Suicidal

[TheDanishGirl]

You don't have to involve your doctor at all. All you need is someone that can verify your identity.

I am a Pegasos benefactor and have filled out all the forms, but I have not sent it or paid the initial $5.000 (yet).

Trust me, if you wish to die and have the money, Pegasos will help you no questions asked.

What's the initial money for? Do you get it back if your application is rejected?

The absolute worst part is how nobody (but those who suffer from it) gets these conditions. Some people say reach out for help if you're hurting. I have spoken to several doctors, therapists, and other medical professionals (audiologists and such) since getting tinnitus and hyperacusis and NOBODY believes me, when I tell them how bad it is. They keep implying that it's all in my head, and that it's my anxiety that's causing it. B*******. Nobody gets it. You're completely detached from everybody else, imprisoned with tormenting conditions that nobody can even remotely grasp the severity of.

Plus at this point I can't talk on the phone as it gives me pain. I can hardly talk, so how the hell am I supposed to get proper help?!

These conditions are without a doubt the absolute worst in the world. Not to say there are not other very painful conditions but none that I can think literally reduces your life and ability to nothing, AND at the same renders you unable to receive proper sufficient support, when it gets so bad that you're not even able to speak up about your torment, due to ear pain from speaking. You can't even cry or shout out your pain. Today I started bawling but I had to suck it up and stop quickly, because it hurt my ears bad to cry and also began to spike my tinnitus. Any slightly intelligent human being will know that this is not even remotely a sustainable situation to be in. This plague will torment and push me over the cliff, and there is nothing I can do about it. It would take a miracle and I'm not exactly a believer, so... As @Zugzug says, these conditions are a joke that I still can not believe, and makes me furious to the point where I really WANT to finish myself off, because if human design is this pathetic, it deserves to be destroyed.

 

[roy1159]

You don't have to involve your doctor at all. All you need is someone that can verify your identity.

I am a Pegasos benefactor and have filled out all the forms, but I have not sent it or paid the initial $5.000 (yet).

Trust me, if you wish to die and have the money, Pegasos will help you no questions asked.

Great. I guess the bunch of money I have saved in order to start my life will have its use at last. I will use this money to my last dime so I can have peaceful death to get myself a ticket out of this torturous miserable existence.

It gets more ridiculous every time I think about it, but if someone had told me I would end up in this state and ultimately would have no choice but to end my life at 21 because of working couple of years in a café - I would have burst out laughing.

 

[grate_biff]

What's the initial money for? Do you get it back if your application is rejected?

A VAD at Pegasos costs ~ €10,000. This is paid in 2 installments. The first (called the deposit) when you apply for a VAD. The second, no later than 4 weeks prior to your VAD date. If you do not go ahead with the VAD for whatever reason, Pegasos will refund your deposit (less up to €1500 for costs incurred by us to that point).

If you do not go ahead with the VAD for whatever reason, Pegasos will refund your deposit (less around €1500 for the exact costs incurred to the point at which you withdraw). To be very clear, Pegasos will attempt to pay you back no less than €3500 if you do not go ahead with the VAD for any reason unless you have requested otherwise.

I still wish VAD but I can't afford it and I have to accept that. It's a pipe dream for me to somehow obtain €10,000 Euros.

At Pegasos we philosophically believe that no one should be prevented from a VAD with us, simply because they lack the financial resources. Pegasos hopes that by late 2021 we will be in a position to provide financial assistance to those who would hitherto be prevented from a VAD at our clinic.

FAQs - Pegasos Swiss Foundation

 

[AliasM]

I am sorry for everyone in this thread and your suffering.

I can't get doctors to take me seriously either. I had a GP laugh at me last week when I was telling him about my symptoms. This was a new GP I was hoping to build a relationship with because my GP doesn't understand tinnitus and has never heard of hyperacusis. There was nothing funny in what I said. I was not making light humor. I don't know what it was about the explanation of my condition he found amusing. My ENT said all my symptoms were psychological, and when my anxiety was sorted out, the ear symptoms, vestibular symptoms, and head pressure symptoms would follow. That advice cost me over $400.

We are a joke to the medical profession.

Why do you not want to try the full bed rest treatment for perilymph fistula when it could not harm you in any way even if you didn't have a PLF?

I wasn't aware of the protocol but I will look it up. There is something active going on in my head though. Yesterday I bent over to take my toddler's shirt off and my ears instantly blocked. This morning I bent over after my shower to put on underwear and same thing happened. Full bed rest is difficult with 4 children. I applied for home assistance (someone to come clean, help around the house, help with the kids etc for those with disability) but I was denied because my doctor wrote that I have a non permanent condition.

Life is torture and there is no medical help at all. I am receiving no support or treatment from anyone in the medical profession.

What a shithole of a life. Can't tolerate any noise whatsoever, but in an effort to get a diagnosis and maybe stand a chance of eventually getting disability with a lawyer, I am leaving my house on Wednesday for the first time in a year for a 7 hour round trip car ride.

I will be double protected, two sound blankets, multiple mass-loaded vinyl pieces for the floor, rest stops planned out.

I am glad you are well prepared. I travelled 9 hours by car to see said ENT I mentioned above. There was no way I could fly with my ears, but he came highly recommended. The trip was incredibly difficult. As passenger, I had earplugs, earmuffs and 2 pillows on each side of my head but the road noise and passing trucks was still incredibly loud and painful. My whole brain was hissing and ringing off the charts.

Do you mean your doctor will not prescribe you benzos and steroids? If so, that is just neglectful.

 

[Backpacker]

I wasn't aware of the protocol but I will look it up. There is something active going on in my head though. Yesterday I bent over to take my toddler's shirt off and my ears instantly blocked. This morning I bent over after my shower to put on underwear and same thing happened. Full bed rest is difficult with 4 children.

I explained everything to you one month ago. You said you would try. Obviously you didn't. I told you to avoid bending over (to avoid increase in intracranial pressure) and I told you to sleep on two pillows during the night so your head would stay elevated during the night, too. The point is to prevent any increase in intracranial pressure in order not to put pressure on the inner ear, so your injury could have time to try to heal.

I also told you to drink Dandelion root tea because it is a natural diuretic, but it doesn't matter if you are going to cause raise in ICP to yourself every day by bending over or anything similar.

I also told you to avoid excessive straining of any kind to avoid raise in ICP, but again, if you are going to keep bending over and do other things that raise intracranial pressure (excessive crying, excessive coughing or similar), I can't help you. You have to avoid everything that causes temporary increase of intracranial pressure for at least a month if you want to give your injury a chance to heal or at least improve.

 

[AliasM]

I took your advice and am doing most of those things. Sometimes I forget... like when my toddler got chocolate milk everywhere and I instinctively bent down to take his shirt off without thinking.

 

[Forever hopeful]

I explained everything to you one month ago. You said you would try. Obviously you didn't. I told you to avoid bending over (to avoid increase in intracranial pressure) and I told you to sleep on two pillows during the night so your head would stay elevated during the night, too. The point is to prevent any increase in intracranial pressure in order not to put pressure on the inner ear, so your injury could have time to try to heal.

I also told you to drink Dandelion root tea because it is a natural diuretic, but it doesn't matter if you are going to cause raise in ICP to yourself every day by bending over or anything similar.

I also told you to avoid excessive straining of any kind to avoid raise in ICP, but again, if you are going to keep bending over and do other things that raise intracranial pressure (excessive crying, excessive coughing or similar), I can't help you. You have to avoid everything that causes temporary increase of intracranial pressure for at least a month if you want to give your injury a chance to heal or at least improve.

Whether intentional or not, your post sounds like you are scolding @AliasM. I am not sure that is helpful.

 

[roy1159]

Life is really unfair.

I wonder what I did different than my peers/people my age to end up like this. All it takes for it is a couple of years of working in a café? Am I the only teenager that worked at a noisy place?! And assuming someone has similar hearing levels and nerve function like I do (which are normal lmao), how come I'm the only one with a sudden auditory processing issues? People with traumatic brain injury don't even end up like this. The most frustrating aspect of it is that my life is doomed beyond repair and there is nothing I can do about, not a single thing.

My entire hearing mechanism is shattered and I get no answer why as the tests show there is nothing abnormal to coincide with the severe symptoms.

Help is really a decade away at best, I don't get why people fall here to false optimism, I guess it has to do with how desperate we are and the fact that things are finally being worked on.

We get one life and mine has already been shattered before I even started my adult life. I refuse to be disabled like this for any longer. I'm tired of life passing by me and seeing everyone my age live a normal life, not being debilitated by hearing issues that apparently can be so severe if you work a miserable job couple of years at a café.

Joke of a life really.

 

[Chinmoku]

What a shithole of a life. Can't tolerate any noise whatsoever, but in an effort to get a diagnosis and maybe stand a chance of eventually getting disability with a lawyer, I am leaving my house on Wednesday for the first time in a year for a 7 hour round trip car ride.

I will be double protected, two sound blankets, multiple mass-loaded vinyl pieces for the floor, rest stops planned out. The biopsy will take about 30 minutes. I'm taking benzos, but I'm so fucking scared of the setback I'm going to have. Last year at this time, just playing light music for an hour or two completely ruined me, to this day. My doctor says he will not prescribe steroids, even if I have a setback from this trip. He actually mocked me for asking about benzos and said that I was the first to ask for them, like I was some sort of fucking coward. He said it was like "going to the dentist." Total fucking privilege -- no grasp of this disability at all.

I guarantee it. I will have a setback. And everyone will say it's impossible because of NoRmAl AuDiOgRaMs. It's all a fucking joke.

I'm glad I was able to contribute on here, as I will probably be in a deeper state of torture. As my audiologist would say, maybe I'm going to speak this into existence by thinking about it LOL. You know, right? I'm a fucking mathematician, but I just said that my tolerance for music was exactly the nice round number of 40 dB. According to him, I thought about 41 dB and freaked out and that's why my hyperacusis went nuts. Yeah, I'm that fucking stupid. Ph.D. in math, but I think my tolerance is 40 dB on the nose.

This condition is a joke. I went from a well-respected, tenacious, ambitious, accomplished adult to this lousy piece of biological shit. Fuck it all.

Just to say that I hope you have not suffered too much during the trip and that the doctors have been reasonable. It takes a lot of courage to leave home with these conditions, I really hope it went ok.

 

[Zugzug]

Just to say that I hope you have not suffered too much during the trip and that the doctors have been reasonable. It takes a lot of courage to leave home with these conditions, I really hope it went ok.

Thank you. It actually was a very best case scenario. Not what I was expecting at all. We took 30-60 minute breaks after every hour of driving, had sound blankets, double protection; I sat in the backseat to be as far away from the engine as possible. I also took a nice amount of benzos, which probably reduced some of the nerve excitability.

The procedure itself was the easiest thing I've ever done. I swear to god, the doctor was a magician. She could literally perform these biopsies in her sleep -- I'm not kidding. Quick, quiet, painless. My brother came in with me and did all of the talking for me, as talking is a big cause of setbacks for me.

My wife was really patient, brought a book, and we took even longer breaks on the ride home. I also downed a boatload of curcumin, magnesium, and Nicotinamide Riboside after the appointment.

I could have a delayed setback, but it's definitely not this catastrophic situation that I was expecting when I played music last year. I think my hyperacusis is set back so much more from high pitched noises. The road noises were steady and low, which sets me back less.

Also, lots of luck. No one off noises or screaming kids. No car alarms going off in the garage. There were some noises here and there, but it was a best case scenario.

I'm really, really thankful. I needed that procedure, regardless of whether it rules in or rules out Sjogren's Syndrome. It should be informative either way.

 

[roy1159]

My parents want me out of the house. They think I'm housebound out of choice and that I'm even making all of this up lol... including my neuropathic pain which barely allows me to move. I have had enough of being a burden on myself and everyone around me and since my ear issues and other physical problems can't get any better I can't go on any longer.

At this point it's humiliating to even be alive, if this is my life at a stage where I have yet to start it, then I'm out of it.

 

[Leila]

I found CBD didn't do much for myself.

I've got to agree with @Matchbox's statement. CBD had an overall positive effect on me and my health e.g. it helped balancing my mood and made me sleep better but as far as my tinnitus is concerned, no change whatsoever.

 

[Leila]

My parents want me out of the house. They think I'm housebound out of choice and that I'm even making all of this up lol...

For somebody who has never experienced tinnitus or hyperacusis themselves it is something that's almost impossible to understand. I'm not trying to make excuses for your parents, but human beings have the unfortunate tendency to treat things they can't relate to, e.g. chronicle illnesses, with either disregard or - if acknowledgement can't be avoided - contempt. It's a means of self-preservation, I reckon, so we don't have to get to close to somebody else's pain. That doesn't make it any less painful for those affected, especially when it's your own parents who do so instead of offering their love and support.

I'm not sure what the "infrastructure" is in your home country for somebody who is in your kind of situation; whether you'd be entitled to social benefits, a place in an estate or young adult housing project,... because from the little I've learned about your situation, I feel it would do you a lot of good to get out of the toxic environment you're in. And not because it's what your parents want but to give you the kind of safe and low stress environment that's essential for you mental health at the moment.

If you haven't already, maybe get in touch with your GP, or psychologist, or community worker, or teacher, or whoever else you can think of who might be knowledgeable in this area and get them to help you to find out what kinds of options there are for you.

At this point it's humiliating to even be alive

It really is not! I might be painful and frustrating, and miserable and sad - but you're suffering from an illness, and being sick should never be something that's considered humiliating, and don't let anybody, not even your own inner voice, tell you otherwise!

 

[Chinmoku]

My parents want me out of the house. They think I'm housebound out of choice and that I'm even making all of this up lol... including my neuropathic pain which barely allows me to move. I have had enough of being a burden on myself and everyone around me and since my ear issues and other physical problems can't get any better I can't go on any longer.

At this point it's humiliating to even be alive, if this is my life at a stage where I have yet to start it, then I'm out of it.

I'm so sorry to hear this, you definitely don't need this on top of everything else.


Could you show your parents the news of Kent Taylor who committed suicide due to tinnitus? He was worth 600 million dollars and had a happy life, if severe tinnitus can do that to him maybe they would understand? The news had broad coverage so you might find them also in your home language, in case your parents don't understand English. If they understand English you could show them the video of Gaby Olthuis.

Maybe these cases would help them realise the severity of what we are facing.

 

[grate_biff]

The most frustrating aspect of it is that my life is doomed beyond repair and there is nothing I can do about, not a single thing.

I feel for you Roy. Have you tried any medication at all?

 

[Forever hopeful]

Life is really unfair.

I wonder what I did different than my peers/people my age to end up like this. All it takes for it is a couple of years of working in a café? Am I the only teenager that worked at a noisy place?! And assuming someone has similar hearing levels and nerve function like I do (which are normal lmao), how come I'm the only one with a sudden auditory processing issues? People with traumatic brain injury don't even end up like this. The most frustrating aspect of it is that my life is doomed beyond repair and there is nothing I can do about, not a single thing.

My entire hearing mechanism is shattered and I get no answer why as the tests show there is nothing abnormal to coincide with the severe symptoms.

Help is really a decade away at best, I don't get why people fall here to false optimism, I guess it has to do with how desperate we are and the fact that things are finally being worked on.

We get one life and mine has already been shattered before I even started my adult life. I refuse to be disabled like this for any longer. I'm tired of life passing by me and seeing everyone my age live a normal life, not being debilitated by hearing issues that apparently can be so severe if you work a miserable job couple of years at a café.

Joke of a life really.

I'm so sorry this is happening to you. Especially given that you are so very young.

Life is definitely not fair. Given that all your tests are normal, is it possible that you could have another cause for your tinnitus? Do you have allergies, ETD, TMJ, problems with your neck, or any medications you may have taken that have tinnitus as a side effect?

 

[roy1159]

I'm so sorry to hear this, you definitely don't need this on top of everything else.

Could you show your parents the news of Kent Taylor who committed suicide due to tinnitus? He was worth 600 million dollars and had a happy life, if severe tinnitus can do that to him maybe they would understand? The news had broad coverage so you might find them also in your home language, in case your parents don't understand English. If they understand English you could show them the video of Gaby Olthuis.

Maybe these cases would help them realise the severity of what we are facing.

At this point they don't even care about it. I'm a nuisance to them. Believe me I've tried explaining hundreds of times but they never really got how debilitating it can be. My sisters flat out said I'm faking it all and I lashed out at them. They all humiliate me that I'm a 'bum' and that everyone my age are doing something with their life... Like I'm choosing to do nothing with my life. What a joke.

They now made me leave the house even though I can barely walk.

I guess now I'm going to call a taxi to the city and find a nice building so I can finally have peace at last.

 

[roy1159]

I'm so sorry this is happening to you. Especially given that you are so very young.

Life is definitely not fair. Given that all your tests are normal, is it possible that you could have another cause for your tinnitus? Do you have allergies, ETD, TMJ, problems with your neck, or any medications you may have taken that have tinnitus as a side effect?

It's probably noise induced as I have unexplained severe hearing problems (with so called normal hearing). I have TMJ and ETD as well but they aren't connected.

 

[Zugzug]

It's probably noise induced as I have unexplained severe hearing problems (with so called normal hearing). I have TMJ and ETD as well but they aren't connected.

Hey @roy1159, just checking in.

I'm really sorry FX-322 was a let down. Hopefully we'll learn something from the severe trial, but I'm not going to get your hopes up.

I am curious if you have tried anything for the brain fog. I've recently considered replacing my coffee with Wellbutrin. If it worsens my hyperacusis, I would have to stop, but the SSRI plus an upper helps my frame of mind.

I'm really sorry that your family doesn't understand at all. There are definitely people that care about you and believe you.

 

[Chinmoku]

At this point they don't even care about it. I'm a nuisance to them. Believe me I've tried explaining hundreds of times but they never really got how debilitating it can be. My sisters flat out said I'm faking it all and I lashed out at them. They all humiliate me that I'm a 'bum' and that everyone my age are doing something with their life... Like I'm choosing to do nothing with my life. What a joke.

They now made me leave the house even though I can barely walk.

I guess now I'm going to call a taxi to the city and find a nice building so I can finally have peace at last.

I'm so sorry... my wife is the same and thinks it's purely a mental health problem of all things and that I should just snap out of it... she divorced me for that and destroyed the carefully planned future of our kids, so I get the feeling, I'll have to sell the house and probably rent somewhere. I feel too sick to even think of it.

Do you have a place to go? A friend or some other relative who is more understanding? Social services? I don't want to tell you what to do but it would really sadden me to see you go.

 

[FGG]

It's probably noise induced as I have unexplained severe hearing problems (with so called normal hearing). I have TMJ and ETD as well but they aren't connected.

Your TMJ and ETD could very well be connected to the severity of your tinnitus.

TMJ is highly linked to severe tinnitus:

Impact of Temporomandibular Joint Complaints on Tinnitus-Related Distress

 

[roy1159]

Hey @roy1159, just checking in.

I'm really sorry FX-322 was a let down. Hopefully we'll learn something from the severe trial, but I'm not going to get your hopes up.

I am curious if you have tried anything for the brain fog. I've recently considered replacing my coffee with Wellbutrin. If it worsens my hyperacusis, I would have to stop, but the SSRI plus an upper helps my frame of mind.

I'm really sorry that your family doesn't understand at all. There are definitely people that care about you and believe you.

Hi Zugzug. I really want to try another AD to address the brain fog. I will consult my GP about it. Does your brain fog exhibit memory problems? I very often forget what I have done 3 seconds ago. I'm actually meeting a Professor of Audiology (which is considered the best in the country regarding up to date clinical knowledge) in two weeks so this is my last chance of knowing what is going on with my hearing (more like auditory processing).

I'm so sorry... my wife is the same and thinks it's purely a mental health problem of all things and that I should just snap out of it... she divorced me for that and destroyed the carefully planned future of our kids, so I get the feeling, I'll have to sell the house and probably rent somewhere. I feel too sick to even think of it.

Do you have a place to go? A friend or some other relative who is more understanding? Social services? I don't want to tell you what to do but it would really sadden me to see you go.

It seems like it's worse for you.. i don't have people that depend on me. I feel for you.
I'm staying at a friend this weekend, i don't know what will i do after that

Your TMJ and ETD could very well be connected to the severity of your tinnitus.

TMJ is highly linked to severe tinnitus:

Impact of Temporomandibular Joint Complaints on Tinnitus-Related Distress

I truly hope in my case it has anything to do with the severity. Tmj surgery is a month away and it's the last thing i'm going to try before TRULY giving up.

 

[Zugzug]

Hi Zugzug. I really want to try another AD to address the brain fog. I will consult my GP about it. Does your brain fog exhibit memory problems? I very often forget what I have done 3 seconds ago. I'm actually meeting a Professor of Audiology (which is considered the best in the country regarding up to date clinical knowledge) in two weeks so this is my last chance of knowing what is going on with my hearing (more like auditory processing).

My brain fog is essentially a combination of two things. The one is that all sounds (even typing, clicking, writing with a pencil, flipping pages in a book etc.) give me strong emotional reactions (on top of being far louder in volume and causing reactive tinnitus). Hence, my "thinking rhythm" is really distracted. Since starting Lexapro, this problem has been much better. I can "kind of" think through small noises.

However, there's another form of it, and the Lexapro has made this worse, which is like low mental energy and focus. Drinking coffee does help this problem, but I still have pretty bad brain fog. I find that switching gears, in particular, is really difficult (this has always been the case for me, actually). So if I force myself to focus on something, eventually my brain gets sucked in and I can kind of focus on it. But it takes a while.

I wouldn't say I have like terrible memory problems, independent of focus. Like if I don't remember things, it's because I was never focused on the first place to potentiate it.

In some ways, my brain is oddly still sharp. I have solved a few research problems that branched off of my thesis so when alert, my brain still maintains some of my old talents. Focusing is the big thing.

I really hope you figure it out regarding the auditory processing problems. You're so young; I feel so bad for you. You seem like a pretty reasonable dude who was robbed of so much.

 

[roy1159]

My brain fog is essentially a combination of two things. The one is that all sounds (even typing, clicking, writing with a pencil, flipping pages in a book etc.) give me strong emotional reactions (on top of being far louder in volume and causing reactive tinnitus). Hence, my "thinking rhythm" is really distracted. Since starting Lexapro, this problem has been much better. I can "kind of" think through small noises.

However, there's another form of it, and the Lexapro has made this worse, which is like low mental energy and focus. Drinking coffee does help this problem, but I still have pretty bad brain fog. I find that switching gears, in particular, is really difficult (this has always been the case for me, actually). So if I force myself to focus on something, eventually my brain gets sucked in and I can kind of focus on it. But it takes a while.

I wouldn't say I have like terrible memory problems, independent of focus. Like if I don't remember things, it's because I was never focused on the first place to potentiate it.

In some ways, my brain is oddly still sharp. I have solved a few research problems that branched off of my thesis so when alert, my brain still maintains some of my old talents. Focusing is the big thing.

I really hope you figure it out regarding the auditory processing problems. You're so young; I feel so bad for you. You seem like a pretty reasonable dude who was robbed of so much.

I think I will try Lexapro once again. I do feel like i was robbed of normal life and health - I'm too young to deal with any of it, let alone too young to be disabled like this. I have made enough compromises in the last several years and to be honest I'm not going to compromise anymore, not for this shithole existence. I only have to try the jaw surgery and the Audiology Professor consultation. If it doesn't yield any results so I can return to normal life, I'm done with this existence for good.

I have already contacted Pegasos and made sure to get informed about the procedure. I have the money so this shouldn't be a problem, I just hope that there won't be a scenario where I apply and then get denied.

 

[RichieTheKid]

I think I will try Lexapro once again. I do feel like i was robbed of normal life and health - I'm too young to deal with any of it, let alone too young to be disabled like this. I have made enough compromises in the last several years and to be honest I'm not going to compromise anymore, not for this shithole existence. I only have to try the jaw surgery and the Audiology Professor consultation. If it doesn't yield any results so I can return to normal life, I'm done with this existence for good.

I have already contacted Pegasos and made sure to get informed about the procedure. I have the money so this shouldn't be a problem, I just hope that there won't be a scenario where I apply and then get denied.

Roy, have you tried something called Neurobion Forte? Before you make any decisions, try that for some days and see how you feel. It's an OTC pill and is just Vitamin B.

 

[roy1159]

Roy, have you tried something called Neurobion Forte? Before you make any decisions, try that for some days and see how you feel. It's an OTC pill and is just Vitamin B.

Believe me I have already tried the majority of the supplements, including Vitamin B.

I wish I could say any of them helped.

 

[PeteJ]

Anyone think Frequency Therapeutics or something like that will be worth any **** before you (I mean myself) off yourself within 5 years?

I think tinnitus volume is 100% relative to suicide desire.

 

[Chinmoku]

Anyone think Frequency Therapeutics or something like that will be worth any **** before you (I mean myself) off yourself within 5 years?

I think tinnitus volume is 100% relative to suicide desire.

This thread has a spreadsheet with all the incoming treatments. In 5 years we should get SPI-1005, which may help tinnitus from a number of point of views, then XEN-496, a new version of Retigabine (Retigabine lowered the tinnitus of forum members anecdotally but with horrible side effects), then possibly OTO-313, specifically for tinnitus. Not sure about FX-322, after the recent issues with Phase 2a things are not that clear, hopefully the ongoing Phase 1s give positive results.

Have a look at the spreadsheet for the big picture.

I was really hoping FX-322 would give good results on Phase 2a. I can't hang on 5 years with this condition.

 

[jay777]

We need a huge injection of cash to go towards tinnitus/hyperacusis research to help speed the process along.

The billionaire Kent Taylor just killed himself, he was the person we needed. Maybe I am selfish saying this.

 

[PeteJ]

This thread has a spreadsheet with all the incoming treatments. In 5 years we should get SPI-1005, which may help tinnitus from a number of point of views, then XEN-496, a new version of Retigabine (Retigabine lowered the tinnitus of forum members anecdotally but with horrible side effects), then possibly OTO-313, specifically for tinnitus. Not sure about FX-322, after the recent issues with Phase 2a things are not that clear, hopefully the ongoing Phase 1s give positive results.

Have a look at the spreadsheet for the big picture.

I was really hoping FX-322 would give good results on Phase 2a. I can't hang on 5 years with this condition.

Thanks. It depresses me so I don't follow it closely. I'll look at it. I'm already depressed enough. I hear you and feel the same.

Take care, Chinmoku.