BellaMia

BellaMia

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  • BellaMia
    Hello everyone 👋 I'm back with an update. My T is still there and spikes have become less and less. I am living life more normally despite this noise..it's still annoying most days but I'm pushing through. Reactivity is wayyyyy down but still there....nothing like it was though. Hyperacusis is about 95% gone. I'm just reaching 2 years into this.
    View previous comments…
    Tryn2BHopeful
    Went to my daughter's xmas orchestra concert. Seemed fine at the time not to loud. Few days later increased T loudness, sensitivity, and distortions. Been terrible since. Rarely have a ok day now.
    Stayinghopeful
    Love that you've seen improvments and long may that continue!
    henkess
    95% gone is real good =)
    ellees
    hello! just wondering how you're doing now? have you taken any other medication or vaccines since getting T? how did it go? thanks!
    BellaMia
    Hello and how are you? I've been doing a lot better. I went from catastrophic T with Hyperacusis to almost no hyperacusis and mild to moderate T. I have taken medications since with no set backs. As far as vaccines I have stayed away from them and don't plan on getting any.
    ellees
    good to hear! what medications have you used? or are currently using?
    BellaMia
    I've used antibiotics, Tylenol, anti anxiety (Ativan) but very rarely, Advil, cold medicine. That's all I can think of.
    R
    Bella how are you doing?
    BellaMia
    Hello! I am doing well. My T has been a lot more stable after about 2 years and less intrusive. I'm able to function a lot more normally and my hyperacusis is almost non-existent. How are you?
    BellaMia
    Sorry to report that after almost 2 years my Tinnitus has spiked up to severe levels again. I am struggling and scared.
    View previous comments…
    SamRosemary
    Dealing with this right now too! I had a flu or something, so I'm hoping that's why and that it's just a spike.
    RunningMan
    I hope it keeps improving and that you're back to your baseline very soon. Mine seems like it's gotten worse as the day has gone on today, but it's just part of my usual variable cycle.
    Stayinghopeful
    im very sorry to hear this ;(
    BellaMia
    17 months in and doing okay. Keep positive, stay positive. ❤️
    Lurius
    <3
    Bob3382
    I'm at 5-6 months and my bad days still far outweigh the good. I hope one day to be as positive as you.
    BellaMia
    @Bob3382 You'll get there. Mine didn't start getting easier until 6 months.
    BellaMia
    Has anyone ever seen a Neurotologist yet?
    View previous comments…
    BellaMia
    @RunningMan I want to do more research but what they specialize in could (possibly) be a benefit with the recent finding of this malformation I was apparently born with. This malformation can also cause Tinnitus but ultimately it was probably that medication. They're hard to find though. I bet U of M has 1. Have you have an MRI?
    RunningMan
    I haven't had an MRI. ENT didn't mention it on my visit to him, and I didn't go back after my hearing test showed mild to moderate hearing loss both ears. Although I do have a separate tinnitus issue with my left ear which is low frequency T, and can hear my footsteps bone conduction through my left ear if I don't keep my head up when walking. So something is different with that ear.
    Pinhead
    I did. He was a total idiot even though he was at one of the best hospitals on the East Coast. He said "How can your auditory nerve be damaged if it's encased in bone? That's ridiculous."
    Zigs
    Hey, I read your posts about treating hyperacusis and pain by reintroducing noise slowly. How did you manage around your daughter during that time? My toddler is so loud I feel that even earplugs aren't enough!
    View previous comments…
    BellaMia
    @Zigs I received my advice and therapy plan from the University of Michigan and had a hyperacusis test. Took around 9 months to get back to almost normal. Some noises can cause spikes but no longer painful. I don't live wearing earplugs anymore.
    Zigs
    @BellaMia thank you, I really needed to read this today x
    Utdmad89
    @Zigs be extremely carful with this advice. if you actually have nox this advice could be harmful.
    BellaMia
    Vacation went fine. No issues on the airplane. A little discomfort when landing but overall fine. Back to the daily grind.
    BellaMia
    I hope everyone had a wonderful and safe 4th of July! I spent it cleaning and lighting sparklers with my daughter.
    View previous comments…
    BellaMia
    @gameover Yeah they celebrate it for months here in Detroit.
    RunningMan
    They were mostly concentrated on the 4th in my neighborhood and stopped around 10 PM, so it worked out ok. I had to deal with some fireworks explosions when out walking on the 3rd and 4th and fortunately was wearing ear protection on the 4th for a loud explosion.
    BellaMia
    @RunningMan That was a good call! You just never know what is gonna happen around this time.
    ellees
    do you also experience ear fullness and ear tingling in the ear canal and outside the ear canal?
    BellaMia
    @ellees I had ear fullness, pain and loudness. I make ginger/tumeric tea to make that go away. I had symptoms of TTTS for awhile but that went away. Try making that tea . It sounds like inflammation. Are you new to T?
    BellaMia
    About 14/15 months in and it has improved but also can struggle some days. Keep pushing forward.
    View previous comments…
    BellaMia
    @RunningMan Thank you my dear friend. We leave in 4 days and while I'm super nervous to go with just my daughter now and the airplane... I'm going to put on my brave face and do it. Wish me luck! I will report back. How have you been?
    RunningMan
    @BellaMia Yes, definitely wish you luck with it. I can't see myself flying anywhere, these days, but I have my decent days and bad days, so not much of a change in my status.
    BellaMia
    @RunningMan Like my mom always said "we can't live in fear" I'm going to take every precaution that I can. I have 5 hours on this flight and hope for the best. I've talked to lots of T suffers including my brother and all was fine. Hopefully we hear an update on that shore device.
    BB23
    I'd like to ask you a question. Is your vision still ok after taking the antidepressant? Some people got visual snow syndrome along with tinnitus after taking antidepressants, you have no photophobia, afterimages and other visual stuff, right?
    View previous comments…
    RunningMan
    It's actually an anxiolytic - anti-anxiety medication rather than an antidepressant. But yes, it has been associated with T. I'll add that I have taken a few different actual ADs in the past and didn't get VSS. I would like to try the anti-anxiety med buspirone, but when I asked my doctor about it, he said I couldn't take it with lorazepam that was already prescribed, although I rarely take that.
    BellaMia
    @BB23 I barely took any of the medicine. I'd split the lowest dose in half and no it had zero effect on my eyes. I still have perfect hearing even with extended testing.
    BB23
    @BellaMia i don't think hearing loss is necessary for tinnitus anymore. There's a subtype that happens due to hearing loss but not all cases are related to hearing loss imo.
    SharonBell
    @BellaMia what kind of therapy did you do with your hyperacusis. My T is still bad 24/7 I'm dealing with it better, but it is still hard every day, it's still debilitating, but I have to keep pushing everyday for my family and I have started back working and that's also very hard, but it helps not to be home by myself all the time that was driving me crazy.
    BellaMia
    I work a ton so I get it. It helps to stay busy. I went through the University of Michigan for hyperacusis therapy. I had both pain and loudness hyperacusis. I slowly started to introduce sounds that bothered me. Like dishes clanking together. I'd put the dishes away and listen to the noise. Slow and safe exposure on a daily basis will help with hyperacusis.
    BellaMia
    It will hurt at times but as long as the sound is safe keep pushing through the discomfort. I no longer have pain or discomfort from hyperacusis. It took a few months for it to settle. You just have to retrain your brain that noise isn't harmful. Listen to sounds on low with YouTube videos 5 mins a day and go up from there. I made homemade ginger and tumeric tea to treat the pain and discomfort.
    BellaMia
    Does anyone have a rumble in their ear when you touch your cheek bone? I'm wondering if it's inflammation or nerve damage? No TTTS
    View previous comments…
    cjbhab
    @BellaMia It does not come and go. it is always there. I have not been diagnosed with anything. Doctor could not figure it out. My audiogram is basically normal.


    agree with @MindOverMatter about ttts though. i have also had multiple bouts that have resolved but i can always make my ear rumble by touching my neck.
    RunningMan
    I get those occasional TTTS thumps from touching face, neck, head. And other times, they will thump every little bit lying or sitting completely still, sometimes set off by an initial movement. I get the continued fluttering TTTS from external sounds, also intermittently. To this point, it doesn't appear to have any connection with my anxiety level.
    BellaMia
    @MindOverMatter You put a triangle cone in your ear and their specialized machine sends out certain sound waves. The cone detects how your little tensor tympani muscle responds to it. It sends the information back to the machine to see if working correctly.
    BellaMia
    My muscles are so sore from bootcamp I can barely bend my arms. No pain, No gain! Haha Hope you all are doing great. ❤️
    4Grace
    You are truly incredible.
    BellaMia
    That's very sweet of you to say. You are too!
    Stayinghopeful
    Hi Bella, I just wanted to say I hope life's giving you some small wins and things are improving
    BellaMia
    Hey, life is going okay. I recently joined a gym and am doing bootcamp to get fit and toned. I'm just working on myself and my health while picking up hours at work. I'm figuring this new life out and think I'll be just fine. Thank you for checking in. How have you been? Any summer plans?
    Stayinghopeful
    That's great to hear about the gym and working on yourself. I also love the positive attitude! Here in Aus we are oppsite to you, so we are approaching winter. My plans for that are to set up a nice fire pit in the back yard, stay warm and make plenty of stews and soups!
    BellaMia
    Happy end of the world day. Come onnnnn Jesus! Haha
    RunningMan
    I thought it was just esclipse day. hehe I don't think we are lucky enough for it to all end, yet.
    BellaMia
    Here comes the lovely spike from hell. I'd like to thank caffeine (probably) and emotions!
    View previous comments…
    4Grace
    @Anomalous - me too. Can't eat anything good. Bellamia - you have something about you. You will be okay with time. Just have that feeling.
    BellaMia
    @4Grace You'll be okay too. Keep your head up. ❤️ @Anomalous Life is too short. Eat the chocolate. Lol
    RunningMan
    I used to have 3 cups of caffeine coffee every weekday morning, and it never affected my tinnitus as best I could tell, but I avoid it now, because it just worsens my stomach pains.
    BellaMia
    Never pictured myself to be single & starting over at 39 & turning 40 by myself. That's kind of depressing. Wonder if I have a soulmate?
    View previous comments…
    Jammer
    My son is 42 and on his second failing marriage because he didn't teach his wife's how to treat him early in their marriage; he has no spine against their constant bitching. Setting limits and demanding respect eludes him. I'm sure another woman will pick him when his 2nd divorce is finalized; another woman looking for 'a man with a paycheck'.
    BellaMia
    Unfortunately I just want him. Maybe in time it will get easier. Thanks @RunningMan my heart breaks all over again seeing him. The reality of not having what I wanted for the rest of my life is hard. I can't see past the storm right now. Maybe one day I will.
    Andrei88
    You will get past that person you wanted. been there. took just over 2 years to get over it all. There is someone for you out there, dont worry about it.
    BellaMia
    Moving on w/life the best I can. Going to work on myself & health during this time of transition. I contacted a personal trainer.
    R
    This is great!
    Stayinghopeful
    Good to hear, do you have any old hobbies you can pick up to start doing to?
    BellaMia
    @Stayinghopeful I do have a few. Right now I'm just repairing and repainting my house so it looks like new again. Then the gym because why not make myself feel good and look good. I don't like sitting around especially now with Tinnitus lol
    BellaMia
    Feeling kind of sad. I hate grief and I hate Tinnitus. I wish this life would hurry up. I'm over it.
    View previous comments…
    BellaMia
    @RunningMan I haven't used it yet. I just tried it out the 1st day I got it and it's pretty cool. I should test it out at night. It seems a lot of my stress from this condition comes from the middle of the night and early morning when waking. I just don't have the tolerance for the noise at those hours.
    BellaMia
    @RunningMan Maybe if I ever date again the Bluetooth headset would come in handy so I don't disturb the other person when sleeping with my weird Tinnitus soundtrack haha
    RunningMan
    Possibly. I got mine before I got my bluetooth speakers, which I use overnight now. Anxiety usually starts hitting me shortly after waking up while still in bed, but not right away.
    L
    It isn't the actual alcohol that spikes T , what spikes the T is the higher blood pressure that is caused by drinking . People who frequently drink will have higher blood pressure than people who seldomly drink or don't drink at all
    Utdmad89
    So if you have hypertension it could be making things worse i guess?
    Juliane
    Could it not also be related to GABA dysregulation? Alcohol works on those receptors
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