Juliane

Juliane

Member
Messages
76
Reactions
3,692
Points
561
Joined
Last seen

Profile posts Latest activity Postings About

  • Juliane
    Anyone who has experience with taking thiamine (b1 vitamin) supplement?
    View previous comments…
    ZFire
    Yeah, I took it for about 3 weeks. It had no impact on my tinnitus.
    Tryn2BHopeful
    TBH no vitamin or supplement has helped me in with tinnitus volume, maybe made it worse until I stopped taking it. I wish there was a magic pill, but unless you are particularly deficient it may do nothing for you. Who knows though maybe it works for you.
    SilverFox
    @Juliane Vitamin B6 can be neurotoxic in very high doses. There are some reports even on this forum.
    Juliane
    I will not give up coffee. Tried it and became extremely depressed. Also does nothing for my T to avoid it. Must be an anti depressant
    BrOKeN_1
    I'm way to reliant on caffine to get me through the day. I imagine a world where if I quit drinking coffee the tinnitus would go away. But that's not logical. I quit for a while and it didn't seem to effect anything besides my energy level.
    RunningMan
    I went from 3 cups regular coffee 5 mornings per week to drinking it rarely. No change in tinnitus or sleep, not sure about depression or anxiety.
    Juliane
    2/2 to get some exercise will still be a good idea. Not feeling the least motivated right now...
    RunningMan
    If I exercise for an hour, like biking or jogging, it lowers anxiety and depression afterwards. But low intensity like walking is less effective for me. And it never carries over to the next morning.
    Juliane
    1/2 Trying to convince myself that although it will change nothing and T will still be there afterwards and probably forever and ever, going
    Juliane
    So happy that this forum exists. To the TT founders: you literally are life savers! Scared to think where I would be without
    Juliane
    Still as shocked that this is my new reality as I was 5 months ago.
    View previous comments…
    Tryn2BHopeful
    @Juliane yes by far the worst for me as well.
    SilverFox
    > I feel like I am stuck in some nightmare I cant get out of.
    Spot on. My feeling of time is blurred now, every day is the same nightmare that won't end.
    4Grace
    What everyone said above. 10 months in and I am exhausted. T much louder then when I began. Eyyyooouuucchhh
    Juliane
    4/4 performance. I wonder if all this in combination ramps up T... T, my old companion - please go away. You outstayed your welcome
    Juliane
    3/4 mental task on Thursday that exhausted me. Plus have not had energy to eat well / cook. Mostly takeaway. General worry about work
    kingsfan
    Easy meal when I can't be bothered to cook: Walmart has packaged chopped rotisserie chicken. That with baby spinach, chopped up pink lady apple, goat cheese, pistachios, and balsamic vinaigrette. You can add bacon too (but I'm not a fan) The perfect salad.
    Juliane
    Juliane
    2/4 emotional shocks in a very physical way. Poor sleep the following night. Feeling sad and vulnerable Wednesday. Tough physical and
    Juliane
    1/2 A lot has been happening this week and my T feels worse / more bothersome. On Tuesday a piece of information shocked me. I always feel
    Juliane
    Why even bother to try and cope when at any time it could all go haywire again. I can't do this nonsense.
    Juliane
    I no longer believe that everything happens for a reason. It all just random BS and I am just unfortunate. Makes this ordeal pointless
    Juliane
    2/2 from anyone. No hope. Thank you all for being there!! One day we will all find relief. We have to.
    Juliane
    1/2 On tough days like these I am so thankful for this amazing community. Without you guys there would be no compassion, no understanding
    Cmspgran
    Can relate to this so much right now.
    cjbhab
    If this site didn't exist I would be even more angry that I'm the only one with this crazy affliction.
    Juliane
    Have any of you tried getting fired? How did you cope? I am obsessing extremely over this fear :-(
    4Grace
    When I got T I began to break down at work. I had no choice but to take a leave. If I didn't I probably would have got fired at some point I think it's much better to keep working if you can so that your mind stays busy. I could not cope. I tried but failed. I feel your pain. Obviously don't try to get fired. Do your best to stay. If you can't I would take a sick leave if they will allow.
    Juliane
    @4Grace I am sorry but good that you went on sick leave. Necessary! I hope you were able to keep your job
    Juliane
    I was a highly functional person just months ago. Now I constantly worry about getting fired or worse. All because of the worsening of my T
    Juliane
    2/2 you're being overly pessimistic and others have it worse. Awesome support!!!
    View previous comments…
    Juliane
    They really don't. Not only are we struggling with these horrors, we are being seen as hypochondriacs. So unfair and I just can't accept it. I won't.
    tpj
    It would be nice if people could just listen to you and try to be understanding without the others have it worse comment.
    RunningMan
    Yeah, easily said by someone that isn't experiencing it or only has a mild typical case.
    Juliane
    1/2 Just received a dose of toxic positivity. Boy, nothing makes you feel better than being told you have no reason to be sad and that
    Juliane
    1/2 So tired of this BS and the impact it has on all areas of my life. Feels so pointless, stupid and unfair. I will never forgive those
    Juliane
    Mad spike after exercise. Wasn't even that intense :-( Went to the infrared sauna afterwards. Could that be it?
    View previous comments…
    4Grace
    Mine always spikes after exercise due to increase in blood flow. :(
    ErikaS
    @hopefuldede you describe your T changes how I tend to experience mine. With movement, after a walk,constant sound, increased heart rate, etc it becomes this awful high hiss that is reactive. As this calms down in quiet, the hiss is still there but then my other 3-4 crazy chaotic sounds come out. Its insane. How do so many get blessed with one T sound that can be ignored 90% of the time?
    H
    I am on holiday in Spain at the minute and have taken a week off running ( I usually run 6 days a week) I'll report back in the forum how I got on
    Juliane
    To me, T now seems to be the worst condition you can get. Is it really so, or do we always feel what we suffer from is the worst of all?
    View previous comments…
    MindOverMatter
    ....I adjusted my workload, lowered my stress levels, spent a lot of time in nature, and found soothing background noises that I, over time, could tolerate. Slowly I began to feel like I was drifting back to normal life again. At one point I was feeling like I was almost reborned since I had been struggling for quite some time.
    Theezy
    @MindOverMatter thanks for your response! That's helpful to hear your experience. I will try to apply some of this into my routine. I'm currently in a bad spike - feels like I'm always either just starting to get out of a spike or starting up a whole new cycle. Was the counseling tinnitus specific or general talk therapy?
    MindOverMatter
    @Theezy t/h specific, with an audiologist and cbt therapist.
    Juliane
    Find myself comparing my suffering to other people I know suffering from health issues to see who has got it worse. Not constructive, I know
    View previous comments…
    sakrt
    It's human @Juliane and a primary reason is because they are treated very differently in the medical world and public eye, often due to awareness. When celebrities "come out", it draws the public to suddenly be interested, motivated to be a part of too, Notice this also impacts monetary decisions w/ our gov't too? How many TV ads by the pharma industry about T/H have you seen?
    SarahMLFlemmer
    Juliane
    @sakrt That is spot on and I do feel I have an obligation to raise more awareness about T. It should be talked about a LOT more!
  • Loading…
  • Loading…
  • Loading…
Top Bottom
Back
Forums
Members
Donate
Menu