Juliane
Reactions
3,739

Joined
Last seen

Profile posts Latest activity Postings About

  • "There is a higher prevalence of tinnitus in individuals with post-traumatic stress disorder than in those working in noisy environments"
    GG_Ear
    This is very interesting. I definitely have had longterm stressful and anxious experiences in life.
    4/4 depressed. I simply don't know what to do. Not working is not an option long term and I am not wealthy
    4Grace
    So sorry you/we are going through this hell. Just keep hope that some day things will get better.
    3/4 unemployment be any better? I was on sick leave years ago due to T and I have no idea if it made me better, but it def made me more
    Jupiterman
    It depends on the amount of noise at work.

    Is your work noisy?

    Some people have no choice and can't work because their tinnitus is so severe.

    You should take some comfort in that you are able to work.
    Juliane
    @Jupiterman I would not call it noisy but online meetings and work obligations such as conferences and travelling make my tinnitus worse. I simply cannot do these things anymore. But online meetings are difficult to avoid...
    Juliane
    Yes I do take comfort in the fact that I am able to work still, believe me. But with that comes the fear that things can always get worse with a condition like T..
    2/4 Working too much makes me worse. It really is a balance. But if my friend is right and I should not be working, will sick leave or
    1/4 My good friend keeps telling me I should not be working at all with this level of T torture. But working a bit has a positive impact
    4Grace
    We just need to be careful. Not working can cause addition anxiety, stress and depression which is not good for T. We have to choose our hard. However, I so understand your situation.
    I hope relatives are there to welcome us when we pass.... I miss my grandmother so much and hope that she will be there to meet me
    I don't believe at all that we are in charge of our own happiness. Chaos rules this world and we have no control
    Today I am more scared than I have been in a really long time. It is dawning on me that this might never improve and could ultimately end me
    SarahMLFlemmer
    Serenity prayer.
    Juliane
    @tpj I appreciate your kind words and I probably should not say this, but I don't believe any treatment will come for T. It is just not being prioritized
    tpj
    I understand your pessimism @Juliane, believe me I do. I know T isn't a priority but things are happening despite being agonisingly slow. Patience, that's what I keep reminding myself.
    I asked my employer to go part-time and they accepted. T now in the driver's seat. Cannot work full time with this condition.
    Cmspgran
    Mine hasn't improved and almost feels worse if anything from 4 months ago, does yours react in real time as in reacts to sound continuously? Reading your status breaks my heart as I can relate to it all so much. Please hang in there for better days!
    Tryn2BHopeful
    It reacts real time.
    4Grace
    @Juliane I am so extremely lucky to be able to do it. Thank you for your kind words.
    Of course it would be a challenge to communicate but look, we are doing it here on TT just fine without sound.
    Thanks again for your support reg my therapist. Can't believe I'm paying to be gaslighted! Feel so stupid. Guess I need to ditch him
    crescentsky
    sigh these therapists honestly have no idea.my reg therapist had to google what tinnitus was lol. i stopped going. felt like it was a waste of money.
    Juliane
    4Grace
    I have seen a few. Only one helped. He was good because he also suffered. Tried to take his own life 3 times. He had seen more then one can imagine. Stayed in a bed for 2 years due to depression. They are now living a normal
    life again. I had some good sessions. Everything is possible
    2/2 The more I think about it, the more I feel I am wasting my time and money there
    L along the way
    I feel like many therapists don't really understand how this condition actually feels like.. to find a good therapist is a something
    1/2 My therapist said I was wrong to think my ears are more sensitive than healthy ears (!) That I could tolerate the same sound levels
    BrOKeN_1
    @AnthonyMcDonald is correct. It's damn near impossible to find a good therapist that can help navigate tinnitus. And you don't need gaslite along the way. I hope you can find someone more suited to your needs. God bless!
    Juliane
    Thanks a lot guys! The sad thing is that he promotes himself as very knowledgeable on tinnitus. I got my hopes up and this is just very disappointing. His "advice" is dangerous :-(
    gameover
    Hubbard is the same gaslighter! Do not waste money on him.
    I cannot live like this
    L along the way
    I feel you... every day I go through the same thing.. it's absolutely ridiculous.. i use benzos for sleep which help, and kratom also. But I'm not advocating these things, it may lead to addiction. But for me it helps for now.
    L along the way
    I try to live healthy lifestyle, switched to plant based diet, quit smoking and alcohol. The other things I use to just get a good nights rest. I tell myself every day, that one day things may get better, because the body is strong, and it may heal with time... the idea to have to have this for my whole life is hard to take.. I try to keep faith in slow recovery. Wishing you well too
    SarahMLFlemmer
    Oh Juliane. ;(
    Waiting for my boyfriend to have enough of this and dump me. Then I can focus on how to get out of this
    Cancelling all plans and trying to accept that I will be an outcast from now on. No one cares anyway
    2/2 and stupid SOUND breaks my heart before the day has even begun. I will never find peace of mind and Joy again
    1/2 Another morning of waking up to this BS reality. I know I should be happy I managed to sleep and I am. But waking up to this horrrific
    Had two cups of coffee today because I needed energy to complete a task. When do I learn.. need to replace with decaf or tea
    I'd rather be a vampire than this. More perks.
    BB23
    I'd rather lose an eye, both my legs, one arm heck both arms maybe than this.
    Sometimes I wonder if I am already dead. Because this must be what it feels like to be a ghost
    Juliane
    How long for you?
    J
    Had tinnitus since I was a child. I have had hyperacusis plus reactive tinnitus since August 7th from a concert. Tahn it has was worsened by and ear infection plus covid and a few other stupid mistakes I made.
    Juliane
    @JohnthanDel45 It is such a heavy cross to bear:-( I would so wish I could choose another cross. But we can't. Hope your reactivity fades as well as your T volume and hyperacusis
  • Loading…
  • Loading…
  • Loading…