Pinhead

Pinhead

Member From USA
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  • Pinhead
    Went out with my girlfriend of 5 years to look for Halloween costumes. The noises of the heating systems were unbearable.
    GG_Ear
    Does ear protection help you?
    Pinhead
    @GG_Ear no. I've tried many kinds of earplugs. None work to block out the tones that are reactive. They're too pervasive and low in volume and tone.
    GG_Ear
    @Pinhead OK, so if you go out in public you don't wear any protection? I tried this and then I started getting pain. Ugh.
    Pinhead
    Time to try and sleep. The struggle for rest begins, so that I can wake up tomorrow and suffer through the day again. How many more years?
    BB23
    3 more. I believe we will be at the finish line in 3 years..
    SarahMLFlemmer
    I wonder the same thing everyday.
    4Grace
    I should have been more careful with sounds. Please protect your ears at all costs.
    Pinhead
    Standing here and running a hand through my hair sends a metallic sheen through my ears. That's how reactive it is.
    View previous comments…
    Pinhead
    @GG_Ear No. No clue at all. It's an absolute nightmare. I can't even be outside, really. Cars, fans, heaters, and air conditioners all make it unbearable.
    GG_Ear
    @Pinhead I'm similar. Stuck at home a lot. Do voices trigger your tinnitus? My neighbour's child cried really loudly getting out of their car, my window was open a little. His voice caused a piercing whistle in my ear. As soon as he stopped, my ear went back to normal....
    Pinhead
    @GG_Ear No, voices usually don't. It's mostly low, droning noises, like systems that are attempting to be 'quiet, like electric cars, fans, A/C, heaters, things like that. The worst I've found are box fans on the lowest setting.
    Pinhead
    I wish there was at least a way to work out again without it worsening. I miss lifting. Nearly five years of training for this result.
    Tryn2BHopeful
    I feel that... I lost 100lbs over the last year and a half.. was doing great at the gym... then got a massive kidney stone that resulted in 2 surgeries, gastritus from that, then they thought I had a heart issue which I did not and finally they prescribed anti-depressants which landed me with here with Tinnitus, havent been to the gym in 10 months...
    Tryn2BHopeful
    Its certainly hard to try to do something that might result in it sounding worse, but it should be a temporary spike I would imagine. I should take my own advice.
    SharonBell
    Can this be anyone with tinnitus? I have Cochlear sensorineural Tinnitus with hearing loss. My hairs are damaged. I have severe high frequency hearing loss in right ear and mild in left ear.
    Pinhead
    I'm sorry, I'm not sure what you mean by this comment on my profile.
    SarahMLFlemmer
    How do you know that your ear hair cells are damaged?
    GG_Ear
    How can one know if there hair cells are damaged? My hearing tests always come back 'normal'....yet I have tinnitus, sound distortion and hyperacusis?.... are hair cells damaged too in this case without hearing loss? I'm so confused haha
    Pinhead
    One of them was a "tick tick" kind of tapping in each ear. Never had that before but it made me panic.
    Pinhead
    Took magnesium before bed last night. Barely slept. Woke up twice to 2 different tones.
    Cmspgran
    How you getting on, mate? Been thinking of you and your struggle as a fellow reactive-t sufferer.
    Pinhead
    Tried to keep myself busy today by helping a friend move. It's hard to get through each day. I miss that the most I think: control. Not needing to worry about what sounds will make my head scream.
    Pinhead
    Hard to believe I've lost 17 pounds in the last year. Can't bring myself to eat. Used to follow a healthy diet.
    S
    Same here with the weight loss. It's fallen off and clothes don't fit. Thinking of you, friend.
    SarahMLFlemmer
    I lost 18 when I first got T but then gained it all back. And then some.
    Pinhead
    Just got really, really dizzy. Tinnitus is the worst it's ever been. What's happening to me?
    SilverFox
    Dizziness accompanied by tinnitus may be a symptom of Meniere's disease.
    Pinhead
    I think I may have it. It's 6:30 am here and I was just woken up by a new tone. I think I am soon to be fully disabled.
    SilverFox
    In case of Meniere's disease, betahistine is often used to manage symptoms. You could consult your doctor about this.
    Pinhead
    Just reading about how tinnitus could be the sensible result of system entropy within the brain. We're all small pieces of a dying cosmos.
    Tryn2BHopeful
    @Pinhead I prolly clicked every fricken link in my Google search result when I got T. You know what I accomplished... Nothing except finding this forum. I got myself more upset, more worried, and more depressed and stressed then ever. I ultimately dont know if it made the situation worse, but it certainly didnt help. Just sayin...
    Pinhead
    @Tryn2BHopeful After three tiring, grueling, straining years of this I can only accept that it will get worse, and that I will most likely be housebound or end my own life.
    Tryn2BHopeful
    I can appreciate that. I hope things get better for you.
    Pinhead
    Magnesium relaxes me, but creates new tones in my ears that subside when the magnesium leaves my system. I can't catch a break.
    kingsfan
    What type of magnesium are you taking? Certain kinds affects my tinnitus and others don't. Maybe try some other forms. L-threonate seems to get along with mine.
    Pinhead
    @kingsfan Currently taking bisglycinate. I think I've tried L-Threonate, but don't really remember if it had the tones or not. I'll go back to that.
    Tryn2BHopeful
    @Pinhead I get worse T with Glycinate, I didnt try any others.
    Pinhead
    I always wonder how many long-time active users that are no longer posting have ended things.
    View previous comments…
    Utdmad89
    @ajc i have every right to be here as much as you do. Once again you don't know me or the suffering i live with. And you contradict yourself i thought you want people who got better or habituated back to tell their tale?
    Utdmad89
    @ajc There have been plenty of people posting on here who haven't told people they will all get better or that anyone can do what they do. People who have been talking about taking their lives people with small children people who had been suffering who then say they are doing a bit better, get oh you're only doing better because your mild and that you should of expected that.
    gameover
    I am with @Jupiterman. I also do not believe that people would be that selfish, not after such trauma. Therefore I think many are gone from this world, at least severe cases.
    Pinhead
    Now, I distract myself with videos and random mindless things. Why did I study philosophy again? Why did I travel? An entire life, lost.
    Pinhead
    The hardest part of this is hearing loved ones speak about how you're "going through" this and telling them that there is no "through".
    Pinhead
    "Unbearable, isn't it? The suffering of strangers, the agony of friends."
    T
    "Oh come, you can hear its faint echo right now. I'm here to turn up the volume."
    D
    Perhaps try something holistic. If you have a loved one to give you a head and temple massage, that will help. If you can afford to pay for one, then givevit a try. Saunas and steam baths, anything that can relax you. If your capable of exercising then do thus till exaustion. Good luck , prraying for you
    Pinhead
    Thanks. I was a routine gym-goer up until three weeks ago when I walked into the gym lobby and was gifted a new tone. Now the lobby is an area of trauma for me.
    Pinhead
    Are there any anxiety or depression medications that are assuredly safe for tinnitus sufferers? The doctors haven't answered me.
    Tryn2BHopeful
    Honestly not really. There are some that are "Better" than others but almost all of them have a disclaimer for Tinnitus on them.. I take Mirtazapine for sleep so far nothing has changed that I am aware of. Escitalopram was a no go for me obviously (I believe it caused my T), but it works fine for others. Wish I had a better answer for you.
    RunningMan
    It seems the SSRIs and SSNRs have the most incidence of tinnitus. TCAs are apparently safer in that regard. I never had an issue with Nortriptyline affecting tinnitus. There's Wellbutrin (bupropion), which can cause it. Buspirone (BuSpar) can cause it. Mirtazapine and Trazodone seem to have lower likelihood of causing tinnitus, but there's no guarantee with any of them.
    Pinhead
    Another day trying off to act like I'm normal. I can't keep this up. The other shoe will drop soon.
    Tryn2BHopeful
    I can commiserate with you. Expected to act like nothing is wrong for my kids, at work, with family. Inside your screaming..
    SarahMLFlemmer
    @Pinhead I wish I had more to say than "hang in there."
    Pinhead
    Was just awoken by a tone of about 3000KhZ in the middle of the night. Really, really loud. It lasted about 5 minutes. Both ears screaming.
    4Grace
    @Pinhead - I am sorry to hear this. You are not alone. Hope things get better for all of us.
    Pinhead
    Trying to sit in quiet and the sounds of the cars two blocks away are making each ear 'squeak' at different times and levels. :(
    Pinhead
    The sound of the laptop fan at work, the cars driving by outside, and the central air system are making it impossible to be here. Help!
    MindOverMatter
    Sounds familiar @Pinhead as I've been there. It got gradually better with rest at first, then getting in soothing, natural noises - combined with counselling/CBT. If there is an audiologist you could make an appointment with, that works with h and t, I'd looked into that option asap.
    Tryn2BHopeful
    I had the same the first couple of months. It got better as long as I didn't over protect. Loud fans and road noise still bug me but not like they did.
    Pinhead
    @Tryn2BHopeful its migrated to my other ear. For the past three years it was only in one and I avoided forums like this one.
    Pinhead
    Do we have any idea as to what causes the temporary tapering tinnitus incidents? I get about two a day and each one makes me panic.
    Tryn2BHopeful
    Fleeting Tinnitus, happens to me here and there... last 30 seconds or so and stops... no idea why
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