Pinhead
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  • I've been asked to go on a work trip. It will be a 4-hour car ride. I don't think my ears can handle that. I might get fired.
    Jammer
    Ask for accommodation via the ADA. It may prevent you getting fired.
    Juliane
    Just say you can't go. I do that all the time.
    Juliane
    I told my employer I will not be able to travel for work again ever.
    Lies I now know I've been told my entire life: "everything ends", "all things pass", "this too shall pass", "you'll get through it".
    Juliane
    Yep. While this may apply to most things in life, it does not apply to tinnitus and other real life challenges.
    I don't think there is any 'recovering' from this. I've just given up the idea of ever living the life I would like to. That was easier.
    HearingHell
    You have any hope for Shore helping you?
    Pinhead
    @HearingHell I have no idea when it will be released and available to me specifically. I can't place hope in that. That's not realistic.
    BB23
    We will get better via susan shore or XEN1101, just hang in there a while longer.
    Tried to do some squats since I haven't been physically active in nearly two months. Woof, what a mistake. Spike that hasn't gone down.
    Juliane
    Hopefully it will be temporary! Going through a horrible spike myself. Don't know why but guessing emotional trauma
    Take a moment to remember those that we've lost this past year to this inhumane, torturous disease. I hope that we all find peace.
    Did that three times, a bit slower. Each time, it became louder as I bent down and lessened when I came back up. I can't even exercise.
    Tryn2BHopeful
    I wonder if its somehow related to blood flow. My T does get a little louder when I exercise, it subsides shortly after I stop. Of course my T is variable all day long it seems so who knows.
    4Grace
    Same. Has to be blood flow. Exercises makes my T so much worse. I loved to push my self. You pick yourself up to do yoga which is awesome. Only to be punished. That's what sucks so bad.
    kingsfan
    my T also becomes louder when I bend over
    New discovery: Tried doing a bit of yoga. Bent over to touch my toes, and my right ear began to SCREAM. Repeated it and it happened again.
    It seems everyone's T is very different. I too don't really have good days. Mine is super reactive and getting worse. I have calmed my anxiety to a large degree but my dreams are shattered. I still do things that I shouldn't. I want to participate in life so bad but I cannot. Nobody understands. It's hard. I relate to a lot that you say.
    Strange new reactive tone on my way to the gym. Sounds like a Tibetan singing bowl over each noise.
    Differing reactivity in each ear is really bad today. Passing cars make each ear whine at a different pitch, different loudness, times
    Do people really have 'good' days and 'bad' days? I can't recall having a 'good' day with my noise since it started. It doesn't lessen.
    kingsfan
    my good days are when I don't have the electrical hiss that pulsates and circles my head. then I just have to deal with the incredibly loud static and 4-6kHz pure tones, which I'm pretty used to by now.
    Tryn2BHopeful
    @MindOverMatter I hope to get to that level of peace with this condition some day. Right now I want to jump off a bridge.. I dont know how I get through every day but I do.
    Pinhead
    Thanks for the replies, everyone. What a mystery our suffering is. I hope we all find peace. Each day brings that chance.
    Pain in my right ear. The onset of noxacusis? An ear infection? Who knows. This nightmare worsens, day to day.
    Wow...sitting at my desk at work, and my left ear just got a new, super-loud reactive tone.. unbelievable. Can't live like this.
    I used to enjoy Pink Floyd. Tried listening to them- the ringing is louder than most of their work.
    I miss music. I miss putting on headphones and losing myself in what I was doing. I miss enjoying my days doing what I loved.
    Tryn2BHopeful
    Same, I miss simply enjoying things with my kids. I dont know if I will ever get to using headphones again, I would be happy with just being happy.
    Juliane
    I miss that like crazy!
    Pinhead
    It really sucks. Everything is just a distraction now. I've spent three years distracting myself. It's so hard to explain that to others.
    First day of my new job. Walked into the bathroom and my left ear went quiet, and then 'EEEEEE'. Tried my best not to freak out. It passed.
    Tryn2BHopeful
    Sounds like a bit of fleeting tinnitus. I get that from time to time and it freaks me out but it always passes. Good luck with your new job!
    Went to a Halloween party last night with ear protection. Even so, I'll be paying for that for the rest of my life. Already have new tones.
    For some reason the reactivity has worsened in my right ear. Now it's a constant fluctuating metallic sheen over most noise.
    4Grace
    I feel your pain. So sorry. If you can give it time and protect you should have a chance. Please protect your ears.
    Not sure how many days I can take of not being able to walk down the street without being tortured. This is unreal.
    It's hell to see my partner bear the weight of this with me. To see them cry and hurt, to know they could be free without me.
    MindOverMatter
    For better or worse, in sickness and health, for richer or poorer @Pinhead I understand where you come from, but try not to be so hard on yourself.
    Went out with my girlfriend of 5 years to look for Halloween costumes. The noises of the heating systems were unbearable.
    GG_Ear
    Does ear protection help you?
    Pinhead
    @GG_Ear no. I've tried many kinds of earplugs. None work to block out the tones that are reactive. They're too pervasive and low in volume and tone.
    GG_Ear
    @Pinhead OK, so if you go out in public you don't wear any protection? I tried this and then I started getting pain. Ugh.
    Time to try and sleep. The struggle for rest begins, so that I can wake up tomorrow and suffer through the day again. How many more years?
    BB23
    3 more. I believe we will be at the finish line in 3 years..
    SarahMLFlemmer
    I wonder the same thing everyday.
    4Grace
    I should have been more careful with sounds. Please protect your ears at all costs.
    Standing here and running a hand through my hair sends a metallic sheen through my ears. That's how reactive it is.
    Pinhead
    @GG_Ear No. No clue at all. It's an absolute nightmare. I can't even be outside, really. Cars, fans, heaters, and air conditioners all make it unbearable.
    GG_Ear
    @Pinhead I'm similar. Stuck at home a lot. Do voices trigger your tinnitus? My neighbour's child cried really loudly getting out of their car, my window was open a little. His voice caused a piercing whistle in my ear. As soon as he stopped, my ear went back to normal....
    Pinhead
    @GG_Ear No, voices usually don't. It's mostly low, droning noises, like systems that are attempting to be 'quiet, like electric cars, fans, A/C, heaters, things like that. The worst I've found are box fans on the lowest setting.
    I wish there was at least a way to work out again without it worsening. I miss lifting. Nearly five years of training for this result.
    Tryn2BHopeful
    I feel that... I lost 100lbs over the last year and a half.. was doing great at the gym... then got a massive kidney stone that resulted in 2 surgeries, gastritus from that, then they thought I had a heart issue which I did not and finally they prescribed anti-depressants which landed me with here with Tinnitus, havent been to the gym in 10 months...
    Tryn2BHopeful
    Its certainly hard to try to do something that might result in it sounding worse, but it should be a temporary spike I would imagine. I should take my own advice.
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