and like I said nurses yelling to each other/doors slamming was louder than the actual scan itself.

It lasted about 2 minutes or so.

 

[Orions Pain]

How is hyperacusis even a real thing!! It truly takes away all the joys of life. I can't do anything without my ears feeling like they're on fire.

It's gotten to the point where I saw someone who lost both of her legs and my first thoughts were at least she can still do fun things, work, travel, go out and have a nice dinner with family.

I can't stop thinking about just finding a high rise hotel, downing a bottle of something and making the jump. I don't feel like I have anything to live for and I refuse to spend my life locked up in a room in silence. I've never felt misery like this.

I'll never be able to have kids after this crap. I am already missing birthday celebrations. I haven't even been to Europe yet and was finally stable enough in my career to be able to travel abroad. I've only been out of college for 3 years and life already beat me down so much. I'm having to quit my job and have no idea what I can do for a living. Virtually EVERYTHING that people look forward to and brings them happiness in life is off the table for me. Growing a career, dating, getting married, having kids, vacations, celebrations, seeing friends, travel. Even people who are bed bound can at least watch TV and listen to music. I can't even enjoy a Book because my Visual snow makes the letters look all weird.

I can't take it, I want out. Too bad there aren't any tall buildings in the area

Sounding like a broken record at this point. Sorry you guys all have to read my endless whining

 

[Lucifer]

How is hyperacusis even a real thing!! It truly takes away all the joys of life. I can't do anything without my ears feeling like they're on fire.

It's gotten to the point where I saw someone who lost both of her legs and my first thoughts were at least she can still do fun things, work, travel, go out and have a nice dinner with family.

I can't stop thinking about just finding a high rise hotel, downing a bottle of something and making the jump. I don't feel like I have anything to live for and I refuse to spend my life locked up in a room in silence. I've never felt misery like this.

I'll never be able to have kids after this crap. I am already missing birthday celebrations. I haven't even been to Europe yet and was finally stable enough in my career to be able to travel abroad. I've only been out of college for 3 years and life already beat me down so much. I'm having to quit my job and have no idea what I can do for a living. Virtually EVERYTHING that people look forward to and brings them happiness in life is off the table for me. Growing a career, dating, getting married, having kids, vacations, celebrations, seeing friends, travel. Even people who are bed bound can at least watch TV and listen to music. I can't even enjoy a Book because my Visual snow makes the letters look all weird.

I can't take it, I want out. Too bad there aren't any tall buildings in the area

I feel the same too. I recently just graduated from University and got my first job then hyperacusis took that away from me and I had to quit because I found the office way too loud.

Depending on how long this lasts before FX-322 comes out, I may never be able to work in the field I graduated in. I would be so behind in growing my career, dating life, moving out of my parents house, getting married, having kids etc. It is depressing but what gives me hope is Audion Therapeutics and FX-322.

 

[Bill Bauer]

I can't do anything without my ears feeling like they're on fire.

What if you wear earplugs or muffs over earplugs?

 

[serendipity1996]

I feel the same too. I recently just graduated from University and got my first job then hyperacusis took that away from me and I had to quit because I found the office way too loud.

Depending on how long this lasts before FX-322 comes out, I may never be able to work in the field I graduated in. I would be so behind in growing my career, dating life, moving out of my parents house, getting married, having kids etc. It is depressing but what gives me hope is Audion Therapeutics and FX-322.

Same. I just graduated in November and now I feel kind of stuck with regards to job-hunting. I could probably handle a quiet office environment but due to current circumstances ie COVID-19 my job-hunting has kinda stalled. Another thing that makes me anxious is the thought of having to potentially do job interviews via video call... which would spike my hyperacusis symptoms what with artificial audio being an issue. Or just generally having to work via Zoom.

God regeneration medicine couldn't come soon enough.

 

[Orions Pain]

What if you wear earplugs or muffs over earplugs?

They burn in silence.

 

[Orions Pain]

I feel the same too. I recently just graduated from University and got my first job then hyperacusis took that away from me and I had to quit because I found the office way too loud.

Depending on how long this lasts before FX-322 comes out, I may never be able to work in the field I graduated in. I would be so behind in growing my career, dating life, moving out of my parents house, getting married, having kids etc. It is depressing but what gives me hope is Audion Therapeutics and FX-322.

I'm not too optimistic that any of these will help me as it seems to be developing into a Trigeminal nerve issue.

Haven't seen too many success stories with my type of issues.

I'm sorry you're also having to deal with the same issue I don't wish this on anyone. Endless torture with no help.

 

[Lucifer]

Same. I just graduated in November and now I feel kind of stuck with regards to job-hunting. I could probably handle a quiet office environment but due to current circumstances ie COVID-19 my job-hunting has kinda stalled. Another thing that makes me anxious is the thought of having to potentially do job interviews via video call... which would spike my hyperacusis symptoms what with artificial audio being an issue. Or just generally having to work via Zoom.

God regeneration medicine couldn't come soon enough.

We have definitely got this shit at the wrong fucking time. I just hope FX-322 ends up working for us. I still believe once the outer hair cells restore it should stop sending pain signals to the type 2 nerve fibres.

 

[Lucifer]

I'm not too optimistic that any of these will help me as it seems to be developing into a Trigeminal nerve issue.

Haven't seen too many success stories with my type of issues.

I'm sorry you're also having to deal with the same issue I don't wish this on anyone. Endless torture with no help.

Definitely endless torture. I would do anything to get rid of it. What keeps me going each day is FX-322. What scares me the most is once it comes out it may not work for me. When that happens not too sure what I would do.

 

[MrCrybaby]

I'm not too optimistic that any of these will help me as it seems to be developing into a Trigeminal nerve issue.

Haven't seen too many success stories with my type of issues.

I'm sorry you're also having to deal with the same issue I don't wish this on anyone. Endless torture with no help.

Because of the way the nerves pass through the brain, the trigeminal nerve is often irritated by noise injury. Unless you have done damage to the nerve itself separately from acoustic trauma I think regeneration could potentially help you.

 

[serendipity1996]

We have definitely got this shit at the wrong fucking time. I just hope FX-322 ends up working for us. I still believe once the outer hair cells restore it should stop sending pain signals to the type 2 nerve fibres.

Yes me too - I know there's not a lot of certainty over whether it will help pain hyperacusis but I am still optimistic as at the end of the day it all comes down to hearing loss which triggers it.
Idk how to feel about the Audion results but I am still positive about Frequency. I mean Frequency's CEO basically dissed Audion's method of retrofitting an existing support cell into a hair cell.

 

[RishRamsey]

Same. I just graduated in November and now I feel kind of stuck with regards to job-hunting. I could probably handle a quiet office environment but due to current circumstances ie COVID-19 my job-hunting has kinda stalled. Another thing that makes me anxious is the thought of having to potentially do job interviews via video call... which would spike my hyperacusis symptoms what with artificial audio being an issue. Or just generally having to work via Zoom.

God regeneration medicine couldn't come soon enough.

Oh god I relate with you guys so much. Graduated university, and hyperacusis lol. And that too severe. It's kinda funny lol

 

[serendipity1996]

I'm not too optimistic that any of these will help me as it seems to be developing into a Trigeminal nerve issue.

Haven't seen too many success stories with my type of issues.

I'm sorry you're also having to deal with the same issue I don't wish this on anyone. Endless torture with no help.

I wonder if medications prescribed for trigeminal neuralgia could potentially help us. Or nerve blocks or something.

 

[Harley]

We have definitely got this shit at the wrong fucking time.

Amen to that.
I suspect that funding of anything deemed "not important" (such as tinnitus, thanx to the pro-habituation crowd) might now be put on the back burner, because of the global recession that is coming our way...

 

[HootOwl]

Hmmmm... :-/

I could have got one before. Now, I would have to visit my Dr first?

I'm not sure how it would work since you're in Canada but I called around to different dentists in the area to see if they had an upright CT. I never saw my GP.

 

[Contrast]

I am so angry that people on this forum struggle to get diagnosed with facial nerve pain that is triggered by noise. This problem is so obvious to many of us. I had experienced it personally and still do. I am surprised it is not medically recognized.

The ENT says see a orthodontist. The orthodontist says see a ENT. It's a circular loop that obviously requires cross discipline research that was neglected. Loud noise damaging the inner ear can trigger some kind of facial nerve disorder. Scientists need to research this shit.

 

[bobvann]

My wife had a stand up CT in the dental office she works for...

 

[FGG]

I'm not sure how it would work since you're in Canada but I called around to different dentists in the area to see if they had an upright CT. I never saw my GP.

An upright CT is mostly used by dentists to evaluate TMJ though. If his issues are more complex, and may involve other facial nerves, he may need more of the regular kind, no?